Rhonda,

That's how it usually happens. You have a cold for a few days to a
week and your smell doesn't come back. I don't know how a doctor
would determine, on examination, the difference between viral and
inflammatory anosmia. I've never had a doctor tell me what they would
look for, in the case of viral damage. Dr Henkin, at the clinic in
DC, may have better answers on that subject. As far as I know, he is
the ONLY doctor in this country that even attempts to rehab people
with this problem.

On the other hand, I do have a good method of ruling out viral
anosmia. I believe you wrote that you can't tolerate prednisone, so
this won't apply in your case. However Prednisone is the most
powerful anti inflammatory substance I've seen. It has a systemic
effect. If your problem is inflammation, it WILL open you up. If you
begin smelling after 2-3 days of using Prednisone, your problem is
NOT viral anosmia. Once open, the tissues surrounding the olfactory
complex will be more vulnerable to localized steroidal sprays, such
as Rhinocort. If you are using a spray and that area deep in your
nasal passages isn't clear, the spray simply lacks enough strength,
in most cases, to help you. In your case, you'll have to find
something as a replacement. Dr. Karl Wuensch is a frequent visitor to
this page. He has a web site that is very excellent. It details his
own battle against anosmia, as well as links to helpful, anosmia
related sites. If you haven't already, give it a look. Hope this
helps.

Dave






--- In anosmia@yahoogroups.com, Rhonda Smith <smithra102@y...> wrote:
> Dave,
>
> Sorry for all the questions but how is it determined whether you
have swelling way back in the nose or if the olfactory nerves were
damaged due to the virus. How do you know which is the case and how
do you rule out one or the other? I dont know what the problem is.
One day I had a bad cold and the next minute I had viral anosmia. No
history of anything!!!!
>
> Rhonda
>
> davprince9 <davprince9@y...> wrote:
> Rhonda,
>
> I can't tell you how many CT scans I've taken over the past 14
> years. Sometimes they show rhinitis. Sometimes they are clear. I
> never had a problem with this until I was 21 years old. It appears
> suddenly. Sometimes, though rare, it goes away suddenly. Is it your
> environment? Is it your eating and drinking habits? Is it actually
a
> problem in your spine, that a chiropractor can help? Is it a gene
> that suddenly activates when triggered by a virus? Medical science,
> today, can't answer any of those questions. Thus, our frustration
> and self experiments.
>
> I wish I could give you an accurate description of exactly where
> this swelling occurs. But, all I know is it is deep in the nasal
> cavity, above the roof of your mouth, below the base of the brain
> and just behind your eyes.
>
> Finding information on this subject area is difficult, at best.
> That's what's so maddening. ENT's don't spend a lot of time
> explaining it to you because they are in a hurry to get to the next
> patient and don't fully understand what's wrong. Surgery is
> difficult to impossible because of the risks involved with
proximity
> to the brain, proximity to the eyes and spinal fluid leaks.
>
>
> Good Luck,
> Dave
>
> --- In anosmia@yahoogroups.com, Rhonda Smith <smithra102@y...>
wrote:
> > So, the inflammatin that could be further back in the nose, why
> wasn't it detected in the CT scan of the sinuses or the MRI of the
> brain? Where exactly is this swelling?
> >
> > Rhonda
> >
> > davprince9 <davprince9@y...> wrote:
> > Rhonda,
> >
> > I would say that it is worth the attempt. You may not notice if
> the
> > swelling is not in your lower turbinates. When these close, you
> get
> > that stuffy nose, I need some Afrin, feeling. This type of
> > inflammation is further back in the nose and "feels" different.
It
> > also can be meaner and tougher than a hive of angry bees. Once it
> > starts, sometimes it stays for a lifetime. No one really knows
> why.
> > See what your doc says.
> >
> > Dave
> >
> >
> >
> >
> >
> >
> >
> > --- In anosmia@yahoogroups.com, Rhonda Smith <smithra102@y...>
> wrote:
> > > So, you guys are telling me that although I do not have or ever
> had
> > a history of allergies, swelling, polyps, congestion or anything
> and
> > that my viral anosmia was random result of a bad cold, I could
> still
> > have inflammation? So, what I need to do is get rid of the
> swelling.
> > Should I try Sudafed or some type of allergy medication along
with
> > Rhinocort to see if it works?
> > >
> > > davprince9 <davprince9@y...> wrote:Kevin,
> > >
> > > My findings are very similar to yours. But, instead of taking
> > > Sudafed, I'll take Serrapeptase and Claritin. Other than that,
I
> do
> > > everything else the same way. I have noticed that the daily
> nasal
> > > irrigation definitely helps.
> > >
> > > Also, I'll invert my head when the inflammation is present.
I've
> > > found that when I'm open and my sense of smell is discernable,
> all
> > I
> > > need to do is just breath the spray in with a couple of short,
> > sharp
> > > sniffs. However, when the inflammation is at it's worst and I'm
> > > plugged up, I've learned that the Rhinocort will be ineffective
> > until
> > > I'm able to get it into the tissues near and around the
> olfactory
> > > complex. I can squirt a whole bottle of Rhinocort, but unless
it
> > can
> > > get to that tough area back there, nothing's going to happen.
> > >
> > > I'm going to continue with my regimen, too. Meals and life, in
> > > general, are too good not to.
> > >
> > > Dave
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > --- In anosmia@yahoogroups.com, "kcarr0590" <kcarr@i...> wrote:
> > > > Dave,
> > > >
> > > > I agree that the Rhinocort has to get way up there.  I found
> that
> > > on
> > > > occasion Sudafed or generic would allow me to smell for short
> > > > periods of time. When I increased the Rhinocort dosage I
would
> > take
> > > > Sudafed to open up the nasal/sinuses even if it didn't help
> with
> > > > olfaction.  Of course now that my sense of smell has returned
> I
> > > > don't need the Sudafed to open the nasal passages.
> > > >
> > > > Do you invert your head after each spray as I do? I am not
> sure
> > > this
> > > > helps or if increasing the dosage is the real reason for
> > > olfaction.
> > > > Saying that, I'm not changing a thing.  If it ain't broke,
> don't
> > > fix
> > > > it.
> > > >
> > > > Kevin Carrigan
> > > >
> > > >
> > > >
> > > > --- In anosmia@yahoogroups.com, "davprince9"
<davprince9@y...>
> > > wrote:
> > > > > I stand corrected. Thanks for the clearing up the waters
> that I
> > > > > worked so hard to muddy, Karl! :-)
> > > > >
> > > > > Cheers,
> > > > > Dave
> > > > >
> > > > >
> > > > >
> > > > >
> > > > > --- In anosmia@yahoogroups.com, "Karl L. Wuensch"
> > <WuenschK@m...>
> > > > > wrote:
> > > > > > Good advice, but (picky me) one little error -- the
> > intranasal
> > > > > steroid presumably works by reducing nasal inflammation so
> that
> > > > > scented air can reach the olfactory receptors, which are
> high
> > in
> > > > the
> > > > > nasal cavity.  Once the scented air reaches those
receptors,
> > they
> > > > > fire neural signals which pass through tiny olfactory
> fibers,
> > > > through
> > > > > the cribriform plate, into the olfactory area (bulbs) of
the
> > > brain.
> > > > > >
> > > > > > Cheers,
> > > > > >
> > > > > > Karl W.
> > > > > >   ----- Original Message -----
> > > > > >   From: davprince9
> > > > > >   To: anosmia@yahoogroups.com
> > > > > >   Sent: Wednesday, September 01, 2004 12:33 AM
> > > > > >   Subject: [anosmia] Re: Nasal Corticosteroids?
> > > > > >
> > > > > >
> > > > > >   Also, don't assume that because your inhaled steroid
> spray
> > > > isn't
> > > > > >   working, that inflammation isn't causing your problem.
> In
> > > > order
> > > > > for
> > > > > >   Rhinocort to assist your sense of smell, the steroid
has
> to
> > > > get
> > > > > to
> > > > > >   the source area of the problem. Your olfactory bulbs
are
> > > > > underneath
> > > > > >   your BRAIN. That spray has to get all the WAAAAAAAY
back
> in
> > > > > there!
> > > > > >   If you are inflamed it won't reach. You have to find a
> way
> > to
> > > > > relax
> > > > > >   the nasal tissues, all the back to the olfactory
> complex,
> > > THEN
> > > > > use
> > > > > >   the Rhinocort. Thus, my advice on asking the doc for a
> > > > Prednisone
> > > > > >   burst and anti biotics.
> > > > > >
> > > > > >   Good luck to all,
> > > > > >
> > > > > >   Dave
> > > > > >
> > > > > > [Non-text portions of this message have been removed]
> > >
> > >
> > >
> > > Community email addresses:
> > >   Post message: anosmia@onelist.com
> > >   Subscribe:    anosmia-subscribe@onelist.com
> > >   Unsubscribe:  anosmia-unsubscribe@onelist.com
> > >   List owner:   anosmia-owner@onelist.com
> > >
> > > Shortcut URL to this page:
> > >   http://www.onelist.com/community/anosmia
> > >
> > >
> > > Yahoo! Groups SponsorADVERTISEMENT
> > >
> > >
> > > ---------------------------------
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> > >
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> > > anosmia-unsubscribe@yahoogroups.com
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> > >
> > >
> > >
> > >
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> >
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> >
> >
> >
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> >
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>
>
>
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In a message dated 9/3/04 7:44:49 AM Eastern Daylight Time,
ElectroMotive@... writes:


> I have decided that on my next visit to the VA, I'm going to ask for a
> "print out" of all the information that has been compiled. . . .
>
To hell with waiting till your next visit Barry! Call and tell them you WANT
a print out of your medical chart and all information that pertains to you and
to please mail it to you post haste. You may have to pay 10 cents a page or
something but you have a right BY LAW to this information. They do treat people
over 60 differently....like your an idiot or something. If you think thats
bad...try being a woman over 60!
Patty


[Non-text portions of this message have been removed]

Dave,

Sorry for all the questions but how is it determined whether you have swelling
way back in the nose or if the olfactory nerves were damaged due to the virus.
How do you know which is the case and how do you rule out one or the other? I
dont know what the problem is. One day I had a bad cold and the next minute I
had viral anosmia. No history of anything!!!!

Rhonda

davprince9 <davprince9@...> wrote:
Rhonda,

I can't tell you how many CT scans I've taken over the past 14
years. Sometimes they show rhinitis. Sometimes they are clear. I
never had a problem with this until I was 21 years old. It appears
suddenly. Sometimes, though rare, it goes away suddenly. Is it your
environment? Is it your eating and drinking habits? Is it actually a
problem in your spine, that a chiropractor can help? Is it a gene
that suddenly activates when triggered by a virus? Medical science,
today, can't answer any of those questions. Thus, our frustration
and self experiments.

I wish I could give you an accurate description of exactly where
this swelling occurs. But, all I know is it is deep in the nasal
cavity, above the roof of your mouth, below the base of the brain
and just behind your eyes.

Finding information on this subject area is difficult, at best.
That's what's so maddening. ENT's don't spend a lot of time
explaining it to you because they are in a hurry to get to the next
patient and don't fully understand what's wrong. Surgery is
difficult to impossible because of the risks involved with proximity
to the brain, proximity to the eyes and spinal fluid leaks.


Good Luck,
Dave

--- In anosmia@yahoogroups.com, Rhonda Smith <smithra102@y...> wrote:
> So, the inflammatin that could be further back in the nose, why
wasn't it detected in the CT scan of the sinuses or the MRI of the
brain? Where exactly is this swelling?
>
> Rhonda
>
> davprince9 <davprince9@y...> wrote:
> Rhonda,
>
> I would say that it is worth the attempt. You may not notice if
the
> swelling is not in your lower turbinates. When these close, you
get
> that stuffy nose, I need some Afrin, feeling. This type of
> inflammation is further back in the nose and "feels" different. It
> also can be meaner and tougher than a hive of angry bees. Once it
> starts, sometimes it stays for a lifetime. No one really knows
why.
> See what your doc says.
>
> Dave
>
>
>
>
>
>
>
> --- In anosmia@yahoogroups.com, Rhonda Smith <smithra102@y...>
wrote:
> > So, you guys are telling me that although I do not have or ever
had
> a history of allergies, swelling, polyps, congestion or anything
and
> that my viral anosmia was random result of a bad cold, I could
still
> have inflammation? So, what I need to do is get rid of the
swelling.
> Should I try Sudafed or some type of allergy medication along with
> Rhinocort to see if it works?
> >
> > davprince9 <davprince9@y...> wrote:Kevin,
> >
> > My findings are very similar to yours. But, instead of taking
> > Sudafed, I'll take Serrapeptase and Claritin. Other than that, I
do
> > everything else the same way. I have noticed that the daily
nasal
> > irrigation definitely helps.
> >
> > Also, I'll invert my head when the inflammation is present. I've
> > found that when I'm open and my sense of smell is discernable,
all
> I
> > need to do is just breath the spray in with a couple of short,
> sharp
> > sniffs. However, when the inflammation is at it's worst and I'm
> > plugged up, I've learned that the Rhinocort will be ineffective
> until
> > I'm able to get it into the tissues near and around the
olfactory
> > complex. I can squirt a whole bottle of Rhinocort, but unless it
> can
> > get to that tough area back there, nothing's going to happen.
> >
> > I'm going to continue with my regimen, too. Meals and life, in
> > general, are too good not to.
> >
> > Dave
> >
> >
> >
> >
> >
> >
> >
> >
> > --- In anosmia@yahoogroups.com, "kcarr0590" <kcarr@i...> wrote:
> > > Dave,
> > >
> > > I agree that the Rhinocort has to get way up there.  I found
that
> > on
> > > occasion Sudafed or generic would allow me to smell for short
> > > periods of time. When I increased the Rhinocort dosage I would
> take
> > > Sudafed to open up the nasal/sinuses even if it didn't help
with
> > > olfaction.  Of course now that my sense of smell has returned
I
> > > don't need the Sudafed to open the nasal passages.
> > >
> > > Do you invert your head after each spray as I do? I am not
sure
> > this
> > > helps or if increasing the dosage is the real reason for
> > olfaction.
> > > Saying that, I'm not changing a thing.  If it ain't broke,
don't
> > fix
> > > it.
> > >
> > > Kevin Carrigan
> > >
> > >
> > >
> > > --- In anosmia@yahoogroups.com, "davprince9" <davprince9@y...>
> > wrote:
> > > > I stand corrected. Thanks for the clearing up the waters
that I
> > > > worked so hard to muddy, Karl! :-)
> > > >
> > > > Cheers,
> > > > Dave
> > > >
> > > >
> > > >
> > > >
> > > > --- In anosmia@yahoogroups.com, "Karl L. Wuensch"
> <WuenschK@m...>
> > > > wrote:
> > > > > Good advice, but (picky me) one little error -- the
> intranasal
> > > > steroid presumably works by reducing nasal inflammation so
that
> > > > scented air can reach the olfactory receptors, which are
high
> in
> > > the
> > > > nasal cavity.  Once the scented air reaches those receptors,
> they
> > > > fire neural signals which pass through tiny olfactory
fibers,
> > > through
> > > > the cribriform plate, into the olfactory area (bulbs) of the
> > brain.
> > > > >
> > > > > Cheers,
> > > > >
> > > > > Karl W.
> > > > >   ----- Original Message -----
> > > > >   From: davprince9
> > > > >   To: anosmia@yahoogroups.com
> > > > >   Sent: Wednesday, September 01, 2004 12:33 AM
> > > > >   Subject: [anosmia] Re: Nasal Corticosteroids?
> > > > >
> > > > >
> > > > >   Also, don't assume that because your inhaled steroid
spray
> > > isn't
> > > > >   working, that inflammation isn't causing your problem.
In
> > > order
> > > > for
> > > > >   Rhinocort to assist your sense of smell, the steroid has
to
> > > get
> > > > to
> > > > >   the source area of the problem. Your olfactory bulbs are
> > > > underneath
> > > > >   your BRAIN. That spray has to get all the WAAAAAAAY back
in
> > > > there!
> > > > >   If you are inflamed it won't reach. You have to find a
way
> to
> > > > relax
> > > > >   the nasal tissues, all the back to the olfactory
complex,
> > THEN
> > > > use
> > > > >   the Rhinocort. Thus, my advice on asking the doc for a
> > > Prednisone
> > > > >   burst and anti biotics.
> > > > >
> > > > >   Good luck to all,
> > > > >
> > > > >   Dave
> > > > >
> > > > > [Non-text portions of this message have been removed]
> >
> >
> >
> > Community email addresses:
> >   Post message: anosmia@onelist.com
> >   Subscribe:    anosmia-subscribe@onelist.com
> >   Unsubscribe:  anosmia-unsubscribe@onelist.com
> >   List owner:   anosmia-owner@onelist.com
> >
> > Shortcut URL to this page:
> >   http://www.onelist.com/community/anosmia
> >
> >
> > Yahoo! Groups SponsorADVERTISEMENT
> >
> >
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> >
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> > http://groups.yahoo.com/group/anosmia/
> >
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> > anosmia-unsubscribe@yahoogroups.com
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> Service.
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> >
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> >
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[Non-text portions of this message have been removed]

Hello Group,

On Monday, I had another appointment with the ENT Drs. at the Veterans
Administration here in Baltimore. . . .

I was checked again very thoroughly ( I think ) and was told very little, other
than the third CT scan still shows my sinus' are impacted. . . . .  And placed
on another round of antibiotics, Gatifloxacin and Flownase. . . . .  Has anyone
had any success with these meds ?

What makes me angry is that the doctors don't tell you anything, but when the
examining doctor leaves the examination room, I go over and check out what's on
the computer. . . .   Then when he returns, I start to annoy him by asking
questions. . . .   {:o)    Thank you all for your contributions and especially
you Karl, it lets me ask some "hard questions" that make these young (they are
from the U. of Maryland Medical school which is next door to the Va. )   And
makes them explain what is going on, otherwise they think the patient is too
dumb to understand or even has a "need to know". . . . .  As an aside, I'm told
that nearly 70% of all students now in med schools are women, which is good,
because they are better communicators . . . . . And are more sensitive to the
patients well-being. . . .

Anyhow, I will be on this program for 6 weeks, and then if that doesn't work,
it's surgery time. . .
I asked young Doc, " what are the risks involved with surgery "?   He said :
"leakage of the brain or eye sockets, if there is a puncture". . . . .    My
reply was: Oh is that all !   He didn't find me amusing.  One good thing about
being over 60, I don't care what they think of me personally, I want F--king 
answers. . . . .

I have decided that on my next visit to the VA, I'm going to ask for a "print
out" of all the information that has been compiled. . . .

Nuff sed,

Barry - Maryland


[Non-text portions of this message have been removed]

Hello David,

I'm very sorry to hear of Jennifer's haemorrhage.

How things taste and smell to anosmics depends to some extent on the
cause of the anosmia.

Congenital anosmics (like myself) mostly enjoy their food despite no
sense of smell from birth. So we don't need a special cookbook.
But my personal suggestion is to try FEWER additives to food such as
salt or sugar and learn to taste real food.

Cook with fresh ingredients and don't use pre-processed foods.  I
suspect than many people with a sense of smell never taste real food
because cheap ingredients have been overlaid with salt or sugar and
then depend totally on the smell (often as added aromas + E numbers).

But of course, this may not work for everybody.

Some people find that although the olfactory bulbs are not getting
messages from the nasal cavity (due to inflamation or similar), that
the other facial nerves that detect 'cool' smells and 'hot spicy'
smells/tastes - mint and similar herbs, rocket and similar
herbs/spices are working OK. Other find that they're not.

Concentrating on a variety of textures and colours for food helps
some people.  Some are not helped at all.

It's all very individual as to what works for each person.

With brain bruising due to haemorrhage or other injury there can be
all sorts of bizarre effects, such as the phantom smells that
Jennifer is experiencing.  The brain thinks it is getting messages
from elsewhere, but in fact it's just an effect of the bruising.
This will be extremely individual, depending on the site(s) of the
injury.

Best wishes luck to you both :-)
Jan - congenital anosmia due to Kallmanns Syndrome.



--- In anosmia@yahoogroups.com, "David Austin" <David_Austin@n...>
wrote:
> My partner, Jennifer, suffered a subarachnoid hemorrhage (SAH) of
the anterior
> communicating artery (ACoA) on March 26 and currently lacks much of
her sense of smell.
> (The ACoA is part of the blood supply to an olfactory center.) Some
or all of it may return
> over the next year and a half, but in the meantime, she needs help.
>
> One of my main reasons for joining the group was to find some
advice and if possible
> recipes to help Jennifer to enjoy food more with her apparently
intact sense of taste.
>
> Despite a fair amount of searching on the web, I've found little
(though I read that a
> cookbook is planned and that using garlic, peppers and horseradish
can help). I fear (and
> hope) however that I've missed a lot of what's available.
>
> I'd very much appreciate any relevant information.
>
> I am also very curious about the probable causal connections
underlying a positive but
> imperfect correlation between on the one hand, episodes of
experiencing what she
> describes as a "bad smell" that is extremely acrid and "hits hard"
but is nonetheless "not a
> smell," and, on the other hand, episodes of anger and extreme
general irritation that feel
> imposed. (Medication helps with both sorts of episodes.)
>
> Thanks very much.
>
> David.
>
> david_austin@n...
> Raleigh, NC

Rhonda,

I can't tell you how many CT scans I've taken over the past 14
years. Sometimes they show rhinitis. Sometimes they are clear. I
never had a problem with this until I was 21 years old. It appears
suddenly. Sometimes, though rare, it goes away suddenly. Is it your
environment? Is it your eating and drinking habits? Is it actually a
problem in your spine, that a chiropractor can help? Is it a gene
that suddenly activates when triggered by a virus? Medical science,
today, can't answer any of those questions. Thus, our frustration
and self experiments.

  I wish I could give you an accurate description of exactly where
this swelling occurs. But, all I know is it is deep in the nasal
cavity, above the roof of your mouth, below the base of the brain
and just behind your eyes.

  Finding information on this subject area is difficult, at best.
That's what's so maddening. ENT's don't spend a lot of time
explaining it to you because they are in a hurry to get to the next
patient and don't fully understand what's wrong. Surgery is
difficult to impossible because of the risks involved with proximity
to the brain, proximity to the eyes and spinal fluid leaks.


Good Luck,
Dave

--- In anosmia@yahoogroups.com, Rhonda Smith <smithra102@y...> wrote:
> So, the inflammatin that could be further back in the nose, why
wasn't it detected in the CT scan of the sinuses or the MRI of the
brain? Where exactly is this swelling?
>
> Rhonda
>
> davprince9 <davprince9@y...> wrote:
> Rhonda,
>
> I would say that it is worth the attempt. You may not notice if
the
> swelling is not in your lower turbinates. When these close, you
get
> that stuffy nose, I need some Afrin, feeling. This type of
> inflammation is further back in the nose and "feels" different. It
> also can be meaner and tougher than a hive of angry bees. Once it
> starts, sometimes it stays for a lifetime. No one really knows
why.
> See what your doc says.
>
> Dave
>
>
>
>
>
>
>
> --- In anosmia@yahoogroups.com, Rhonda Smith <smithra102@y...>
wrote:
> > So, you guys are telling me that although I do not have or ever
had
> a history of allergies, swelling, polyps, congestion or anything
and
> that my viral anosmia was random result of a bad cold, I could
still
> have inflammation? So, what I need to do is get rid of the
swelling.
> Should I try Sudafed or some type of allergy medication along with
> Rhinocort to see if it works?
> >
> > davprince9 <davprince9@y...> wrote:Kevin,
> >
> > My findings are very similar to yours. But, instead of taking
> > Sudafed, I'll take Serrapeptase and Claritin. Other than that, I
do
> > everything else the same way. I have noticed that the daily
nasal
> > irrigation definitely helps.
> >
> > Also, I'll invert my head when the inflammation is present. I've
> > found that when I'm open and my sense of smell is discernable,
all
> I
> > need to do is just breath the spray in with a couple of short,
> sharp
> > sniffs. However, when the inflammation is at it's worst and I'm
> > plugged up, I've learned that the Rhinocort will be ineffective
> until
> > I'm able to get it into the tissues near and around the
olfactory
> > complex. I can squirt a whole bottle of Rhinocort, but unless it
> can
> > get to that tough area back there, nothing's going to happen.
> >
> > I'm going to continue with my regimen, too. Meals and life, in
> > general, are too good not to.
> >
> > Dave
> >
> >
> >
> >
> >
> >
> >
> >
> > --- In anosmia@yahoogroups.com, "kcarr0590" <kcarr@i...> wrote:
> > > Dave,
> > >
> > > I agree that the Rhinocort has to get way up there.  I found
that
> > on
> > > occasion Sudafed or generic would allow me to smell for short
> > > periods of time. When I increased the Rhinocort dosage I would
> take
> > > Sudafed to open up the nasal/sinuses even if it didn't help
with
> > > olfaction.  Of course now that my sense of smell has returned
I
> > > don't need the Sudafed to open the nasal passages.
> > >
> > > Do you invert your head after each spray as I do? I am not
sure
> > this
> > > helps or if increasing the dosage is the real reason for
> > olfaction.
> > > Saying that, I'm not changing a thing.  If it ain't broke,
don't
> > fix
> > > it.
> > >
> > > Kevin Carrigan
> > >
> > >
> > >
> > > --- In anosmia@yahoogroups.com, "davprince9" <davprince9@y...>
> > wrote:
> > > > I stand corrected. Thanks for the clearing up the waters
that I
> > > > worked so hard to muddy, Karl! :-)
> > > >
> > > > Cheers,
> > > > Dave
> > > >
> > > >
> > > >
> > > >
> > > > --- In anosmia@yahoogroups.com, "Karl L. Wuensch"
> <WuenschK@m...>
> > > > wrote:
> > > > > Good advice, but (picky me) one little error -- the
> intranasal
> > > > steroid presumably works by reducing nasal inflammation so
that
> > > > scented air can reach the olfactory receptors, which are
high
> in
> > > the
> > > > nasal cavity.  Once the scented air reaches those receptors,
> they
> > > > fire neural signals which pass through tiny olfactory
fibers,
> > > through
> > > > the cribriform plate, into the olfactory area (bulbs) of the
> > brain.
> > > > >
> > > > > Cheers,
> > > > >
> > > > > Karl W.
> > > > >   ----- Original Message -----
> > > > >   From: davprince9
> > > > >   To: anosmia@yahoogroups.com
> > > > >   Sent: Wednesday, September 01, 2004 12:33 AM
> > > > >   Subject: [anosmia] Re: Nasal Corticosteroids?
> > > > >
> > > > >
> > > > >   Also, don't assume that because your inhaled steroid
spray
> > > isn't
> > > > >   working, that inflammation isn't causing your problem.
In
> > > order
> > > > for
> > > > >   Rhinocort to assist your sense of smell, the steroid has
to
> > > get
> > > > to
> > > > >   the source area of the problem. Your olfactory bulbs are
> > > > underneath
> > > > >   your BRAIN. That spray has to get all the WAAAAAAAY back
in
> > > > there!
> > > > >   If you are inflamed it won't reach. You have to find a
way
> to
> > > > relax
> > > > >   the nasal tissues, all the back to the olfactory
complex,
> > THEN
> > > > use
> > > > >   the Rhinocort. Thus, my advice on asking the doc for a
> > > Prednisone
> > > > >   burst and anti biotics.
> > > > >
> > > > >   Good luck to all,
> > > > >
> > > > >   Dave
> > > > >
> > > > > [Non-text portions of this message have been removed]
> >
> >
> >
> > Community email addresses:
> >   Post message: anosmia@onelist.com
> >   Subscribe:    anosmia-subscribe@onelist.com
> >   Unsubscribe:  anosmia-unsubscribe@onelist.com
> >   List owner:   anosmia-owner@onelist.com
> >
> > Shortcut URL to this page:
> >   http://www.onelist.com/community/anosmia
> >
> >
> > Yahoo! Groups SponsorADVERTISEMENT
> >
> >
> > ---------------------------------
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> >
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> [Non-text portions of this message have been removed]

So, the inflammatin that could be further back in the nose, why wasn't it
detected in the CT scan of the sinuses or the MRI of the brain? Where exactly is
this swelling?

Rhonda

davprince9 <davprince9@...> wrote:
Rhonda,

I would say that it is worth the attempt. You may not notice if the
swelling is not in your lower turbinates. When these close, you get
that stuffy nose, I need some Afrin, feeling. This type of
inflammation is further back in the nose and "feels" different. It
also can be meaner and tougher than a hive of angry bees. Once it
starts, sometimes it stays for a lifetime. No one really knows why.
See what your doc says.

Dave







--- In anosmia@yahoogroups.com, Rhonda Smith <smithra102@y...> wrote:
> So, you guys are telling me that although I do not have or ever had
a history of allergies, swelling, polyps, congestion or anything and
that my viral anosmia was random result of a bad cold, I could still
have inflammation? So, what I need to do is get rid of the swelling.
Should I try Sudafed or some type of allergy medication along with
Rhinocort to see if it works?
>
> davprince9 <davprince9@y...> wrote:Kevin,
>
> My findings are very similar to yours. But, instead of taking
> Sudafed, I'll take Serrapeptase and Claritin. Other than that, I do
> everything else the same way. I have noticed that the daily nasal
> irrigation definitely helps.
>
> Also, I'll invert my head when the inflammation is present. I've
> found that when I'm open and my sense of smell is discernable, all
I
> need to do is just breath the spray in with a couple of short,
sharp
> sniffs. However, when the inflammation is at it's worst and I'm
> plugged up, I've learned that the Rhinocort will be ineffective
until
> I'm able to get it into the tissues near and around the olfactory
> complex. I can squirt a whole bottle of Rhinocort, but unless it
can
> get to that tough area back there, nothing's going to happen.
>
> I'm going to continue with my regimen, too. Meals and life, in
> general, are too good not to.
>
> Dave
>
>
>
>
>
>
>
>
> --- In anosmia@yahoogroups.com, "kcarr0590" <kcarr@i...> wrote:
> > Dave,
> >
> > I agree that the Rhinocort has to get way up there.  I found that
> on
> > occasion Sudafed or generic would allow me to smell for short
> > periods of time. When I increased the Rhinocort dosage I would
take
> > Sudafed to open up the nasal/sinuses even if it didn't help with
> > olfaction.  Of course now that my sense of smell has returned I
> > don't need the Sudafed to open the nasal passages.
> >
> > Do you invert your head after each spray as I do? I am not sure
> this
> > helps or if increasing the dosage is the real reason for
> olfaction.
> > Saying that, I'm not changing a thing.  If it ain't broke, don't
> fix
> > it.
> >
> > Kevin Carrigan
> >
> >
> >
> > --- In anosmia@yahoogroups.com, "davprince9" <davprince9@y...>
> wrote:
> > > I stand corrected. Thanks for the clearing up the waters that I
> > > worked so hard to muddy, Karl! :-)
> > >
> > > Cheers,
> > > Dave
> > >
> > >
> > >
> > >
> > > --- In anosmia@yahoogroups.com, "Karl L. Wuensch"
<WuenschK@m...>
> > > wrote:
> > > > Good advice, but (picky me) one little error -- the
intranasal
> > > steroid presumably works by reducing nasal inflammation so that
> > > scented air can reach the olfactory receptors, which are high
in
> > the
> > > nasal cavity.  Once the scented air reaches those receptors,
they
> > > fire neural signals which pass through tiny olfactory fibers,
> > through
> > > the cribriform plate, into the olfactory area (bulbs) of the
> brain.
> > > >
> > > > Cheers,
> > > >
> > > > Karl W.
> > > >   ----- Original Message -----
> > > >   From: davprince9
> > > >   To: anosmia@yahoogroups.com
> > > >   Sent: Wednesday, September 01, 2004 12:33 AM
> > > >   Subject: [anosmia] Re: Nasal Corticosteroids?
> > > >
> > > >
> > > >   Also, don't assume that because your inhaled steroid spray
> > isn't
> > > >   working, that inflammation isn't causing your problem. In
> > order
> > > for
> > > >   Rhinocort to assist your sense of smell, the steroid has to
> > get
> > > to
> > > >   the source area of the problem. Your olfactory bulbs are
> > > underneath
> > > >   your BRAIN. That spray has to get all the WAAAAAAAY back in
> > > there!
> > > >   If you are inflamed it won't reach. You have to find a way
to
> > > relax
> > > >   the nasal tissues, all the back to the olfactory complex,
> THEN
> > > use
> > > >   the Rhinocort. Thus, my advice on asking the doc for a
> > Prednisone
> > > >   burst and anti biotics.
> > > >
> > > >   Good luck to all,
> > > >
> > > >   Dave
> > > >
> > > > [Non-text portions of this message have been removed]
>
>
>
> Community email addresses:
>   Post message: anosmia@onelist.com
>   Subscribe:    anosmia-subscribe@onelist.com
>   Unsubscribe:  anosmia-unsubscribe@onelist.com
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>
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>
>
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>
>
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[Non-text portions of this message have been removed]

My partner, Jennifer, suffered a subarachnoid hemorrhage (SAH) of the anterior
communicating artery (ACoA) on March 26 and currently lacks much of her sense of
smell.
(The ACoA is part of the blood supply to an olfactory center.) Some or all of it
may return
over the next year and a half, but in the meantime, she needs help.

One of my main reasons for joining the group was to find some advice and if
possible
recipes to help Jennifer to enjoy food more with her apparently intact sense of
taste.

Despite a fair amount of searching on the web, I've found little (though I read
that a
cookbook is planned and that using garlic, peppers and horseradish can help). I
fear (and
hope) however that I've missed a lot of what's available.

I'd very much appreciate any relevant information.

I am also very curious about the probable causal connections underlying a
positive but
imperfect correlation between on the one hand, episodes of experiencing what she
describes as a "bad smell" that is extremely acrid and "hits hard" but is
nonetheless "not a
smell," and, on the other hand, episodes of anger and extreme general irritation
that feel
imposed. (Medication helps with both sorts of episodes.)

Thanks very much.

David.

david_austin@...
Raleigh, NC

Hi Everyone,

I'm looking for someone who suffers from anosmia as a result of
head trauma and has visited the taste and smell clinic in
DC...whether your experience at the clinic/w Dr. H. was positive
or negative I sure would like to know about it. I know the success
rate with head trauma cases is low to non-existent but I'd like to
hear some people's stories if they will share.....

Has anyone tried acupuncture ? I go every week and I think it
keeps me from getting headaches. I'm hoping it helps to
rejuvanate the olfactory nerves...I know western Drs don't think it
does...but I'm going to keep going b/c I like it....I would
recommend it to anyone who has suffered head trauma....it
makes me feel relaxed and like my body is healing itself.

Also, has anyone tried cranio-sacriel therapy ? That's next on the
list for me....

I'm glad to find this group.... this is a weird and lonely thing to be
going thru.

Thanks for your time,

Annabelle

Rhonda,

I would say that it is worth the attempt. You may not notice if the
swelling is not in your lower turbinates. When these close, you get
that stuffy nose, I need some Afrin, feeling. This type of
inflammation is further back in the nose and "feels" different. It
also can be meaner and tougher than a hive of angry bees. Once it
starts, sometimes it stays for a lifetime. No one really knows why.
See what your doc says.

Dave







--- In anosmia@yahoogroups.com, Rhonda Smith <smithra102@y...> wrote:
> So, you guys are telling me that although I do not have or ever had
a history of allergies, swelling, polyps, congestion or anything and
that my viral anosmia was random result of a bad cold, I could still
have inflammation? So, what I need to do is get rid of the swelling.
Should I try Sudafed or some type of allergy medication along with
Rhinocort to see if it works?
>
> davprince9 <davprince9@y...> wrote:Kevin,
>
> My findings are very similar to yours. But, instead of taking
> Sudafed, I'll take Serrapeptase and Claritin. Other than that, I do
> everything else the same way. I have noticed that the daily nasal
> irrigation definitely helps.
>
> Also, I'll invert my head when the inflammation is present. I've
> found that when I'm open and my sense of smell is discernable, all
I
> need to do is just breath the spray in with a couple of short,
sharp
> sniffs. However, when the inflammation is at it's worst and I'm
> plugged up, I've learned that the Rhinocort will be ineffective
until
> I'm able to get it into the tissues near and around the olfactory
> complex. I can squirt a whole bottle of Rhinocort, but unless it
can
> get to that tough area back there, nothing's going to happen.
>
> I'm going to continue with my regimen, too. Meals and life, in
> general, are too good not to.
>
> Dave
>
>
>
>
>
>
>
>
> --- In anosmia@yahoogroups.com, "kcarr0590" <kcarr@i...> wrote:
> > Dave,
> >
> > I agree that the Rhinocort has to get way up there.  I found that
> on
> > occasion Sudafed or generic would allow me to smell for short
> > periods of time. When I increased the Rhinocort dosage I would
take
> > Sudafed to open up the nasal/sinuses even if it didn't help with
> > olfaction.  Of course now that my sense of smell has returned I
> > don't need the Sudafed to open the nasal passages.
> >
> > Do you invert your head after each spray as I do? I am not sure
> this
> > helps or if increasing the dosage is the real reason for
> olfaction.
> > Saying that, I'm not changing a thing.  If it ain't broke, don't
> fix
> > it.
> >
> > Kevin Carrigan
> >
> >
> >
> > --- In anosmia@yahoogroups.com, "davprince9" <davprince9@y...>
> wrote:
> > > I stand corrected. Thanks for the clearing up the waters that I
> > > worked so hard to muddy, Karl! :-)
> > >
> > > Cheers,
> > > Dave
> > >
> > >
> > >
> > >
> > > --- In anosmia@yahoogroups.com, "Karl L. Wuensch"
<WuenschK@m...>
> > > wrote:
> > > > Good advice, but (picky me) one little error -- the
intranasal
> > > steroid presumably works by reducing nasal inflammation so that
> > > scented air can reach the olfactory receptors, which are high
in
> > the
> > > nasal cavity.  Once the scented air reaches those receptors,
they
> > > fire neural signals which pass through tiny olfactory fibers,
> > through
> > > the cribriform plate, into the olfactory area (bulbs) of the
> brain.
> > > >
> > > > Cheers,
> > > >
> > > > Karl W.
> > > >   ----- Original Message -----
> > > >   From: davprince9
> > > >   To: anosmia@yahoogroups.com
> > > >   Sent: Wednesday, September 01, 2004 12:33 AM
> > > >   Subject: [anosmia] Re: Nasal Corticosteroids?
> > > >
> > > >
> > > >   Also, don't assume that because your inhaled steroid spray
> > isn't
> > > >   working, that inflammation isn't causing your problem. In
> > order
> > > for
> > > >   Rhinocort to assist your sense of smell, the steroid has to
> > get
> > > to
> > > >   the source area of the problem. Your olfactory bulbs are
> > > underneath
> > > >   your BRAIN. That spray has to get all the WAAAAAAAY back in
> > > there!
> > > >   If you are inflamed it won't reach. You have to find a way
to
> > > relax
> > > >   the nasal tissues, all the back to the olfactory complex,
> THEN
> > > use
> > > >   the Rhinocort. Thus, my advice on asking the doc for a
> > Prednisone
> > > >   burst and anti biotics.
> > > >
> > > >   Good luck to all,
> > > >
> > > >   Dave
> > > >
> > > > [Non-text portions of this message have been removed]
>
>
>
> Community email addresses:
>   Post message: anosmia@onelist.com
>   Subscribe:    anosmia-subscribe@onelist.com
>   Unsubscribe:  anosmia-unsubscribe@onelist.com
>   List owner:   anosmia-owner@onelist.com
>
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>
>
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>
>
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>
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>
>
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> [Non-text portions of this message have been removed]

sorry, i meant to post the question to franni.



--- In anosmia@yahoogroups.com, "Sandra C. Mannelli, Ed.D."
<smannelli@h...> wrote:
> I don't know if you are addressing me but I did not go to a DC
clinic, maybe
> another Sandra is on the list here?
>
> -------Original Message-------
>
> From: anosmia@yahoogroups.com
> Date: 09/01/04 14:14:12
> To: anosmia@yahoogroups.com
> Subject: [anosmia] Re: Second visit to DC Clinic
>
> hi sandra -
>
> just out of curiosity, what kind of steriods did you receive at the
> dc clinic? i really hope for you that your smell and taste are here
> to stay!
>
> jennifer
>
>
>
> ------------------------ Yahoo! Groups Sponsor --------------------
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Just keep those nasal passages clear!

When I am congested, I find that a squirt of intranasal decongestant or
SinusBuster will open me up so that I can irrigate and, after draining
well, apply the  intranasal steroid.

Damm spammers are visiting us here again.

Cheers,

Karl W.

   _____

From: davprince9 [mailto:davprince9@...]
Sent: Thursday, September 02, 2004 12:03 AM
To: anosmia@yahoogroups.com
Subject: [anosmia] Re: Nasal Corticosteroids?


I stand corrected. Thanks for the clearing up the waters that I
worked so hard to muddy, Karl! :-)

Cheers,
Dave



[Non-text portions of this message have been removed]

I took Dexamethasone for two days.

Franni

--- In anosmia@yahoogroups.com, "jbca623" <jbca623@y...> wrote:
> hi sandra -
>
> just out of curiosity, what kind of steriods did you receive at the
> dc clinic? i really hope for you that your smell and taste are here
> to stay!
>
> jennifer

I took Dexamethasone for two days.

--- In anosmia@yahoogroups.com, "Sandra C. Mannelli, Ed.D."
<smannelli@h...> wrote:
> what kind of steroids were you placed on?
>
> -------Original Message-------
>
> From: anosmia@yahoogroups.com
> Date: 08/29/04 12:27:05
> To: anosmia@yahoogroups.com
> Subject: [anosmia] Second visit to DC Clinic
>
> I returned from my second visit to the Taste and Smell Clinic in
> Washington, DC, last week and am still attempting to grasp all
that's
> happened! If you have specific questions, feel free to email me at
> franni_nm@y... Just put Taste and Smell in the subject line as
> I don't typically read emails from individuals with whom I'm not
> familiar.
>
> Just to recap, I lost my taste and smell after a severe cold in June
> 2003. During my first visit to the clinic in January 2004, I was
> diagnosed with hyposmia (partial taste and smell) as a result of a
> viral infection. Partial meant I had 10% smell and 12% taste. With
> the condition, came periods of depression, weight gain (because I
> kept trying to get satisfied), and a wide variety of other things!
>
> Initially, Dr. Henkin prescribed an asthma medication, which I took
> in large daily doses, and at the time of my second visit, I
estimated
> that my taste and smell had improved approximately 10%. Following
the
> first round of tests at the clinic on August 19, Dr. Henkin
confirmed
> that my taste and smell were now somewhere in the range of 20-25%. I
> was placed on steroids Thursday and Friday to kick start my cells.
> Much to my surprise, I actually tasted much of my breakfast on
Friday
> morning! It was overwhelming!
>
> Dr. Henkin tested me each day and, Saturday morning, just prior to
> leaving for the airport, I got the good news! I was in the 70-75%
> taste range that morning and my smell range was a little lower. I
was
> in shock! It's hard to describe how I felt at that point. But,
> extremely emotional was at the top of the list!
>
> I had a layover in Atlanta and decided to give lunch a try!
> Ironically, I had been avoiding eating and then only having very
mild
> foods because the tastes where truly overwhelming and an assault on
> my senses! I opted for a cheeseburger and fries. Other diners must
> have thought me crazy as tears rolled down my cheeks as I tasted
> almost every bite of both! I called my husband and my parents
because
> I just had to share my good news!
>
> Now, a week later, I'm still experimenting with foods and smells.
> It's hard to describe! Believe it or not, one of my all-time
> favorites, chocolate is difficult to eat because it's so sweet! But
> I'm working hard to overcome that! :-)
>
> So, I'm continuing to take my medication and check in with the
doctor
> on a regular basis to determine where this adventure is taking me.
> Should my taste and smell begin to decline again, I'll probably have
> another round of steroids to give my cells a boost. For now, I'm
> focusing on providing the doctor with the estimated daily
percentages
> of my taste and smell.
>
> This is still very new to me! Now that the side effects of the
> steroids are finally behind me, I think the magnitude of what's
> happened will finally hit me! I'm so grateful for Dr. Henkin and
> those at his clinic that made this possible. This has taught me to
> never give up…especially when some members of the medical field told
> me to "learn to live with it." As time passes, I'll keep in touch to
> let you know how things are going.
>
>
>
>
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>   http://www.onelist.com/community/anosmia
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>
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>
> [Non-text portions of this message have been removed]

So, you guys are telling me that although I do not have or ever had a history of
allergies, swelling, polyps, congestion or anything and that my viral anosmia
was random result of a bad cold, I could still have inflammation? So, what I
need to do is get rid of the swelling. Should I try Sudafed or some type of
allergy medication along with Rhinocort to see if it works?

davprince9 <davprince9@...> wrote:Kevin,

My findings are very similar to yours. But, instead of taking
Sudafed, I'll take Serrapeptase and Claritin. Other than that, I do
everything else the same way. I have noticed that the daily nasal
irrigation definitely helps.

Also, I'll invert my head when the inflammation is present. I've
found that when I'm open and my sense of smell is discernable, all I
need to do is just breath the spray in with a couple of short, sharp
sniffs. However, when the inflammation is at it's worst and I'm
plugged up, I've learned that the Rhinocort will be ineffective until
I'm able to get it into the tissues near and around the olfactory
complex. I can squirt a whole bottle of Rhinocort, but unless it can
get to that tough area back there, nothing's going to happen.

I'm going to continue with my regimen, too. Meals and life, in
general, are too good not to.

Dave








--- In anosmia@yahoogroups.com, "kcarr0590" <kcarr@i...> wrote:
> Dave,
>
> I agree that the Rhinocort has to get way up there.  I found that
on
> occasion Sudafed or generic would allow me to smell for short
> periods of time. When I increased the Rhinocort dosage I would take
> Sudafed to open up the nasal/sinuses even if it didn't help with
> olfaction.  Of course now that my sense of smell has returned I
> don't need the Sudafed to open the nasal passages.
>
> Do you invert your head after each spray as I do? I am not sure
this
> helps or if increasing the dosage is the real reason for
olfaction.
> Saying that, I'm not changing a thing.  If it ain't broke, don't
fix
> it.
>
> Kevin Carrigan
>
>
>
> --- In anosmia@yahoogroups.com, "davprince9" <davprince9@y...>
wrote:
> > I stand corrected. Thanks for the clearing up the waters that I
> > worked so hard to muddy, Karl! :-)
> >
> > Cheers,
> > Dave
> >
> >
> >
> >
> > --- In anosmia@yahoogroups.com, "Karl L. Wuensch" <WuenschK@m...>
> > wrote:
> > > Good advice, but (picky me) one little error -- the intranasal
> > steroid presumably works by reducing nasal inflammation so that
> > scented air can reach the olfactory receptors, which are high in
> the
> > nasal cavity.  Once the scented air reaches those receptors, they
> > fire neural signals which pass through tiny olfactory fibers,
> through
> > the cribriform plate, into the olfactory area (bulbs) of the
brain.
> > >
> > > Cheers,
> > >
> > > Karl W.
> > >   ----- Original Message -----
> > >   From: davprince9
> > >   To: anosmia@yahoogroups.com
> > >   Sent: Wednesday, September 01, 2004 12:33 AM
> > >   Subject: [anosmia] Re: Nasal Corticosteroids?
> > >
> > >
> > >   Also, don't assume that because your inhaled steroid spray
> isn't
> > >   working, that inflammation isn't causing your problem. In
> order
> > for
> > >   Rhinocort to assist your sense of smell, the steroid has to
> get
> > to
> > >   the source area of the problem. Your olfactory bulbs are
> > underneath
> > >   your BRAIN. That spray has to get all the WAAAAAAAY back in
> > there!
> > >   If you are inflamed it won't reach. You have to find a way to
> > relax
> > >   the nasal tissues, all the back to the olfactory complex,
THEN
> > use
> > >   the Rhinocort. Thus, my advice on asking the doc for a
> Prednisone
> > >   burst and anti biotics.
> > >
> > >   Good luck to all,
> > >
> > >   Dave
> > >
> > > [Non-text portions of this message have been removed]



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[Non-text portions of this message have been removed]

Fast acne  relief tablets the only herbal remedy  removes toxic from
the affected area leaving your skin glowing acne free,without any
side effects!

Kevin,

My findings are very similar to yours. But, instead of taking
Sudafed, I'll take Serrapeptase and Claritin. Other than that, I do
everything else the same way. I have noticed that the daily nasal
irrigation definitely helps.

Also, I'll invert my head when the inflammation is present. I've
found that when I'm open and my sense of smell is discernable, all I
need to do is just breath the spray in with a couple of short, sharp
sniffs. However, when the inflammation is at it's worst and I'm
plugged up, I've learned that the Rhinocort will be ineffective until
I'm able to get it into the tissues near and around the olfactory
complex. I can squirt a whole bottle of Rhinocort, but unless it can
get to that tough area back there, nothing's going to happen.

I'm going to continue with my regimen, too. Meals and life, in
general, are too good not to.

Dave








  --- In anosmia@yahoogroups.com, "kcarr0590" <kcarr@i...> wrote:
> Dave,
>
> I agree that the Rhinocort has to get way up there.  I found that
on
> occasion Sudafed or generic would allow me to smell for short
> periods of time. When I increased the Rhinocort dosage I would take
> Sudafed to open up the nasal/sinuses even if it didn't help with
> olfaction.  Of course now that my sense of smell has returned I
> don't need the Sudafed to open the nasal passages.
>
> Do you invert your head after each spray as I do? I am not sure
this
> helps or if increasing the dosage is the real reason for
olfaction.
> Saying that, I'm not changing a thing.  If it ain't broke, don't
fix
> it.
>
> Kevin Carrigan
>
>
>
> --- In anosmia@yahoogroups.com, "davprince9" <davprince9@y...>
wrote:
> > I stand corrected. Thanks for the clearing up the waters that I
> > worked so hard to muddy, Karl! :-)
> >
> > Cheers,
> > Dave
> >
> >
> >
> >
> > --- In anosmia@yahoogroups.com, "Karl L. Wuensch" <WuenschK@m...>
> > wrote:
> > > Good advice, but (picky me) one little error -- the intranasal
> > steroid presumably works by reducing nasal inflammation so that
> > scented air can reach the olfactory receptors, which are high in
> the
> > nasal cavity.  Once the scented air reaches those receptors, they
> > fire neural signals which pass through tiny olfactory fibers,
> through
> > the cribriform plate, into the olfactory area (bulbs) of the
brain.
> > >
> > > Cheers,
> > >
> > > Karl W.
> > >   ----- Original Message -----
> > >   From: davprince9
> > >   To: anosmia@yahoogroups.com
> > >   Sent: Wednesday, September 01, 2004 12:33 AM
> > >   Subject: [anosmia] Re: Nasal Corticosteroids?
> > >
> > >
> > >   Also, don't assume that because your inhaled steroid spray
> isn't
> > >   working, that inflammation isn't causing your problem. In
> order
> > for
> > >   Rhinocort to assist your sense of smell, the steroid has to
> get
> > to
> > >   the source area of the problem. Your olfactory bulbs are
> > underneath
> > >   your BRAIN. That spray has to get all the WAAAAAAAY back in
> > there!
> > >   If you are inflamed it won't reach. You have to find a way to
> > relax
> > >   the nasal tissues, all the back to the olfactory complex,
THEN
> > use
> > >   the Rhinocort. Thus, my advice on asking the doc for a
> Prednisone
> > >   burst and anti biotics.
> > >
> > >   Good luck to all,
> > >
> > >   Dave
> > >
> > > [Non-text portions of this message have been removed]

!!!!    Healthy support   !!!!

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             bye,

Dave,

I agree that the Rhinocort has to get way up there.  I found that on
occasion Sudafed or generic would allow me to smell for short
periods of time. When I increased the Rhinocort dosage I would take
Sudafed to open up the nasal/sinuses even if it didn't help with
olfaction.  Of course now that my sense of smell has returned I
don't need the Sudafed to open the nasal passages.

Do you invert your head after each spray as I do? I am not sure this
helps or if increasing the dosage is the real reason for olfaction.
Saying that, I'm not changing a thing.  If it ain't broke, don't fix
it.

Kevin Carrigan



--- In anosmia@yahoogroups.com, "davprince9" <davprince9@y...> wrote:
> I stand corrected. Thanks for the clearing up the waters that I
> worked so hard to muddy, Karl! :-)
>
> Cheers,
> Dave
>
>
>
>
> --- In anosmia@yahoogroups.com, "Karl L. Wuensch" <WuenschK@m...>
> wrote:
> > Good advice, but (picky me) one little error -- the intranasal
> steroid presumably works by reducing nasal inflammation so that
> scented air can reach the olfactory receptors, which are high in
the
> nasal cavity.  Once the scented air reaches those receptors, they
> fire neural signals which pass through tiny olfactory fibers,
through
> the cribriform plate, into the olfactory area (bulbs) of the brain.
> >
> > Cheers,
> >
> > Karl W.
> >   ----- Original Message -----
> >   From: davprince9
> >   To: anosmia@yahoogroups.com
> >   Sent: Wednesday, September 01, 2004 12:33 AM
> >   Subject: [anosmia] Re: Nasal Corticosteroids?
> >
> >
> >   Also, don't assume that because your inhaled steroid spray
isn't
> >   working, that inflammation isn't causing your problem. In
order
> for
> >   Rhinocort to assist your sense of smell, the steroid has to
get
> to
> >   the source area of the problem. Your olfactory bulbs are
> underneath
> >   your BRAIN. That spray has to get all the WAAAAAAAY back in
> there!
> >   If you are inflamed it won't reach. You have to find a way to
> relax
> >   the nasal tissues, all the back to the olfactory complex, THEN
> use
> >   the Rhinocort. Thus, my advice on asking the doc for a
Prednisone
> >   burst and anti biotics.
> >
> >   Good luck to all,
> >
> >   Dave
> >
> > [Non-text portions of this message have been removed]

I stand corrected. Thanks for the clearing up the waters that I
worked so hard to muddy, Karl! :-)

Cheers,
Dave




--- In anosmia@yahoogroups.com, "Karl L. Wuensch" <WuenschK@m...>
wrote:
> Good advice, but (picky me) one little error -- the intranasal
steroid presumably works by reducing nasal inflammation so that
scented air can reach the olfactory receptors, which are high in the
nasal cavity.  Once the scented air reaches those receptors, they
fire neural signals which pass through tiny olfactory fibers, through
the cribriform plate, into the olfactory area (bulbs) of the brain.
>
> Cheers,
>
> Karl W.
>   ----- Original Message -----
>   From: davprince9
>   To: anosmia@yahoogroups.com
>   Sent: Wednesday, September 01, 2004 12:33 AM
>   Subject: [anosmia] Re: Nasal Corticosteroids?
>
>
>   Also, don't assume that because your inhaled steroid spray isn't
>   working, that inflammation isn't causing your problem. In order
for
>   Rhinocort to assist your sense of smell, the steroid has to get
to
>   the source area of the problem. Your olfactory bulbs are
underneath
>   your BRAIN. That spray has to get all the WAAAAAAAY back in
there!
>   If you are inflamed it won't reach. You have to find a way to
relax
>   the nasal tissues, all the back to the olfactory complex, THEN
use
>   the Rhinocort. Thus, my advice on asking the doc for a Prednisone
>   burst and anti biotics.
>
>   Good luck to all,
>
>   Dave
>
> [Non-text portions of this message have been removed]

Good advice, but (picky me) one little error -- the intranasal steroid
presumably works by reducing nasal inflammation so that scented air can reach
the olfactory receptors, which are high in the nasal cavity.  Once the scented
air reaches those receptors, they fire neural signals which pass through tiny
olfactory fibers, through the cribriform plate, into the olfactory area (bulbs)
of the brain.

Cheers,

Karl W.
   ----- Original Message -----
   From: davprince9
   To: anosmia@yahoogroups.com
   Sent: Wednesday, September 01, 2004 12:33 AM
   Subject: [anosmia] Re: Nasal Corticosteroids?


   Also, don't assume that because your inhaled steroid spray isn't
   working, that inflammation isn't causing your problem. In order for
   Rhinocort to assist your sense of smell, the steroid has to get to
   the source area of the problem. Your olfactory bulbs are underneath
   your BRAIN. That spray has to get all the WAAAAAAAY back in there!
   If you are inflamed it won't reach. You have to find a way to relax
   the nasal tissues, all the back to the olfactory complex, THEN use
   the Rhinocort. Thus, my advice on asking the doc for a Prednisone
   burst and anti biotics.

   Good luck to all,

   Dave

[Non-text portions of this message have been removed]

My ENT prescribed a strong multivitamin called Strovite Advance. She informed
that I should'e been on a multivitamin because of my diabetes but also stated
that this vitamin will strengthen my "nerves" and it may help bring back some of
my sense of smell. I was surprised to hear that someone else was prescribed a
multivitamin also. This is the first that I have heard someone diagnosed with
anosmia state that they were prescribed a multivitamin. Maybe there is some hope
that the vitamins can help!!

Rhonda

"Sandra C. Mannelli, Ed.D." <smannelli@...> wrote:
what kind of vitamins did your doctor prescribe?
Sandra

-------Original Message-------

From: anosmia@yahoogroups.com
Date: 09/01/04 14:16:49
To: anosmia@yahoogroups.com
Subject: [anosmia] Re: Lost sense of smell to Rhinocort

I went to my doctor and he precribed me a multi-vitamin, and he
thinks I will regain my sense of smell. He doesn't think it's related
to the Rhinocort, and I hope he's right. I still don't have any sense
of smell and taste back. My doc. asked for me to get back with him
with any news in two weeks time. Hopefully I will gradually get my
sense of smell back. I thought the person I called at the company
(there was a information number in the box the Rhinocort came in)
would get back in touch with me, but so far they have not. I was
hoping they would have some more information for me. They told me
it's very rare to lose sense of smell to the drug, but there is a few
cases of it. Ultimately I have no idea why it happened, it's just
that it's the very first time I have ever been without a sense of
smell, and it's so weird. I know a really nasty cold can do the same
thing (after having looked up cases of anosmia) on the internet. When
I posted the first message, I had only gone talked to the people on
the information line about the problem. I didn't even know there was
such a thing as anosmia until this happened, so everything is really
new to me. I am keeping my fingers crossed that this is only very
temporary.




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[Non-text portions of this message have been removed]



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[Non-text portions of this message have been removed]

Balizzararco,

I hope everything turns out well for you. My diagnosis of viral anosmia followed
a bad cold as well. My ENT prescribed a strong multivitamin for me as well and
said that it may help to regain my sense of smell. She said it will help
strengthen my "nerves". All we can do is hope for the best.

Good luck!!!
Rhonda

Bailzzararco <bailzzararco@...> wrote:
I went to my doctor and he precribed me a multi-vitamin, and he
thinks I will regain my sense of smell. He doesn't think it's related
to the Rhinocort, and I hope he's right. I still don't have any sense
of smell and taste back. My doc. asked for me to get back with him
with any news in two weeks time. Hopefully I will gradually get my
sense of smell back. I thought the person I called at the company
(there was a information number in the box the Rhinocort came in)
would get back in touch with me, but so far they have not. I was
hoping they would have some more information for me. They told me
it's very rare to lose sense of smell to the drug, but there is a few
cases of it. Ultimately I have no idea why it happened, it's just
that it's the very first time I have ever been without a sense of
smell, and it's so weird. I know a really nasty cold can do the same
thing (after having looked up cases of anosmia) on the internet. When
I posted the first message, I had only gone talked to the people on
the information line about the problem. I didn't even know there was
such a thing as anosmia until this happened, so everything is really
new to me. I am keeping my fingers crossed that this is only very
temporary.



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[Non-text portions of this message have been removed]

I don't know if you are addressing me but I did not go to a DC clinic, maybe
another Sandra is on the list here?

-------Original Message-------

From: anosmia@yahoogroups.com
Date: 09/01/04 14:14:12
To: anosmia@yahoogroups.com
Subject: [anosmia] Re: Second visit to DC Clinic

hi sandra -

just out of curiosity, what kind of steriods did you receive at the
dc clinic? i really hope for you that your smell and taste are here
to stay!

jennifer



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[Non-text portions of this message have been removed]

what kind of vitamins did your doctor prescribe?
Sandra

-------Original Message-------

From: anosmia@yahoogroups.com
Date: 09/01/04 14:16:49
To: anosmia@yahoogroups.com
Subject: [anosmia] Re: Lost sense of smell to Rhinocort

I went to my doctor and he precribed me a multi-vitamin, and he
thinks I will regain my sense of smell. He doesn't think it's related
to the Rhinocort, and I hope he's right. I still don't have any sense
of smell and taste back. My doc. asked for me to get back with him
with any news in two weeks time. Hopefully I will gradually get my
sense of smell back. I thought the person I called at the company
(there was a information number in the box the Rhinocort came in)
would get back in touch with me, but so far they have not. I was
hoping they would have some more information for me. They told me
it's very rare to lose sense of smell to the drug, but there is a few
cases of it. Ultimately I have no idea why it happened, it's just
that it's the very first time I have ever been without a sense of
smell, and it's so weird. I know a really nasty cold can do the same
thing (after having looked up cases of anosmia) on the internet. When
I posted the first message, I had only gone talked to the people on
the information line about the problem. I didn't even know there was
such a thing as anosmia until this happened, so everything is really
new to me. I am keeping my fingers crossed that this is only very
temporary.



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[Non-text portions of this message have been removed]

Hi ronni -

it sounds like we have very similar problems! it took me forever to
get a correct diagnosis of cough varient asthma. a pulmonologist
finally ordered a methacholine challenge just to rule out asthma and
taht's how we figured out what was going on. until i started on
pulmicort i was coughing like crazy for months, not sleeping through
the night, etc. it was truly a miserable experience. i am also
taking medicine for GERD although i dont have any stomach pain,
reflux, etc. my dr tells me that it is often "silent" with no
symptoms, yet it can still affect asthma and sinuses. my strange
quirk is that i dont have any clinical allergies, that is, i am
allergic to something, but not one of the normal triggers that they
do the skin tests for. so no allergy shots for me. like you I am
also prone to getting sick frequently. i have a toddler who seems to
bring home a diffrent germ every week! my ent is a regular surgeon,
but she has a personal interest in holistic medine (long story.)
last winter she recommended a supplement called transfer factor. it
is made from cow colostrum. it all sounds like a bunch of hooey to
me, but she swears by the stuff. it hasnt helped allergies, smell,
etc as we were hoping, but i am getting sick much less often. a few
weeks ago my husband and toddler had awful colds, coughs, etc and i
escaped with mild symptoms. usually i am the worst off of the three
of us. this has happened with several of the bugs that ahve passed
through our home. coincidence? who knows. i figure i have nothing to
lose, so i keep taking it. i'm curious to see how this winter goes -
that is typically when i get sick most often, and it always leads to
a sinus infection. by the way, the ragweed is flying like crazy here
in nyc, too, and boy do i feel stuffy and itchy! lungs are doing
great though....




> Well, I have my Cat Scan results and they aren't good.
>  They said they looked worse than the 1998 scans so
> back I go to the ENT.  I sure am glad I kept telling
> my allergist and ENT something was wrong here.  I
> probably am going to have another roto-rooter job.  I
> just caught another really bad cold and can't smell or
> taste anything but I am hoping the anosmia which I
> keep on getting is caused by bad sinuses.
>
> I am glad to find someone else with cough variant
> asthma.  It took me months till I was diagnosed.  I do
> fine with it until I get sick which is at least every
> month.  I am now going to try 2,000 milligrams of
> Vitamin C to boost my immune system as this is
> ridiculous.  Do you have GERD problems also?  I do and
> they are telling me this aggravates the asthma.  I
> used to cough so much I would have to pull over if I
> was driving and throw up.  At work they said it
> sounded like kennel cough.  The asthma medicine
> stopped it but I also have to take Nexium every day.
> I also developed a hiatal hernia from all the
> coughing.
>
> I like the Advair as it doesn't taste awful and is
> better than some of the other stuff out there.  I only
> use the Maxair when I need it.  We are deep into
> ragweed season in Florida so I'm sure I'll need it
> again here really soon.
>
> Take care everyone,
>
> Ronni
>
> --- jbca623 <jbca623@y...> wrote:
>
> > ronni - are you currently smelling with the meds you
> > listed below?
> > when i was using maxair my nose was much clearer.
> > right now my
> > ashtma is under control with pulmicort. i have cough
> > varient asthma,
> > too. right now i'm taking pulmicort, singulaire and
> > zyrtec. just
> > finished with the sinuneb and i dont think it really
> > did anything. i
> > also dont think nasonex or flonase did much. i'm
> > going to try
> > rhinocort next. i also think that the saline
> > irrigation makes my
> > nose much more congested. i know it is supposed to
> > help, but i think
> > it just aggravates things. perhaps i am doing it
> > wrong? i use a neti
> > pot and a premixed salt/baking soda wash
> > (sinucleanse.)
> >
> > i had a strange experience this week. i was visiting
> > with a friend
> > for a few days and i used the face cleanser that she
> > had in her
> > shower. i couldnt smell it in the bottle, but
> > everytime that i
> > washed my face i could smell it. this is the only
> > smell i have had
> > since the beginning of may.
> >
> >
> > --- In anosmia@yahoogroups.com, Ronni Herrick
> > <romarranch@y...>
> > wrote:
> > > Hi Karl,
> > >
> > > I saw my allergist yesterday.  I am stopping the
> > > Xolair as it hasn't helped me much.  I am going to
> > > stick with the Advair and Maxair (as needed).  He
> > > wants me to keep taking Zyrtec, saline irrigation,
> > > Nasarel and Allfen twice a day to thin out the
> > mucus.
> > > This sure is a lot of work if you ask me but it is
> > > worth it to keep on tasting and smelling.  I also
> > > still have to take allergy shots.  Bummer!
> > >
> > > I love it when I visit the ENT and tell him that I
> > > can't smell the dog poop.  That really gets him
> > > laughing.
> > >
> > > I am going to have another Cat Scan of my sinuses
> > next
> > > week.  I am still tasting and smelling but he
> > isn't
> > > happy that I still get sinus infections.
> > Hopefully
> > > this will tell him something.  I don't want
> > anymore
> > > surgery.
> > >
> > > Thank you and this group for all your input.  I
> > > recently contacted the Center for Smell and Taste
> > at
> > > the University of Florida in Gainesville.  They
> > are
> > > accepting e-mails at ufcst@m... for anyone
> > > interested.  They are hoping to be up and running
> > next
> > > year sometime.  The official website if anyone is
> > > interested it:  www.mbi.ufl.edu/~ufcst/
> > >
> > > My allergist agreed that no one understands this
> > loss
> > > like we do.  It really is life changing.
> > >
> > > I'll let you know what happens.
> > >
> > > Ronni
> > >
> > >
> > > --- "Karl L. Wuensch" <WuenschK@m...> wrote:
> > >
> > > >         From personal experience, I can assure
> > you
> > > > that sinus surgery, as it is done these days, is
> > > > nowhere near as traumatic as it was 15 years
> > ago.
> > > > That said, I think it quite wise to investigate
> > > > nonsurgical remedies prior to having another
> > > > surgery.
> > > >
> > > > Cheers,
> > > >
> > > > Karl W.
> > > >   ----- Original Message -----
> > > >   From: Sumapa88@a...
> > > >   To: anosmia@yahoogroups.com
> > > >   Sent: Thursday, August 19, 2004 9:13 PM
> > > >   Subject: Re: [anosmia] Positive
> > > > encouragement!!!!!!
> > > >
> > > >
> > > >   I HAD SINUS SURGERY 15 YEARS AGO AND MY
> > > >   SMELL CAME BACK GOOD. I PLAN ON SEEING MY ENT
> > DR
> > > > SOON. I REALLY WANT TO GET IT
> > > >   BACK!!!!!!!!!!!!!!!!! I WANT TO TRY ANY THING
> > > > SHORT OF SURGERY .
> > > >
> > > > [Non-text portions of this message have been
> > > > removed]
> > > >
> > > >
> > >
> > >
> > >
> > >
> > > __________________________________
> > > Do you Yahoo!?
> > > Yahoo! Mail - Helps protect you from nasty
> > viruses.
> > > http://promotions.yahoo.com/new_mail
> >
> >
>
>
>
>
> __________________________________
> Do you Yahoo!?
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> http://promotions.yahoo.com/new_mail

hi sandra -

just out of curiosity, what kind of steriods did you receive at the
dc clinic? i really hope for you that your smell and taste are here
to stay!

jennifer

I went to my doctor and he precribed me a multi-vitamin, and he
thinks I will regain my sense of smell. He doesn't think it's related
to the Rhinocort, and I hope he's right. I still don't have any sense
of smell and taste back. My doc. asked for me to get back with him
with any news in two weeks time. Hopefully I will gradually get my
sense of smell back. I thought the person I called at the company
(there was a information number in the box the Rhinocort came in)
would get back in touch with me, but so far they have not. I was
hoping they would have some more information for me. They told me
it's very rare to lose sense of smell to the drug, but there is a few
cases of it. Ultimately I have no idea why it happened, it's just
that it's the very first time I have ever been without a sense of
smell, and it's so weird. I know a really nasty cold can do the same
thing (after having looked up cases of anosmia) on the internet. When
I posted the first message, I had only gone talked to the people on
the information line about the problem. I didn't even know there was
such a thing as anosmia until this happened, so everything is really
new to me. I am keeping my fingers crossed that this is only very
temporary.

Dave,

Prednisone was not recommended as I am diabetic and it would definitely wreak
havoc on my sugar levels. I had a dose of antibiotics during the first onset of
the cold.

Rhonda

davprince9 <davprince9@...> wrote:
Also, don't assume that because your inhaled steroid spray isn't
working, that inflammation isn't causing your problem. In order for
Rhinocort to assist your sense of smell, the steroid has to get to
the source area of the problem. Your olfactory bulbs are underneath
your BRAIN. That spray has to get all the WAAAAAAAY back in there!
If you are inflamed it won't reach. You have to find a way to relax
the nasal tissues, all the back to the olfactory complex, THEN use
the Rhinocort. Thus, my advice on asking the doc for a Prednisone
burst and anti biotics.

Good luck to all,

Dave






--- In anosmia@yahoogroups.com, "davprince9" <davprince9@y...>
wrote:
> Hello Smithra102,
>
> I have not heard of a case where Rhinocort has been effective on
> viral induced anosmia. However, all is not lost. There is a Doctor
> in Washington, D.C., who has reportedly helped people like
yourself.
> There is a fellow on these boards by the name of Mick O'Hare, who
> was a viral patient of Dr. Robert Henkin. As a warning though, his
> results vary widely and he is very expensive. Also, insurance may
> not cover your costs, which may run into the thousands of dollars.
>
> Are you sure your anosmia is viral based? That's what my first ENT
> told me. He was wrong. It's inflammation based. I'm not a doctor.
> However, to make sure, ask your doctor for a tapered prednisone
> burst. Keep using your Rhinicort as you do this. If that doesn't
> help, I believe you can rule out inflammation.
>
> Good Luck,
> Dave
>
> --- In anosmia@yahoogroups.com, "smithra102" <smithra102@y...>
wrote:
> > Hi,
> >
> > Will Rhinocort help someone with no history of sinus problems,
> > congestion, polyps, or swelling and just developed viral anosmia
> > following a random incident of the common cold? Please read my
> story
> > below!!!
> >
> > I am a random victim of viral anosmia. I have no history of
> > allergies, polyps, sinus problems, congestion, etc. and developed
> > viral anomia following a cold and sinus infection 2-1/2 months
ago.
> > Prior to being diagnosed, I was prescribed antibiotics for the
> sinus
> > infection and Rhinocort and had a CT scan of the sinuses and
base
> of
> > skull and MRI of head. Now that I have been diagnosed, I was
told
> to
> > continue the Rhinocort as it MAY help. Do you think Rhinocort is
> > helpful in my case as I do not have polyps, swelling or suffer
from
> > allergies? What reason/purpose would the Rhinocort help me as I
> dont
> > have any type of swelling or anything? Is it hopeful that the
> > corticosteroids may help with regeneration of the olfactory?



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[Non-text portions of this message have been removed]

Patty

Check out http://personal.ecu.edu/wuenschk/ViralMick.htm for some answers to
your questions.

Mick

> ----------
> From:  patty101@...
> Reply To:  anosmia@yahoogroups.com
> Sent:  Wednesday, September 1, 2004 6:31
> To:  anosmia@yahoogroups.com
> Subject:  [anosmia] Question??
>
>
> My amnosia started about 2 months ago during a virus with a bad bronchitis
>
> infection.  So far I have done nothing about it. (except maybe cry) I was
> wondering exactly what the term "viral amnosia" means. Does it mean the
> amnosia came
> as a result of a virus...such as flu or is it a certain virus that
> actually
> causes the amnosia? (like amnosia virus) Also...what are the chances of a
> spontanious recovery?
> Thanks.
> Patty
>
>
> [Non-text portions of this message have been removed]
>
>
>
>
> Community email addresses:
>   Post message: anosmia@onelist.com
>   Subscribe:    anosmia-subscribe@onelist.com
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>
>
>
>
>
>
>
>


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