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Hi Everyone,
We are still trying to work out all what is going on with James and the calcium prob, but we have a new problem. James's eyesight has been getting worse rapidly and he has been getting more and more sensitive to light. Until last year he had no problems with his eyesight. Anyways, we went to see an optomitrist who said he has cornea dystrophy and he needs to have glasses which we have organised. I came home and had a look at the APECED research online and discovered that Keratopathy is part of APECED. Does anyone else have this problem and do they know which form of keratopathy it is? Want to have some information for the doc when we go back because he was writing this off as a diabetic related problem that would fix itself when we got his diabetes under control.
The other question I have is just out of interest... in my researching I found an article that said most people with APECED have only 3-5 of the associated conditions... so far James (who is 24 tomorrow) has 10 conditions! He has adrenal failure, IDDM, parietal cell atrophy, hypoparathyroidism, candidiasis, enamel hypoplasia, nail dystrophy, alopecia, vitaligo and now keratopathy. How many do other people have??
Thanks!
Liz
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