Hi karen,
My name is kathy jones and i recieved an email from yourself today,
and i just wanted to say welcome,
i am so sorry to hear about your 3 daughters
my son is 7 years old and he has apeced, we are from belfast
n.ireland and through the internet i have met some lovely people
whom have apeced or whose children have it,
I just came across this site by chance also last week and i think it
is wonderful, Linda is a lovely kind and very thoughtful lady who
has already put me in contact with a childs mum closer to home in
ireland, i am also in contact with a lady in london whom has apeced
but most of all has brillant knowledge and when ever i am worried or
upset etc i can phone her, plus i am in contact with a professor
whom has apeced and is studying it also, so its good to bluid up a
network of friends whom you can turn to for advice.
When my son was first diagnosed i was very afraid and felt very
alone, i didn't know what apeced was and i wish i had this forum,
I was only 20 when he was diagnosed and although i had the support
of my family i need to speak to someone who what i was talking about.
i just wanted to let you know if in any way i can help or give
advice i will, and i will run it pass my new found friends also, you
can email anytime and take care katee5j@...