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Reply | Forward Message #139 of 593 |
Re: [apeced] Re: New member

I wanted to just clarify - I'm pretty sure that APECED is APS type 1 and that APS type 2 is not APECED.  They are two different syndromes that contain different manifestations of autoimmune disorders and have different genetics. 
 
Just saw this in your list.
 
Julia

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Tue Jun 5, 2007 4:16 pm

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juliap99
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Forward 		Message #139 of 593 |
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Hello All, I am Gerald Armstrong, I would like to be in this group because of the fact that there are so few of us with this syndrome. I am more than willing... 		Jerry Armstrong
navyhm1983
Offline Send Email 		Aug 27, 2005
11:52 pm

Hello Group, I am Jerry and I am 42y/o Man, married 3 children, 2 dogs, and a partridge in a pare tree. Well, OK, It's actually a Mourning Dove on my patio....
Jerry Armstrong
navyhm1983
Offline Send Email 		Jun 4, 2007
10:53 am

Hey Jerry, sorry to hear of your troubles. It is not easy getting diagnosed. Do you mind me asking what conditions your syndrome consists of? My Brothers have...
Dede Leydorf
dleydorf
Offline Send Email 		Jun 4, 2007
11:19 am

Hello, I have a paper that I take with me that has all of my info on it because I can't remember it. This is what I take minus my personal info: SURGERIES ...
Jerry Armstrong
navyhm1983
Offline Send Email 		Jun 4, 2007
9:26 pm

Thank you Jerry for sharing your information. I know it must be hard. I really appreciate it. Hopefully it will help my brothers. All the best, Dede Jerry...
Dede Leydorf
dleydorf
Offline Send Email 		Jun 5, 2007
4:03 pm

Thank you Jerry for sharing your information. I know it must be hard. I really appreciate it. Hopefully it will help my brothers. All the best, Dede Jerry...
Dede Leydorf
dleydorf
Offline Send Email 		Jun 5, 2007
4:04 pm

I wanted to just clarify - I'm pretty sure that APECED is APS type 1 and that APS type 2 is not APECED. They are two different syndromes that contain...
Julia Peterson
juliap99
Offline Send Email 		Jun 5, 2007
4:17 pm

I wrote my last reply without adding: Regardless of the wording, the syndromes are similar and this is a great support group for all of them ... Moody friends....
Julia Peterson
juliap99
Offline Send Email 		Jun 5, 2007
4:19 pm

My daughter Elisa 6 years old recently got her diagnose APS 1 after years of sickness. No doctor here in Sweden new why she was so sick al the time. It started...
majakvarnstrom
Offline Send Email 		Apr 1, 2008
11:34 am
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