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Reply | Forward Message #241 of 593 |
Re: [apeced] Re: Calcium

It seems like this prob it is a bit of a theme for people with APECED.  I will have to try out some of the natural remedies you suggested after we have gotten the blood test results.  James has only had the one bout of problems with his liver, which is why they risked the cholesterol tablets, and they are keeping a close eye on his Liver function.  James has a Deltec Cosmo insulin pump and it is better than injections, but his A1C is still 10.5 even though he has been on it for almost 2 years.  He is quite unstable and even when everything is done right he can go HI for no reason, and the next day he might go unconscious instead of going HI.  According to the letter to our GP from the Endo "there is no rhyme or reason" for these levels.
Liz
 
----- Original Message -----
From: Cindy
Sent: Thursday, February 07, 2008 12:04 AM
Subject: [apeced] Re: Calcium

I don't know how much help this will be but my husband has run this
same gamut and his doctor had no idea either. We finally started
experimenting with natural remedies and have finally seen
improvements. Some of the things we have done are: For cholesterol
he takes fish oil, for thyroid we added Atomodine, which is an iodine
supplement, for swelling in his hands from the cortisone he takes
vitamin E. We also found some liver supplements that help with the
liver problems (which by the way the cholesterol meds can
exacerbate), and Panax Ginseng and Pantothenic Acid for the fatigue.
If you do decide to try these make sure you get quality supplements
not the Wal-Mart variety. My husband also got an insulin pump which
has made a huge difference in controlling his sugar as well as
lowering his cholesterol.
Hope this is some help
Cindy

--- In apeced@yahoogroups.com, "Liz and James Yarker" <yarkermob@...>
wrote:
>
> Hi All,
> I have a question. James (my husband) has been 'off' for a few
weeks. There have been a few changes to his meds - decreased
cortisol, added cholesterol tablet - and we have noticed that he has
been sweating alot, been tired, and his skin is a different shade -
but i can't work out what the difference is. The problem is we don't
know what condition to attribute it too! James has
hypoparathyroidism, addisons disease, type 1 diabetes, and pernicious
aneamia. He had trouble with his liver 2 years ago - they ruled out
auto immune hepatitis and didn't know what the cause was (it was so
bad they were talking about a liver transplant - and then he just got
better within about 2 days).
>
> Went to the doctors yesterday to get the results of some tests.
James has low blood calcium but excess calcium output in his urine.
Anyone had this or know what it could be from? The doc was
scratching her head. I'm assuming it could be due to the
hypoparathyroidism but who knows! lol
>
> Thanks,
> Liz
>



Thu Feb 7, 2008 1:27 pm

hypodogs
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Message #241 of 593 |
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I read your profile today, I thought I would drop you a line and hope to become your friend! Check my personal page ...
privatekfjmsg
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Feb 5, 2008
1:53 pm

Hi All, I have a question. James (my husband) has been 'off' for a few weeks. There have been a few changes to his meds - decreased cortisol, added...
Liz and James Yarker
hypodogs
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Feb 6, 2008
10:29 am

I don't know how much help this will be but my husband has run this same gamut and his doctor had no idea either. We finally started experimenting with...
Cindy
shpprldy
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Feb 6, 2008
1:04 pm

Hi all, I was just reading about the supplement part - I'm a dietitian in research and actually the quality assurance on Wal Mart's Spring Valley brands are...
Julia Peterson
juliap99
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Feb 6, 2008
9:10 pm

It seems like this prob it is a bit of a theme for people with APECED. I will have to try out some of the natural remedies you suggested after we have gotten...
Liz and James Yarker
hypodogs
Offline Send Email
Feb 7, 2008
1:27 pm

Donnie had the same problem with his insulin levels. It really didn't seem to matter what he ate or anything but his readings would be all over the charts....
Cindy
shpprldy
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Feb 7, 2008
6:45 pm

... I've had Addison's,Hypoparathyroidism etc. since I was 6 years old. I'm now 37 and have dealt with many of the problems people have in this group. The low...
brad_jones12
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Feb 7, 2008
12:36 am

Hi Dede, We go to the docs tomorrow to find out the latest blood test results, I was wondering if it's due to James's kidneys - but maybe the kidney function...
Liz and James Yarker
hypodogs
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Feb 7, 2008
1:20 pm

I read your profile today, I thought I would drop you a line and hope to become your friend! Check my personal page ...
pitzefxdhbjm
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Apr 5, 2008
11:21 pm
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