Donnie had the same problem with his insulin levels. It really
didn't seem to matter what he ate or anything but his readings would
be all over the charts. In fact we just went through a bout with
neurologists because he was having what they at first thought were
seizures of some type where he would just like "check out". They
couldn't find anything wrong with him but after about 3 of these we
came to the conclusion that if his sugar level goes below 130 we have
to really watch him because all 3 times it was between 89 and 110 and
we really think that is what it was. His doctor says that is
unlikely but then again there is a lot that happens that his doctor
has no idea why. He has the Paradigm pump and his sugar levels are
more stable than they ever were. He stays between about 120 and 180
now which is a big load off of us.

--- In apeced@yahoogroups.com, "Liz and James Yarker" <yarkermob@...>
wrote:
>
> It seems like this prob it is a bit of a theme for people with
APECED. I will have to try out some of the natural remedies you
suggested after we have gotten the blood test results. James has
only had the one bout of problems with his liver, which is why they
risked the cholesterol tablets, and they are keeping a close eye on
his Liver function. James has a Deltec Cosmo insulin pump and it is
better than injections, but his A1C is still 10.5 even though he has
been on it for almost 2 years. He is quite unstable and even when
everything is done right he can go HI for no reason, and the next day
he might go unconscious instead of going HI. According to the letter
to our GP from the Endo "there is no rhyme or reason" for these
levels.
> Liz
>
> ----- Original Message -----
> From: Cindy
> To: apeced@yahoogroups.com
> Sent: Thursday, February 07, 2008 12:04 AM
> Subject: [apeced] Re: Calcium
>
>
> I don't know how much help this will be but my husband has run
this
> same gamut and his doctor had no idea either. We finally started
> experimenting with natural remedies and have finally seen
> improvements. Some of the things we have done are: For
cholesterol
> he takes fish oil, for thyroid we added Atomodine, which is an
iodine
> supplement, for swelling in his hands from the cortisone he takes
> vitamin E. We also found some liver supplements that help with
the
> liver problems (which by the way the cholesterol meds can
> exacerbate), and Panax Ginseng and Pantothenic Acid for the
fatigue.
> If you do decide to try these make sure you get quality
supplements
> not the Wal-Mart variety. My husband also got an insulin pump
which
> has made a huge difference in controlling his sugar as well as
> lowering his cholesterol.
> Hope this is some help
> Cindy
>
> --- In apeced@yahoogroups.com, "Liz and James Yarker"
<yarkermob@>
> wrote:
> >
> > Hi All,
> > I have a question. James (my husband) has been 'off' for a few
> weeks. There have been a few changes to his meds - decreased
> cortisol, added cholesterol tablet - and we have noticed that he
has
> been sweating alot, been tired, and his skin is a different
shade -
> but i can't work out what the difference is. The problem is we
don't
> know what condition to attribute it too! James has
> hypoparathyroidism, addisons disease, type 1 diabetes, and
pernicious
> aneamia. He had trouble with his liver 2 years ago - they ruled
out
> auto immune hepatitis and didn't know what the cause was (it was
so
> bad they were talking about a liver transplant - and then he just
got
> better within about 2 days).
> >
> > Went to the doctors yesterday to get the results of some tests.
> James has low blood calcium but excess calcium output in his
urine.
> Anyone had this or know what it could be from? The doc was
> scratching her head. I'm assuming it could be due to the
> hypoparathyroidism but who knows! lol
> >
> > Thanks,
> > Liz
> >
>