Hello to all of you. I am joining this group because my 32 year old
daughetr has APECED, APS 1, and I feel it is important to share
information and support to those faced with APS1 on a daily basis.
This group should be active and world wide because there are so few
of us and we need all the help we can get. For most of my
daughter's life we didn't even know about APECED and things kept
happenning and were dealt with on an individual basis without the
whole picture in mind. To all of you out there, tell everyone you
know who is also dealing with APECED about this forum so we can
learn and support one another during the difficult times.
I look forward to your feedback.
Best wishes,
Linda