Hi Mary and welcome to our forum!!!!
I won't go into too many details about my daughter, Tara, but
suffice it to say she started off with Hypoparathyroidism, then
Addisons by age 6, then Juvenile Rheumatoid Arthritis, age 14,
Ovarian Dysfunction, and at age 26 very severe diarrhea and
malabsorption and pernicious Anemia. At age 33 Type 1 Diabetes and
now, at 34, Vertilago.. Recently she had a bout of autoimmune
hepatitis and after a round of IVIG she started low dose Imuran.
This worked quickly and within a few months her liver function tests
were as normal as they have ever been. her only side effects from
the Imuran were intermittent stomach aches but she was able to deal
with them. I think she was more tired than usual also.
Please ask any questions of this group and we will try to answer
them.This is one of the most caring groups of individuals I have
ever encountered. I am also emailing you the link to an APS 1
(APECED) web site started by another parent in this group. Getting
on that mailing list will also be helpful because they are working
with NORD National Organization of rare Diseases) to try to get a
research grant and funding which might lead to further treatment
opportunities.
Again welcome and best wishes to you and your daughter.
Linda