Hi Vicki,
Tara's liver function tests were occasionally elevated but this is the
first time they have been elevated for so many months. The IVIG
cleared up most of her problems last time for two years but it took
two rounds of infusions. She is not having constant watery diarrhea
and is absorbing her medication but she is painfully thin and Dr.
Maclaren feels it will stop the diarrhea altogether and she will be
able to gain weight. It should also help the liver function return to
normal boosted by the Imuran. And it provides immunity against
infection. If you do a search -IVIG and APECED or APS1 you will see
that other people with APS 1 and autoimmune problems have benefitted
from this treatment. Can't hurt.
Was Ryan unusually tired when he was on the Imuran? That seems to be a
major problem and Tara has frequent stomach aches which she never had
with the malabsorption.
The thing that keeps me going is all the research being done, the fact
that she finally has a doctor who is proactive and really knows what
to do and Tara's amazing spirit of optimism.
I wish Ryan all the best. How are his studies going?
Best wishes,
Linda