I am new to all of this my 6year old son has
aps1,candidiasis,addison,and the new new one hypoparathyroid.It has
took us 6 years to find out what is wrong with Ethan.We are looking for
information where we slive we have found out there is no one around us
with aps1. We live in the us.Please if anyone has any info please post
it to us we very concerned parents and we won't the best for Ethan.
I am new to all of this my 6year old son has aps1,candidiasis,addison,and the new new one hypoparathyroid.It has took us 6 years to find out what is wrong with...
Welcome to our message board. We will all try to help because we all know how difficult it is having a young child with APS 1. First of all where in the US do...
... for a few days then he has diarrhea for a few days he is losing weight and he drinks all the time.Where are you from.We were told they are not many people...
Hi Donna, I live in Australia so I'm definitely not near :-). Just a quick note to say welcome. My husband has APECED - he is 24. I'm glad you found this...
-Thank you Liz for the reply your story is one of the first I found on line you don't know how much it has helped me to read your story.Thank you once again. ...
Hi Donna, Welcome to the group. I live in Toronto, Canada and have a 3 year old with APECED. We have had a scary couple of years with Julia as the doctors...
--Hi Jennifer, When Ethan is not feeling well sunlight hurts his eyes. They told us he has Irithes in his eyes and he has to use drops in them. Donna ... old...
Hi Donna, welcome to our group! My daughter Emily has APECED as well, she is 9, turning 10 at the end of March. I remember the year that all of her symptoms...
Donna, I've had Addison's for about 17 years now - it really is one disorder where proper medication can treat quite well. You do have to monitor for what we...
Thanks for the reply about Addison's to me I think it has scared us more than any of the other things Ethan has.thank you so much. donna Julia Peterson...
Thank you so much for the reply it means so much to me to know there is other people out there with aps1.Thank you Donna Jaci OBrian <jaciobrian@...>...
Hi, Welcome to this group! It has been an invaluable help to me. I am Julia, 27 years old with APS type I (candidiasis, hypoparathyroidism, human growth...
Thank you so much for the reply.I am so greatful to have people that I can ask questions.Thank you so much. Donna juliap99 <juliap99@...> wrote: Hi, ...
... Welcome to our group. My son is 25 and has cornea keratitis, Candidias, Hypoparthyroidism, Thyroid insufficiency, autoimmune hepatitis, and addisons. We...
Thank you so much for the reply.I am sure I will have questions.I am glad I found this group. Thank you so much. Donna ... Welcome to our group. My son is 25...
Hi Vicki, I wonder if you can help us. Amy is travelling to Houston in July for 3 weeks work experience then onto Los vegas for 1 week. Saw her endo today...
HI Karen, I will be more than happy to help. My son sees an endo here in the Medical Center. Her name is Morali Sharma, MD. Her address is 6620 Main, Suite...
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