I seem to recall that happening to me to a certain extent. Smelling coffee
or bread baking, then when I came to taste it - nothing. The fact that you
have olfaction though, really is good news.

I can tell you I drank far too much when I was anosmic for the numbing
effect (and it helped) but I would tell you to watch out. The units can
creep up.

Mick


On 09/07/2009 16:39, "Chris" <cxthom@...> wrote:

> Mick: Yeah, the booze helps.. So weird cause I can smell it fine, but then it
> goes in the mouth and not much happens. It's like the front door of my nose is
> open but the back door is shut.
>
> --- In anosmia@yahoogroups.com, Mick O'Hare <Mick.O'Hare@...> wrote:
>>
>> Very little research Chris, most of which is dedicated to the causes rather
>> than treatment of anosmia. You've seen the stuff I have and there's not a
>> lot beyond that.
>>
>> Hope the Maker's mark helped. I just finished a bottle of that which I
>> bought at Dulles airport last year. Think I can get it in London so must go
>> searching.
>>
>> Mick
>>
>>
>> On 08/07/2009 21:51, "Chris" <cxthom@...> wrote:
>>
>>> So I went to the ENT today after having hyposmia for about 6 weeks now
>>> following a URI. After having read everything there is to read about the
>>> condition (I'm something of a hypochondriac at the best of times) on the
>>> Web,
>>> I was prepared for the ENT verdict, but admittedly somewhat surprised when
>>> he
>>> finally delivered it. He basically said 'Dunno, probably viral.. dunno if
>>> you'll get it all back.. who knows.' No smell test and no assessment of
>>> continuing sinus pressure and any possible links to hyposmia.
>>>
>>> He ordered a CT and prescribed some Prednisone and Flixonase.
>>>
>>> Is there really no new knowledge or research done on this subject? Seems so
>>> weird to me.. I have fairly pronounced tinnitus as well (what's next?!) - a
>>> couple of years ago they were saying the same thing: nothing to do. But now
>>> we
>>> do have Neuromonics treatment which is highly effective for people with this
>>> condition, and Xanax works as well.. really wondering why sos conditions
>>> leave
>>> even experts stone cold.
>>>
>>> Anyway, has anyone used Flixonase? I'm VERY skeptical about putting anything
>>> up my nose at this point. I've still got decent smell if I hold things up to
>>> my nose, but sense of taste is pretty poor - I downed two glasses of Maker's
>>> Mark (bourbon) this evening and it tasted like spicy water. I'd like to hold
>>> on to that at least!
>>>
>>> Also, should I wait for the CT scan before ingesting Prednisone? Some people
>>> seem to get something out of this treatment, so I'm willing to give it a try
>>> to see if it gets me back to 'normal' (or at least clue me in on whether it
>>> is
>>> a viral or inflammatory problem). But the CT isn't for a couple of weeks,
>>> and
>>> the treatment might affect the results of the CT.. anyone have advice?
>>>
>>> Thanks!
>>>
>>>
>>>
>>> ------------------------------------
>>>
>>> Community email addresses:
>>>   Post message: anosmia@onelist.com
>>>   Subscribe:    anosmia-subscribe@onelist.com
>>>   Unsubscribe:  anosmia-unsubscribe@onelist.com
>>>   List owner:   anosmia-owner@onelist.com
>>>
>>> Shortcut URL to this page:
>>>   http://www.onelist.com/community/anosmiaYahoo! Groups Links
>>>
>>>
>>>
>>
>>
>> r===================== DISCLAIMER ======================
>> This message is intended only for the use of the person(s)
>> ("Intended Recipient") to whom it is addressed. It may contain
>> information, which is privileged and confidential. Accordingly
>> any dissemination, distribution, copying or other use of this
>> message or any of its content by any person other than the Intended
>> Recipient may constitute a breach of civil or criminal law and is
>> strictly prohibited. If you are not the Intended Recipient, please
>> contact the sender as soon as possible.
>>
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>> Registered in England under Company No. 151537
>>
>> =======================================================
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>
>
>
>
> ------------------------------------
>
> Community email addresses:
>   Post message: anosmia@onelist.com
>   Subscribe:    anosmia-subscribe@onelist.com
>   Unsubscribe:  anosmia-unsubscribe@onelist.com
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>
>
>

Thanks Paul.

I got the drugs - will give them a shot. The Pred is tabs and the Flixonase is
drops like you said. I'll start the drops and see how it goes..

Thanks again.

Chris

--- In anosmia@yahoogroups.com, Paul Collins <pcsworld2006@...> wrote:
>
> In my opinion it is definitely worth trying the steroids.
>
> Is the pred a tablet? my experience is that locally applied steroid up the
nose is more effective and has less potential for side effects. I found steroid
sprays ineffective but there are liquid preps available.
>
> If in the uk ask your GP or ENT consultant for Betnesol drops and apply these
in the inverted head position - if it is going to have an effect it should
within 7 days. In the UK Flixonase can be obtained as a liquid preparation
(Flixonase nasules). I found this preparation is also effective but takes longer
to have an effect i.e. 2 weeks as opposed to 2 days with Betnesol . Not sure
about availability of these or similar in other countries.
>
> If this works then you can try sprays which do not require the hassle of the
inverted head position but i have found that these do not get the steroid high
enough up the nose to have an effect.
>
> Probably worth having the CT scan first though to get a picture of the
situation before treatment.
>
> Good luck
>
> paul
>
> ________________________________
> From: Chris <cxthom@...>
> To: anosmia@yahoogroups.com
> Sent: Wednesday, 8 July, 2009 21:51:21
> Subject: [anosmia] Prednisone
>
>
>
>
>
> So I went to the ENT today after having hyposmia for about 6 weeks now
following a URI. After having read everything there is to read about the
condition (I'm something of a hypochondriac at the best of times) on the Web, I
was prepared for the ENT verdict, but admittedly somewhat surprised when he
finally delivered it. He basically said 'Dunno, probably viral.. dunno if you'll
get it all back.. who knows.' No smell test and no assessment of continuing
sinus pressure and any possible links to hyposmia.
>
> He ordered a CT and prescribed some Prednisone and Flixonase.
>
> Is there really no new knowledge or research done on this subject? Seems so
weird to me.. I have fairly pronounced tinnitus as well (what's next?!) - a
couple of years ago they were saying the same thing: nothing to do. But now we
do have Neuromonics treatment which is highly effective for people with this
condition, and Xanax works as well.. really wondering why sos conditions leave
even experts stone cold.
>
> Anyway, has anyone used Flixonase? I'm VERY skeptical about putting anything
up my nose at this point. I've still got decent smell if I hold things up to my
nose, but sense of taste is pretty poor - I downed two glasses of Maker's Mark
(bourbon) this evening and it tasted like spicy water. I'd like to hold on to
that at least!
>
> Also, should I wait for the CT scan before ingesting Prednisone? Some people
seem to get something out of this treatment, so I'm willing to give it a try to
see if it gets me back to 'normal' (or at least clue me in on whether it is a
viral or inflammatory problem). But the CT isn't for a couple of weeks, and the
treatment might affect the results of the CT.. anyone have advice?
>
> Thanks!
>

Mick: Yeah, the booze helps.. So weird cause I can smell it fine, but then it
goes in the mouth and not much happens. It's like the front door of my nose is
open but the back door is shut.

--- In anosmia@yahoogroups.com, Mick O'Hare <Mick.O'Hare@...> wrote:
>
> Very little research Chris, most of which is dedicated to the causes rather
> than treatment of anosmia. You've seen the stuff I have and there's not a
> lot beyond that.
>
> Hope the Maker's mark helped. I just finished a bottle of that which I
> bought at Dulles airport last year. Think I can get it in London so must go
> searching.
>
> Mick
>
>
> On 08/07/2009 21:51, "Chris" <cxthom@...> wrote:
>
> > So I went to the ENT today after having hyposmia for about 6 weeks now
> > following a URI. After having read everything there is to read about the
> > condition (I'm something of a hypochondriac at the best of times) on the
Web,
> > I was prepared for the ENT verdict, but admittedly somewhat surprised when
he
> > finally delivered it. He basically said 'Dunno, probably viral.. dunno if
> > you'll get it all back.. who knows.' No smell test and no assessment of
> > continuing sinus pressure and any possible links to hyposmia.
> >
> > He ordered a CT and prescribed some Prednisone and Flixonase.
> >
> > Is there really no new knowledge or research done on this subject? Seems so
> > weird to me.. I have fairly pronounced tinnitus as well (what's next?!) - a
> > couple of years ago they were saying the same thing: nothing to do. But now
we
> > do have Neuromonics treatment which is highly effective for people with this
> > condition, and Xanax works as well.. really wondering why sos conditions
leave
> > even experts stone cold.
> >
> > Anyway, has anyone used Flixonase? I'm VERY skeptical about putting anything
> > up my nose at this point. I've still got decent smell if I hold things up to
> > my nose, but sense of taste is pretty poor - I downed two glasses of Maker's
> > Mark (bourbon) this evening and it tasted like spicy water. I'd like to hold
> > on to that at least!
> >
> > Also, should I wait for the CT scan before ingesting Prednisone? Some people
> > seem to get something out of this treatment, so I'm willing to give it a try
> > to see if it gets me back to 'normal' (or at least clue me in on whether it
is
> > a viral or inflammatory problem). But the CT isn't for a couple of weeks,
and
> > the treatment might affect the results of the CT.. anyone have advice?
> >
> > Thanks!
> >
> >
> >
> > ------------------------------------
> >
> > Community email addresses:
> >   Post message: anosmia@onelist.com
> >   Subscribe:    anosmia-subscribe@onelist.com
> >   Unsubscribe:  anosmia-unsubscribe@onelist.com
> >   List owner:   anosmia-owner@onelist.com
> >
> > Shortcut URL to this page:
> >   http://www.onelist.com/community/anosmiaYahoo! Groups Links
> >
> >
> >
>
>
> r===================== DISCLAIMER ======================
> This message is intended only for the use of the person(s)
> ("Intended Recipient") to whom it is addressed. It may contain
> information, which is privileged and confidential. Accordingly
> any dissemination, distribution, copying or other use of this
> message or any of its content by any person other than the Intended
> Recipient may constitute a breach of civil or criminal law and is
> strictly prohibited. If you are not the Intended Recipient, please
> contact the sender as soon as possible.
>
> Reed Business Information Limited.
> Registered Office: Quadrant House, The Quadrant, Sutton, Surrey, SM2 5AS, UK.
> Registered in England under Company No. 151537
>
> =======================================================
>

Very little research Chris, most of which is dedicated to the causes rather
than treatment of anosmia. You've seen the stuff I have and there's not a
lot beyond that.

Hope the Maker's mark helped. I just finished a bottle of that which I
bought at Dulles airport last year. Think I can get it in London so must go
searching.

Mick


On 08/07/2009 21:51, "Chris" <cxthom@...> wrote:

> So I went to the ENT today after having hyposmia for about 6 weeks now
> following a URI. After having read everything there is to read about the
> condition (I'm something of a hypochondriac at the best of times) on the Web,
> I was prepared for the ENT verdict, but admittedly somewhat surprised when he
> finally delivered it. He basically said 'Dunno, probably viral.. dunno if
> you'll get it all back.. who knows.' No smell test and no assessment of
> continuing sinus pressure and any possible links to hyposmia.
>
> He ordered a CT and prescribed some Prednisone and Flixonase.
>
> Is there really no new knowledge or research done on this subject? Seems so
> weird to me.. I have fairly pronounced tinnitus as well (what's next?!) - a
> couple of years ago they were saying the same thing: nothing to do. But now we
> do have Neuromonics treatment which is highly effective for people with this
> condition, and Xanax works as well.. really wondering why sos conditions leave
> even experts stone cold.
>
> Anyway, has anyone used Flixonase? I'm VERY skeptical about putting anything
> up my nose at this point. I've still got decent smell if I hold things up to
> my nose, but sense of taste is pretty poor - I downed two glasses of Maker's
> Mark (bourbon) this evening and it tasted like spicy water. I'd like to hold
> on to that at least!
>
> Also, should I wait for the CT scan before ingesting Prednisone? Some people
> seem to get something out of this treatment, so I'm willing to give it a try
> to see if it gets me back to 'normal' (or at least clue me in on whether it is
> a viral or inflammatory problem). But the CT isn't for a couple of weeks, and
> the treatment might affect the results of the CT.. anyone have advice?
>
> Thanks!
>
>
>
> ------------------------------------
>
> Community email addresses:
>   Post message: anosmia@onelist.com
>   Subscribe:    anosmia-subscribe@onelist.com
>   Unsubscribe:  anosmia-unsubscribe@onelist.com
>   List owner:   anosmia-owner@onelist.com
>
> Shortcut URL to this page:
>   http://www.onelist.com/community/anosmiaYahoo! Groups Links
>
>
>


r===================== DISCLAIMER ======================
This message is intended only for the use of the person(s)
("Intended Recipient") to whom it is addressed. It may contain
information, which is privileged and confidential. Accordingly
any dissemination, distribution, copying or other use of this
message or any of its content by any person other than the Intended
Recipient may constitute a breach of civil or criminal law and is
strictly prohibited. If you are not the Intended Recipient, please
contact the sender as soon as possible.

Reed Business Information Limited.
Registered Office: Quadrant House, The Quadrant, Sutton, Surrey, SM2 5AS, UK.
Registered in England under Company No. 151537

=======================================================

So I went to the ENT today after having hyposmia for about 6 weeks now following
a URI. After having read everything there is to read about the condition (I'm
something of a hypochondriac at the best of times) on the Web, I was prepared
for the ENT verdict, but admittedly somewhat surprised when he finally delivered
it. He basically said 'Dunno, probably viral.. dunno if you'll get it all back..
who knows.' No smell test and no assessment of continuing sinus pressure and any
possible links to hyposmia.

He ordered a CT and prescribed some Prednisone and Flixonase.

Is there really no new knowledge or research done on this subject? Seems so
weird to me.. I have fairly pronounced tinnitus as well (what's next?!) - a
couple of years ago they were saying the same thing: nothing to do. But now we
do have Neuromonics treatment which is highly effective for people with this
condition, and Xanax works as well.. really wondering why sos conditions leave
even experts stone cold.

Anyway, has anyone used Flixonase? I'm VERY skeptical about putting anything up
my nose at this point. I've still got decent smell if I hold things up to my
nose, but sense of taste is pretty poor - I downed two glasses of Maker's Mark
(bourbon) this evening and it tasted like spicy water. I'd like to hold on to
that at least!

Also, should I wait for the CT scan before ingesting Prednisone? Some people
seem to get something out of this treatment, so I'm willing to give it a try to
see if it gets me back to 'normal' (or at least clue me in on whether it is a
viral or inflammatory problem). But the CT isn't for a couple of weeks, and the
treatment might affect the results of the CT.. anyone have advice?

Thanks!

Well, there is always the Denny's special:

http://tiny.cc/suHyQ

Cheers,

Karl W.

-----Original Message-----
From: anosmia@yahoogroups.com [mailto:anosmia@yahoogroups.com] On Behalf Of Mick
O'Hare
Sent: Monday, July 06, 2009 12:37 PM
To: anosmia@yahoogroups.com
Subject: Re: [anosmia] Re: FERTILITY TREATMENT

And you'll need plenty of bread to if you are going ahead!

Mick


On 06/07/2009 17:31, "Karl Weunsch" <WUENSCHK@...> wrote:

> Simply spam.  I suppose the link helps you get the eggs to go with the spam.
> :-)
>
> Cheers,
>
> Karl W.
> -----Original Message-----
> From: anosmia@yahoogroups.com [mailto:anosmia@yahoogroups.com] On Behalf Of
> Jan
> Sent: Monday, July 06, 2009 8:20 AM
> To: anosmia@yahoogroups.com
> Subject: [anosmia] Re: FERTILITY TREATMENT
>
> Wrong group, or simply spam?
>
> Jan
>
>
> --- In anosmia@yahoogroups.com, "nafeeshealth" <nafees.shaikh786@...> wrote:
>>
>> Fertility treatments <http://www.efunxone.com/features_treatments.html>
>> Your options if you're struggling to have a baby
>>
>
>
>
>
> ------------------------------------
>
> Community email addresses:
>   Post message: anosmia@onelist.com
>   Subscribe:    anosmia-subscribe@onelist.com
>   Unsubscribe:  anosmia-unsubscribe@onelist.com
>   List owner:   anosmia-owner@onelist.com
>
> Shortcut URL to this page:
>   http://www.onelist.com/community/anosmiaYahoo! Groups Links
>
>
>
>
>
> ------------------------------------
>
> Community email addresses:
>   Post message: anosmia@onelist.com
>   Subscribe:    anosmia-subscribe@onelist.com
>   Unsubscribe:  anosmia-unsubscribe@onelist.com
>   List owner:   anosmia-owner@onelist.com
>
> Shortcut URL to this page:
>   http://www.onelist.com/community/anosmiaYahoo! Groups Links
>
>
>


r===================== DISCLAIMER ======================
This message is intended only for the use of the person(s)
("Intended Recipient") to whom it is addressed. It may contain
information, which is privileged and confidential. Accordingly
any dissemination, distribution, copying or other use of this
message or any of its content by any person other than the Intended
Recipient may constitute a breach of civil or criminal law and is
strictly prohibited. If you are not the Intended Recipient, please
contact the sender as soon as possible.

Reed Business Information Limited.
Registered Office: Quadrant House, The Quadrant, Sutton, Surrey, SM2 5AS, UK.
Registered in England under Company No. 151537

=======================================================



------------------------------------

Community email addresses:
   Post message: anosmia@onelist.com
   Subscribe:    anosmia-subscribe@onelist.com
   Unsubscribe:  anosmia-unsubscribe@onelist.com
   List owner:   anosmia-owner@onelist.com

Shortcut URL to this page:
   http://www.onelist.com/community/anosmiaYahoo! Groups Links

That might not help, as spammers have their nose up the other end.  :-)

Cheers,

Karl W.
-----Original Message-----
From: anosmia@yahoogroups.com [mailto:anosmia@yahoogroups.com] On Behalf Of
russianblues2
Sent: Monday, July 06, 2009 6:29 PM
To: anosmia@yahoogroups.com
Subject: [anosmia] Wrong end

Someone might explain which end we are dealing with in this discussion
group..lol



------------------------------------

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   Post message: anosmia@onelist.com
   Subscribe:    anosmia-subscribe@onelist.com
   Unsubscribe:  anosmia-unsubscribe@onelist.com
   List owner:   anosmia-owner@onelist.com

Shortcut URL to this page:
   http://www.onelist.com/community/anosmiaYahoo! Groups Links

Someone might explain which end we are dealing with in this discussion
group..lol

Some of the info is relevant for those of us with Kallmann Syndrome since the
other main symptom apart from anosmia is infertility due to insufficient hormone
GnRH.

But I would reckon that wasn't why it was posted to this group.
Just a random hit on any accessible groups.

Interestingly, it would probably not have got past the moderators on the
Kallmann's group. We tend not to allow commercial sites through.

Cheers:-)
Jan



--- In anosmia@yahoogroups.com, Mick O'Hare <Mick.O'Hare@...> wrote:
>
> And you'll need plenty of bread to if you are going ahead!
>
> Mick
>
>
> On 06/07/2009 17:31, "Karl Weunsch" <WUENSCHK@...> wrote:
>
> > Simply spam.  I suppose the link helps you get the eggs to go with the spam.
> > :-)
> >
> > Cheers,
> >
> > Karl W.
> > -----Original Message-----
> > From: anosmia@yahoogroups.com [mailto:anosmia@yahoogroups.com] On Behalf Of
> > Jan
> > Sent: Monday, July 06, 2009 8:20 AM
> > To: anosmia@yahoogroups.com
> > Subject: [anosmia] Re: FERTILITY TREATMENT
> >
> > Wrong group, or simply spam?
> >
> > Jan
> >
> >
> > --- In anosmia@yahoogroups.com, "nafeeshealth" <nafees.shaikh786@> wrote:
> >>
> >> Fertility treatments <http://www.efunxone.com/features_treatments.html>
> >> Your options if you're struggling to have a baby
> >>
> >
> >
> >
> >
> > ------------------------------------
> >
> > Community email addresses:
> >   Post message: anosmia@onelist.com
> >   Subscribe:    anosmia-subscribe@onelist.com
> >   Unsubscribe:  anosmia-unsubscribe@onelist.com
> >   List owner:   anosmia-owner@onelist.com
> >
> > Shortcut URL to this page:
> >   http://www.onelist.com/community/anosmiaYahoo! Groups Links
> >
> >
> >
> >
> >
> > ------------------------------------
> >
> > Community email addresses:
> >   Post message: anosmia@onelist.com
> >   Subscribe:    anosmia-subscribe@onelist.com
> >   Unsubscribe:  anosmia-unsubscribe@onelist.com
> >   List owner:   anosmia-owner@onelist.com
> >
> > Shortcut URL to this page:
> >   http://www.onelist.com/community/anosmiaYahoo! Groups Links
> >
> >
> >
>
>
> r===================== DISCLAIMER ======================
> This message is intended only for the use of the person(s)
> ("Intended Recipient") to whom it is addressed. It may contain
> information, which is privileged and confidential. Accordingly
> any dissemination, distribution, copying or other use of this
> message or any of its content by any person other than the Intended
> Recipient may constitute a breach of civil or criminal law and is
> strictly prohibited. If you are not the Intended Recipient, please
> contact the sender as soon as possible.
>
> Reed Business Information Limited.
> Registered Office: Quadrant House, The Quadrant, Sutton, Surrey, SM2 5AS, UK.
> Registered in England under Company No. 151537
>
> =======================================================
>

And you'll need plenty of bread to if you are going ahead!

Mick


On 06/07/2009 17:31, "Karl Weunsch" <WUENSCHK@...> wrote:

> Simply spam.  I suppose the link helps you get the eggs to go with the spam.
> :-)
>
> Cheers,
>
> Karl W.
> -----Original Message-----
> From: anosmia@yahoogroups.com [mailto:anosmia@yahoogroups.com] On Behalf Of
> Jan
> Sent: Monday, July 06, 2009 8:20 AM
> To: anosmia@yahoogroups.com
> Subject: [anosmia] Re: FERTILITY TREATMENT
>
> Wrong group, or simply spam?
>
> Jan
>
>
> --- In anosmia@yahoogroups.com, "nafeeshealth" <nafees.shaikh786@...> wrote:
>>
>> Fertility treatments <http://www.efunxone.com/features_treatments.html>
>> Your options if you're struggling to have a baby
>>
>
>
>
>
> ------------------------------------
>
> Community email addresses:
>   Post message: anosmia@onelist.com
>   Subscribe:    anosmia-subscribe@onelist.com
>   Unsubscribe:  anosmia-unsubscribe@onelist.com
>   List owner:   anosmia-owner@onelist.com
>
> Shortcut URL to this page:
>   http://www.onelist.com/community/anosmiaYahoo! Groups Links
>
>
>
>
>
> ------------------------------------
>
> Community email addresses:
>   Post message: anosmia@onelist.com
>   Subscribe:    anosmia-subscribe@onelist.com
>   Unsubscribe:  anosmia-unsubscribe@onelist.com
>   List owner:   anosmia-owner@onelist.com
>
> Shortcut URL to this page:
>   http://www.onelist.com/community/anosmiaYahoo! Groups Links
>
>
>


r===================== DISCLAIMER ======================
This message is intended only for the use of the person(s)
("Intended Recipient") to whom it is addressed. It may contain
information, which is privileged and confidential. Accordingly
any dissemination, distribution, copying or other use of this
message or any of its content by any person other than the Intended
Recipient may constitute a breach of civil or criminal law and is
strictly prohibited. If you are not the Intended Recipient, please
contact the sender as soon as possible.

Reed Business Information Limited.
Registered Office: Quadrant House, The Quadrant, Sutton, Surrey, SM2 5AS, UK.
Registered in England under Company No. 151537

=======================================================

Simply spam.  I suppose the link helps you get the eggs to go with the spam. 
:-)

Cheers,

Karl W.
-----Original Message-----
From: anosmia@yahoogroups.com [mailto:anosmia@yahoogroups.com] On Behalf Of Jan
Sent: Monday, July 06, 2009 8:20 AM
To: anosmia@yahoogroups.com
Subject: [anosmia] Re: FERTILITY TREATMENT

Wrong group, or simply spam?

Jan


--- In anosmia@yahoogroups.com, "nafeeshealth" <nafees.shaikh786@...> wrote:
>
> Fertility treatments <http://www.efunxone.com/features_treatments.html>
> Your options if you're struggling to have a baby
>




------------------------------------

Community email addresses:
   Post message: anosmia@onelist.com
   Subscribe:    anosmia-subscribe@onelist.com
   Unsubscribe:  anosmia-unsubscribe@onelist.com
   List owner:   anosmia-owner@onelist.com

Shortcut URL to this page:
   http://www.onelist.com/community/anosmiaYahoo! Groups Links

Wrong group, or simply spam?

Jan


--- In anosmia@yahoogroups.com, "nafeeshealth" <nafees.shaikh786@...> wrote:
>
> Fertility treatments <http://www.efunxone.com/features_treatments.html>
> Your options if you're struggling to have a baby
>

Fertility treatments Your options if you're struggling to have a baby

Hi All!

I found this group a few years ago and posted fairly regularly but have been
gone for awhile and ready to connect back with my anosmic family!!

I past my 3 year anniversary with anosmia back in April.  I lost mine while I
was pregnant with my second child and had a cold with a bad viral infection.  I
went to my share of way too many doctors who could never help and have
definitely adjusted to the idea of living like this for the rest of my life.

I have been through a lot of other changes in my life in the past few years as
well.....got divorced which was a bit rough..especially with 2 little ones.  I
lost a very well paying corporate job a few months ago and have been struggling
with being a single mom trying to keep my house!

Since I have gotten laid off I have realized that I will never go back to
corporate america and I will do what it takes to stay out of it at all costs.  I
reconneceted with a childhood friend on facebook and I am now starting my own
business as an independent consultant for arbonne.
Not only do they have great products but the personal growth I have felt just
within myself has been priceless!  I have never been surrounded by such a great
group of people who are all genuinely commited to helping everyone succeed.  It
truly is a working version of "pay it forward"  I love it!!!

If anyone wants to join me on facebook please add me as a friend.  I don't have
any anosmic friends to chat to and it would be awesome!!

Also....if you or a friend or loved one are looking for some great skincare
nutritional products...or want to generate some extra money or get out of
corporate america...I urge you to take a leap of faith and just take a look at
Arbonne.  I am so passionate about it because of what it has done for me...I
just want to put the offer to anyone who might want to look into this great
opportunity.

I hope you all have a great 4th of July!!!!
I'm off to buy food for all the lucky tasting friends so they can enjoy it
during the fireworks tonight!!

God Bless,
Michelle

add me as a friend on facebook and let me know you are anosmic too!!

Michelle Opoien

Angelo Bruno and Dave Richardson keep many of us up to date on what's happening
at the FDA in regards to Zicam and our need to keep the agency focused on the
problems related to the product. Below are the notes I received from the two of
them this morning.

Please let your voice be heard so this product no longer harms people and
Matrixx (the maker of Zicam) is held accountable. Thank you.

From Angelo: Victims need to call their local FDA office (center for drug
enforcement) and talk to the complaint coordinator.  No need to write another
letter.  This time you can personally voice complaints to the complaint
coordinator.  And if you can, ask a friend to do the same.  We are now in the
home stretch.  The FDA has decided to aggressively go after Matrixx.  All of our
work has paid off and you all should be very proud of what we have all done. 
It's not over yet but according to my contact at the FDA, it will be very soon. 
Thanks all.

From Dave: Per Angelo's message, please make this phone call, as time is of the
essence.  Here is a link to the phone numbers for your states.  They are open
8AM - 4:30 PM EST.

http://www.fda.gov/Safety/ReportaProblem/ConsumerComplaintCoordinators/default.h\
tm

Linda,

I spread it out during the day. 2 in the morning, 1 in the afternoon, and 2 more
in the evening.

Kevin Carrigan
--- In anosmia@yahoogroups.com, "Linda Seltzer" <linda@...> wrote:
>
> When you day 5 sprays daily. is it all at the same time? Or do you spread
> the sprays throughout the day???
>
>
>
> Linda
>
> Please consider the environment before printing this email
>
> This e-mail, and any attachments, contains information that is, or may be,
> covered by electronic communications privacy laws, and is also confidential
> and proprietary in nature. If you are not the intended recipient, please be
> advised that you are legally prohibited from retaining, using, copying,
> distributing or otherwise disclosing this information in any manner.
> Instead, please reply to the sender that you have received this
> communication in error, and then immediately delete it
>
>
>
>   _____
>
> From: anosmia@yahoogroups.com [mailto:anosmia@yahoogroups.com] On Behalf Of
> Kevin Carrigan
> Sent: Monday, June 29, 2009 10:08 PM
> To: anosmia@yahoogroups.com
> Subject: [anosmia] Nasal polyps and inflammation. This is what has worked
> for me.
>
>
>
>
>
>
>
>
> I was anosmic for over 10 years. I have had two surgeries to remove nasal
> polyps but still remained anosmic because of inflammation.
>
> After the last surgery, my ENT had me using Rhinocort Aqua at the standard
> dosage of 4 sprays daily (2 in each nostril). I still could not smell
> anything.
>
> Rhinocort Aqua is an intranasal steroid used to control inflammation.
>
> I increased the dosage to 8 sprays daily (4 in each nostril). After 2 weeks
> my sense of smell came back during the day but would fade to nothing in the
> evening. I remained on this dosage for several weeks with consistent
> results.
>
> I then increased the dosage to 12 sprays daily (6 in each nostril).
> BINGO!!!! After 2 weeks my sense of smell came back completely 24/7.
>
> It has been 5 years now and my sense of smell is 24/7. I have recently
> decreased the dosage to 10 sprays daily (5 in each nostril) and my sense of
> smell is still 24/7.
>
> If you have nasal polyps, you will have to have them removed before this
> treatment will work.
>
> My ENT checks my nose yearly and reports that I have had no return of nasal
> polyps and no inflammation.
>
> I INVERT my head after each spray in the nostril. This allows the Rhinocort
> to stay high in the nasal cavity instead of running out. By invert, I mean I
> sit on the bed or couch, spray in one nostril then lie back so my head hangs
> off the end for about 15 seconds then repeat. Make sure your head is upside
> down, as if you were standing on your head. When I told my ENT about
> inverting my head, he said that was the only way to insure that the
> Rhinocort gets up to the area where the olfactory nerves are and this
> controls the inflammation in the sinuses that blocks air flow to the
> olfactory nerves.
>
> If you have questions, you can email me.
>
> Kevin Carrigan
>

 

---

Hi All (esp Mick!)
 
Just an update on my own story. I have been anosmic for roughly 19 years now. Had 2 ops  - the most recent being Feb '08 which was endoscopic sinus surgery. Whilst this alleviated my dry mouth in the morning my sos remained absent. Along with the above i have tried, diet change (after allergy testing), acupuncture, sinus busters, nasal rinses, capaiscan spray etc etc. The only thing that has worked albeit short term has been the steroid Prednsione. Recently (5 weeks ago) I suffered a sinus infection and was on an anti-biotic. The Dr also put me on 20 mg of pred in the morning, 20 in the afternoon, Anti-histamines, Betnesol drops and the ever present nasonex spray. My sos has returned recently and although i have stopped the pred and betnesol (2 weeks ago) my sos is still more or less present. It seems stronger in the morning and it does wax and wane throughout the day but compared to none it is pleasant to have some. I would put it at maybey 20-30% of what it should be but as you all know this is hard to gauge. I am due for image guided surgey before the end of the year which i intend to go through with. Maybe i'll recover the rest of my sos.
 
(the downside of this is that i have put on a stone and a half in weight!!!)
 
I hope you all keep searching and find answers. Don't give up and try every eventuality.  I hope this information helps some of you.
 
Pat
 

---

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Hello there.

I just have to add that when I was pregnant I had no smell sensation. But I am a
congenital anosmic, so this does not surprise me.

But maybe I should tell my husband about the possibillity anyway, maybe he will
agree to a third child :) (just kidding)

Luna

--- In anosmia@yahoogroups.com, Greg O'Loughlin <thenose@...> wrote:
>
> Hello pregnant anosmic!
>
> Sorry to hear about your loss but excited to hear about a new baby!
>
> I am a head trauma anosmic that is recovering quite a bit after 4
> years, so I don't really apply my case to yours...
>
> I do have a cousin that was born anosmic and didn't really know it
> until she became pregnant.
> She had smell throughout her pregnancy but then lost it again shortly
> after delivery.
> A second pregnancy offered a bit more recovery and she has hung onto
> a little bit that appears to be permanent.
>
> Her reason for loss in the first place is not the same as yours, but
> there is certainly something about pregnancy that can boost your
> olfactory sense.
> I wonder if it is trigeminal or actual olfactory... but regardless
> you ladies are getting something!
>
> The good and bad smells you experience seem to be something else that
> sounds familiar to us trauma folks... but most of this seems to
> happen after a few months to a year post trauma.
>
> Not sure what to say.... but I didn't want your post to go completely
> unanswered and I wanted to welcome you to the group.
>
> Keep us posted to know and learn about what you are going through.
> Only 3 months into this, I wonder if you will see much more
> improvement as your brain retrains on some of these smells?
>
> Lori has been online here in the past... a fellow anosmic who lives
> in NJ with you... maybe she has a baby in her future and you two can
> compare kids ( mine has a cuter nose...  )
>
> Good luck, let us know how you do!
>
> Greg
>
> On Jun 28, 2009, at 6:07 AM, clkm777 wrote:
>
> >
> >
> > Hello everyone.
> >
> > This is my first time posting to anything and I wanted to start a
> > dialogue. I am 27 and lost my sense of smell after a head injury
> > that I sustained in a car accident. It was 14 years ago this week
> > so I have not smelled for half of my life. My olfactory nerve was
> > severed and I don't even react to smelling salts.
> >
> > I was devastated to lose my smell. I did not enjoy food for years
> > as my taste was reduced to sour, salt, sweet and bitter. Over time
> > I have learned to rely on texture and after about 10 years I formed
> > a fairly accurate sense of taste. I have since become an excellent
> > cook (or so my husband says) and I can taste more minute flavors
> > instead of relying on strong tastes alone.
> >
> > Honestly I have never looked into anosmia. I was told at the age of
> > 13 that I would probably never smell again and it was left at that.
> > I have never met another person who cannot smell (I live in New
> > Jersey, USA). I didn't know about congenital anosmia until I looked
> > through this forum. I can't imagine never smelling anything in your
> > entire life. Now that the emotional pain is behind me, I have my
> > memories to sustain me.
> >
> > The interesting thing that I wanted to comment on is that I have
> > begun sort of smelling lately. I have had "emotional" smells or
> > phantom smells in the past that were purely mental. I would have a
> > "smell in my nose" that I had no control over and could not get rid
> > of. Sometimes it was sweet like flowers and other times it was a
> > rotten smell that I associate with bad things coming. This affects
> > my taste until the smell goes away. But that is not what is
> > happening now. I am 3 months pregnant (1st child) and have begun
> > smelling just enough to make me sick. I can't say exactly what the
> > smell is but I react anyway. My husband made beef soup and I could
> > just smell something savory and it made me horribly nauseous. I
> > also find that I cannot go to a mall food court or deal with
> > anything frying in the kitchen.
> >
> > Has this happened to anyone else? I saw a post a while back that
> > was similar but I'm pretty sure the person had only lost their
> > smell the year before. I have heard of the nerve regenerating so I
> > don't know how to feel about the similarity. I wanted to know if
> > anyone who has been completely void of all smell for years has had
> > the same experience. I am not expecting to regain the sense after
> > all this time, I was just curious if this will happen again with
> > future pregnancies.
> >
> > Sorry - I know that was long but thanks!!
> >
> >
>

I was anosmic for over 10 years.  I have had two surgeries to remove nasal
polyps but still remained anosmic because of inflammation.

After the last surgery, my ENT had me using Rhinocort Aqua at the standard
dosage of 4 sprays daily (2 in each nostril). I still could not smell anything.

Rhinocort Aqua is an intranasal steroid used to control inflammation.

I increased the dosage to 8 sprays daily (4 in each nostril). After 2 weeks my
sense of smell came back during the day but would fade to nothing in the
evening. I remained on this dosage for several weeks with consistent results.

I then increased the dosage to 12 sprays daily (6 in each nostril). BINGO!!!!
After 2 weeks my sense of smell came back completely 24/7.

It has been 5 years now and my sense of smell is 24/7.  I have recently
decreased the dosage to 10 sprays daily (5 in each nostril) and my sense of
smell is still 24/7.

If you have nasal polyps, you will have to have them removed before this
treatment will work.

My ENT checks my nose yearly and reports that I have had no return of nasal
polyps and no inflammation.

I INVERT my head after each spray in the nostril. This allows the Rhinocort to
stay high in the nasal cavity instead of running out. By invert, I mean I sit on
the bed or couch, spray in one nostril then lie back so my head hangs off  the
end for about 15 seconds then repeat.  Make sure your head is upside down, as if
you were standing on your head.  When I told my ENT about inverting my head, he
said that was the only way to insure that the Rhinocort gets up to the area
where the olfactory nerves are and this controls the inflammation in the sinuses
that blocks air flow to the olfactory nerves.

If you have questions, you can email me.

Kevin Carrigan

I remember checking this out some time ago.
Can't remember how far back  - could be a couple of years, the way time
flies....
I do remember that it all made me a bit suspicious of Hirsch.

Metro is a free paper and must have wanted a space filler.
It's hardly a serious publication :-)
A tendency to adverts dressed up as news - "advertorials"

I think the rationale behind the product is a load of nonsense.
Not all people who lose their sense of smell put on weight.

Anyway...
My "excess baggage" at the moment is the result of inactivity, not over-eating.
My gym closed last December and I've put on about a stone (14 pounds) since
then, without a change of diet.

I've now tracked another down a good gym, which happens also to be where my
physio has moved his practice to :-) So I'm back to the regular aerobic exercise
and weight training for my osteoporosis.

It took 6 months to put on the body fat.
It'll take at least 6 months to lose it.
And no dieting. I need the nutrients.

Cheers:-)
Jan




--- In anosmia@yahoogroups.com, "Martine" <martine@...> wrote:
>
> Surprised to see a big article in a London newspaper today about a new
> miracle weight-loss aid that was discovered because people who have lost
> their sense of taste & smell put on weight
>
>
>
> http://www.metro.co.uk/lifestyle/article.html?The_diet_answer_to_make_you_ea
> t_less
> <http://www.metro.co.uk/lifestyle/article.html?The_diet_answer_to_make_you_e
> at_less&in_article_id=693177&in_page_id=194>
> &in_article_id=693177&in_page_id=194
>
>
>
> http://www.trysensa.com/
>
>
>
>
>
> Dr Hirsh has hit on quite a revenue stream from all that research hasn't he!
>

Hello everyone.

This is my first time posting to anything and I wanted to start a dialogue.  I
am 27 and lost my sense of smell after a head injury that I sustained in a car
accident. It was 14 years ago this week so I have not smelled for half of my
life. My olfactory nerve was severed and I don't even react to smelling salts.

I was devastated to lose my smell.  I did not enjoy food for years as my taste
was reduced to sour, salt, sweet and bitter.  Over time I have learned to rely
on texture and after about 10 years I formed a fairly accurate sense of taste. I
have since become an excellent cook (or so my husband says) and I can taste more
minute flavors instead of relying on strong tastes alone.

Honestly I have never looked into anosmia.  I was told at the age of 13 that I
would probably never smell again and it was left at that.  I have never met
another person who cannot smell (I live in New Jersey, USA). I didn't know about
congenital anosmia until I looked through this forum.  I can't imagine never
smelling anything in your entire life.  Now that the emotional pain is behind
me, I have my memories to sustain me.

The interesting thing that I wanted to comment on is that I have begun sort of
smelling lately.  I have had "emotional" smells or phantom smells in the past
that were purely mental.  I would have a "smell in my nose" that I had no
control over and could not get rid of.  Sometimes it was sweet like flowers and
other times it was a rotten smell that I associate with bad things coming. This
affects my taste until the smell goes away.  But that is not what is happening
now.  I am 3 months pregnant (1st child) and have begun smelling just enough to
make me sick.  I can't say exactly what the smell is but I react anyway.  My
husband made beef soup and I could just smell something savory and it made me
horribly nauseous.  I also find that I cannot go to a mall food court or deal
with anything frying in the kitchen.

Has this happened to anyone else? I saw a post a while back that was similar but
I'm pretty sure the person had only lost their smell the year before.  I have
heard of the nerve regenerating so I don't know how to feel about the
similarity.  I wanted to know if anyone who has been completely void of all
smell for years has had the same experience.  I am not expecting to regain the
sense after all this time, I was just curious if this will happen again with
future pregnancies.

Sorry - I know that was long but thanks!!