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angelman · Angelman Syndrome Electronic Mailing List
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Reply | Forward Message #39504 of 39506 |
Perhaps this is a question best answered by Dan Harvey. What exactly is the
purpose of this list and who should be a part of it? Is the list primarily a
"support group" for parents of AS children? Should parents only of diagnosed
AS children be on this list? Or is it also a place for parents/loved ones of
children with clinical diagnosis or no diagnosis at all, but are "AS-like"?
Are stepparents of AS children welcome as well as educators, aides, siblings,
grandparents, aunts, uncles, friends, etc? Are these other loved ones as
equally entitled to a voice or opinion as those who have bio offspring with
diagnosed AS?

Is the list mostly a "support group"? Or is it more of a place for
information? Or perhaps it is an equal combination of both?

I am just very curious about the initial intent of the listserve.

D



Tue Jun 13, 2000 4:19 pm

Chadda11@...
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Perhaps this is a question best answered by Dan Harvey. What exactly is the purpose of this list and who should be a part of it? Is the list primarily a ...
Chadda11@...
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Jun 13, 2000
4:25 pm
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