Welcome to our message board. We will all try to help because we all
know how difficult it is having a young child with APS 1. First of
all where in the US do you live because maybe one of us from the US
is in your area? Second how are things going and what kinds of help
do you need? Third there is also another web site where you can
directly ask Dr. Maclaren, a well respected endocrinologist who has
conducted much research in APS 1, questions. This is the link:
http://www.apstype1.org/
Best wishes,
Linda
--- In apeced@yahoogroups.com, "ethanbaggett02" <ethanbaggett02@...>
wrote:
>
> I am new to all of this my 6year old son has
> aps1,candidiasis,addison,and the new new one hypoparathyroid.It has
> took us 6 years to find out what is wrong with Ethan.We are looking
for
> information where we slive we have found out there is no one around
us
> with aps1. We live in the us.Please if anyone has any info please
post
> it to us we very concerned parents and we won't the best for Ethan.
>