Thank you Jerry for sharing your information. I know it must be hard. I really appreciate it. Hopefully it will help my brothers.
All the best, Dede
Jerry Armstrong <GRAUGEIST@...> wrote:
Jerry Armstrong <GRAUGEIST@...> wrote:
Hello,
I have a paper that I take with me that has all of my info on it
because I can't remember it. This is what I take minus my personal
info:
SURGERIES
Left lobe thyroidectomy
gall bladder
sinus polyps non ca
prolapsed colon
vasectomy
ganglion cyst
DIAGNOSIS
Polyendocrine Deficiency Syndrome
type 2 - (APECED)
Hypothyroid
Diabetes
Hypogonadism
Enlarged Prostate gland
Restless leg syndrome
HIGH Cholesterol
High Triglycerides
Unusual and undiagnosed spots on skin.
Loss of protein from Kidneys
ADD
GERD
Chronic fatigue
Depression
Bilateral carpal tunnel syndrome
memory problems
Confusion / difficulty thinking
DJD Diffuse desiccation spinal column
Scoliosis
C3 - C4 herniated disc
T8 - T9 Central disc herniated
T9 - T10 disc herniated
MEDICATIONS
Effexor XR 300 mg
Welbutrin XL 300 mg
Adderall 20 mg
Provigil 200 mg
Synthroid 0.88 mg
Flomax 0.8 mg
Mirapex 0.25 mg
Protonix 40 mg
Actos 15 mg
Altace 2.5 mg
Crestor 20 mg
Testosterone inj. 200 mg biweekly
So you can take any symptoms from any of the problems and I could
have them. With me I have a few that are always there and then a
lot that come and go. I never know how I will feel tomorrow.
So trying to plan anything has become moot. Just plan it and how
ever I feel I just have to deal with it.
The diabetes has me up 2 or 3 times a night for the bathroom. I
never get a good nights rest, which adds greatly to the fatigue.
I have Hot flashes and PROFUSE night sweats! Soak the bed, blankets
and pillow!
Basically you just feel like you have the life sucked out of your
body.
My medications make the numbers look right but they don't make me
feel right.
This developed over the years as intermittant problems. But never
any in combination bad enough to hold me back.
This is such a dramatic change from just 5 years ago. I am a
Journeyman Boilermaker / welder by trade. I was one of the high
steel men that would climb and walk the I-beams building power
plants etc. I could easily lift and carry 100 lbs up stairs.
Now I am a shadow of what I used to be.
I become Short of breath from walking at a normal pace under 100
yards. Usually have to stop before I can go on, or walk much
slower.
I have come to accept this as the way my life will be, and that was
the hardest thing about this syndrome.
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