Hi Julia,
Tara has been having very severe episodes of malabsorption since she
was 26. She has had many diagnoses inclusing the PA, Fat
malabsorption, lack of pancreatic enzymes, microscopic colitis, etc.
Up until this past year she was able to bounce back after a few
months of constant IV's. Now she has lost 25 lbs and nothing is
helping. Even though the diarrhea has improved she is still low on
albumin, potassium, calcium and CO2. She has been in and out of the
hospital all year and had to be hospitalized in California for 12
days this month due to ecoli and pneumonia. They tried some PTN for 7
days using a peripheral picc line and she will have to start TPN this
week, I think. So anything your doctors can shed some light on will
be appreciated.
Sometimes she gets constipated, gassy, etc. but no stomach burning.
She alternates between ravenous appetite and hardly any at all.
I hope your condition is improving and this is only a temporary
situation.
Best wishes,
Linda




--- In apeced@yahoogroups.com, "juliap99" <juliap99@...> wrote:
>
> HI friends,
>
> I've been having some rather disturbing GI symptoms lately and am
> getting frustrated that I can't seem to get in contact with my GI
> doctor - I have left 3 messages over the last 4 days!! Anyway, I
don't
> have time to get into my symptoms but am curious as to what others
have
> experienced who have malabsorption with their APS issues. I am
> starting to lose weight because I just can't eat large amounts -
but I
> don't have diarrhea - just veery very active lower GI (this is the
> brief explanantion).
>
> Any comments would be greatly appreciated. Thanks to all!
>
> Julia
>