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Description
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The angelman list provides an easy an efficient way for caregivers of people with Angelman's Syndrome (AS) to exchange information and support. Parents, family members, and teaching and medical professionals are welcome.
Here is info about me and a description of our mailing list. Please introduce yourself and your child or your reason for interest to the list;
we parents are hungry for contact with others who have experience with AS!
Our son, Austin, is 3 years old. He was diagnosed, at just under
2.5 years old and is deletion positive (i.e., he is missing an area of
one of his 15th chromosomes).
He has an abnormal EEG, seizure disorder, severe mental and physical delays, hypersensitivities, problems with feeding and speaking (he does have 2 words), and a severe, continuing sleeping disorder. My husband and I sleep in shifts. Austin is commando crawling now, and we are thrilled even though this is a bit late even for an "angel"-- it is a lot of fun to watch him enjoy a little independence.
(angelman@tbag.osc.edu)
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Cheers,
Ashley Burns =-= Columbus, Ohio =-= Mommy to Austin, born 7/20/92 =-= ashley@tbag.osc.edu
From majordomo-owner@tbag.osc.edu Tue Dec 24 18:18:40 1996
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Messages in this group are sent from a remote email list:angelman@tbag.osc.edu
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Posted - Tue Jun 13, 2000 4:26 pm
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Mailing List Processor
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What is the list about?
Perhaps this is a question best answered by Dan Harvey. What exactly is the purpose of this list and who should be a part of it? Is the list primarily a
Posted - Tue Jun 13, 2000 4:25 pm
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Chadda11@...
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Fw: email Oprah
Years ago the rep in Illinois had us all write letter to Oprah to try to get on her show. They did get lots of letters but were told that there are so many
Posted - Tue Jun 13, 2000 4:10 pm
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liesz5
liesz5@...
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Re: email Oprah
In a message dated 6/13/00 10:51:48 AM, Kathydemo@... writes: << I had a really great idea recently and wanted to see what you all thought. I am a huge fan
Posted - Tue Jun 13, 2000 4:03 pm
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RWitte1530@...
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Re: about Samuel and thank you
Alison, You've certainly described many of our exact same experiences. Welcome again. You're in the right place:-) Talk soon Angela (Amber 4.3 quad non and
Posted - Tue Jun 13, 2000 4:01 pm
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Angela S Lindig
alindig@...
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angelman@tbag.osc.edu |
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