Hello, my name is Mary. My daughter is 15 and has APECED. She has been diagsnosed since the age of 1. She has hypoparathyroid, lack of teeth enamel, anitbodies to ovaries. This January, she was diagnosed with autoimmune hepatitis. I would love to talk to other families that are going through the same things. One question that I have is to the best medication for the hepatitis. Several doctors have mentioned Imuran, steroids. Is there anyone out there with this aspect of the disease that could help me. Also, we feel very worried regarding her best outlook. Up until this year, we thought that we were one of the few with APECED. Our information gathering has been bad. I am very excited to learn and hear from others who have been going through the same things as my daughter. Thanks Mary
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