Teresa and Janice, Megan uses the "come here" sign for "I want," also! If it is something that she wants, she looks directly at the person who has it and...
Hi, Erika is supposed to be starting Kindergarten next fall and she will be mainstreamed into a regular class. She is now about 5-1/2. I don't know what to...
I hate this, but I am going to have to go off the list. I tried getting my mail through hotmail, but I don't get to a computer often enough to pick it up. I...
Hi everyone, I am trying to get a Vail Bed for Brittney. I have just received notice that it has been denied it is not a medical necessity. Could all of you ...
Hello everyone, Did anyone watch Maury Pauvich today? He has children with rare medical conditions on. They are asking for people to call if they have a...
Okay, ya'll. You can now see what I look like (that is with lipstick on) ... updated with 2 new photos - one of Nicholas and Jennifer and one of the whole...
... Dear Shelly, If a male member of the family is a silent carrier of an imprinting mutation leading to AS, he cannot have AS children. Only when inherited...
Hi Maria and All, I finally found the Brain Tissue Donation information from the Colorado Conference. It is the "National Neurological Research Specimen Bank,...
All: I caught the recent post about the research being done at Stanford. I saw the email address given for the researcher and sent him a note. I thought you...
In a message dated 1/31/99 10:06:14 PM Central Standard Time, ... Ann and Karina, It really does help our kids to know as many ways to communicate as possible....
Hi all, Cindy's post (frail old angel cry) reminded me of a site my dad showed to me. Think you all will like it too :):) We ALL are partial to ANGELS you...
I love this topic. We are always trying to think of creative new activities/toys for Hannah and we do not necessarily want to buy the same things that they...
Hey! I just wanted to let you all know that Lilly is doing much better. I took her back to the ped. on Thur. night, she ended up having a sore throat. She's...
Hi Karina, Why are they reluctant to teach Joe signs? Is it a difference in philosophy? I know some Speech/Language pathologists feel that if you teach sign...
Hi Everybody, Matty went to the dentist for a checkup and found 3 cavities in his baby molars. So, of course he has to go to the in-out patient surgese at the...
<A HREF="http://members.aol.com/MelloStars/AfrailAngelCry.index.html">Click here: A ƒrail ()ld àngel Çry</A> Hi AS families, you might like this web site-...
Hi all, I just wanted to mention a couple of good choices that I made for Macy from "Santa". As mentioned before (Cato?) the Barney Banjo has been a big hit....
Jenn (16 yrs). drinks a cup of coffee every morning! It started as a joke, when I would sit and read the paper and drink mine, she would read another section...
... Dear Cindy, Thank you very much for your input - and thanks also to Kevin and others who have responded to my request for comments on this topic. To answer...
... Dear Rita, I guess the general answer is - not really. They (the researchers) know what a common interstitial deletion in AS is: a piece of the chromosome...
Hi all, In today's paper, there is an article about a little girl has a severe hemangioma. Simply it looks like a very bad birth mark, but protrudes and...
Hi Heikki and all, I have a question---maybe one that's "off the wall". Since Macy was found to be deletion positive, no further testing was done on my blood....
I wanted to get in on this autism discussion since we have thought that our son was autistic for the past year ( clinical AS diagnosis last week) . As far as I...
hi all............I am one happy mom!!! Morgan has been pulling himself to standing all the time now and yesterday I was sitting outside with some neighbors....
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