I had small experience yesterday that got me wondering about this question ,
because it seems most of the time there are faint smells ( usually faint all the
time and the odd stronger one ) that have no affect o bearings  on me
emotionally - not doubt because their too faint  in the first place.

Well yesterday i smelt another smell that wasn't exactly strong ( id rate it a
5-6 out since anosmia happened ) that had really affected me emotionally i.e.
almost in the same way as when my smell briefly returned one night .

I've been trying to find out since then ,if the disinfectant used that created
this smell ( called cif here in the uk ) has anything in it interesting that
might be responsible , and even bought some to try to see would what happen.

According to the girl I asked who was using it in Starbucks it had really strong
smell , yet the bottle I bought  ( perhaps not the same version ) and used 
didn't  really seem that strong at all .

Any way I plan to ask this next ( what version of cif they use ) and take it
from there.

I'm sure its not doubt another joke that my anosmia  likes to play - but I I
don't try I'll never know.

The other thing , which I suppose , others here have probably already explored
is if there are ways to enhance the power of actual smells I.e. through
chemicals or other means to the point you'd smell them
i.e. are there any smells that are practically overbearing or the average person
that might some how be picked up by us , or am I just dreaming ?

Any way,. Just some random ideas and thoughts for any one who wishes to comment.

matt

Well Im using you were sedated you were given also given anaesthetic ?

I noticed x2 there seems to be some connection whenever I had lidocaine , and
plan to persue this more ( hopeully )soon.




--- In anosmia@yahoogroups.com, Aneschke Smith <neschie2@...> wrote:
>
> I wrote earlier that I could smell coffee brewing this morning. I tasted the
coffee and muesli. It was great. Then I decided to make soup. I could smell and
taste both the raw and sauted onions and celery, the beef, the
squashâ€"everything! It has been wonderful. I don't expect this to last beyond
today, so I think I'm going to taste everything I can today--like the person who
wrote earlier.
>
> I had an EGD yesterday and was sedated. I don't know what kind of cocktail I
was given and didn't think to ask. Can't help but wonder if the sedative had
something to do with my taste and small returning today. Anyone else experience
this, or is it just coincidence?
>
> Neschie
>
> Don't use eBay; try the See's way at www.seeauctions.com
>

--- In anosmia@yahoogroups.com, "Brianna" <kariachi@...> wrote:
>
> I'm doing a persuasive essay for my college English course taking the
viewpoint that all sensory disorders should be taught about to the same degree
as blindness and deafness in schools.
>
> My question to you is if you would be willing to offer your stories of going
to school as an anosmiac and state how you think this has affected you.
>
> Please note if I may use your story in my paper with credit.
>
> Thanks.
>

I can tell you from the responses here , and those on other forums ( im
physically disabled you see too ) that there is 2 groups and 2 very different
reactions to disabilties.

One group in general arent affected and are more interested in how their
disabilties seen by others ( although with anosmia its not exact;y an issue )
while the other , like me , who lose their sense or whatever in general are the
opposite i.e. depressed , want a cure etc

For me anosmia is a problem , because it affects me emotionally

Though losing anything is painful I found losing my smell 2 yrs ago unbearable ,
and to be honest it still is.

I get depressed, anxious ,tired at not the suffering but the fact there are no
cures and probably wont be .

Im not saying im suicidal , but I can not enjoy anything any more , and the
times it does come back briely just to go its even worse.

If you want my short answer then I think all losses affect people differently
ie. an athelete who cant run , isnt going to be as passive about it as someone
who wasnt atheletic and basically say around any way.

Just as much as someone who has never had a sense is affected by something
they've never known.

This is runs true in all disabilties , phyiscal or sensory and its a big issue
that gets little mention.

From: Aneschke Smith

To: anosmia@yahoogroups.com

Sent: Thursday, November 19, 2009 1:22 PM

Subject: Re: [anosmia] I Can Still Smell & Taste

Hi, JEANNE.I'M AFRAID MY being able to taste and smell was short lived. I don't think the relief was from the nasal spray. I had an upper endoscopy Monday and was able to smell afterward. Today, thing are back to tasteless. I thought I replied to your "long" email. It didn't scare me  off at all. I tend to write long messages, too. I've been really busy, so I probably forgot to reply. I was doing Kevin's trick of hanging my head off the edge of the bed, but it didn't make sense to me. Sure enough, the fluticasone just went down my throat. I guess my head wasn't all the way upside down.  I have a bad neck--lots of injuries, so I might not be able to hang my head backwards as far as Kevin can. So I've been bending forward today to see if that helps. It's easier to get the top of my head pointing toward the floor. The olfactory bulb and mucosa are in the front of the head.But I don't know which position is best for getting the medicine up there. Msybe backwards IS best.I'll do some research. Bye for now. Neschie Don't use eBay; try the See's way at www.seeauctions.com. It's FREE! --- On Tue, 11/17/09, Jeanne Timpson <lady3kgt@...> wrote: From: Jeanne Timpson <lady3kgt@...> Subject: Re: [anosmia] I Can Still Smell & Taste To: anosmia@yahoogroups.com Date: Tuesday, November 17, 2009, 8:33 PM   Hey Neschie, That's wonderful news!!  I, too, have increased my dosage (but am also having trouble remembering to adhere to it) & although I'm not yet tasting, I am starting to smell things, albeit mildly.  I can smell the coffee when I open the container in the AM & also smell it brewing & day by day it is coming through stronger.  My ENT's assistant gave me her blessing to increase the frequency along w/ my last scrip for the year for prednisone.  I'll be taking it Tuesday of next week (McDonald's strawberry shake here I come!!) in order to taste for Thanksgiving & hopefully through to Christmas.  In the meantime, I'll continue w/ the increased sprayings, fingers crossed for this being my last scrip for prednisone! I'm so happy for you Neschie, I know it's been a long road for you.  I hadn't heard back from you & feared that my loooooong letter to you was a bit overkill!  Or are you still reading it?  Did you get it?? Happy tasting!  My fingers are crossed for your taste buds (ok & nerve receptors!)     Jeanne

I INVERT my head after each spray in the nostril. This allows the Rhinocort to
stay high in the nasal cavity instead of running out. By invert, I mean I sit on
the bed or couch, spray in one nostril then lie back so my head hangs off  the
end for about 15 seconds then repeat.  Make sure your head is upside down, as if
you were standing on your head.  When I told my ENT about inverting my head, he
said that was the only way to insure that the Rhinocort gets up to the area
where the olfactory nerves are and this controls the inflammation in the sinuses
that blocks air flow to the olfactory nerves.


--- In anosmia@yahoogroups.com, "Kenneth Rosser" <rosser573@...> wrote:
>
> I lost my sense of smell about 8 years ago and was told that my olfactory
nerve and died. However, I new this was not the case as for about a day or two
each year I was able to smell. I then went to see another specialist who
prescribed Flixonase nasules. within 3 weeks my sense of smell returned and has
stayed pretty good up to the present time. I use one nasule daily but increase
to two if I temporarily lose my ability to smell. I think that the "nasules" are
a more effective way of delivering the medication than sprays. It is vital to
deliver the medication high up in the nose and this, in my opinion, cannot be
achieved so well via a spray.
>
> Woodchester66
>

There seems to be a lot of confusion as to the dosage regimen I use. The
following is the dosage schedule that I use:

2 sprays in each nostril (4 total) in the morning.
2 sprays in each nostril (4 total) in the afternoon.
2 sprays in each nostril (4 total) later in the evening.

Daily (3x4=12 total)

Hope this clarifies things.




--- In anosmia@yahoogroups.com, Aneschke Smith <neschie2@...> wrote:
>
> Yes, Kevin, I was wondering the same thing. I don't want to use 48 sprays if
24 will do.
>
> After reading Kevin's email, I've been using two squirts in each nostril about
5 times per day. This morning, when I made coffee, I could smell it brewing! I
could taste it a little, too, and can still smell it.
>
> Neschie
>
> Don't use eBay; try the See's way at www.seeauctions.com
>
> --- On Mon, 11/16/09, Jeanne Timpson <lady3kgt@...> wrote:
>
> From: Jeanne Timpson <lady3kgt@...>
> Subject: Re: [anosmia] Nasal polyps and inflammation. This is what has worked
for me.
> To: anosmia@yahoogroups.com
> Date: Monday, November 16, 2009, 3:46 PM
>
>
>
>
>
>
>
>  
>
>
>
>
>
>
>
>
>
>
> Hey there Kevin,
> I have just started increasing my spray dosage to follow your example.  I
just wanted to clarify your directions & make sure I'm on the same page as you.
> You said that you are currently spraying 10 times a day, does this mean that
on 10 different times throughout the day/night you are spraying each nostril 2
times?  I was initially instructed by my ENT to spray 2 shots into each
nostril, in the morning once & then again closer to bedtime.  What say you?  I
just want to make sure I do this exactly as you do.
> Thanks ever so!
>  
>
>  
> Jeanne Timpson
>  
>  
>  
> --- On Thu, 10/29/09, Kevin <kcarr0590@verizon. net> wrote:
>
>
> From: Kevin <kcarr0590@verizon. net>
> Subject: [anosmia] Nasal polyps and inflammation. This is what has worked for
me.
> To: anosmia@yahoogroups .com
> Date: Thursday, October 29, 2009, 12:06 AM
>
>
>  
>
> I was anosmic for over 10 years. I have had two surgeries to remove nasal
polyps but still remained anosmic because of inflammation.
>
> After the last surgery, my ENT had me using Rhinocort Aqua at the standard
dosage of 4 sprays daily (2 in each nostril). I still could not smell anything.
>
> Rhinocort Aqua is an intranasal steroid used to control inflammation.
>
> I increased the dosage to 8 sprays daily (4 in each nostril). After 2 weeks my
sense of smell came back during the day but would fade to nothing in the
evening. I remained on this dosage for several weeks with consistent results.
>
> I then increased the dosage to 12 sprays daily (6 in each nostril). BINGO!!!!
After 2 weeks my sense of smell came back completely 24/7.
>
> It has been 5 years now and my sense of smell is 24/7. I have recently
decreased the dosage to 10 sprays daily (5 in each nostril) and my sense of
smell is still 24/7.
>
> If you have nasal polyps,
>  you will have to have them removed before this treatment will work.
>
> My ENT checks my nose yearly and reports that I have had no return of nasal
polyps and no inflammation.
>
> I INVERT my head after each spray in the nostril. This allows the Rhinocort to
stay high in the nasal cavity instead of running out. By invert, I mean I sit on
the bed or couch, spray in one nostril then lie back so my head hangs off the
end for about 15 seconds then repeat. Make sure your head is upside down, as if
you were standing on your head. When I told my ENT about inverting my head, he
said that was the only way to insure that the Rhinocort gets up to the area
where the olfactory nerves are and this controls the inflammation in the sinuses
that blocks air flow to the olfactory nerves.
>
> If you have questions, you can email me.
>
> Kevin Carrigan
>

The normal dosgage calls for 2 sprays in each nostril once a day (4 total). I
increased my dosage to 2 sprays in each nostril 3 times a day (12 total). I have
decreased down to (10 total).

Your ENT is correct. I distribute the dosage as follows:

2 sprays in each nostril (4 total) in the morning.
2 sprays in each nostril (4 total) in the afternoon.
2 sprays in each nostril (4 total) later in the evening.

Hope this clarifies things.

Kevin Carrigan

--- In anosmia@yahoogroups.com, Jeanne Timpson <lady3kgt@...> wrote:
>
>
> Hey there Kevin,
> I have just started increasing my spray dosage to follow your example.  I just
wanted to clarify your directions & make sure I'm on the same page as you.
> You said that you are currently spraying 10 times a day, does this mean that
on 10 different times throughout the day/night you are spraying each nostril 2
times?  I was initially instructed by my ENT to spray 2 shots into each nostril,
in the morning once & then again closer to bedtime.  What say you?  I just want
to make sure I do this exactly as you do.
> Thanks ever so!
>  
>
>  
> Jeanne Timpson
>  
>  
>  
> --- On Thu, 10/29/09, Kevin <kcarr0590@...> wrote:
>
>
> From: Kevin <kcarr0590@...>
> Subject: [anosmia] Nasal polyps and inflammation. This is what has worked for
me.
> To: anosmia@yahoogroups.com
> Date: Thursday, October 29, 2009, 12:06 AM
>
>
>  
>
>
>
> I was anosmic for over 10 years. I have had two surgeries to remove nasal
polyps but still remained anosmic because of inflammation.
>
> After the last surgery, my ENT had me using Rhinocort Aqua at the standard
dosage of 4 sprays daily (2 in each nostril). I still could not smell anything.
>
> Rhinocort Aqua is an intranasal steroid used to control inflammation.
>
> I increased the dosage to 8 sprays daily (4 in each nostril). After 2 weeks my
sense of smell came back during the day but would fade to nothing in the
evening. I remained on this dosage for several weeks with consistent results.
>
> I then increased the dosage to 12 sprays daily (6 in each nostril). BINGO!!!!
After 2 weeks my sense of smell came back completely 24/7.
>
> It has been 5 years now and my sense of smell is 24/7. I have recently
decreased the dosage to 10 sprays daily (5 in each nostril) and my sense of
smell is still 24/7.
>
> If you have nasal polyps, you will have to have them removed before this
treatment will work.
>
> My ENT checks my nose yearly and reports that I have had no return of nasal
polyps and no inflammation.
>
> I INVERT my head after each spray in the nostril. This allows the Rhinocort to
stay high in the nasal cavity instead of running out. By invert, I mean I sit on
the bed or couch, spray in one nostril then lie back so my head hangs off the
end for about 15 seconds then repeat. Make sure your head is upside down, as if
you were standing on your head. When I told my ENT about inverting my head, he
said that was the only way to insure that the Rhinocort gets up to the area
where the olfactory nerves are and this controls the inflammation in the sinuses
that blocks air flow to the olfactory nerves.
>
> If you have questions, you can email me.
>
> Kevin Carrigan
>

I have, and so have others.  Curious, isn't it?  Perhaps being totally
congested during the illness prevents allergens and irritants from getting in
there and causing inflammation, giving you a temporary window of recovery after
the illness passes.

Cheers,

Karl W.

-----Original Message-----
From: anosmia@yahoogroups.com [mailto:anosmia@yahoogroups.com] On Behalf Of
nomad65413
Sent: Sunday, November 15, 2009 11:48 AM
To: anosmia@yahoogroups.com
Subject: [anosmia] Smell returns

Hi everyone

I have recently had flu and once again, just as the sinus is beginning to clear
and my chesty cough is abating, my smell has returned!
It happens almost everytime I recover from any kind of cold or flu and will only
last a day or two at best, but it shows that my sensors are very much alive and
well.
Does anyone have this happen to them?



------------------------------------

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Hi everyone

I have recently had flu and once again, just as the sinus is beginning to clear
and my chesty cough is abating, my smell has returned!
It happens almost everytime I recover from any kind of cold or flu and will only
last a day or two at best, but it shows that my sensors are very much alive and
well.
Does anyone have this happen to them?

I didn't miss out on anything in school. I remember in second grade all of us
being asked to smell and taste different things and identify each one. I relied
mostly on taste, of course, and listening to how the others responded to odors.
Back then, I didn't know anosmia was a condition, and thought that smelling was
something I just hadn't learned how to do yet. I certainly didn't learn how in
second grade!


--- In anosmia@yahoogroups.com, "Brianna" <kariachi@...> wrote:
>
> Thanks guys. Feel free to put your stories in the thread. It should work as an
interesting way to get to now each other as well. ^_^
>
> And Kirche, I had the same thing! I think that may be one of the reasons the
other kids didn't like me that much was I kept getting annoyed because my
stickers and scented markers "didn't work".
>
> --- In anosmia@yahoogroups.com, Kirche Zeile <kirchezeile@> wrote:
> >
> > Hi Brianna,
> >
> > I would be happy to participate.   My anosmia did lead to some interesting
situations...My favorite and earliest memory is from kindergarten.  Students
received scratch and sniff stickers as rewards for doing well.  I remember
classmates sharing and sniffing each others' stickers and feeling a little left
out.  (I also felt a little odd, as no one, at that point, had discovered my
anosmia.) 
> >
> > And there are many, many more...
> >
> > -Kirche
> >
> >
> >
> >
> > ________________________________
> > From: Brianna <kariachi@>
> > To: anosmia@yahoogroups.com
> > Sent: Wed, November 11, 2009 2:45:22 PM
> > Subject: [anosmia] Fellow Congenital Anosmiacs
> >
> >  
> > I'm doing a persuasive essay for my college English course taking the
viewpoint that all sensory disorders should be taught about to the same degree
as blindness and deafness in schools.
> >
> > My question to you is if you would be willing to offer your stories of going
to school as an anosmiac and state how you think this has affected you.
> >
> > Please note if I may use your story in my paper with credit.
> >
> > Thanks.
> >
>

I was about seven, second grade, when I and my family realized I couldn't smell.
A skunk had snuck into our classroom over the weekend and sprayed. All of the
other girls were screaming and climbing on their desks, the boys were just
holding their noses, and I just sat there not doing much of anything except
being very confused. As the daughter of a congenital anosmiac, I guess I had it
easier than most since when I told her about the incident I was immediately
believed.

Some of the most entertaining incidents I have experienced over the years had to
do with Biology or Chemistry experiments. All of my teachers were aware of my
"issue", and since many of them knew my Mom who was also a teacher in the same
School District, it wasn't a problem to accept it. My lab partners all could
smell, and were picked for their olfactory prowess, but I was the one who had to
be careful when it came to chemicals. Because ours is one that cannot be seen,
people tend to forget that we cannot smell what everyone else is sensing. So in
my Chemistry class, junior year, there were some "interesting" moments with the
chemicals and my inability to smell, including one where our grade was based on
the oder we detected coming from said experiment. In that case I was put in
charge of mixing the different elements and writing the lab report, including
the formulas. In Biology, my Sophomore year, I had real issues with dissection.
Not because our frog was preggers, which it was, but because I also suffer from
hemophobia and that combined with the preservative they had stored the frogs
in...well let's just say I ended up with my head between my knees and sitting in
the doorway with said door wide open on a 50 degree day that was also very
foggy.

I don't recall much from college, I took Botany and Geology to satisfy my
science credits. I do remember that whenever smell came up I simply didn't say
anything. I think it is a very good thing I majored in Broadcast Management and
minored in English as there isn't much call for smelling in those particular
areas of study.

Now if you want further examples of what it was like to actually work in
television and not be able to smell I can provide you with a few, and yes
strangely my inability to smell did cause some issues while working in
Engineering at various stations.

Good luck with your paper and let me know if you need anything else.

Kelly

--- In anosmia@yahoogroups.com, "Brianna" <kariachi@...> wrote:
>
> I'm doing a persuasive essay for my college English course taking the
viewpoint that all sensory disorders should be taught about to the same degree
as blindness and deafness in schools.
>
> My question to you is if you would be willing to offer your stories of going
to school as an anosmiac and state how you think this has affected you.
>
> Please note if I may use your story in my paper with credit.
>
> Thanks.
>

Thanks guys. Feel free to put your stories in the thread. It should work as an
interesting way to get to now each other as well. ^_^

And Kirche, I had the same thing! I think that may be one of the reasons the
other kids didn't like me that much was I kept getting annoyed because my
stickers and scented markers "didn't work".

--- In anosmia@yahoogroups.com, Kirche Zeile <kirchezeile@...> wrote:
>
> Hi Brianna,
>
> I would be happy to participate.   My anosmia did lead to some interesting
situations...My favorite and earliest memory is from kindergarten.  Students
received scratch and sniff stickers as rewards for doing well.  I remember
classmates sharing and sniffing each others' stickers and feeling a little left
out.  (I also felt a little odd, as no one, at that point, had discovered my
anosmia.) 
>
> And there are many, many more...
>
> -Kirche
>
>
>
>
> ________________________________
> From: Brianna <kariachi@...>
> To: anosmia@yahoogroups.com
> Sent: Wed, November 11, 2009 2:45:22 PM
> Subject: [anosmia] Fellow Congenital Anosmiacs
>
>  
> I'm doing a persuasive essay for my college English course taking the
viewpoint that all sensory disorders should be taught about to the same degree
as blindness and deafness in schools.
>
> My question to you is if you would be willing to offer your stories of going
to school as an anosmiac and state how you think this has affected you.
>
> Please note if I may use your story in my paper with credit.
>
> Thanks.
>

I'd be happy to participate.

Kelly
Congenital Anosmiac 40 years

--- In anosmia@yahoogroups.com, "Brianna" <kariachi@...> wrote:
>
> I'm doing a persuasive essay for my college English course taking the
viewpoint that all sensory disorders should be taught about to the same degree
as blindness and deafness in schools.
>
> My question to you is if you would be willing to offer your stories of going
to school as an anosmiac and state how you think this has affected you.
>
> Please note if I may use your story in my paper with credit.
>
> Thanks.
>

I have congenital anosmia.
It didn't affect me at all at school.
It just wasn't an issue of any sort since it doesn't affect the ability to
communicate or learn.

Cheers:-)
Jan


--- In anosmia@yahoogroups.com, "Brianna" <kariachi@...> wrote:
>
> I'm doing a persuasive essay for my college English course taking the
viewpoint that all sensory disorders should be taught about to the same degree
as blindness and deafness in schools.
>
> My question to you is if you would be willing to offer your stories of going
to school as an anosmiac and state how you think this has affected you.
>
> Please note if I may use your story in my paper with credit.
>
> Thanks.
>

I'm doing a persuasive essay for my college English course taking the viewpoint
that all sensory disorders should be taught about to the same degree as
blindness and deafness in schools.

My question to you is if you would be willing to offer your stories of going to
school as an anosmiac and state how you think this has affected you.

Please note if I may use your story in my paper with credit.

Thanks.

You can get a combination gas/carbon monoxide detector at Home Depot or Lowes
for about $50.

I have recently bought a couple more smoke detectors and now have on in every
room of my house (apart from the kitchen). They are not expensive and you could
even put it on you Christmas or birthday list.