Hi Jennifer,
I am glad you have an appointment with Dr. Deal. I think this might
help because my daughter cannot tolerate the calcium carbonate
either so she uses Calcionate Syrup (calcium glubinate) made by
Rugby Laboratories in Deluth, Georgia. We order it directly from CVS
Pharmacy. And she always takes it with lots of food, not on an empty
stomach.
Best wishes,
Linda











--- In apeced@yahoogroups.com, "Jennifer Orange" <jorange@...> wrote:
>
> Hello everyone,
> We haven't poseted anything since our initial email searching for
> doctors who are knowledgable about Apeced. At that time Julia was
still
> in the ICU with terrible damage to her lungs from pneumonia. She
is
> now home, and while still on oxygen, is much better than she was.
We
> now have an appointment with Dr. Deal in Montreal to consider
immune
> suppresants. If anyone has any feedback on this course, I would
> appreciate it.
>
> For the last 2 months Julia has been vomiting on and off. We are
now
> having problems keeping her calcium down as she seems to vomit it
right
> after we give it. Has anyone else had this problem? Do you know
if
> there is an alternative to calcium carbonate that is easier on the
> stomach?
> Many thanks,
> Jennifer, mother of Julia, 2.5 yrs
>