http://www.fpnotebook.com/PHA109.htm  "Sources Thiamine Vit. B1 for
nerve-health...

[Non-text portions of this message have been removed]

http://www.fpnotebook.com/PHA105.htm  "Sources of Vitamin B12 for Anosmia..."

[Non-text portions of this message have been removed]

Notice the *Vitamin B12 Deficiency listed as a cause of Loss of Smell. press for
info...

ANNE <anne_white53@...> wrote:  Date: Wed, 2 Aug 2006 18:03:38 -0700
(PDT)
From: ANNE <anne_white53@...>
Subject: Loss of Smell
To: anne_white53@...

http://www.fpnotebook.com/ENT203.htm


[Non-text portions of this message have been removed]

Hi Michelle,

My view, call me cynical, is that most so called consultans are too knife
happy.

My eldest son had a "lazy eye" and the specialist wanted to cut muscle out
of the other one to make them the same etc., and went on to point out the
risks. It amuses me how they think pointing out the risks is some sort of
formality. I dod not tale the risk and his eyes corrected themselves. A
couple of years later he developed a most unusual skin rask just under both
eyes. The dermatologist said he had seen nothing like it in 30 years and was
rubbing his hands in glee at getting an "interesting case"; his words. He
siad he wanted to take a biopsy which would leave a scar for life on my sons
face. He was shocked when I refused. Needless to say the rashes went away
and have never returned. My son would have been scarred for life on his face
if it was left to the consultant.

My ENT will only talk about surgery as if there is no other option. There
was one other option which was to fire my ENT which is what I did.

My doctor is very cooperative. When I see him he gives me much longer than
most patients because he respects the research I have done, and he
recognises that he does not know everything about everything, particularly
about anosmia.  Whenever I request something he always complies without
question.

I personally believe that most ENT's are more interested in surgery because
that's what they mostly get paid for.

If you can I would work with your doctor and simply present to him all the
evidence. Tell him about this group, take the research papers and other
information and tell him you want to work towards the solution.

Best regards,

Adrian.



> Hi Everyone,
> Thanks to those that have written back....
> I had my MRI yesterday and nothing showed up on them indicating
> anything was wrong with my olfactory nerves or anything else.
> So thats good to know but doesn't help much either!
> I started my 6 day dose of prednisone on wednesday evening and have
> noticed some slightly unpleasant odor once in awhile but nothing
> else.
> To those that have tried prednisone...were you able to smell rather
> quickly or did it take 5 or 6 days to jump start the smell.
>
> I am not impressed with the ENT I've been seeing.  He basically just
> told me that he's done all he could outside of surgery..which I
> found interesting that the last person to respond to my email talked
> about.
> Apparently I have a deviated septum and I forget the medical term
> for the other thing but I have enlarged somethings in my nose!
> He said that surgery is likely not to cure anything but is the only
> other alternative he can offer.
> I asked him if there were other medications he knew about and he
> said there is nothing.  He wanted to know if I wanted to
> get "aggressive" and have the surgery so I don't think he's the best
> person to work with me on this anymore. So I guess its back to
> drawing board...bummer.
> I guess I'll ask more questions about the next ENT office and their
> experience with anosmia before I go there this time.  I'm finding it
> amazing that this condition is so unreasearched and people just
> don't really care.  It sure does change your life.
>
> Has anyone else been to multiple ENT's?  I'm wondering if finding a
> taste and smell clinic might be better. I live in Denver and I think
> there is one here..not sure.
>
> Thanks again to all who listen and write back!  You're all like my
> new family now who actually understand!
>
> Michelle
>
>
>
>
>
> Community email addresses:
>  Post message: anosmia@onelist.com
>  Subscribe:    anosmia-subscribe@onelist.com
>  Unsubscribe:  anosmia-unsubscribe@onelist.com
>  List owner:   anosmia-owner@onelist.com
>
> Shortcut URL to this page:
>  http://www.onelist.com/community/anosmia
> Yahoo! Groups Links
>
>
>
>
>
>
>
>
>

Hello Michael,

Yes I recall you discussing this before now. Image guided is an option I
would consider if it was available.

Thanks for the update; it sounds encouraging. As well as the allergies I do
have acute sinusitis to the point there are no spaces where there should be
and also polyps for good measure. If I am going to have those dealt with I
want to be sure it is permanent and as risk free as possible. I don't want
to get on a treadmill of surgey for surgery's sake every couple of years.

Best regards,

Adrian.


> Adrian,
>   Well, I can't tell yet if it's permanent or not, but it has been almost
> 3
> years since my image guided surgery and that's far better than the 2
> traditional surgeries I had had.  I'd want to be at least 5 years out and
> perhaps closer to 10 before I decide it's permanent.  I'd also mention
> that I
> do have a daily regimen of irrigation and other rituals which I believe
> are
> keeping things happy.  See this page for more details:
>
>     http://personal.ecu.edu/wuenschk/Image-Guided-Russell.htm
>
> As an update to that, please note that I have not been using the nasal
> steroid
> Nasarel for the last few months and things are still good.
>   May the smell be with you.
>
>                                         Michael Russell
>                                         russell@...
>
>
>
> Adrian Cooper wrote:
>> Hello everyone,
>>
>> On the subject of sinus surgery, has anyone at all enjoyed a permanent
>> restoration of smell and taste as a result?
>>
>> In addition to this group I have studied numerous cases, and I have yet
>> to
>> discover anyone who has enjoyed a permanent cure by means of surgery;
>> that
>> is not to say it doesn't happen of course.
>>
>> I have concluded that the only thing sinus surgery benefits is the bank
>> balance of the ENT surgeon :)
>>
>> The concerning thing of course are the risks involved which have been
>> emphasised every time surgery has been suggested which goes something
>> like
>> "we want to operate on you, but just do not blame us if you suffer
>> permanent
>> damage to your brain, eyes or other organs in the process".
>>
>> It just seems to me to be the potential start of a never ending cycle of
>> surgery for no real purpose, each one being a risk of experiencing
>> something
>> much worse than the underlying ailment.
>>
>> Even my own doctor confirms these observations.
>>
>> So in all seriousness; has anyone enjoyed a long-term benefit from sinus
>> surgery?
>>
>> It seems to me that the objective should be identifying and healing the
>> underlying cause, not constantly fighting the symptoms.
>>
>> Best regards,
>>
>> Adrian.
>>
>>
>> ----- Original Message -----
>> From: "Connie Busick" <herbalqueen16@...>
>> To: <anosmia@yahoogroups.com>
>> Sent: Friday, August 04, 2006 1:54 AM
>> Subject: Re: [anosmia] Hello Again...back after pregnancy!!
>>
>>
>>> I have taken many rounds of prednisone, I do not take the prescribed
>>> dosage, I use to but because steroids have so many side effects I no
>>> longer
>>> do.  Since you haven't a history of taking them I would follow the
>>> dosage
>>> prescribed.  More than likely YOU WILL get your taste and smell back .
>>> Your scan should help to determine what the problem is.  I have only
>>> intermittingly  been able to tast and smell out of the past 14 years.  I
>>> have had 5 surgeries and opted to take a kenalog shot (kast week) to
>>> postpone what will be my 6th surgery.  Kenalog shot worked wonders.
>>> Within
>>> 5 days I was able to taste and smell and it has also masked all problems
>>> do
>>> to my sinuses.
>>>       Congratulations on your new baby, and good luck with the
>>> prednisone.
>>> Hoping you will be able to smell BABY MAGIC soon. connie
>>>
>>> flygrl78 <flygrl78@...> wrote:
>>>          Hi All,
>>> I've posted a few times here over the last few months. I lost my
>>> sense of smell/taste back in april after a bad cold. My ENT
>>> couldn't do anything as I was pregnant. He did give me a glimmer of
>>> hope in saying that it could come back after the baby was born (and
>>> that it would be quickly...like within two weeks)
>>> So..the good news is we have a healthy baby son! The bad news...I'm
>>> three weeks out after delivery and absolutlely no taste/smell has
>>> returned.
>>>
>>> At my visit yesterday he told me to go get an MRI (which from the
>>> little I've read about them on here probably won't tell much). He
>>> also prescribed me a 6 day dosage of prednisone.
>>> Would any care to share their stories of using prednisone if they
>>> have gone this route?
>>>
>>> Hoping that it would return after the baby gave me a lot of hope but
>>> it looks like that isn't going to be my lucky charm.
>>> I'm getting an impression from this first ENT I've gone to that he
>>> won't be going through any great lengths to help me much past taking
>>> this prednisone which I'm really disappointed about.
>>> I've read the articles about kenalog, theo and something else I
>>> can't recall off the top of my head. Did any of you try all of
>>> these?
>>>
>>> I'm also thinking about going to visit Dr. Henkin perhaps next year
>>> if there is no improvement. I've heard mixed stories about
>>> him...some say he's helped...some say he really gets your money on
>>> follow up visits etc.
>>>
>>> I would appreciate anyones feedback about anything at this point.
>>> I am having such a hard time. This is our second (and last!) baby
>>> and I am so dissapointed and depressed not to be able to smell my
>>> sweet little boy. Not to mention I have no idea when he goes to the
>>> bathroom and am embarrased when I get home to find out he needed a
>>> clean diaper. I feel like a terrible mom. Amongst other things I'm
>>> just really bummed out right now.
>>>
>>> Thanks for anyone who might take the time to share their history!!
>>>
>>> michelle
>
>
> Community email addresses:
>  Post message: anosmia@onelist.com
>  Subscribe:    anosmia-subscribe@onelist.com
>  Unsubscribe:  anosmia-unsubscribe@onelist.com
>  List owner:   anosmia-owner@onelist.com
>
> Shortcut URL to this page:
>  http://www.onelist.com/community/anosmia
> Yahoo! Groups Links
>
>
>
>
>
>
>
>

Dear Michelle,
Im sorry that you have no change since the birth of your baby.   BUT..the
good news is you have a healthy baby boy. Many congratulations!!   At three
weeks
out from delivery, you are bound to have some post partum  depression...which
makes everything seem terrible.  Not being able to smell  is terrible...but
hang in there. There are many things you can try.....and there  is always the
possibility of spontaneous recovery. You'll work through it.  Meanwhile...enjoy
your precious new baby and dont let your lack of smell steal  the joy of
that.
Patty


[Non-text portions of this message have been removed]

By the way Michael-just wanted tp post to you and all that I have the image
guided schedulaed for August 17-I hope it is worth the effort! I am inspired by
your success and others!
   First I will be going on vacation, then surgery, then back to work-I know
should be the other way around, but gotto work on doc's schedule!
   Julieann

Michael Russell <russell@...> wrote:
           Adrian,
Well, I can't tell yet if it's permanent or not, but it has been almost 3
years since my image guided surgery and that's far better than the 2
traditional surgeries I had had. I'd want to be at least 5 years out and
perhaps closer to 10 before I decide it's permanent. I'd also mention that I
do have a daily regimen of irrigation and other rituals which I believe are
keeping things happy. See this page for more details:

http://personal.ecu.edu/wuenschk/Image-Guided-Russell.htm

As an update to that, please note that I have not been using the nasal steroid
Nasarel for the last few months and things are still good.
May the smell be with you.

Michael Russell
russell@...

Adrian Cooper wrote:
> Hello everyone,
>
> On the subject of sinus surgery, has anyone at all enjoyed a permanent
> restoration of smell and taste as a result?
>
> In addition to this group I have studied numerous cases, and I have yet to
> discover anyone who has enjoyed a permanent cure by means of surgery; that
> is not to say it doesn't happen of course.
>
> I have concluded that the only thing sinus surgery benefits is the bank
> balance of the ENT surgeon :)
>
> The concerning thing of course are the risks involved which have been
> emphasised every time surgery has been suggested which goes something like
> "we want to operate on you, but just do not blame us if you suffer permanent
> damage to your brain, eyes or other organs in the process".
>
> It just seems to me to be the potential start of a never ending cycle of
> surgery for no real purpose, each one being a risk of experiencing something
> much worse than the underlying ailment.
>
> Even my own doctor confirms these observations.
>
> So in all seriousness; has anyone enjoyed a long-term benefit from sinus
> surgery?
>
> It seems to me that the objective should be identifying and healing the
> underlying cause, not constantly fighting the symptoms.
>
> Best regards,
>
> Adrian.
>
>
> ----- Original Message -----
> From: "Connie Busick" <herbalqueen16@...>
> To: <anosmia@yahoogroups.com>
> Sent: Friday, August 04, 2006 1:54 AM
> Subject: Re: [anosmia] Hello Again...back after pregnancy!!
>
>
>> I have taken many rounds of prednisone, I do not take the prescribed
>> dosage, I use to but because steroids have so many side effects I no longer
>> do. Since you haven't a history of taking them I would follow the dosage
>> prescribed. More than likely YOU WILL get your taste and smell back .
>> Your scan should help to determine what the problem is. I have only
>> intermittingly been able to tast and smell out of the past 14 years. I
>> have had 5 surgeries and opted to take a kenalog shot (kast week) to
>> postpone what will be my 6th surgery. Kenalog shot worked wonders. Within
>> 5 days I was able to taste and smell and it has also masked all problems do
>> to my sinuses.
>> Congratulations on your new baby, and good luck with the prednisone.
>> Hoping you will be able to smell BABY MAGIC soon. connie
>>
>> flygrl78 <flygrl78@...> wrote:
>> Hi All,
>> I've posted a few times here over the last few months. I lost my
>> sense of smell/taste back in april after a bad cold. My ENT
>> couldn't do anything as I was pregnant. He did give me a glimmer of
>> hope in saying that it could come back after the baby was born (and
>> that it would be quickly...like within two weeks)
>> So..the good news is we have a healthy baby son! The bad news...I'm
>> three weeks out after delivery and absolutlely no taste/smell has
>> returned.
>>
>> At my visit yesterday he told me to go get an MRI (which from the
>> little I've read about them on here probably won't tell much). He
>> also prescribed me a 6 day dosage of prednisone.
>> Would any care to share their stories of using prednisone if they
>> have gone this route?
>>
>> Hoping that it would return after the baby gave me a lot of hope but
>> it looks like that isn't going to be my lucky charm.
>> I'm getting an impression from this first ENT I've gone to that he
>> won't be going through any great lengths to help me much past taking
>> this prednisone which I'm really disappointed about.
>> I've read the articles about kenalog, theo and something else I
>> can't recall off the top of my head. Did any of you try all of
>> these?
>>
>> I'm also thinking about going to visit Dr. Henkin perhaps next year
>> if there is no improvement. I've heard mixed stories about
>> him...some say he's helped...some say he really gets your money on
>> follow up visits etc.
>>
>> I would appreciate anyones feedback about anything at this point.
>> I am having such a hard time. This is our second (and last!) baby
>> and I am so dissapointed and depressed not to be able to smell my
>> sweet little boy. Not to mention I have no idea when he goes to the
>> bathroom and am embarrased when I get home to find out he needed a
>> clean diaper. I feel like a terrible mom. Amongst other things I'm
>> just really bummed out right now.
>>
>> Thanks for anyone who might take the time to share their history!!
>>
>> michelle





[Non-text portions of this message have been removed]

Hi Michelle

I was told the same as you after multiple ENTs. Live with it, this happens,
there's nothing more to do.

It's not always true, of course.

Mick

> ----------
> From:  anosmia@yahoogroups.com on behalf of flygrl78
> Reply To:  anosmia@yahoogroups.com
> Sent:  Friday, August 4, 2006 3:08 PM
> To:  anosmia@yahoogroups.com
> Subject:  [anosmia] Re: Hello Again...back after pregnancy!!
>
> Hi Everyone,
> Thanks to those that have written back....
> I had my MRI yesterday and nothing showed up on them indicating
> anything was wrong with my olfactory nerves or anything else.
> So thats good to know but doesn't help much either!
> I started my 6 day dose of prednisone on wednesday evening and have
> noticed some slightly unpleasant odor once in awhile but nothing
> else.
> To those that have tried prednisone...were you able to smell rather
> quickly or did it take 5 or 6 days to jump start the smell.
>
> I am not impressed with the ENT I've been seeing.  He basically just
> told me that he's done all he could outside of surgery..which I
> found interesting that the last person to respond to my email talked
> about.
> Apparently I have a deviated septum and I forget the medical term
> for the other thing but I have enlarged somethings in my nose!
> He said that surgery is likely not to cure anything but is the only
> other alternative he can offer.
> I asked him if there were other medications he knew about and he
> said there is nothing.  He wanted to know if I wanted to
> get "aggressive" and have the surgery so I don't think he's the best
> person to work with me on this anymore. So I guess its back to
> drawing board...bummer.
> I guess I'll ask more questions about the next ENT office and their
> experience with anosmia before I go there this time.  I'm finding it
> amazing that this condition is so unreasearched and people just
> don't really care.  It sure does change your life.
>
> Has anyone else been to multiple ENT's?  I'm wondering if finding a
> taste and smell clinic might be better. I live in Denver and I think
> there is one here..not sure.
>
> Thanks again to all who listen and write back!  You're all like my
> new family now who actually understand!
>
> Michelle
>
>
>
>
>
> Community email addresses:
>   Post message: anosmia@onelist.com
>   Subscribe:    anosmia-subscribe@onelist.com
>   Unsubscribe:  anosmia-unsubscribe@onelist.com
>   List owner:   anosmia-owner@onelist.com
>
> Shortcut URL to this page:
>   http://www.onelist.com/community/anosmia
> Yahoo! Groups Links
>
>
>
>
>
>
>
>
>


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Adrian,
    Well, I can't tell yet if it's permanent or not, but it has been almost 3
years since my image guided surgery and that's far better than the 2
traditional surgeries I had had.  I'd want to be at least 5 years out and
perhaps closer to 10 before I decide it's permanent.  I'd also mention that I
do have a daily regimen of irrigation and other rituals which I believe are
keeping things happy.  See this page for more details:

      http://personal.ecu.edu/wuenschk/Image-Guided-Russell.htm

As an update to that, please note that I have not been using the nasal steroid
Nasarel for the last few months and things are still good.
    May the smell be with you.

                                          Michael Russell
                                          russell@...



Adrian Cooper wrote:
> Hello everyone,
>
> On the subject of sinus surgery, has anyone at all enjoyed a permanent
> restoration of smell and taste as a result?
>
> In addition to this group I have studied numerous cases, and I have yet to
> discover anyone who has enjoyed a permanent cure by means of surgery; that
> is not to say it doesn't happen of course.
>
> I have concluded that the only thing sinus surgery benefits is the bank
> balance of the ENT surgeon :)
>
> The concerning thing of course are the risks involved which have been
> emphasised every time surgery has been suggested which goes something like
> "we want to operate on you, but just do not blame us if you suffer permanent
> damage to your brain, eyes or other organs in the process".
>
> It just seems to me to be the potential start of a never ending cycle of
> surgery for no real purpose, each one being a risk of experiencing something
> much worse than the underlying ailment.
>
> Even my own doctor confirms these observations.
>
> So in all seriousness; has anyone enjoyed a long-term benefit from sinus
> surgery?
>
> It seems to me that the objective should be identifying and healing the
> underlying cause, not constantly fighting the symptoms.
>
> Best regards,
>
> Adrian.
>
>
> ----- Original Message -----
> From: "Connie Busick" <herbalqueen16@...>
> To: <anosmia@yahoogroups.com>
> Sent: Friday, August 04, 2006 1:54 AM
> Subject: Re: [anosmia] Hello Again...back after pregnancy!!
>
>
>> I have taken many rounds of prednisone, I do not take the prescribed
>> dosage, I use to but because steroids have so many side effects I no longer
>> do.  Since you haven't a history of taking them I would follow the dosage
>> prescribed.  More than likely YOU WILL get your taste and smell back .
>> Your scan should help to determine what the problem is.  I have only
>> intermittingly  been able to tast and smell out of the past 14 years.  I
>> have had 5 surgeries and opted to take a kenalog shot (kast week) to
>> postpone what will be my 6th surgery.  Kenalog shot worked wonders.  Within
>> 5 days I was able to taste and smell and it has also masked all problems do
>> to my sinuses.
>>       Congratulations on your new baby, and good luck with the prednisone.
>> Hoping you will be able to smell BABY MAGIC soon. connie
>>
>> flygrl78 <flygrl78@...> wrote:
>>          Hi All,
>> I've posted a few times here over the last few months. I lost my
>> sense of smell/taste back in april after a bad cold. My ENT
>> couldn't do anything as I was pregnant. He did give me a glimmer of
>> hope in saying that it could come back after the baby was born (and
>> that it would be quickly...like within two weeks)
>> So..the good news is we have a healthy baby son! The bad news...I'm
>> three weeks out after delivery and absolutlely no taste/smell has
>> returned.
>>
>> At my visit yesterday he told me to go get an MRI (which from the
>> little I've read about them on here probably won't tell much). He
>> also prescribed me a 6 day dosage of prednisone.
>> Would any care to share their stories of using prednisone if they
>> have gone this route?
>>
>> Hoping that it would return after the baby gave me a lot of hope but
>> it looks like that isn't going to be my lucky charm.
>> I'm getting an impression from this first ENT I've gone to that he
>> won't be going through any great lengths to help me much past taking
>> this prednisone which I'm really disappointed about.
>> I've read the articles about kenalog, theo and something else I
>> can't recall off the top of my head. Did any of you try all of
>> these?
>>
>> I'm also thinking about going to visit Dr. Henkin perhaps next year
>> if there is no improvement. I've heard mixed stories about
>> him...some say he's helped...some say he really gets your money on
>> follow up visits etc.
>>
>> I would appreciate anyones feedback about anything at this point.
>> I am having such a hard time. This is our second (and last!) baby
>> and I am so dissapointed and depressed not to be able to smell my
>> sweet little boy. Not to mention I have no idea when he goes to the
>> bathroom and am embarrased when I get home to find out he needed a
>> clean diaper. I feel like a terrible mom. Amongst other things I'm
>> just really bummed out right now.
>>
>> Thanks for anyone who might take the time to share their history!!
>>
>> michelle

Hi Everyone,
Thanks to those that have written back....
I had my MRI yesterday and nothing showed up on them indicating
anything was wrong with my olfactory nerves or anything else.
So thats good to know but doesn't help much either!
I started my 6 day dose of prednisone on wednesday evening and have
noticed some slightly unpleasant odor once in awhile but nothing
else.
To those that have tried prednisone...were you able to smell rather
quickly or did it take 5 or 6 days to jump start the smell.

I am not impressed with the ENT I've been seeing.  He basically just
told me that he's done all he could outside of surgery..which I
found interesting that the last person to respond to my email talked
about.
Apparently I have a deviated septum and I forget the medical term
for the other thing but I have enlarged somethings in my nose!
He said that surgery is likely not to cure anything but is the only
other alternative he can offer.
I asked him if there were other medications he knew about and he
said there is nothing.  He wanted to know if I wanted to
get "aggressive" and have the surgery so I don't think he's the best
person to work with me on this anymore. So I guess its back to
drawing board...bummer.
I guess I'll ask more questions about the next ENT office and their
experience with anosmia before I go there this time.  I'm finding it
amazing that this condition is so unreasearched and people just
don't really care.  It sure does change your life.

Has anyone else been to multiple ENT's?  I'm wondering if finding a
taste and smell clinic might be better. I live in Denver and I think
there is one here..not sure.

Thanks again to all who listen and write back!  You're all like my
new family now who actually understand!

Michelle

Hello everyone,

On the subject of sinus surgery, has anyone at all enjoyed a permanent
restoration of smell and taste as a result?

In addition to this group I have studied numerous cases, and I have yet to
discover anyone who has enjoyed a permanent cure by means of surgery; that
is not to say it doesn't happen of course.

I have concluded that the only thing sinus surgery benefits is the bank
balance of the ENT surgeon :)

The concerning thing of course are the risks involved which have been
emphasised every time surgery has been suggested which goes something like
"we want to operate on you, but just do not blame us if you suffer permanent
damage to your brain, eyes or other organs in the process".

It just seems to me to be the potential start of a never ending cycle of
surgery for no real purpose, each one being a risk of experiencing something
much worse than the underlying ailment.

Even my own doctor confirms these observations.

So in all seriousness; has anyone enjoyed a long-term benefit from sinus
surgery?

It seems to me that the objective should be identifying and healing the
underlying cause, not constantly fighting the symptoms.

Best regards,

Adrian.


----- Original Message -----
From: "Connie Busick" <herbalqueen16@...>
To: <anosmia@yahoogroups.com>
Sent: Friday, August 04, 2006 1:54 AM
Subject: Re: [anosmia] Hello Again...back after pregnancy!!


>I have taken many rounds of prednisone, I do not take the prescribed
>dosage, I use to but because steroids have so many side effects I no longer
>do.  Since you haven't a history of taking them I would follow the dosage
>prescribed.  More than likely YOU WILL get your taste and smell back .
>Your scan should help to determine what the problem is.  I have only
>intermittingly  been able to tast and smell out of the past 14 years.  I
>have had 5 surgeries and opted to take a kenalog shot (kast week) to
>postpone what will be my 6th surgery.  Kenalog shot worked wonders.  Within
>5 days I was able to taste and smell and it has also masked all problems do
>to my sinuses.
>       Congratulations on your new baby, and good luck with the prednisone.
> Hoping you will be able to smell BABY MAGIC soon. connie
>
> flygrl78 <flygrl78@...> wrote:
>          Hi All,
> I've posted a few times here over the last few months. I lost my
> sense of smell/taste back in april after a bad cold. My ENT
> couldn't do anything as I was pregnant. He did give me a glimmer of
> hope in saying that it could come back after the baby was born (and
> that it would be quickly...like within two weeks)
> So..the good news is we have a healthy baby son! The bad news...I'm
> three weeks out after delivery and absolutlely no taste/smell has
> returned.
>
> At my visit yesterday he told me to go get an MRI (which from the
> little I've read about them on here probably won't tell much). He
> also prescribed me a 6 day dosage of prednisone.
> Would any care to share their stories of using prednisone if they
> have gone this route?
>
> Hoping that it would return after the baby gave me a lot of hope but
> it looks like that isn't going to be my lucky charm.
> I'm getting an impression from this first ENT I've gone to that he
> won't be going through any great lengths to help me much past taking
> this prednisone which I'm really disappointed about.
> I've read the articles about kenalog, theo and something else I
> can't recall off the top of my head. Did any of you try all of
> these?
>
> I'm also thinking about going to visit Dr. Henkin perhaps next year
> if there is no improvement. I've heard mixed stories about
> him...some say he's helped...some say he really gets your money on
> follow up visits etc.
>
> I would appreciate anyones feedback about anything at this point.
> I am having such a hard time. This is our second (and last!) baby
> and I am so dissapointed and depressed not to be able to smell my
> sweet little boy. Not to mention I have no idea when he goes to the
> bathroom and am embarrased when I get home to find out he needed a
> clean diaper. I feel like a terrible mom. Amongst other things I'm
> just really bummed out right now.
>
> Thanks for anyone who might take the time to share their history!!
>
> michelle
>
>
>
>
>
> __________________________________________________
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> Tired of spam?  Yahoo! Mail has the best spam protection around
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> [Non-text portions of this message have been removed]
>
>
>
> Community email addresses:
>  Post message: anosmia@onelist.com
>  Subscribe:    anosmia-subscribe@onelist.com
>  Unsubscribe:  anosmia-unsubscribe@onelist.com
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There's me thinking I'd had a really bad rhinovirus and all it was was me being
neurotic. Enough to make you histrionic isn't it?

Mick

> ----------
> From:  anosmia@yahoogroups.com on behalf of Ann
> Reply To:  anosmia@yahoogroups.com
> Sent:  Thursday, August 3, 2006 11:01 PM
> To:  anosmia@yahoogroups.com
> Subject:  [anosmia] Re: Fwd: THE MERCK MANUAL, Sec. 7, Ch. 86, Nose And
Paranasal Sinuses
>
> I found some of what was written on the page about Disorders of Taste
> & Smell in the Merck manual insulting and ignorant.
>
> For example:
>
> "Hyperosmia (increased sensitivity to odors) usually reflects a
> neurotic or histrionic personality. Dysosmia (disagreeable or
> distorted sense of smell) may occur with infection of the nasal
> sinuses, partial damage to the olfactory bulbs, or psychologic
> depression."
>
> Hyperosmia USUALLY reflects a neurotic or histrionic personality
> disorder?  ARRRRGGHHHH!  (excuse me while I get histrionic)  Dontcha
> just love it when they accuse you of this stuff?  And maybe, just
> maybe those with dysosmia have psychologic depression FROM THE
> DYSOSMIA!!!!  Dummies.  Whoever wrote this makes George Bush look like
> a regular Einstein.  But I digress...
>
> Merck is also one of the biggest pharmaceutical companies in the
> world.  Frankly, I'm surprised ****Anne**** would forward anything
> from them.
>
> Ann Christie
>
>
> --- In anosmia@yahoogroups.com, "Jan" <JanetPinfield@...> wrote:
> >
> > Thank you, Anne,
> >
> > I didn't criticise what you wrote - unless you wrote the Merck
> > manual?
> >
> > I criticised what Merck wrote.
> > I didn't call it "some on-line Medical Manuel:"
> > (I don't think it is written by a Spanish medical student ;-)
> >
> > This is what I wrote:
> > > > I do hate it when on-line medical manuals don't get their basic
> > > facts
> > > > straight.  It always makes you wonder what else is wrong.
> >
> > I did wonder what else is wrong and I tracked through a few cross-
> > references. I found quite a lot that is well out of date on a non-
> > anosmia subject.  I shall be writing to Merck by snail mail (they
> > don't give an email address for corrections or comments). I will
> > give them authoritative references to back up what I write to them.
> >
> > The point is - on-line medical manuals (and this IS Merck's on-line
> > medical manual) are so accessible to a wide public.  They really
> > ought to take a lot more care in getting their facts correct and
> > completely up to date, particularly if they promote themselves as
> > being an authority. They should be in the business of promoting
> > information, not mis-information.
> >
> > I think it is perfectly valid to point out inaccuracies in reference
> > documents. If nobody does that, then we continue to get mis-
> > information.
> >
> > Cheers:-)
> > Jan
> >
> >
> >
> > --- In anosmia@yahoogroups.com, "Anne" <anne_white53@> wrote:
> > >
> > > Hi Jan: I thought of you when I read that also. But just for the
> > > record; Merck Medical Manuel has been in existance since 1922; so
> > it
> > > is not some "on-line Medical Manuel:it did say removing polyps
> > helps.
> > > had other info. I don't know why I bother trying to help others
> > with
> > > you Jan constantly criticizing everything I write. The Merck
> > Manuel
> > > is over 500 pages and the new edition is on line for Aug. 6th 2006
> > >
> > > I wonder if they will correct that. Prob. at one time it was
> > thought
> > > that only Males got this and prob. never corrected that
> > information.
> > > Good bye  Jan from Anne
> > > Merck Medical Co. was discovered in the late 1800's in the USA.
> > > Maybe there was some information that was useful to others. --- In
> > > anosmia@yahoogroups.com, "Jan" <JanetPinfield@> wrote:
> > > >
> > > > Thank you, Anne.
> > > >
> > > > I shall have to write to Merck to remind them that Kallmann's is > > > >
> NOT "Male Hypogonadism".
> > > >
> > > > Kallmann's Syndrome is Hypogonadotrophic Hypogonadism with
> > Anosmia
> > > and
> > > > affects both males and females (though more males than females).
> > > There
> > > > are many other forms of hypogonadism too that are not associated
> > > with
> > > > anosmia..
> > > >
> > > > I do hate it when on-line medical manuals don't get their basic
> > > facts
> > > > straight.  It always makes you wonder what else is wrong.
> > > >
> > > > Cheers:-)
> > > > Jan - 58, female, Kallmann's syndrome.
> > > >
> > > >
> > > > --- In anosmia@yahoogroups.com, ANNE <anne_white53@> wrote:
> > > > >
> > > > > A good article on Anosmia and related.
> > > > >
> > > > > ANNE <anne_white53@> wrote:
> > > > >   Date: Wed, 2 Aug 2006 04:45:55 -0700 (PDT)
> > > > > From: ANNE <anne_white53@>
> > > > > Subject: THE MERCK MANUAL, Sec. 7, Ch. 86, Nose And Paranasal
> > > Sinuses
> > > > > To: anne_white53@
> > > > >
> > > > >
> > http://www.merck.com/mrkshared/mmanual/section7/chapter86/86i.jsp
> > > >
> > >
> >
>
>
>
>
>
>
> Community email addresses:
>   Post message: anosmia@onelist.com
>   Subscribe:    anosmia-subscribe@onelist.com
>   Unsubscribe:  anosmia-unsubscribe@onelist.com
>   List owner:   anosmia-owner@onelist.com
>
> Shortcut URL to this page:
>   http://www.onelist.com/community/anosmia
> Yahoo! Groups Links
>
>
>
>
>
>
>
>


r===================== DISCLAIMER ======================
This message is intended only for the use of the person(s)
(\"Intended Recipient\") to whom it is addressed. It may contain
information, which is privileged and confidential. Accordingly
any dissemination, distribution, copying or other use of this
message or any of its content by any person other than the Intended
Recipient may constitute a breach of civil or criminal law and is
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=======================================================

I have taken many rounds of prednisone, I do not take the prescribed dosage, I
use to but because steroids have so many side effects I no longer do.  Since you
haven't a history of taking them I would follow the dosage prescribed.  More
than likely YOU WILL get your taste and smell back .  Your scan should help to
determine what the problem is.  I have only intermittingly  been able to tast
and smell out of the past 14 years.  I have had 5 surgeries and opted to take a
kenalog shot (kast week) to postpone what will be my 6th surgery.  Kenalog shot
worked wonders.  Within 5 days I was able to taste and smell and it has also
masked all problems do to my sinuses.
        Congratulations on your new baby, and good luck with the prednisone. 
Hoping you will be able to smell BABY MAGIC soon. connie

flygrl78 <flygrl78@...> wrote:
           Hi All,
I've posted a few times here over the last few months. I lost my
sense of smell/taste back in april after a bad cold. My ENT
couldn't do anything as I was pregnant. He did give me a glimmer of
hope in saying that it could come back after the baby was born (and
that it would be quickly...like within two weeks)
So..the good news is we have a healthy baby son! The bad news...I'm
three weeks out after delivery and absolutlely no taste/smell has
returned.

At my visit yesterday he told me to go get an MRI (which from the
little I've read about them on here probably won't tell much). He
also prescribed me a 6 day dosage of prednisone.
Would any care to share their stories of using prednisone if they
have gone this route?

Hoping that it would return after the baby gave me a lot of hope but
it looks like that isn't going to be my lucky charm.
I'm getting an impression from this first ENT I've gone to that he
won't be going through any great lengths to help me much past taking
this prednisone which I'm really disappointed about.
I've read the articles about kenalog, theo and something else I
can't recall off the top of my head. Did any of you try all of
these?

I'm also thinking about going to visit Dr. Henkin perhaps next year
if there is no improvement. I've heard mixed stories about
him...some say he's helped...some say he really gets your money on
follow up visits etc.

I would appreciate anyones feedback about anything at this point.
I am having such a hard time. This is our second (and last!) baby
and I am so dissapointed and depressed not to be able to smell my
sweet little boy. Not to mention I have no idea when he goes to the
bathroom and am embarrased when I get home to find out he needed a
clean diaper. I feel like a terrible mom. Amongst other things I'm
just really bummed out right now.

Thanks for anyone who might take the time to share their history!!

michelle





  __________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
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[Non-text portions of this message have been removed]

Hi Michelle,

Congrats on the new addition! May he bring you much joy.

I am, and have for the last 11 years been the single parent of my three
sons, now aged 15, 14 and 13 years.

I lost my sense of smell and taste about 5 years ago now due to allergies
which I have experienced nearly all my life. In fact an asthma attack a few
years ago very nearly ended my life with a couple of minutes to spare.

Prednisone restores my smell and taste by between 50% and 75% for the time I
take it, and then it fades away again. I have taken two courses of kenalog,
max strength, and it had zero effect. I don't think it hit the concentration
required to make the difference.

I took theo for a couple of months with zero effect except bad reactions.

I know now that theo is viral indicated whereas mine is allergy/inflamation
indicated.

I am also taking Flixonase Nasules as of the last couple of weeks or so.

It seems to me that Prednisone and Theo are the two main lines of attack. If
Prednisone does not work, see if you can go onto theo. It sounds to me as if
yours might be viral indicated in which case theo is the most likely of the
two to work.

Best regards,

Adrian.


> Hi All,
> I've posted a few times here over the last few months.  I lost my
> sense of smell/taste back in april after a bad cold.  My ENT
> couldn't do anything as I was pregnant. He did give me a glimmer of
> hope in saying that it could come back after the baby was born (and
> that it would be quickly...like within two weeks)
> So..the good news is we have a healthy baby son!  The bad news...I'm
> three weeks out after delivery and absolutlely no taste/smell has
> returned.
>
> At my visit yesterday he told me to go get an MRI (which from the
> little I've read about them on here probably won't tell much).  He
> also prescribed me a 6 day dosage of prednisone.
> Would any care to share their stories of using prednisone if they
> have gone this route?
>
> Hoping that it would return after the baby gave me a lot of hope but
> it looks like that isn't going to be my lucky charm.
> I'm getting an impression from this first ENT I've gone to that he
> won't be going through any great lengths to help me much past taking
> this prednisone which I'm really disappointed about.
> I've read the articles about kenalog, theo and something else I
> can't recall off the top of my head.  Did any of you try all of
> these?
>
> I'm also thinking about going to visit Dr. Henkin perhaps next year
> if there is no improvement. I've heard mixed stories about
> him...some say he's helped...some say he really gets your money on
> follow up visits etc.
>
> I would appreciate anyones feedback about anything at this point.
> I am having such a hard time.  This is our second (and last!) baby
> and I am so dissapointed and depressed not to be able to smell my
> sweet little boy.  Not to mention I have no idea when he goes to the
> bathroom and am embarrased when I get home to find out he needed a
> clean diaper.  I feel like a terrible mom.  Amongst other things I'm
> just really bummed out right now.
>
> Thanks for anyone who might take the time to share their history!!
>
> michelle
>
>
>
>
>
> Community email addresses:
>  Post message: anosmia@onelist.com
>  Subscribe:    anosmia-subscribe@onelist.com
>  Unsubscribe:  anosmia-unsubscribe@onelist.com
>  List owner:   anosmia-owner@onelist.com
>
> Shortcut URL to this page:
>  http://www.onelist.com/community/anosmia
> Yahoo! Groups Links
>
>
>
>
>
>
>
>
>

I found some of what was written on the page about Disorders of Taste
& Smell in the Merck manual insulting and ignorant.

For example:

"Hyperosmia (increased sensitivity to odors) usually reflects a
neurotic or histrionic personality. Dysosmia (disagreeable or
distorted sense of smell) may occur with infection of the nasal
sinuses, partial damage to the olfactory bulbs, or psychologic
depression."

Hyperosmia USUALLY reflects a neurotic or histrionic personality
disorder?  ARRRRGGHHHH!  (excuse me while I get histrionic)  Dontcha
just love it when they accuse you of this stuff?  And maybe, just
maybe those with dysosmia have psychologic depression FROM THE
DYSOSMIA!!!!  Dummies.  Whoever wrote this makes George Bush look like
a regular Einstein.  But I digress...

Merck is also one of the biggest pharmaceutical companies in the
world.  Frankly, I'm surprised ****Anne**** would forward anything
from them.

Ann Christie


--- In anosmia@yahoogroups.com, "Jan" <JanetPinfield@...> wrote:
>
> Thank you, Anne,
>
> I didn't criticise what you wrote - unless you wrote the Merck
> manual?
>
> I criticised what Merck wrote.
> I didn't call it "some on-line Medical Manuel:"
> (I don't think it is written by a Spanish medical student ;-)
>
> This is what I wrote:
> > > I do hate it when on-line medical manuals don't get their basic
> > facts
> > > straight.  It always makes you wonder what else is wrong.
>
> I did wonder what else is wrong and I tracked through a few cross-
> references. I found quite a lot that is well out of date on a non-
> anosmia subject.  I shall be writing to Merck by snail mail (they
> don't give an email address for corrections or comments). I will
> give them authoritative references to back up what I write to them.
>
> The point is - on-line medical manuals (and this IS Merck's on-line
> medical manual) are so accessible to a wide public.  They really
> ought to take a lot more care in getting their facts correct and
> completely up to date, particularly if they promote themselves as
> being an authority. They should be in the business of promoting
> information, not mis-information.
>
> I think it is perfectly valid to point out inaccuracies in reference
> documents. If nobody does that, then we continue to get mis-
> information.
>
> Cheers:-)
> Jan
>
>
>
> --- In anosmia@yahoogroups.com, "Anne" <anne_white53@> wrote:
> >
> > Hi Jan: I thought of you when I read that also. But just for the
> > record; Merck Medical Manuel has been in existance since 1922; so
> it
> > is not some "on-line Medical Manuel:it did say removing polyps
> helps.
> > had other info. I don't know why I bother trying to help others
> with
> > you Jan constantly criticizing everything I write. The Merck
> Manuel
> > is over 500 pages and the new edition is on line for Aug. 6th 2006
> >
> > I wonder if they will correct that. Prob. at one time it was
> thought
> > that only Males got this and prob. never corrected that
> information.
> > Good bye  Jan from Anne
> > Merck Medical Co. was discovered in the late 1800's in the USA.
> > Maybe there was some information that was useful to others. --- In
> > anosmia@yahoogroups.com, "Jan" <JanetPinfield@> wrote:
> > >
> > > Thank you, Anne.
> > >
> > > I shall have to write to Merck to remind them that Kallmann's is
> > > NOT "Male Hypogonadism".
> > >
> > > Kallmann's Syndrome is Hypogonadotrophic Hypogonadism with
> Anosmia
> > and
> > > affects both males and females (though more males than females).
> > There
> > > are many other forms of hypogonadism too that are not associated
> > with
> > > anosmia..
> > >
> > > I do hate it when on-line medical manuals don't get their basic
> > facts
> > > straight.  It always makes you wonder what else is wrong.
> > >
> > > Cheers:-)
> > > Jan - 58, female, Kallmann's syndrome.
> > >
> > >
> > > --- In anosmia@yahoogroups.com, ANNE <anne_white53@> wrote:
> > > >
> > > > A good article on Anosmia and related.
> > > >
> > > > ANNE <anne_white53@> wrote:
> > > >   Date: Wed, 2 Aug 2006 04:45:55 -0700 (PDT)
> > > > From: ANNE <anne_white53@>
> > > > Subject: THE MERCK MANUAL, Sec. 7, Ch. 86, Nose And Paranasal
> > Sinuses
> > > > To: anne_white53@
> > > >
> > > >
> http://www.merck.com/mrkshared/mmanual/section7/chapter86/86i.jsp
> > >
> >
>

Hi Michelle,
Congrats on the birth of your new son.  May he always be a source of  pride
and joy to you and your family.  I can empathize with your feelings  about
dirty diapers. -Had the same experience myself, now I resort to visual 
checking.
The birth of a baby can play havoc with your hormones and cause  depression,
even if one is not anosmic.  Take pleasure in your little one  and don't give
up hope - try everything.  Good luck.
Linda.


[Non-text portions of this message have been removed]

Hi Michelle

My experiences are at http://personal.ecu.edu/wuenschk/ViralMick.htm

They are different to yours, I'm a viral anosmic, but I took theophylline after
visiting Dr Henkin so you may find it interesting.

Mick

> ----------
> From:  anosmia@yahoogroups.com on behalf of flygrl78
> Reply To:  anosmia@yahoogroups.com
> Sent:  Thursday, August 3, 2006 3:08 PM
> To:  anosmia@yahoogroups.com
> Subject:  [anosmia] Hello Again...back after pregnancy!!
>
> Hi All,
> I've posted a few times here over the last few months.  I lost my
> sense of smell/taste back in april after a bad cold.  My ENT
> couldn't do anything as I was pregnant. He did give me a glimmer of
> hope in saying that it could come back after the baby was born (and
> that it would be quickly...like within two weeks)
> So..the good news is we have a healthy baby son!  The bad news...I'm
> three weeks out after delivery and absolutlely no taste/smell has
> returned.
>
> At my visit yesterday he told me to go get an MRI (which from the
> little I've read about them on here probably won't tell much).  He
> also prescribed me a 6 day dosage of prednisone.
> Would any care to share their stories of using prednisone if they
> have gone this route?
>
> Hoping that it would return after the baby gave me a lot of hope but
> it looks like that isn't going to be my lucky charm.
> I'm getting an impression from this first ENT I've gone to that he
> won't be going through any great lengths to help me much past taking
> this prednisone which I'm really disappointed about.
> I've read the articles about kenalog, theo and something else I
> can't recall off the top of my head.  Did any of you try all of
> these?
>
> I'm also thinking about going to visit Dr. Henkin perhaps next year
> if there is no improvement. I've heard mixed stories about
> him...some say he's helped...some say he really gets your money on
> follow up visits etc.
>
> I would appreciate anyones feedback about anything at this point.
> I am having such a hard time.  This is our second (and last!) baby
> and I am so dissapointed and depressed not to be able to smell my
> sweet little boy.  Not to mention I have no idea when he goes to the
> bathroom and am embarrased when I get home to find out he needed a
> clean diaper.  I feel like a terrible mom.  Amongst other things I'm
> just really bummed out right now.
>
> Thanks for anyone who might take the time to share their history!!
>
> michelle
>
>
>
>
>
> Community email addresses:
>   Post message: anosmia@onelist.com
>   Subscribe:    anosmia-subscribe@onelist.com
>   Unsubscribe:  anosmia-unsubscribe@onelist.com
>   List owner:   anosmia-owner@onelist.com
>
> Shortcut URL to this page:
>   http://www.onelist.com/community/anosmia
> Yahoo! Groups Links
>
>
>
>
>
>
>
>
>


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(\"Intended Recipient\") to whom it is addressed. It may contain
information, which is privileged and confidential. Accordingly
any dissemination, distribution, copying or other use of this
message or any of its content by any person other than the Intended
Recipient may constitute a breach of civil or criminal law and is
strictly prohibited. If you are not the Intended Recipient, please
contact the sender as soon as possible.

Reed Business Information Ltd. and its subsidiary companies
Tel: +44 (0)20 8652 3500

=======================================================

Hi Mandy

Really sorry, it must be very tough for you. Presume the funeral is in Lincoln?

Mick

> ----------
> From:  anosmia@yahoogroups.com on behalf of Mandy
> Reply To:  anosmia@yahoogroups.com
> Sent:  Thursday, August 3, 2006 3:13 PM
> To:  anosmia@yahoogroups.com
> Subject:  [anosmia] Re: Brendan Hogan
>
> Hi Mick,
>
> I still can't believe Brendan has gone, I always had offline messages
> from him everytime i turned on yahoo messenger and I still keep
> expecting them, the funeral is going to be so hard. He wasn't very
> old at all, he just turned 50 last month, he just seemed so fit and
> healthy...he really is going to be missed dearly.
>
> Mandy
> --- In anosmia@yahoogroups.com, "O'Hare, Mick  \(RBI-UK\)"
> <mick.o'hare@...> wrote:
> >
> > Poor Bren, he wasn't that old was he? He was a really pleasant
> bloke. Mailed me every so often. that's a real bummer.
> >
> > How are you Mandy? OK?
> >
> > M
> >
> > > ----------
> > > From:  anosmia@yahoogroups.com on behalf of Mandy
> > > Reply To:  anosmia@yahoogroups.com
> > > Sent:  Tuesday, August 1, 2006 7:06 PM
> > > To:  anosmia@yahoogroups.com
> > > Subject:  [anosmia] Brendan Hogan
> > >
> > > Hi...I haven't posted on here for a long time, I just wanted to
> let you > know about one of the members in this group, Brendan, some
> of you will > know him, like Marjorie, Mick and Karl, I received the
> really sad and
> > > shocking news today from his daughter that he died Sunday of a
> heart
> > > attack, I met him on this site about 3-4yrs ago, we became really
> close > friends and would spend hrs talking on yahoo messenger or on
> the phone > most days, we would also visit each other, I went to stay
> with him the > weekend before last and my partner and I took him for
> a night out on
> > > the town which he thoroughly enjoyed...Brendan was a really
> lovely and
> > > genuine man and he will be sadly missed.
> > >
> > > Mandy
> > >
> > >
> > >
> > >
> > >
> > >
> > > Community email addresses:
> > >   Post message: anosmia@onelist.com
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Hi Mick,

I still can't believe Brendan has gone, I always had offline messages
from him everytime i turned on yahoo messenger and I still keep
expecting them, the funeral is going to be so hard. He wasn't very
old at all, he just turned 50 last month, he just seemed so fit and
healthy...he really is going to be missed dearly.

Mandy
--- In anosmia@yahoogroups.com, "O'Hare, Mick  \(RBI-UK\)"
<mick.o'hare@...> wrote:
>
> Poor Bren, he wasn't that old was he? He was a really pleasant
bloke. Mailed me every so often. that's a real bummer.
>
> How are you Mandy? OK?
>
> M
>
> > ----------
> > From:  anosmia@yahoogroups.com on behalf of Mandy
> > Reply To:  anosmia@yahoogroups.com
> > Sent:  Tuesday, August 1, 2006 7:06 PM
> > To:  anosmia@yahoogroups.com
> > Subject:  [anosmia] Brendan Hogan
> >
> > Hi...I haven't posted on here for a long time, I just wanted to
let you > know about one of the members in this group, Brendan, some
of you will > know him, like Marjorie, Mick and Karl, I received the
really sad and
> > shocking news today from his daughter that he died Sunday of a
heart
> > attack, I met him on this site about 3-4yrs ago, we became really
close > friends and would spend hrs talking on yahoo messenger or on
the phone > most days, we would also visit each other, I went to stay
with him the > weekend before last and my partner and I took him for
a night out on
> > the town which he thoroughly enjoyed...Brendan was a really
lovely and
> > genuine man and he will be sadly missed.
> >
> > Mandy
> >
> >
> >
> >
> >
> >
> > Community email addresses:
> >   Post message: anosmia@onelist.com
> >   Subscribe:    anosmia-subscribe@onelist.com
> >   Unsubscribe:  anosmia-unsubscribe@onelist.com
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> >
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> >   http://www.onelist.com/community/anosmia
> > Yahoo! Groups Links
> >
> >
> >
> >
> >
> >
> >
> >
>
>
> r===================== DISCLAIMER ======================
> This message is intended only for the use of the person(s)
> (\"Intended Recipient\") to whom it is addressed. It may contain
> information, which is privileged and confidential. Accordingly
> any dissemination, distribution, copying or other use of this
> message or any of its content by any person other than the Intended
> Recipient may constitute a breach of civil or criminal law and is
> strictly prohibited. If you are not the Intended Recipient, please
> contact the sender as soon as possible.
>
> Reed Business Information Ltd. and its subsidiary companies
> Tel: +44 (0)20 8652 3500
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> =======================================================
>

Hi All,
I've posted a few times here over the last few months.  I lost my
sense of smell/taste back in april after a bad cold.  My ENT
couldn't do anything as I was pregnant. He did give me a glimmer of
hope in saying that it could come back after the baby was born (and
that it would be quickly...like within two weeks)
So..the good news is we have a healthy baby son!  The bad news...I'm
three weeks out after delivery and absolutlely no taste/smell has
returned.

At my visit yesterday he told me to go get an MRI (which from the
little I've read about them on here probably won't tell much).  He
also prescribed me a 6 day dosage of prednisone.
Would any care to share their stories of using prednisone if they
have gone this route?

Hoping that it would return after the baby gave me a lot of hope but
it looks like that isn't going to be my lucky charm.
I'm getting an impression from this first ENT I've gone to that he
won't be going through any great lengths to help me much past taking
this prednisone which I'm really disappointed about.
I've read the articles about kenalog, theo and something else I
can't recall off the top of my head.  Did any of you try all of
these?

I'm also thinking about going to visit Dr. Henkin perhaps next year
if there is no improvement. I've heard mixed stories about
him...some say he's helped...some say he really gets your money on
follow up visits etc.

I would appreciate anyones feedback about anything at this point.
I am having such a hard time.  This is our second (and last!) baby
and I am so dissapointed and depressed not to be able to smell my
sweet little boy.  Not to mention I have no idea when he goes to the
bathroom and am embarrased when I get home to find out he needed a
clean diaper.  I feel like a terrible mom.  Amongst other things I'm
just really bummed out right now.

Thanks for anyone who might take the time to share their history!!

michelle

Thank you, Anne,

I didn't criticise what you wrote - unless you wrote the Merck
manual?

I criticised what Merck wrote.
I didn't call it "some on-line Medical Manuel:"
(I don't think it is written by a Spanish medical student ;-)

This is what I wrote:
> > I do hate it when on-line medical manuals don't get their basic
> facts
> > straight.  It always makes you wonder what else is wrong.

I did wonder what else is wrong and I tracked through a few cross-
references. I found quite a lot that is well out of date on a non-
anosmia subject.  I shall be writing to Merck by snail mail (they
don't give an email address for corrections or comments). I will
give them authoritative references to back up what I write to them.

The point is - on-line medical manuals (and this IS Merck's on-line
medical manual) are so accessible to a wide public.  They really
ought to take a lot more care in getting their facts correct and
completely up to date, particularly if they promote themselves as
being an authority. They should be in the business of promoting
information, not mis-information.

I think it is perfectly valid to point out inaccuracies in reference
documents. If nobody does that, then we continue to get mis-
information.

Cheers:-)
Jan



--- In anosmia@yahoogroups.com, "Anne" <anne_white53@...> wrote:
>
> Hi Jan: I thought of you when I read that also. But just for the
> record; Merck Medical Manuel has been in existance since 1922; so
it
> is not some "on-line Medical Manuel:it did say removing polyps
helps.
> had other info. I don't know why I bother trying to help others
with
> you Jan constantly criticizing everything I write. The Merck
Manuel
> is over 500 pages and the new edition is on line for Aug. 6th 2006
>
> I wonder if they will correct that. Prob. at one time it was
thought
> that only Males got this and prob. never corrected that
information.
> Good bye  Jan from Anne
> Merck Medical Co. was discovered in the late 1800's in the USA.
> Maybe there was some information that was useful to others. --- In
> anosmia@yahoogroups.com, "Jan" <JanetPinfield@> wrote:
> >
> > Thank you, Anne.
> >
> > I shall have to write to Merck to remind them that Kallmann's is
> > NOT "Male Hypogonadism".
> >
> > Kallmann's Syndrome is Hypogonadotrophic Hypogonadism with
Anosmia
> and
> > affects both males and females (though more males than females).
> There
> > are many other forms of hypogonadism too that are not associated
> with
> > anosmia..
> >
> > I do hate it when on-line medical manuals don't get their basic
> facts
> > straight.  It always makes you wonder what else is wrong.
> >
> > Cheers:-)
> > Jan - 58, female, Kallmann's syndrome.
> >
> >
> > --- In anosmia@yahoogroups.com, ANNE <anne_white53@> wrote:
> > >
> > > A good article on Anosmia and related.
> > >
> > > ANNE <anne_white53@> wrote:
> > >   Date: Wed, 2 Aug 2006 04:45:55 -0700 (PDT)
> > > From: ANNE <anne_white53@>
> > > Subject: THE MERCK MANUAL, Sec. 7, Ch. 86, Nose And Paranasal
> Sinuses
> > > To: anne_white53@
> > >
> > >
http://www.merck.com/mrkshared/mmanual/section7/chapter86/86i.jsp
> >
>

I was just thinking of him this weekend.  He had corresponded with
me when my injury was recent and gave me a lot of support.

Brendan,  wherever you are I hope you're enjoying a Coke and
smelling and tasting everything.

Peace,

Lori



--- In anosmia@yahoogroups.com, "Mandy" <blueroom223@...> wrote:
>
> Hi...I haven't posted on here for a long time, I just wanted to
let you
> know about one of the members in this group, Brendan, some of you
will
> know him, like Marjorie, Mick and Karl, I received the really sad
and
> shocking news today from his daughter that he died Sunday of a
heart
> attack, I met him on this site about 3-4yrs ago, we became really
close
> friends and would spend hrs talking on yahoo messenger or on the
phone
> most days, we would also visit each other, I went to stay with him
the
> weekend before last and my partner and I took him for a night out
on
> the town which he thoroughly enjoyed...Brendan was a really lovely
and
> genuine man and he will be sadly missed.
>
> Mandy
>

Hi Jan: I thought of you when I read that also. But just for the
record; Merck Medical Manuel has been in existance since 1922; so it
is not some "on-line Medical Manuel:it did say removing polyps helps.
had other info. I don't know why I bother trying to help others with
you Jan constantly criticizing everything I write. The Merck Manuel
is over 500 pages and the new edition is on line for Aug. 6th 2006

I wonder if they will correct that. Prob. at one time it was thought
that only Males got this and prob. never corrected that information.
Good bye  Jan from Anne
Merck Medical Co. was discovered in the late 1800's in the USA.
Maybe there was some information that was useful to others. --- In
anosmia@yahoogroups.com, "Jan" <JanetPinfield@...> wrote:
>
> Thank you, Anne.
>
> I shall have to write to Merck to remind them that Kallmann's is
> NOT "Male Hypogonadism".
>
> Kallmann's Syndrome is Hypogonadotrophic Hypogonadism with Anosmia
and
> affects both males and females (though more males than females).
There
> are many other forms of hypogonadism too that are not associated
with
> anosmia..
>
> I do hate it when on-line medical manuals don't get their basic
facts
> straight.  It always makes you wonder what else is wrong.
>
> Cheers:-)
> Jan - 58, female, Kallmann's syndrome.
>
>
> --- In anosmia@yahoogroups.com, ANNE <anne_white53@> wrote:
> >
> > A good article on Anosmia and related.
> >
> > ANNE <anne_white53@> wrote:
> >   Date: Wed, 2 Aug 2006 04:45:55 -0700 (PDT)
> > From: ANNE <anne_white53@>
> > Subject: THE MERCK MANUAL, Sec. 7, Ch. 86, Nose And Paranasal
Sinuses
> > To: anne_white53@
> >
> > http://www.merck.com/mrkshared/mmanual/section7/chapter86/86i.jsp
>

Thank you, Anne.

I shall have to write to Merck to remind them that Kallmann's is
NOT "Male Hypogonadism".

Kallmann's Syndrome is Hypogonadotrophic Hypogonadism with Anosmia and
affects both males and females (though more males than females). There
are many other forms of hypogonadism too that are not associated with
anosmia..

I do hate it when on-line medical manuals don't get their basic facts
straight.  It always makes you wonder what else is wrong.

Cheers:-)
Jan - 58, female, Kallmann's syndrome.


--- In anosmia@yahoogroups.com, ANNE <anne_white53@...> wrote:
>
> A good article on Anosmia and related.
>
> ANNE <anne_white53@...> wrote:
>   Date: Wed, 2 Aug 2006 04:45:55 -0700 (PDT)
> From: ANNE <anne_white53@...>
> Subject: THE MERCK MANUAL, Sec. 7, Ch. 86, Nose And Paranasal Sinuses
> To: anne_white53@...
>
> http://www.merck.com/mrkshared/mmanual/section7/chapter86/86i.jsp

A good article on Anosmia and related.

ANNE <anne_white53@...> wrote:
   Date: Wed, 2 Aug 2006 04:45:55 -0700 (PDT)
From: ANNE <anne_white53@...>
Subject: THE MERCK MANUAL, Sec. 7, Ch. 86, Nose And Paranasal Sinuses
To: anne_white53@...

http://www.merck.com/mrkshared/mmanual/section7/chapter86/86i.jsp


[Non-text portions of this message have been removed]

Poor Bren, he wasn't that old was he? He was a really pleasant bloke. Mailed me
every so often. that's a real bummer.

How are you Mandy? OK?

M

> ----------
> From:  anosmia@yahoogroups.com on behalf of Mandy
> Reply To:  anosmia@yahoogroups.com
> Sent:  Tuesday, August 1, 2006 7:06 PM
> To:  anosmia@yahoogroups.com
> Subject:  [anosmia] Brendan Hogan
>
> Hi...I haven't posted on here for a long time, I just wanted to let you > know
about one of the members in this group, Brendan, some of you will > know him,
like Marjorie, Mick and Karl, I received the really sad and
> shocking news today from his daughter that he died Sunday of a heart
> attack, I met him on this site about 3-4yrs ago, we became really close >
friends and would spend hrs talking on yahoo messenger or on the phone > most
days, we would also visit each other, I went to stay with him the > weekend
before last and my partner and I took him for a night out on
> the town which he thoroughly enjoyed...Brendan was a really lovely and
> genuine man and he will be sadly missed.
>
> Mandy
>
>
>
>
>
>
> Community email addresses:
>   Post message: anosmia@onelist.com
>   Subscribe:    anosmia-subscribe@onelist.com
>   Unsubscribe:  anosmia-unsubscribe@onelist.com
>   List owner:   anosmia-owner@onelist.com
>
> Shortcut URL to this page:
>   http://www.onelist.com/community/anosmia
> Yahoo! Groups Links
>
>
>
>
>
>
>
>


r===================== DISCLAIMER ======================
This message is intended only for the use of the person(s)
(\"Intended Recipient\") to whom it is addressed. It may contain
information, which is privileged and confidential. Accordingly
any dissemination, distribution, copying or other use of this
message or any of its content by any person other than the Intended
Recipient may constitute a breach of civil or criminal law and is
strictly prohibited. If you are not the Intended Recipient, please
contact the sender as soon as possible.

Reed Business Information Ltd. and its subsidiary companies
Tel: +44 (0)20 8652 3500

=======================================================

He certainly was a kind and caring soul.  A good friend.  I'll really miss him
too.

Slainte to you my friend...

Marjie

   ----- Original Message -----
   From: Mandy
   To: anosmia@yahoogroups.com
   Sent: Tuesday, August 01, 2006 5:08 PM
   Subject: [anosmia] Re: Brendan Hogan


   I'm not sure whether they would get it or not but you can send it to
   me if you want because I will be going to Brendans funeral, he was
   such a lovely man and i can't believe he has gone, yes we had a
   great night that night, was strange lol, but a really good night,
   you can e mail me privately and get my home address so you can send
   it and i will pass it on or you could try and send it to brendans,
   Brendan was a really good friend to me in the end, i never realised
   that you could make such good friends over the computer but Brendan
   was proof of that, he helped me through so much and i am really
   gonna miss him, he was my best friend--- In
   anosmia@yahoogroups.com, "Marjorie Wreggitt" <mwreggitt@...> wrote:
   >
   > Hi Mandy:
   >
   > I'm deeply shocked and saddened by this news. I just emailed Bren
   a few days ago. He told me you and your partner went to visit him.
   He told me that you went to some thing in Lincoln where the men
   dressed up as women. He was telling me about the church in Lincoln
   being used in the DaVinci Code and people weren't happy about it.
   I'm so sad I never made it over there to meet him. My husband and I
   were thinking of going in September.
   >
   > If I send a note to Maria and the boys to Bren's home address will
   they get it?
   >
   > Thanks,
   >
   > Marjorie
   >
   > ----- Original Message -----
   > From: Mandy
   > To: anosmia@yahoogroups.com
   > Sent: Tuesday, August 01, 2006 2:06 PM
   > Subject: [anosmia] Brendan Hogan
   >
   >
   > Hi...I haven't posted on here for a long time, I just wanted to
   let you
   > know about one of the members in this group, Brendan, some of
   you will
   > know him, like Marjorie, Mick and Karl, I received the really
   sad and
   > shocking news today from his daughter that he died Sunday of a
   heart
   > attack, I met him on this site about 3-4yrs ago, we became
   really close
   > friends and would spend hrs talking on yahoo messenger or on the
   phone
   > most days, we would also visit each other, I went to stay with
   him the
   > weekend before last and my partner and I took him for a night
   out on
   > the town which he thoroughly enjoyed...Brendan was a really
   lovely and
   > genuine man and he will be sadly missed.
   >
   > Mandy
   >
   >
   >
   >
   >
   > [Non-text portions of this message have been removed]
   >





[Non-text portions of this message have been removed]

I'm not sure whether they would get it or not but you can send it to
me if you want because I will be going to Brendans funeral, he was
such a lovely man and i can't believe he has gone, yes we had a
great night that night, was strange lol, but a really good night,
you can e mail me privately and get my home address so you can send
it and i will pass it on or you could try and send it to brendans,
Brendan was a really good friend to me in the end, i never realised
that you could make such good friends over the computer but Brendan
was proof of that, he helped me through so much and i am really
gonna miss him, he was my best friend--- In
anosmia@yahoogroups.com, "Marjorie Wreggitt" <mwreggitt@...> wrote:
>
> Hi Mandy:
>
> I'm deeply shocked and saddened by this news.  I just emailed Bren
a few days ago.  He told me you and your partner went to visit him.
He told me that you went to some thing in Lincoln where the men
dressed up as women.  He was telling me about the church in Lincoln
being used in the DaVinci Code and people weren't happy about it.
I'm so sad I never made it over there to meet him.  My husband and I
were thinking of going in September.
>
> If I send a note to Maria and the boys to Bren's home address will
they get it?
>
> Thanks,
>
> Marjorie
>
>   ----- Original Message -----
>   From: Mandy
>   To: anosmia@yahoogroups.com
>   Sent: Tuesday, August 01, 2006 2:06 PM
>   Subject: [anosmia] Brendan Hogan
>
>
>   Hi...I haven't posted on here for a long time, I just wanted to
let you
>   know about one of the members in this group, Brendan, some of
you will
>   know him, like Marjorie, Mick and Karl, I received the really
sad and
>   shocking news today from his daughter that he died Sunday of a
heart
>   attack, I met him on this site about 3-4yrs ago, we became
really close
>   friends and would spend hrs talking on yahoo messenger or on the
phone
>   most days, we would also visit each other, I went to stay with
him the
>   weekend before last and my partner and I took him for a night
out on
>   the town which he thoroughly enjoyed...Brendan was a really
lovely and
>   genuine man and he will be sadly missed.
>
>   Mandy
>
>
>
>
>
> [Non-text portions of this message have been removed]
>

Hi Mandy:

I'm deeply shocked and saddened by this news.  I just emailed Bren a few days
ago.  He told me you and your partner went to visit him.  He told me that you
went to some thing in Lincoln where the men dressed up as women.  He was telling
me about the church in Lincoln being used in the DaVinci Code and people weren't
happy about it.  I'm so sad I never made it over there to meet him.  My husband
and I were thinking of going in September.

If I send a note to Maria and the boys to Bren's home address will they get it?

Thanks,

Marjorie

   ----- Original Message -----
   From: Mandy
   To: anosmia@yahoogroups.com
   Sent: Tuesday, August 01, 2006 2:06 PM
   Subject: [anosmia] Brendan Hogan


   Hi...I haven't posted on here for a long time, I just wanted to let you
   know about one of the members in this group, Brendan, some of you will
   know him, like Marjorie, Mick and Karl, I received the really sad and
   shocking news today from his daughter that he died Sunday of a heart
   attack, I met him on this site about 3-4yrs ago, we became really close
   friends and would spend hrs talking on yahoo messenger or on the phone
   most days, we would also visit each other, I went to stay with him the
   weekend before last and my partner and I took him for a night out on
   the town which he thoroughly enjoyed...Brendan was a really lovely and
   genuine man and he will be sadly missed.

   Mandy





[Non-text portions of this message have been removed]

Hi...I haven't posted on here for a long time, I just wanted to let you
know about one of the members in this group, Brendan, some of you will
know him, like Marjorie, Mick and Karl, I received the really sad and
shocking news today from his daughter that he died Sunday of a heart
attack, I met him on this site about 3-4yrs ago, we became really close
friends and would spend hrs talking on yahoo messenger or on the phone
most days, we would also visit each other, I went to stay with him the
weekend before last and my partner and I took him for a night out on
the town which he thoroughly enjoyed...Brendan was a really lovely and
genuine man and he will be sadly missed.

Mandy