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Visit to NIH   Message List  
Reply | Forward Message #100 of 593 |
Re: [apeced] Visit to NIH

Hi Vicki,
 
I just recently saw my endo and asked her about my steroid dosage (prednisone) which is now at 7.5 mg (and has been that for a while) - I asked her if I should switch to hydrocortisone and she said it was my choice, but since I was having no real problems with prednisone (DEXA still looks great) - she siad it was a toss up - she did mention that HC is more physiologically similar to what are adrenals would produce, and that I would need to take it more frequently than prednisone.  She said that the equivalend dose of hydrocortisone(or HC as I call it) for a 7.5 mg daily dose of prednisone is 28 mg of HC.  Simply put 28mg HC = or roughly equals 7.5mg prednisone.  So maybe 25 mg HC is just a minute step down for him and could be equivalent to 6 or 6.5mg prednisone. 
 
Anyway,
 
I also asked her about my calcium.  She has kept my serum calcium levels at around 8.0 (which is slightly  below normal values) and I wondered why she was doing this.  She mentioned that the clinical recommendations are pointing towards this lower maintenance of serum calcium for hypoparathyroidism.  I guess I trust her since she is a young teaching doctor at OSU, but I'm aware that others on here have different care.  It could be that the answer is still unclear as the where to keep calcium levels.  I take 1200mg of calcium citrate per day and 0.75mcg of rocaltrol (the vit D that we need and don't produce to help absorb and use calcium) - My endo recommends that we try to find the lowest dose of Rocaltrol possible so that we minimize bone turnover and loss. 
 
So, I'm not sure If I helped any but thought I would give the information I recently received.
 
glad to hear the visit went well!
 
 
Julia


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Mon Jan 15, 2007 5:11 pm

juliap99
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Message #100 of 593 |
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Hi Everyone, We are back from our visit to the NIH. We saw Dr. Winer and she was very nice. She suggested Ryan reduce his cortisone level, change to ...
vrobson1
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Jan 15, 2007
3:35 pm

Hi Vicki, I just recently saw my endo and asked her about my steroid dosage (prednisone) which is now at 7.5 mg (and has been that for a while) - I asked her...
Julia Peterson
juliap99
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Jan 15, 2007
5:12 pm

HI Julia, Thank you very much for the info. Your endo sounds as if she in on top of things. I know Ryan's endo here in Houston thinks Prednisone is a better...
Vicki Robson
vrobson1
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Jan 15, 2007
5:45 pm

Hi Vicki, Yes you are right - you do only absorb 500mg of calcium at a time. That's interesting that he was on so much calcium! That's a lot of "hoarse"...
Julia Peterson
juliap99
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Jan 16, 2007
3:06 am

Hi Julia, Yes, they are "hoarse" pills and he is not fond of taking them. I am glad we were able to see Dr. Winer and get the dosage reduced. Take care, Vicki ...
Vicki Robson
vrobson1
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Jan 16, 2007
4:29 am

Hi Vicki and Julia, Tara takes 30 mg. of hydrocortisone a day and alternates between .75 mcg. and 1 mcg. of Rocaltrol (Vit. D) daily. Ususally she doesn't ...
lsquittman
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Jan 15, 2007
5:48 pm

Hi Linda, Thanks for the information. I wasn't sure how much cortisone Ryan should be taking. So, Tara doesn't take any calcium supplements unless she has...
Vicki Robson
vrobson1
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Jan 15, 2007
9:10 pm

Hi Vicki, I was going to take Tara to the NIH before we found Dr. Maclaren. As far as calcium supplements I just realized that she does take a Viactive bar...
lsquittman
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Jan 15, 2007
10:19 pm

HI LInda, Yeah, the crazy thing is, my peds endo (i have a different one now) had me on 1.5 mcg of roacaltrol without any calcium supplements for most of my...
Julia Peterson
juliap99
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Jan 16, 2007
3:06 am
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