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anosmia · Mailing list and resources for people lacking the sense of smell. This list replaces the former Anosmia Resource Center.
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Reply | Forward Message #20082 of 21383 |
Re: [anosmia] Re: Hi

Your nerves may have been injured, but not severed.  Mine were obliterated.  Gone.


From: zepolie <zepolie@...>
To: anosmia@yahoogroups.com
Sent: Tuesday, February 3, 2009 6:24:02 PM
Subject: [anosmia] Re: Hi

I beg to differ, but I have had anosmia for over 4 years now and have
just recently begun experiencing a reversal of my condition.
Except for when I get a cold and ten days afterwards, I pretty much
can smell stuff now. It gets stronger and weaker and waxes and wanes
quite wildly still, but I am confident that this is the road to
recovery for me.
My experience is similar to Mick and Frannie's. I have been taking
Theophylline since October 2008 and it seems to be working! I chased
a rainbow and it worked for me.


Sandi

zepolie@yahoo. com
>
>
> Hate to opine, but I think you are chasing rainbows. Anosmia is
usually the result of nerve damage. In my case, a result of mid-face
trauma due to an auto accident.
>
> I can validate your feelings. Anosmia definitely affects one's
quality of life. I am a licensed massage therapist, but can not use
aromatherapy any longer.
>
> Good luck with your studies. You might want to confer with a
guidance counselor before pursuing this avenue.
>
>
>
> ____________ _________ _________ __
> From: andi_vickers <andivickers@ talktalk. net>
> To: anosmia@yahoogroups .com
> Sent: Thursday, January 29, 2009 12:45:29 PM
> Subject: [anosmia] Hi
>
>
> Hi,
> I'm new to the group, and I just wanted to introduce myself.
> I'm a 40yr old male,married with kids and have been suffering with
> complete anosmia for around 15 yrs now.
> I have in the past found it very difficult to get my G.P to
> investigate/ treat my condition.
> I don't know about you, but I find that having no sense of smell
> affects my quality of life somewhat, and people don't tend to take you
> seriously when you say it is a problem.
> Anyway, I now have a new G.P. who ids more helpful,and we have tried
> spays inhalers etc without any success.
> I'm hoping she will allow a more detailed investigation in the future,
> as I am starting a degree course soon which will probably involve
> using this sense to identify certain plants/compounds and suchlike.
> Has anybody had long term anosmia cured?
> Or am I chasing rainbows?
>
> Andi
>
>
>
>
>
>
> ____________ _________ _________ __
> Windows Live Hotmail just got better. Find out more!
>




Wed Feb 4, 2009 3:39 pm

chikkn
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Message #20082 of 21383 |
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I hear that! I use the microwave timer and also have one by my Mac, just in case. What a nuisance! ________________________________ From: Mary Ellen Granruth...
chikkn
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Feb 2, 2009
5:32 pm

Your nerves may have been injured, but not severed. Mine were obliterated. Gone. ________________________________ From: zepolie <zepolie@...> To:...
chikkn
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Feb 4, 2009
3:39 pm

My point was that anosmia is not always due to nerve damage. I really don't think that I ever had any nerve damage, because Prednisone always brought back my...
zepolie
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Feb 5, 2009
10:48 pm

I completely agree with you zepolie - hope is incredibly important, even if it is ultimately misplaced. If you hope and find a cure then great, but if you...
wrebecca79
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Feb 6, 2009
11:18 am

zepolie, I agree with you. There seems to be a consensus on this site that Anosmia is either the result of physical trauma or a severe viral disease damaging ...
Richard
rich_t42
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Feb 8, 2009
7:38 pm

There are plenty of us here whose anosmia was not congenital (in the usual sense), not viral, and not due to headbanging. I think you are included in that...
Wuensch, Karl L
klwuensch
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Feb 8, 2009
11:59 pm

Richard - I lost mine gradually as well. I was experiencing dizzy spells and smelling phantom odors. I had 3 MRIs, 1 EEG, 2 CAT scans and even a nuclear SPECT...
kirstenhaliwilson
kirstenhaliw...
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Feb 9, 2009
10:20 pm

kirsten, the corticosteroid drops I'm taking are Betamethasone sold as "betnesol" in the UK - Rhinocort Aqua (which is better available in N America) works...
Richard
rich_t42
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Feb 11, 2009
8:22 pm

One of my professors in graduate school did research on Piracetam, expecting to find that it facilitated memory or learning. It did not. Others, however,...
Wuensch, Karl L
klwuensch
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Jul 14, 2009
3:23 am

One of my professors in graduate school did research on Piracetam, expecting to find that it facilitated memory or learning. It did not. Others, however,...
Wuensch, Karl L
klwuensch
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Jul 15, 2009
4:51 pm

... http://www.docsimon.co.uk/article/piracetam-al-tbl-60x-800mg I might try it ....
optimal_quackers
optimal_quac...
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Jul 20, 2009
4:32 pm

Zepolie, You (and I) have what's referred to as "steroid-dependent anosmia". If you search on line you'll find medical articles on the subject. The standard...
Francis St. Amant
sfstamant...
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Feb 13, 2009
6:58 am

Hi In support of Steroids! I too have what you refer to as steroid-dependent anosmia (SDA) which i believe i developed following a cold / flu about 5 years ago...
Paul Collins
pcsworld2006
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Feb 16, 2009
1:58 pm

... considered surgery? I too have been on extended steroids intended to return smell and shrink polps which I am sure induced nerve damage. My sense of...
jrne619@...
jrne619...
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Feb 16, 2009
8:50 pm

Paul, you are spot on with your comment about delivery of the corticosteroid nasal drops. They work best when inserted into each nostril with head inverted...
Richard
rich_t42
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Feb 16, 2009
9:13 pm

how long does it take for the steroid nose drops to kick in from  melmortlock@... ... From: Richard <richardbees@...>yahoo Subject: [anosmia]...
mel mortlock
melmortlock
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Feb 19, 2009
4:51 pm

Hi Paul  Just would like to thank you on your excellent post on SDA so many years here in this group and today I heard something very useful I have the same...
tony ham
jumpey99
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Feb 20, 2009
2:19 am

Paul, Thanks very much for this advice.  As my current shot of Kenalog (thanks to Dr. Wuensch for this tip which I read last year on his web site) starts to...
Francis St. Amant
sfstamant...
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Feb 23, 2009
6:37 am

hi with Betnesol (betamethasone)  twice daily you should see some effects starting within 48 - 72 hours but i guess that if you have blocking polyps it may...
Paul Collins
pcsworld2006
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Feb 23, 2009
4:12 pm

Hi ...... and to stop it all running back out!!! ________________________________ From: Richard <richardbees@...> To: anosmia@yahoogroups.com Sent:...
Paul Collins
pcsworld2006
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Feb 23, 2009
4:15 pm

Trouble with the inverted head method is that if you are a ‘headbanger’ anosmiac you end up blacking out holding your head ‘upside down’!. I’ve just ...
Martine
martinegarland
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Feb 23, 2009
4:25 pm

i have tried the "hanging my head over the end of the bed" technique and felt v.nauseous. I prefer to kneel down and put my head to my knees on the floor (like...
Paul Collins
pcsworld2006
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Feb 23, 2009
4:43 pm

Haha exactly the question I asked my ENT Consultant, but he seems to know what he’s doing – I think! _____ From: anosmia@yahoogroups.com...
Martine
martinegarland
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Feb 23, 2009
4:59 pm

Hi I believe that studies have shown that in many cases the removal of polyps provides a transient recovery of taste and smell and that in many cases repeat...
Paul Collins
pcsworld2006
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Feb 23, 2009
4:31 pm
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