Hi Julia,
One reason for the lower calcitriol doses may be the build up of
calcium in the kidneys. The oral calcium is less likely to cause
this. I was also told that the phosphorus levels are better
maintained by oral calcium. I wish I understood more. Tara is
having problems with malabsorption once again. She just got another
round of IVIG but so far no improvement.
She has lost a considerable amount of weight.
Best wishes,
Linda






--- In apeced@yahoogroups.com, "juliap99" <juliap99@...> wrote:
>
> Linda,
>
> I also was informed recently by my endo that doctors are trying to
> manage hypoparathyroidism with as minimal calcitriol as possible
and as
> much oral calcium as possible to keep levels of calcium in a good
> range. It must be the latest guidelines. She drastically cut
(almost
> reduced by half) my rocaltrol dose when I switched to her from my
> pediatric endocrinologist a few years ago. I was wondering why
but now
> I understand more fully.
>
> Julia
> --- In apeced@yahoogroups.com, "lsquittman" <lsquittman@> wrote:
> >
> > Hi Jennifer,
> > Thanks for keeping us posted. The syrup you are using is
probably
> the
> > same formulation as the one Tara uses. I recently learned that
it is
> > best to use the minimum Calcitial and as much oral calcium as
> possible
> > so it sounds like you are on the right track. Please let us
know
> what
> > Dr. Deal prescribes for Julie. There are numerous studies that
Dr.
> > Deal has participated in using immunosupressives successfully
and
> Tara
> > is currently taking Imuran.
> > Again best wishes,
> > Linda
> >
>