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apeced · APECED SYNDROME
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Reply | Forward Message #140 of 593 |
Re: [apeced] Re: New member

I wrote my last reply without adding:
 
Regardless of the wording, the syndromes are similar and this is a great support group for all of them


Moody friends. Drama queens. Your life? Nope! - their life, your story.
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Tue Jun 5, 2007 4:18 pm

juliap99
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Message #140 of 593 |
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Hello All, I am Gerald Armstrong, I would like to be in this group because of the fact that there are so few of us with this syndrome. I am more than willing...
Jerry Armstrong
navyhm1983
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Aug 27, 2005
11:52 pm

Hello Group, I am Jerry and I am 42y/o Man, married 3 children, 2 dogs, and a partridge in a pare tree. Well, OK, It's actually a Mourning Dove on my patio....
Jerry Armstrong
navyhm1983
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Jun 4, 2007
10:53 am

Hey Jerry, sorry to hear of your troubles. It is not easy getting diagnosed. Do you mind me asking what conditions your syndrome consists of? My Brothers have...
Dede Leydorf
dleydorf
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Jun 4, 2007
11:19 am

Hello, I have a paper that I take with me that has all of my info on it because I can't remember it. This is what I take minus my personal info: SURGERIES ...
Jerry Armstrong
navyhm1983
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Jun 4, 2007
9:26 pm

Thank you Jerry for sharing your information. I know it must be hard. I really appreciate it. Hopefully it will help my brothers. All the best, Dede Jerry...
Dede Leydorf
dleydorf
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Jun 5, 2007
4:03 pm

Thank you Jerry for sharing your information. I know it must be hard. I really appreciate it. Hopefully it will help my brothers. All the best, Dede Jerry...
Dede Leydorf
dleydorf
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Jun 5, 2007
4:04 pm

I wanted to just clarify - I'm pretty sure that APECED is APS type 1 and that APS type 2 is not APECED. They are two different syndromes that contain...
Julia Peterson
juliap99
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Jun 5, 2007
4:17 pm

I wrote my last reply without adding: Regardless of the wording, the syndromes are similar and this is a great support group for all of them ... Moody friends....
Julia Peterson
juliap99
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Jun 5, 2007
4:19 pm

My daughter Elisa 6 years old recently got her diagnose APS 1 after years of sickness. No doctor here in Sweden new why she was so sick al the time. It started...
majakvarnstrom
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Apr 1, 2008
11:34 am
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