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apeced · APECED SYNDROME
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Greetings from France   Message List  
Reply | Forward Message #18 of 593 |
Hello everyone. I am 41 years old and live in France. I have APS. I had
the good fortune of finding a doctor in Geneva (which I live very near
to) who headed up a research project ten years ago that cloned the gene
for APS I. After closer inspection of my condition, he found that while
I have do in fact have APS, I do not have any particular published
version, I, II or III. It is quite complicated. But, what he and his
colleagues have theorized is that in fact APS is a spectrum and that it
is difficult to put anyone into one category. They think it will be
like MS in that regard, that each person falls somewhere in the
spectrum but with key elements to confirm the diagnosis. As for me, I
have idiopathic hypoparathyroidism, hoshimotos, secondary adrenal
disfuntion, and pituatary disfunction on one axis (adrenal). Most
recently I have had difficulty in my hips that in early speculation,
still to be confirmed, may be rheumatoidal arthritis. I would love to
correspond with others who have this condition. I feel great, by the
way. Work full time at the United Nations. Really no complaints.
Wonderful, incredible, caring healthcare here. All the best to everyone.





Wed Nov 1, 2006 7:34 am

dleydorf
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Message #18 of 593 |
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Hello everyone. I am 41 years old and live in France. I have APS. I had the good fortune of finding a doctor in Geneva (which I live very near to) who headed...
dleydorf
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Nov 1, 2006
7:43 am
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