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apeced · APECED SYNDROME
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Reply | Forward Message #236 of 593 |
[apeced] Calcium

Hi All,
I have a question.  James (my husband) has been 'off' for a few weeks.  There have been a few changes to his meds - decreased cortisol, added cholesterol tablet - and we have noticed that he has been sweating alot, been tired, and his skin is a different shade - but i can't work out what the difference is.  The problem is we don't know what condition to attribute it too!  James has hypoparathyroidism, addisons disease, type 1 diabetes, and pernicious aneamia.  He had trouble with his liver 2 years ago - they ruled out auto immune hepatitis and didn't know what the cause was (it was so bad they were talking about a liver transplant - and then he just got better within about 2 days). 
 
Went to the doctors yesterday to get the results of some tests.  James has low blood calcium but excess calcium output in his urine.  Anyone had this or know what it could be from?  The doc was scratching her head.  I'm assuming it could be due to the hypoparathyroidism but who knows! lol
 
Thanks,
Liz
Wed Feb 6, 2008 10:29 am

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Forward 		Message #236 of 593 |
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I read your profile today, I thought I would drop you a line and hope to become your friend! Check my personal page ... 		privatekfjmsg
Offline Send Email 		Feb 5, 2008
1:53 pm

Hi All, I have a question. James (my husband) has been 'off' for a few weeks. There have been a few changes to his meds - decreased cortisol, added...
Liz and James Yarker
hypodogs
Offline Send Email 		Feb 6, 2008
10:29 am

I don't know how much help this will be but my husband has run this same gamut and his doctor had no idea either. We finally started experimenting with...
Cindy
shpprldy
Offline Send Email 		Feb 6, 2008
1:04 pm

Hi all, I was just reading about the supplement part - I'm a dietitian in research and actually the quality assurance on Wal Mart's Spring Valley brands are...
Julia Peterson
juliap99
Offline Send Email 		Feb 6, 2008
9:10 pm

It seems like this prob it is a bit of a theme for people with APECED. I will have to try out some of the natural remedies you suggested after we have gotten...
Liz and James Yarker
hypodogs
Offline Send Email 		Feb 7, 2008
1:27 pm

Donnie had the same problem with his insulin levels. It really didn't seem to matter what he ate or anything but his readings would be all over the charts....
Cindy
shpprldy
Offline Send Email 		Feb 7, 2008
6:45 pm

... I've had Addison's,Hypoparathyroidism etc. since I was 6 years old. I'm now 37 and have dealt with many of the problems people have in this group. The low...
brad_jones12
Offline Send Email 		Feb 7, 2008
12:36 am

Hi Dede, We go to the docs tomorrow to find out the latest blood test results, I was wondering if it's due to James's kidneys - but maybe the kidney function...
Liz and James Yarker
hypodogs
Offline Send Email 		Feb 7, 2008
1:20 pm

I read your profile today, I thought I would drop you a line and hope to become your friend! Check my personal page ...
pitzefxdhbjm
Offline Send Email 		Apr 5, 2008
11:21 pm
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