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New to the group - anyone in the US?   Message List  
Reply | Forward Message #27 of 593 |
Re: [apeced] Re: New to the group - anyone in the US?

Hi Vikki,
 
Thanks for the information and encouragement.  Please send my encouragement to your son. I know how hard college can be when your health is not cooperating.  I'm glad to be moving on the next phase of life but will never forget the struggles and tears, but also the sense of accomplishment at the end.
 
I am from Columbus Ohio.  I see an outstanding endocrinologist at The Ohio State University Medical Center.  She picked up my care when I switched from my peds endo.  She is a young teaching doctor so she is more on top of things than my last endo.
 
Do the doctors know why your son has cataracts?  I'm curious becuase I developed cataracts at age 5 due to calcium deficiency from undiagnosed HPTH.  At least the promising thing is that cataract surgery has come a long way and doctors can now remove the cataract and lens if needed and also do an artificial lens implant. 
 
Keep in touch as well.  Let me know if I can offer any information
 
Julia


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Wed Nov 1, 2006 8:31 pm

juliap99
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Message #27 of 593 |
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HI all, I'm new to the group - a veteran of APS I though as some others I've seen on here. I am 26 and have had this for 23-24 years. I was diagnosed late...
juliap99
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Nov 1, 2006
7:45 pm

... Welcome to the group! My 24 yr old son has APS and we live in Houston. His started with inflamation of the corneas at age 4, then chronic yeast infection...
vrobson1
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Nov 1, 2006
8:18 pm

Hi Vikki, Thanks for the information and encouragement. Please send my encouragement to your son. I know how hard college can be when your health is not...
Julia Peterson
juliap99
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Nov 1, 2006
8:32 pm

... Thanks, I will give my son your message. Congratulations on finishing college. I hope things go well for you. My son sees an endo here at Baylor College of...
vrobson1
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Nov 1, 2006
9:54 pm

HI Vicki, We struggled with the prednisone dosage for a while - first it was when, and then it was how much. I eventually have come to what I consider the...
Julia Peterson
juliap99
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Nov 2, 2006
5:32 pm

Hi Julia, My son is currently on the same dosage as you are, 5mg in the am, and 2.5mg at dinner. It was increased to this dosage about a year ago. He still...
Vicki Robson
vrobson1
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Nov 2, 2006
7:56 pm

... Welcome to the group! My 24 yr old son has APS and we live in Houston. His started with inflamation of the cornea at age 4, then chronic yeast infection of...
vrobson1
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Nov 1, 2006
8:18 pm

Hi Julia, i also was wondering where apeced came from in my family i thought it came from iran or finland but i have since discovered that it may orginate from...
kathy
kateee5j
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Nov 1, 2006
10:09 pm
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