Thanks for the information. I am heading to my gastroenterologist tomorrow and will tell her that another person with my similiar conditions of APS has some of the GI conditions you mentioned. It seems to be getting better but then gets worse - I have never had diarrhea though. I am sure I am not as severe as Tara, since I am continuing to work, just not able to eat as well. I will keep you informed of what I learn. My doctor seems on top of things and has med students who work with her through rotations - so lots of researchers.
Thanks again, give Tara my regards. I can't imagine what frustration she must feel!
HI friends, I've been having some rather disturbing GI symptoms lately and am getting frustrated that I can't seem to get in contact with my GI doctor - I have...
Hi Julia, Do you have Addison's disease by chance? If so, that can play a factor in GI issues if for some reason it is not managing well with the meds. You...
Yeah, I've had Addison's since I was about 11 (27 now) - I don't think it's related, although you are right, that abdominal problems accompany an Addison's...
Julia, what you describe is yeast in your stomach. People talk about this from time to time on this list serve. I just tried to do a quick google search for...
Julia, what you describe is yeast in your stomach. People talk about this from time to time on this list serve. I just tried to do a quick google search for...
Yeah, I'm thinking you're right - I've actually had yeast in my stomach before and now that I think about it, it is very familiar - I've never had the lower GI...
Hello everyone, I haven't posted in a long time. My daughter, also a Julia (3 yrs) has spent almost a year in hospital. She has had a terrible time with...
Dear All, I just asked if APS1 might be considered on the PatientsLikeMe website. http://www.patientslikeme.com/ This networking site is really amazing in that...
Hi Dede, Sounds like a great idea. I went on the web site and made the request. Hope all is well. Linda ... website. ... similar diseases can present their...
Hi Dede, I sent a request to the site. Thanks for letting us know about this. Take care, Vicki ... http://www.patientslikeme.com/welcome/request_community ... ...
Hi Julia, Tara has been having very severe episodes of malabsorption since she was 26. She has had many diagnoses inclusing the PA, Fat malabsorption, lack of...
Linda, Thanks for the information. I am heading to my gastroenterologist tomorrow and will tell her that another person with my similiar conditions of APS has...
Hi Linda, I am so sorry to hear about Tara's difficulties. It rings so true with me as I have watched my 3 year old go through a year of pneumonias, weight...
Hi Jennifer, What type of steroid was used with Julia to suppress the immune system? Tara has been on Imuran for the autoimmune hepatitis and it made her...
Hi Linda, Julia has been on 1mg per kilo of prednisone for the last month. It is a good drug for the short term, but not for the long term. Julia was not well...
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