Hello Everyone,
I joined this group in September of last year after delivering a
baby with anencephaly.  I haven't e-mailed in a long time.  I would
like to reach my hand out to anyone that needs to talk.  Godbless
the mothers and our angels-aleah PORCHE

Hi
I have been a member of this group for almost sixth months now.
Last July I found out that my baby had anencephaly.  As you all know
most doctors recomend terminating the pregnancy.  I honor everyones
decision on this matter and woll not condem anyone for anything they
choose to do.  But after careful consideration my husband and I
decided it would be in everyones best iterest if we terminated the
pregnancy.  This would be a lot harder than we thought however.  My
husband is in the navy and we use the medical insurance provided by
the government called Tri-care and they specificaly do not cover
abortions (gosh I hate that word) even if the child has
anencephaly.  After much termoil and going all the up the chain of
command via our insurance we got an offer form the Northwest womens
law center-they offered to take our case pro bono.  We won.  But
that was just the beggining the declaration was only for me.  So
ever since they won on my behalf in august they have been fighting
to get the law declared unconstitional-and that would benefit
everyone.  Since the case involved the military it was the united
states government that my lawyers were going up against.  Well I
just got the word tonight and they won-the law is declared
unconstitional.  So women like me won't have to fight to make a
personal decsion.  This dose not mean that I am pro choice.  I am
pro life.  But I also realized that carring the baby inside me could
cause great risk to me and my body and she would never live.  I
would die for my baby if I could of but the situation was totaly
hopelss.  -aleah

I've been thru a terrible ordeal.  Newly married, I was pregnant with
my 1st baby  early June of 1999, found out when I was 5 1/2 months my
baby boy has servere Spinabifida.  I didn't start folic acid till I
was pregnant, didn't know you have to start before.  Baby had "water
on the brain" along with many many other problems.  Doctor insisted I
have a termination.  I had to wait another month for a specialist,
who was on vacation, to come back to prefrom the termination cause I
was too far along.  so I underwent a horrific termination at 6 1/2
months.  then after motnhs of reassurance by my  doctor this is a
fluke and won't happen again.  I got pregnant in April of 2001, was
always sick as well, finally went to crucial ultrasound in Aug I was
little over 4 months,  I was in complete shock when the technician
left the ultrasound room and the next thing I know my Doctor, who was
secretly called on another phone, came running into tell me this baby
(boy) was NOT compatible with life and had anencephaly.  this time I
had been experiencing some pain in my uterus, and it turned out the
back of my baby's incomplete skull was "cutting" into my uterus.  I
underwent an emergency termination (next Day), with a few stitches in
uterus lining Doctor said my uetris will be ok.  well girls where do
I go from here?  I went to 3 specialists they all told me that they
were both "fluke" occurances, chromosomes testing on both fetuses
were surprisingly normal, even though the babys weren't normal.  not
genetic defects.  I don't have anything like this inmy family ,
except for 1 cousin with autism.  and neither does my husband.  I am
now 32 and he is 37.  They say this doesn't happen twice, but I've
been thru a "Nightmare", I got the courage to try again , since the
doc said I am still very young, I have been trying to get preggy
since last sept.  I was on a higher dosage of folic acid my 2nd
pregnancy by the way and took this folic acid for a whole year before
even getting pregnant the 2nd time.  I just had a "dye" test HSG
where they xray your uterus, 10days ago to see what the delay is in
getting pregnant (last times got pregnant within 2 months). and the
tubes are fine but they found excessive scar tissue due to the 2
second trimster terminations.  I also have a fibroid, which the
doctor is not going to bother with now.  and a "nip here and tuck
there" (hysteroscopy) and doc says I should be as good as new.  I
went to several specialists on my own, and my doctor sent me to a few
as well.  all opinions are the same:  I am normal, chromos are
normal, these are "flukes" and at worse case senario I have only a
25% chance of this happening again.  I keep having the same nightmare
over and over again about the ultra sound being bad again.  I wake up
scared.  by morning things don't seem too bad, I feel I can try
again.  what happened to me doesn't mean this will happen to you, my
own doctor has been good, and "on top" of things, she is shocked
herself.  all factors indicate I should try again.  Just answer two
questions "why me"?  and "if anyone knows of this happening 3 times"?
my email is  bizou4041@... would love to chat with you gals,
I am new and yes "experienced" (dry humor)

Jousephine

yes i have heard of it happening twice but not three
time.just trust in God and he will give you the
strength.at 10 weeks request a level II ultrasound to
see if anything shows up.they say the earliest
detection has been at 10 weeks.i am sorry you are
having such a horrible time.i am alittle confused are
you going to have to get a hystorictomy(sp)or are you
going to be able to try again to have a baby
first?also i know it is not the same but there is
alway adoption.also if you go threw the treatments of
fertility you will be closer monitored and possibly
find out sooner.i hope you the best and you are in my
prayers,take care sweetie sending sweet angel kisses
^*^
--- "jousephinee <bizou4041@...>"
<bizou4041@...> wrote:
> I've been thru a terrible ordeal.  Newly married, I
> was pregnant with
> my 1st baby  early June of 1999, found out when I
> was 5 1/2 months my
> baby boy has servere Spinabifida.  I didn't start
> folic acid till I
> was pregnant, didn't know you have to start before.
> Baby had "water
> on the brain" along with many many other problems.
> Doctor insisted I
> have a termination.  I had to wait another month for
> a specialist,
> who was on vacation, to come back to prefrom the
> termination cause I
> was too far along.  so I underwent a horrific
> termination at 6 1/2
> months.  then after motnhs of reassurance by my
> doctor this is a
> fluke and won't happen again.  I got pregnant in
> April of 2001, was
> always sick as well, finally went to crucial
> ultrasound in Aug I was
> little over 4 months,  I was in complete shock when
> the technician
> left the ultrasound room and the next thing I know
> my Doctor, who was
> secretly called on another phone, came running into
> tell me this baby
> (boy) was NOT compatible with life and had
> anencephaly.  this time I
> had been experiencing some pain in my uterus, and it
> turned out the
> back of my baby's incomplete skull was "cutting"
> into my uterus.  I
> underwent an emergency termination (next Day), with
> a few stitches in
> uterus lining Doctor said my uetris will be ok.
> well girls where do
> I go from here?  I went to 3 specialists they all
> told me that they
> were both "fluke" occurances, chromosomes testing on
> both fetuses
> were surprisingly normal, even though the babys
> weren't normal.  not
> genetic defects.  I don't have anything like this
> inmy family ,
> except for 1 cousin with autism.  and neither does
> my husband.  I am
> now 32 and he is 37.  They say this doesn't happen
> twice, but I've
> been thru a "Nightmare", I got the courage to try
> again , since the
> doc said I am still very young, I have been trying
> to get preggy
> since last sept.  I was on a higher dosage of folic
> acid my 2nd
> pregnancy by the way and took this folic acid for a
> whole year before
> even getting pregnant the 2nd time.  I just had a
> "dye" test HSG
> where they xray your uterus, 10days ago to see what
> the delay is in
> getting pregnant (last times got pregnant within 2
> months). and the
> tubes are fine but they found excessive scar tissue
> due to the 2
> second trimster terminations.  I also have a
> fibroid, which the
> doctor is not going to bother with now.  and a "nip
> here and tuck
> there" (hysteroscopy) and doc says I should be as
> good as new.  I
> went to several specialists on my own, and my doctor
> sent me to a few
> as well.  all opinions are the same:  I am normal,
> chromos are
> normal, these are "flukes" and at worse case senario
> I have only a
> 25% chance of this happening again.  I keep having
> the same nightmare
> over and over again about the ultra sound being bad
> again.  I wake up
> scared.  by morning things don't seem too bad, I
> feel I can try
> again.  what happened to me doesn't mean this will
> happen to you, my
> own doctor has been good, and "on top" of things,
> she is shocked
> herself.  all factors indicate I should try again.
> Just answer two
> questions "why me"?  and "if anyone knows of this
> happening 3 times"?
> my email is  bizou4041@... would love to
> chat with you gals,
> I am new and yes "experienced" (dry humor)
>
> Jousephine
>
>
>


=====
love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of one
small child ,God knows how much we need them,and so He takes but few to make His
land of Heaven more beautiful to view, so when a little child departs, we who
are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS ARE HARD TO
FIND!!!^*^sending angel kisses and hugs to all who have gone.^*^

__________________________________________________
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Yahoo! Tax Center - forms, calculators, tips, more
http://taxes.yahoo.com/

i am also a military wife,my husband is a marine
stationed at camp lejuene.there are was tri-care would
have let you terminate.but it would have been a long
process and you proberly would have had your angel by
then.i had my angel still born at 36 weeks on
jan28,2003.i have gotten the naval hospital here along
with the march of dimes  to get a folicacid aweness
campaign started.they named it project Gabriel ,after
our wonderful angel.i would not have changed the
desicion we make to keep our baby for the world.i do
have 5 healthy children.i did here about you when i
first got my diagnoses though.i have a question ,the
local paper is doing a story to bring the folicacid
awreness out to more people plus to get everyone to
know more about anencephaly.would you mind if i sent
your email to  her.or could i give you her email and
have you email her your story.i carried to term but i
amsure she would like to know your story as well.plus
you are a military spiuse and so i am living in a
large military area.please let me know . my personal
email is bradandsuzetterichart@...
--- "aleah_5442 <aleah_5442@...>"
<aleah_5442@...> wrote:
> Hi
> I have been a member of this group for almost sixth
> months now.
> Last July I found out that my baby had anencephaly.
> As you all know
> most doctors recomend terminating the pregnancy.  I
> honor everyones
> decision on this matter and woll not condem anyone
> for anything they
> choose to do.  But after careful consideration my
> husband and I
> decided it would be in everyones best iterest if we
> terminated the
> pregnancy.  This would be a lot harder than we
> thought however.  My
> husband is in the navy and we use the medical
> insurance provided by
> the government called Tri-care and they specificaly
> do not cover
> abortions (gosh I hate that word) even if the child
> has
> anencephaly.  After much termoil and going all the
> up the chain of
> command via our insurance we got an offer form the
> Northwest womens
> law center-they offered to take our case pro bono.
> We won.  But
> that was just the beggining the declaration was only
> for me.  So
> ever since they won on my behalf in august they have
> been fighting
> to get the law declared unconstitional-and that
> would benefit
> everyone.  Since the case involved the military it
> was the united
> states government that my lawyers were going up
> against.  Well I
> just got the word tonight and they won-the law is
> declared
> unconstitional.  So women like me won't have to
> fight to make a
> personal decsion.  This dose not mean that I am pro
> choice.  I am
> pro life.  But I also realized that carring the baby
> inside me could
> cause great risk to me and my body and she would
> never live.  I
> would die for my baby if I could of but the
> situation was totaly
> hopelss.  -aleah
>
>
>


=====
love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of one
small child ,God knows how much we need them,and so He takes but few to make His
land of Heaven more beautiful to view, so when a little child departs, we who
are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS ARE HARD TO
FIND!!!^*^sending angel kisses and hugs to all who have gone.^*^

__________________________________________________
Do you Yahoo!?
Yahoo! Tax Center - forms, calculators, tips, more
http://taxes.yahoo.com/

www.geocities.com/iris_suzette/  iswhereto go .a
friends has added to our site and has done an amazing
job   thanks Dawn

=====
love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of one
small child ,God knows how much we need them,and so He takes but few to make His
land of Heaven more beautiful to view, so when a little child departs, we who
are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS ARE HARD TO
FIND!!!^*^sending angel kisses and hugs to all who have gone.^*^

__________________________________________________
Do you Yahoo!?
Yahoo! Tax Center - forms, calculators, tips, more
http://taxes.yahoo.com/

I don't believe in Santa Claus, but I'm not going to
sue somebody for

> > >> > singing a Ho-Ho-Ho song in December. I don't
agree with Darwin, but I

> > >> didn't

> > >> > go out and hire a lawyer when my high school
teacher taught his

>theory

> > >of

> > >> > evolution. Life, liberty or your pursuit of
happiness will not be

> > >> endangered

> > >> > because someone says a 30 - second prayer
before a football game. So

> > >> what's

> > >> > the big deal? It's not like somebody is up
there reading the entire

> > >book

> > >> of

> > >> > Acts. They're just talking to God they
believe in and asking him to

> > >grant

> > >> > safety to the players on the field and the
fans going home from the

> > >game.

> > >> >

> > >> > But it's a Christian prayer, some will argue.
Yes, and this is the

> > >United

> > >> > States of America, a country founded on
Christian principles. And we

> > >are

> > >> in

> > >> > the Bible Belt. According to our very own
phone book, Christian

> > churches

> > >> > outnumber all others better than 200 - to -
1. So what would you

>expect

> > >> > -somebody chanting Hare Krishna? If I went to
a football game in

> > >> Jerusalem,

> > >> > I would expect to hear a Jewish prayer. If I
went to a soccer game in

> > >> > Baghdad, I would expect to hear a Muslim
prayer. If I went to a ping

> > >pong

> > >> > match in China I would expect to hear someone
pray to Buddha. And I

> > >> wouldn't

> > >> > be offended. It wouldn't bother me one bit,
When in Rome...

> > >> >

> > >> > Nobody is asking them to be baptized. We're
not going to pass the

> > >> collection

> > >> > plate. Just humor us for 30 seconds. If
that's asking too much bring

>a

> > >> > Walkman or a pair of ear plugs. Go to the
bathroom. Visit the

> > >concession

> > >> > stand. Call your lawyer. Unfortunately, one
or two will make that

>call.

> > >> One

> > >> > or two will tell thousands what they can and
cannot do. I don't think

>a

> > >> > short prayer at a football game is going to
shake the world's

> > >foundation.

> > >> >

> > >> > Christians are just sick and tired of turning
the other cheek while

>our

> > >> > courts strip us of all our rights. Our
parents and grandparents

>taught

> > >us

> > >> to

> > >> > pray before eating, to pray before we go to
sleep. Our Bible tells us

> > >just

> > >> > to pray without ceasing. Now a handful of
people and their lawyers

>are

> > >> > telling us to cease praying. God, help us.
And if that last sentence

> > >> offends

> > >> > you well.....just sue me. The silent majority
has been silent too

> > >> long.It's

> > >> > time we let that one or two scream loud
enough to be heard, that the

> > >vast

> > >> > majority don't care what they want..it is
time the majority rules!

> > >> >

> > >> > It's time we tell them, you don't have to
pray..you don't have to say

> > >the

> > >> > pledge of allegiance, you don't have to
believe in God or attend

> > >services

> > >> > that honor Him. That is your right, and we
will honor your right..but

> > by

> > >> > golly you are no longer going to take our
rights away. We are

>fighting

> > >> > back...and we WILL WIN! After all the God you
have the right to

> > denounce

> > >> is

> > >> > on our side!

> > >> >

> > >> > God bless us one and all, especially those
who denounce Him...

> > >> >

> > >> > God bless America, despite all her
faults..still the greatest nation

>of

> > >> > all...

> > >> >

> > >> > God bless our service men who are fighting to
protect our right to

>pray

> > >> and

> > >> > worship God...

> > >> >

> > >> > May 2003 be the year the silent majority is
heard and we put God back

> > as

> > >> the

> > >> > foundation of our families and institutions.

> > >> >

> > >> > Keep looking up... In God We Trust

> > >> >

> > >> > If you agree with this, please pass it on. If
not, delete it!

> > >> >

> > >> > God bless ya' this day n' always..plus a day
or two.

> > >> >


=====
love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of one
small child ,God knows how much we need them,and so He takes but few to make His
land of Heaven more beautiful to view, so when a little child departs, we who
are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS ARE HARD TO
FIND!!!^*^sending angel kisses and hugs to all who have gone.^*^

__________________________________________________
Do you Yahoo!?
Yahoo! Tax Center - forms, calculators, tips, more
http://taxes.yahoo.com/

----- Original Message -----

From: iris shearer

To: anencephaly@yahoogroups.com

Sent: Tuesday, March 04, 2003 8:03 PM

Subject: Re: [anencephaly] 2 neural tube defects

yes i have heard of it happening twice but not three
time.just trust in God and he will give you the
strength.at 10 weeks request a level II ultrasound to
see if anything shows up.they say the earliest
detection has been at 10 weeks.i am sorry you are
having such a horrible time.i am alittle confused are
you going to have to get a hystorictomy(sp)or are you
going to be able to try again to have a baby
first?also i know it is not the same but there is
alway adoption.also if you go threw the treatments of
fertility you will be closer monitored and possibly
find out sooner.i hope you the best and you are in my
prayers,take care sweetie sending sweet angel kisses
^*^
--- "jousephinee <bizou4041@...>"
<bizou4041@...> wrote:
> I've been thru a terrible ordeal.  Newly married, I
> was pregnant with
> my 1st baby  early June of 1999, found out when I
> was 5 1/2 months my
> baby boy has servere Spinabifida.  I didn't start
> folic acid till I
> was pregnant, didn't know you have to start before.
> Baby had "water
> on the brain" along with many many other problems.
> Doctor insisted I
> have a termination.  I had to wait another month for
> a specialist,
> who was on vacation, to come back to prefrom the
> termination cause I
> was too far along.  so I underwent a horrific
> termination at 6 1/2
> months.  then after motnhs of reassurance by my
> doctor this is a
> fluke and won't happen again.  I got pregnant in
> April of 2001, was
> always sick as well, finally went to crucial
> ultrasound in Aug I was
> little over 4 months,  I was in complete shock when
> the technician
> left the ultrasound room and the next thing I know
> my Doctor, who was
> secretly called on another phone, came running into
> tell me this baby
> (boy) was NOT compatible with life and had
> anencephaly.  this time I
> had been experiencing some pain in my uterus, and it
> turned out the
> back of my baby's incomplete skull was "cutting"
> into my uterus.  I
> underwent an emergency termination (next Day), with
> a few stitches in
> uterus lining Doctor said my uetris will be ok.
> well girls where do
> I go from here?  I went to 3 specialists they all
> told me that they
> were both "fluke" occurances, chromosomes testing on
> both fetuses
> were surprisingly normal, even though the babys
> weren't normal.  not
> genetic defects.  I don't have anything like this
> inmy family ,
> except for 1 cousin with autism.  and neither does
> my husband.  I am
> now 32 and he is 37.  They say this doesn't happen
> twice, but I've
> been thru a "Nightmare", I got the courage to try
> again , since the
> doc said I am still very young, I have been trying
> to get preggy
> since last sept.  I was on a higher dosage of folic
> acid my 2nd
> pregnancy by the way and took this folic acid for a
> whole year before
> even getting pregnant the 2nd time.  I just had a
> "dye" test HSG
> where they xray your uterus, 10days ago to see what
> the delay is in
> getting pregnant (last times got pregnant within 2
> months). and the
> tubes are fine but they found excessive scar tissue
> due to the 2 
> second trimster terminations.  I also have a
> fibroid, which the
> doctor is not going to bother with now.  and a "nip
> here and tuck
> there" (hysteroscopy) and doc says I should be as
> good as new.  I
> went to several specialists on my own, and my doctor
> sent me to a few
> as well.  all opinions are the same:  I am normal,
> chromos are
> normal, these are "flukes" and at worse case senario
> I have only a
> 25% chance of this happening again.  I keep having
> the same nightmare
> over and over again about the ultra sound being bad
> again.  I wake up
> scared.  by morning things don't seem too bad, I
> feel I can try
> again.  what happened to me doesn't mean this will
> happen to you, my
> own doctor has been good, and "on top" of things,
> she is shocked
> herself.  all factors indicate I should try again.
> Just answer two
> questions "why me"?  and "if anyone knows of this
> happening 3 times"?
> my email is  bizou4041@... would love to
> chat with you gals,
> I am new and yes "experienced" (dry humor)
>
> Jousephine
>
>
>


=====
love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of one small child ,God knows how much we need them,and so He takes but few to make His land of Heaven more beautiful to view, so when a little child departs, we who are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS ARE HARD TO FIND!!!^*^sending angel kisses and hugs to all who have gone.^*^

__________________________________________________
Do you Yahoo!?
Yahoo! Tax Center - forms, calculators, tips, more
http://taxes.yahoo.com/


Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

----- Original Message -----

From: iris shearer

To: anencephaly@yahoogroups.com

Sent: Tuesday, March 04, 2003 8:16 PM

Subject: Re: [anencephaly] Good news for women in the NORTHWEST-re anenecephaly

i am also a military wife,my husband is a marine
stationed at camp lejuene.there are was tri-care would
have let you terminate.but it would have been a long
process and you proberly would have had your angel by
then.i had my angel still born at 36 weeks on
jan28,2003.i have gotten the naval hospital here along
with the march of dimes  to get a folicacid aweness
campaign started.they named it project Gabriel ,after
our wonderful angel.i would not have changed the
desicion we make to keep our baby for the world.i do
have 5 healthy children.i did here about you when i
first got my diagnoses though.i have a question ,the
local paper is doing a story to bring the folicacid
awreness out to more people plus to get everyone to
know more about anencephaly.would you mind if i sent
your email to  her.or could i give you her email and
have you email her your story.i carried to term but i
amsure she would like to know your story as well.plus
you are a military spiuse and so i am living in a
large military area.please let me know . my personal
email is bradandsuzetterichart@...
--- "aleah_5442 <aleah_5442@...>"
<aleah_5442@...> wrote:
> Hi
> I have been a member of this group for almost sixth
> months now. 
> Last July I found out that my baby had anencephaly.
> As you all know
> most doctors recomend terminating the pregnancy.  I
> honor everyones
> decision on this matter and woll not condem anyone
> for anything they
> choose to do.  But after careful consideration my
> husband and I
> decided it would be in everyones best iterest if we
> terminated the
> pregnancy.  This would be a lot harder than we
> thought however.  My
> husband is in the navy and we use the medical
> insurance provided by
> the government called Tri-care and they specificaly
> do not cover
> abortions (gosh I hate that word) even if the child
> has
> anencephaly.  After much termoil and going all the
> up the chain of
> command via our insurance we got an offer form the
> Northwest womens
> law center-they offered to take our case pro bono.
> We won.  But
> that was just the beggining the declaration was only
> for me.  So
> ever since they won on my behalf in august they have
> been fighting
> to get the law declared unconstitional-and that
> would benefit
> everyone.  Since the case involved the military it
> was the united
> states government that my lawyers were going up
> against.  Well I
> just got the word tonight and they won-the law is
> declared
> unconstitional.  So women like me won't have to
> fight to make a
> personal decsion.  This dose not mean that I am pro
> choice.  I am
> pro life.  But I also realized that carring the baby
> inside me could
> cause great risk to me and my body and she would
> never live.  I
> would die for my baby if I could of but the
> situation was totaly
> hopelss.  -aleah
>
>
>


=====
love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of one small child ,God knows how much we need them,and so He takes but few to make His land of Heaven more beautiful to view, so when a little child departs, we who are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS ARE HARD TO FIND!!!^*^sending angel kisses and hugs to all who have gone.^*^

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Hi thanx for your email, I  am going infor a hysteroscopy not a hysterectomy
which is just removing the scar tissue, not taking out my uterus, this is
supposed to enable a smoother lining in order for the egg to implant to I
can get pregnant.  the way it is now the scar tissue has made my lining
bumpy and these are not ideal conditions for egg implantation.  You have
heard of this ahppening twice?  wow! but not 3 times.  well hopefully the
3rd's the charm for me.  Doctor hasn't said to "throw in the towel" yet.
haven't quite considered adoption yet.  I know it's an option.  they said
they are gonna do a level 2 ultrasound onmy next time like at 9-10 weeks,a
nd that they are going to keep a closer eye on me.  also  doc says if/when i
get pregnant to  'take it easy" this time cause i am probably at a higher
risk for a miscarriage cause of the terms.  I do not regret terminating my
pregnancies, I am not pro-choice , just particularly the 2nd pregnancy I
would have "bled" to death and risked my own life if I carried to full term.
It would pained me more to  have witnessed both my babies die after birth,
am not strong enough. I  dislike the word "abortion".  I do get upset when I
hear people "aborting" perfectly healthy babies, and when I hear of those
abusing or neglecting or killing their own babies.  It's sad.  Having a baby
is a "gift"  a "gift I took for granted.  did you also have a pregnancy
diagnosed with a neural tube defect?  Do you have children? my heart goes
out to all women who've experienced a similar fate.   Thanx for your support
I'll keep you up to date.  pray for me.






>From: iris shearer <iris_suzette@...>
>Reply-To: anencephaly@yahoogroups.com
>To: anencephaly@yahoogroups.com
>Subject: Re: [anencephaly] 2 neural tube defects
>Date: Tue, 4 Mar 2003 17:03:27 -0800 (PST)
>
>yes i have heard of it happening twice but not three
>time.just trust in God and he will give you the
>strength.at 10 weeks request a level II ultrasound to
>see if anything shows up.they say the earliest
>detection has been at 10 weeks.i am sorry you are
>having such a horrible time.i am alittle confused are
>you going to have to get a hystorictomy(sp)or are you
>going to be able to try again to have a baby
>first?also i know it is not the same but there is
>alway adoption.also if you go threw the treatments of
>fertility you will be closer monitored and possibly
>find out sooner.i hope you the best and you are in my
>prayers,take care sweetie sending sweet angel kisses
>^*^
>--- "jousephinee <bizou4041@...>"
><bizou4041@...> wrote:
> > I've been thru a terrible ordeal.  Newly married, I
> > was pregnant with
> > my 1st baby  early June of 1999, found out when I
> > was 5 1/2 months my
> > baby boy has servere Spinabifida.  I didn't start
> > folic acid till I
> > was pregnant, didn't know you have to start before.
> > Baby had "water
> > on the brain" along with many many other problems.
> > Doctor insisted I
> > have a termination.  I had to wait another month for
> > a specialist,
> > who was on vacation, to come back to prefrom the
> > termination cause I
> > was too far along.  so I underwent a horrific
> > termination at 6 1/2
> > months.  then after motnhs of reassurance by my
> > doctor this is a
> > fluke and won't happen again.  I got pregnant in
> > April of 2001, was
> > always sick as well, finally went to crucial
> > ultrasound in Aug I was
> > little over 4 months,  I was in complete shock when
> > the technician
> > left the ultrasound room and the next thing I know
> > my Doctor, who was
> > secretly called on another phone, came running into
> > tell me this baby
> > (boy) was NOT compatible with life and had
> > anencephaly.  this time I
> > had been experiencing some pain in my uterus, and it
> > turned out the
> > back of my baby's incomplete skull was "cutting"
> > into my uterus.  I
> > underwent an emergency termination (next Day), with
> > a few stitches in
> > uterus lining Doctor said my uetris will be ok.
> > well girls where do
> > I go from here?  I went to 3 specialists they all
> > told me that they
> > were both "fluke" occurances, chromosomes testing on
> > both fetuses
> > were surprisingly normal, even though the babys
> > weren't normal.  not
> > genetic defects.  I don't have anything like this
> > inmy family ,
> > except for 1 cousin with autism.  and neither does
> > my husband.  I am
> > now 32 and he is 37.  They say this doesn't happen
> > twice, but I've
> > been thru a "Nightmare", I got the courage to try
> > again , since the
> > doc said I am still very young, I have been trying
> > to get preggy
> > since last sept.  I was on a higher dosage of folic
> > acid my 2nd
> > pregnancy by the way and took this folic acid for a
> > whole year before
> > even getting pregnant the 2nd time.  I just had a
> > "dye" test HSG
> > where they xray your uterus, 10days ago to see what
> > the delay is in
> > getting pregnant (last times got pregnant within 2
> > months). and the
> > tubes are fine but they found excessive scar tissue
> > due to the 2
> > second trimster terminations.  I also have a
> > fibroid, which the
> > doctor is not going to bother with now.  and a "nip
> > here and tuck
> > there" (hysteroscopy) and doc says I should be as
> > good as new.  I
> > went to several specialists on my own, and my doctor
> > sent me to a few
> > as well.  all opinions are the same:  I am normal,
> > chromos are
> > normal, these are "flukes" and at worse case senario
> > I have only a
> > 25% chance of this happening again.  I keep having
> > the same nightmare
> > over and over again about the ultra sound being bad
> > again.  I wake up
> > scared.  by morning things don't seem too bad, I
> > feel I can try
> > again.  what happened to me doesn't mean this will
> > happen to you, my
> > own doctor has been good, and "on top" of things,
> > she is shocked
> > herself.  all factors indicate I should try again.
> > Just answer two
> > questions "why me"?  and "if anyone knows of this
> > happening 3 times"?
> > my email is  bizou4041@... would love to
> > chat with you gals,
> > I am new and yes "experienced" (dry humor)
> >
> > Jousephine
> >
> >
> >
>
>
>=====
>love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of
>one small child ,God knows how much we need them,and so He takes but few to
>make His land of Heaven more beautiful to view, so when a little child
>departs, we who are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS
>ARE HARD TO FIND!!!^*^sending angel kisses and hugs to all who have
>gone.^*^
>
>__________________________________________________
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>Yahoo! Tax Center - forms, calculators, tips, more
>http://taxes.yahoo.com/


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What exactly is so good about aborting your baby for any reasons
including those of defects?????
how can you say you are pro- life!!
pro life means HONORING any child 's right to life no matter the
circumstances, having a baby with anencephaly does not mean your
body,life is in jeopardy! You just need an excuse as to why you
aborted... yes aborted!!

I am currently carrying my daughter to term she has anencephaly and
I am completly upset you think "you won".
Tracey




--- In anencephaly@yahoogroups.com, "aleah_5442 <aleah_5442@y...>"
<aleah_5442@y...> wrote:
> Hi
> I have been a member of this group for almost sixth months now.
> Last July I found out that my baby had anencephaly.  As you all
know
> most doctors recomend terminating the pregnancy.  I honor
everyones
> decision on this matter and woll not condem anyone for anything
they
> choose to do.  But after careful consideration my husband and I
> decided it would be in everyones best iterest if we terminated the
> pregnancy.  This would be a lot harder than we thought however.
My
> husband is in the navy and we use the medical insurance provided
by
> the government called Tri-care and they specificaly do not cover
> abortions (gosh I hate that word) even if the child has
> anencephaly.  After much termoil and going all the up the chain of
> command via our insurance we got an offer form the Northwest
womens
> law center-they offered to take our case pro bono.  We won.  But
> that was just the beggining the declaration was only for me.  So
> ever since they won on my behalf in august they have been fighting
> to get the law declared unconstitional-and that would benefit
> everyone.  Since the case involved the military it was the united
> states government that my lawyers were going up against.  Well I
> just got the word tonight and they won-the law is declared
> unconstitional.  So women like me won't have to fight to make a
> personal decsion.  This dose not mean that I am pro choice.  I am
> pro life.  But I also realized that carring the baby inside me
could
> cause great risk to me and my body and she would never live.  I
> would die for my baby if I could of but the situation was totaly
> hopelss.  -aleah

What exactly is so good about aborting your baby for any reasons
including those of defects?????
how can you say you are pro- life!!
pro life means HONORING any child 's right to life no matter the
circumstances, having a baby with anencephaly does not mean your
body,life is in jeopardy! You just need an excuse as to why you
aborted... yes aborted!!

I am currently carrying my daughter to term she has anencephaly and
I am completly upset you think "you won".
Tracey




--- In anencephaly@yahoogroups.com, "aleah_5442 <aleah_5442@y...>"
<aleah_5442@y...> wrote:
> Hi
> I have been a member of this group for almost sixth months now.
> Last July I found out that my baby had anencephaly.  As you all
know
> most doctors recomend terminating the pregnancy.  I honor
everyones
> decision on this matter and woll not condem anyone for anything
they
> choose to do.  But after careful consideration my husband and I
> decided it would be in everyones best iterest if we terminated the
> pregnancy.  This would be a lot harder than we thought however.
My
> husband is in the navy and we use the medical insurance provided
by
> the government called Tri-care and they specificaly do not cover
> abortions (gosh I hate that word) even if the child has
> anencephaly.  After much termoil and going all the up the chain of
> command via our insurance we got an offer form the Northwest
womens
> law center-they offered to take our case pro bono.  We won.  But
> that was just the beggining the declaration was only for me.  So
> ever since they won on my behalf in august they have been fighting
> to get the law declared unconstitional-and that would benefit
> everyone.  Since the case involved the military it was the united
> states government that my lawyers were going up against.  Well I
> just got the word tonight and they won-the law is declared
> unconstitional.  So women like me won't have to fight to make a
> personal decsion.  This dose not mean that I am pro choice.  I am
> pro life.  But I also realized that carring the baby inside me
could
> cause great risk to me and my body and she would never live.  I
> would die for my baby if I could of but the situation was totaly
> hopelss.  -aleah

iam so glad you feel the same as i do,you can visit my
sometribute at www.geocities.com/iris_suzette/ i was
able to carry my angel til 36 weeks then i had to have
ac-section for fear of loosing my life .please visit
my web site,i think you will find it very pro-life
--- sloan19742003 <sloan1974@...> wrote:
> What exactly is so good about aborting your baby for
> any reasons
> including those of defects?????
> how can you say you are pro- life!!
> pro life means HONORING any child 's right to life
> no matter the
> circumstances, having a baby with anencephaly does
> not mean your
> body,life is in jeopardy! You just need an excuse as
> to why you
> aborted... yes aborted!!
>
> I am currently carrying my daughter to term she has
> anencephaly and
> I am completly upset you think "you won".
> Tracey
>
>
>
>
> --- In anencephaly@yahoogroups.com, "aleah_5442
> <aleah_5442@y...>"
> <aleah_5442@y...> wrote:
> > Hi
> > I have been a member of this group for almost
> sixth months now.
> > Last July I found out that my baby had
> anencephaly.  As you all
> know
> > most doctors recomend terminating the pregnancy.
> I honor
> everyones
> > decision on this matter and woll not condem anyone
> for anything
> they
> > choose to do.  But after careful consideration my
> husband and I
> > decided it would be in everyones best iterest if
> we terminated the
> > pregnancy.  This would be a lot harder than we
> thought however.
> My
> > husband is in the navy and we use the medical
> insurance provided
> by
> > the government called Tri-care and they
> specificaly do not cover
> > abortions (gosh I hate that word) even if the
> child has
> > anencephaly.  After much termoil and going all the
> up the chain of
> > command via our insurance we got an offer form the
> Northwest
> womens
> > law center-they offered to take our case pro bono.
>  We won.  But
> > that was just the beggining the declaration was
> only for me.  So
> > ever since they won on my behalf in august they
> have been fighting
> > to get the law declared unconstitional-and that
> would benefit
> > everyone.  Since the case involved the military it
> was the united
> > states government that my lawyers were going up
> against.  Well I
> > just got the word tonight and they won-the law is
> declared
> > unconstitional.  So women like me won't have to
> fight to make a
> > personal decsion.  This dose not mean that I am
> pro choice.  I am
> > pro life.  But I also realized that carring the
> baby inside me
> could
> > cause great risk to me and my body and she would
> never live.  I
> > would die for my baby if I could of but the
> situation was totaly
> > hopelss.  -aleah
>
>
>


=====
love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of one
small child ,God knows how much we need them,and so He takes but few to make His
land of Heaven more beautiful to view, so when a little child departs, we who
are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS ARE HARD TO
FIND!!!^*^sending angel kisses and hugs to all who have gone.^*^

__________________________________________________
Do you Yahoo!?
Yahoo! Tax Center - forms, calculators, tips, more
http://taxes.yahoo.com/

he reason tri-care does not cover terminating
anencephaly babies,is because it is not gaureentee
they wiill be born dead.50% are born alive andlive for
a few hours if not days.even though my son was still
born i cherish ever movement he made while he was
alive.i cannot see aborting your baby and not seeing
him or her to say good bye.how could someone be so
cruel?
--- sloan19742003 <sloan1974@...> wrote:
> What exactly is so good about aborting your baby for
> any reasons
> including those of defects?????
> how can you say you are pro- life!!
> pro life means HONORING any child 's right to life
> no matter the
> circumstances, having a baby with anencephaly does
> not mean your
> body,life is in jeopardy! You just need an excuse as
> to why you
> aborted... yes aborted!!
>
> I am currently carrying my daughter to term she has
> anencephaly and
> I am completly upset you think "you won".
> Tracey
>
>
>
>
> --- In anencephaly@yahoogroups.com, "aleah_5442
> <aleah_5442@y...>"
> <aleah_5442@y...> wrote:
> > Hi
> > I have been a member of this group for almost
> sixth months now.
> > Last July I found out that my baby had
> anencephaly.  As you all
> know
> > most doctors recomend terminating the pregnancy.
> I honor
> everyones
> > decision on this matter and woll not condem anyone
> for anything
> they
> > choose to do.  But after careful consideration my
> husband and I
> > decided it would be in everyones best iterest if
> we terminated the
> > pregnancy.  This would be a lot harder than we
> thought however.
> My
> > husband is in the navy and we use the medical
> insurance provided
> by
> > the government called Tri-care and they
> specificaly do not cover
> > abortions (gosh I hate that word) even if the
> child has
> > anencephaly.  After much termoil and going all the
> up the chain of
> > command via our insurance we got an offer form the
> Northwest
> womens
> > law center-they offered to take our case pro bono.
>  We won.  But
> > that was just the beggining the declaration was
> only for me.  So
> > ever since they won on my behalf in august they
> have been fighting
> > to get the law declared unconstitional-and that
> would benefit
> > everyone.  Since the case involved the military it
> was the united
> > states government that my lawyers were going up
> against.  Well I
> > just got the word tonight and they won-the law is
> declared
> > unconstitional.  So women like me won't have to
> fight to make a
> > personal decsion.  This dose not mean that I am
> pro choice.  I am
> > pro life.  But I also realized that carring the
> baby inside me
> could
> > cause great risk to me and my body and she would
> never live.  I
> > would die for my baby if I could of but the
> situation was totaly
> > hopelss.  -aleah
>
>
>


=====
love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of one
small child ,God knows how much we need them,and so He takes but few to make His
land of Heaven more beautiful to view, so when a little child departs, we who
are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS ARE HARD TO
FIND!!!^*^sending angel kisses and hugs to all who have gone.^*^

__________________________________________________
Do you Yahoo!?
Yahoo! Tax Center - forms, calculators, tips, more
http://taxes.yahoo.com/

yes i have 5 living children and one in heaven.you can
visit his tribute by going to
www.geocitie.com/iris_suzette/ if you do not mind i
would like to give your email to a friend   of mind
who both her daughter died from anencephaly.yes my
angel in heaven had anencephaly also spina bifida.i
wish you the best of lucky with surgery and getting a
healthy pregnancy.
--- Jousephine El-Halabi <bizou4041@...>
wrote:
> Hi thanx for your email, I  am going infor a
> hysteroscopy not a hysterectomy
> which is just removing the scar tissue, not taking
> out my uterus, this is
> supposed to enable a smoother lining in order for
> the egg to implant to I
> can get pregnant.  the way it is now the scar tissue
> has made my lining
> bumpy and these are not ideal conditions for egg
> implantation.  You have
> heard of this ahppening twice?  wow! but not 3
> times.  well hopefully the
> 3rd's the charm for me.  Doctor hasn't said to
> "throw in the towel" yet.
> haven't quite considered adoption yet.  I know it's
> an option.  they said
> they are gonna do a level 2 ultrasound onmy next
> time like at 9-10 weeks,a
> nd that they are going to keep a closer eye on me.
> also  doc says if/when i
> get pregnant to  'take it easy" this time cause i am
> probably at a higher
> risk for a miscarriage cause of the terms.  I do not
> regret terminating my
> pregnancies, I am not pro-choice , just particularly
> the 2nd pregnancy I
> would have "bled" to death and risked my own life if
> I carried to full term.
> It would pained me more to  have witnessed both my
> babies die after birth,
> am not strong enough. I  dislike the word
> "abortion".  I do get upset when I
> hear people "aborting" perfectly healthy babies, and
> when I hear of those
> abusing or neglecting or killing their own babies.
> It's sad.  Having a baby
> is a "gift"  a "gift I took for granted.  did you
> also have a pregnancy
> diagnosed with a neural tube defect?  Do you have
> children? my heart goes
> out to all women who've experienced a similar fate.
>  Thanx for your support
> I'll keep you up to date.  pray for me.
>
>
>
>
>
>
> >From: iris shearer <iris_suzette@...>
> >Reply-To: anencephaly@yahoogroups.com
> >To: anencephaly@yahoogroups.com
> >Subject: Re: [anencephaly] 2 neural tube defects
> >Date: Tue, 4 Mar 2003 17:03:27 -0800 (PST)
> >
> >yes i have heard of it happening twice but not
> three
> >time.just trust in God and he will give you the
> >strength.at 10 weeks request a level II ultrasound
> to
> >see if anything shows up.they say the earliest
> >detection has been at 10 weeks.i am sorry you are
> >having such a horrible time.i am alittle confused
> are
> >you going to have to get a hystorictomy(sp)or are
> you
> >going to be able to try again to have a baby
> >first?also i know it is not the same but there is
> >alway adoption.also if you go threw the treatments
> of
> >fertility you will be closer monitored and possibly
> >find out sooner.i hope you the best and you are in
> my
> >prayers,take care sweetie sending sweet angel
> kisses
> >^*^
> >--- "jousephinee <bizou4041@...>"
> ><bizou4041@...> wrote:
> > > I've been thru a terrible ordeal.  Newly
> married, I
> > > was pregnant with
> > > my 1st baby  early June of 1999, found out when
> I
> > > was 5 1/2 months my
> > > baby boy has servere Spinabifida.  I didn't
> start
> > > folic acid till I
> > > was pregnant, didn't know you have to start
> before.
> > > Baby had "water
> > > on the brain" along with many many other
> problems.
> > > Doctor insisted I
> > > have a termination.  I had to wait another month
> for
> > > a specialist,
> > > who was on vacation, to come back to prefrom the
> > > termination cause I
> > > was too far along.  so I underwent a horrific
> > > termination at 6 1/2
> > > months.  then after motnhs of reassurance by my
> > > doctor this is a
> > > fluke and won't happen again.  I got pregnant in
> > > April of 2001, was
> > > always sick as well, finally went to crucial
> > > ultrasound in Aug I was
> > > little over 4 months,  I was in complete shock
> when
> > > the technician
> > > left the ultrasound room and the next thing I
> know
> > > my Doctor, who was
> > > secretly called on another phone, came running
> into
> > > tell me this baby
> > > (boy) was NOT compatible with life and had
> > > anencephaly.  this time I
> > > had been experiencing some pain in my uterus,
> and it
> > > turned out the
> > > back of my baby's incomplete skull was "cutting"
> > > into my uterus.  I
> > > underwent an emergency termination (next Day),
> with
> > > a few stitches in
> > > uterus lining Doctor said my uetris will be ok.
> > > well girls where do
> > > I go from here?  I went to 3 specialists they
> all
> > > told me that they
> > > were both "fluke" occurances, chromosomes
> testing on
> > > both fetuses
> > > were surprisingly normal, even though the babys
> > > weren't normal.  not
> > > genetic defects.  I don't have anything like
> this
> > > inmy family ,
> > > except for 1 cousin with autism.  and neither
> does
> > > my husband.  I am
> > > now 32 and he is 37.  They say this doesn't
> happen
> > > twice, but I've
> > > been thru a "Nightmare", I got the courage to
> try
> > > again , since the
> > > doc said I am still very young, I have been
> trying
> > > to get preggy
> > > since last sept.  I was on a higher dosage of
> folic
> > > acid my 2nd
> > > pregnancy by the way and took this folic acid
> for a
> > > whole year before
> > > even getting pregnant the 2nd time.  I just had
> a
> > > "dye" test HSG
> > > where they xray your uterus, 10days ago to see
> what
> > > the delay is in
> > > getting pregnant (last times got pregnant within
> 2
> > > months). and the
> > > tubes are fine but they found excessive scar
> tissue
> > > due to the 2
> > > second trimster terminations.  I also have a
> > > fibroid, which the
> > > doctor is not going to bother with now.  and a
> "nip
> > > here and tuck
> > > there" (hysteroscopy) and doc says I should be
> as
> > > good as new.  I
> > > went to several specialists on my own, and my
> doctor
> > > sent me to a few
> > > as well.  all opinions are the same:  I am
> normal,
> > > chromos are
> > > normal, these are "flukes" and at worse case
> senario
> > > I have only a
> > > 25% chance of this happening again.  I keep
> having
> > > the same nightmare
> > > over and over again about the ultra sound being
> bad
> > > again.  I wake up
> > > scared.  by morning things don't seem too bad, I
> > > feel I can try
> > > again.  what happened to me doesn't mean this
> will
> > > happen to you, my
> > > own doctor has been good, and "on top" of
> things,
> > > she is shocked
> > > herself.  all factors indicate I should try
> again.
>
=== message truncated ===


=====
love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of one
small child ,God knows how much we need them,and so He takes but few to make His
land of Heaven more beautiful to view, so when a little child departs, we who
are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS ARE HARD TO
FIND!!!^*^sending angel kisses and hugs to all who have gone.^*^

__________________________________________________
Do you Yahoo!?
Yahoo! Tax Center - forms, calculators, tips, more
http://taxes.yahoo.com/

i did not do this,i would NEVER ABORT M<Y CHILD,this
was another woman not me.make noooo mistake i do not
agree with abortion.

--- Marie Blair <iamapeach@...> wrote:
> Iris,
>
> I was glad to get a response from you and would be
> glad to hear from anyone else.  As you know, it
> helps tremendously to have all the support you can
> get.  Especially when it is from someone whom knows
> exactly what you are going through.  I am so glad to
> know that you have won your case.  I am sure it is
> things like that that your child would appreciate as
> well as me and other parents that have to go through
> this.  I had another ultrasound done today because I
> was praying for a miracle and also I wanted to get
> copies of the ultrasound pictures of my little girl.
>  One thing about your email, however- I am not the
> spouse of a military person.  However, I understand
> the fight for your rights that you went through.  I
> have military persons in my family.  Please feel
> free to email me and anyone else is welcome to as
> well.  Thank you so much for your support.  I will
> be inducing my labor within the next couple of
> weeks.  I am taking things better than I thought I
> might up to this point.  However the hardest part is
> still yet to come.  I will be giving birth to my
> little girl and burring her soon after. I am sure
> that is when it will really hit me.  I hope to keep
> in touch with you.
>
> Marie Blair
>   ----- Original Message -----
>   From: iris shearer
>   To: anencephaly@yahoogroups.com
>   Sent: Tuesday, March 04, 2003 8:16 PM
>   Subject: Re: [anencephaly] Good news for women in
> the NORTHWEST-re anenecephaly
>
>
>   i am also a military wife,my husband is a marine
>   stationed at camp lejuene.there are was tri-care
> would
>   have let you terminate.but it would have been a
> long
>   process and you proberly would have had your angel
> by
>   then.i had my angel still born at 36 weeks on
>   jan28,2003.i have gotten the naval hospital here
> along
>   with the march of dimes  to get a folicacid
> aweness
>   campaign started.they named it project Gabriel
> ,after
>   our wonderful angel.i would not have changed the
>   desicion we make to keep our baby for the world.i
> do
>   have 5 healthy children.i did here about you when
> i
>   first got my diagnoses though.i have a question
> ,the
>   local paper is doing a story to bring the
> folicacid
>   awreness out to more people plus to get everyone
> to
>   know more about anencephaly.would you mind if i
> sent
>   your email to  her.or could i give you her email
> and
>   have you email her your story.i carried to term
> but i
>   amsure she would like to know your story as
> well.plus
>   you are a military spiuse and so i am living in a
>   large military area.please let me know . my
> personal
>   email is bradandsuzetterichart@...
>   --- "aleah_5442 <aleah_5442@...>"
>   <aleah_5442@...> wrote:
>   > Hi
>   > I have been a member of this group for almost
> sixth
>   > months now.
>   > Last July I found out that my baby had
> anencephaly.
>   > As you all know
>   > most doctors recomend terminating the pregnancy.
>  I
>   > honor everyones
>   > decision on this matter and woll not condem
> anyone
>   > for anything they
>   > choose to do.  But after careful consideration
> my
>   > husband and I
>   > decided it would be in everyones best iterest if
> we
>   > terminated the
>   > pregnancy.  This would be a lot harder than we
>   > thought however.  My
>   > husband is in the navy and we use the medical
>   > insurance provided by
>   > the government called Tri-care and they
> specificaly
>   > do not cover
>   > abortions (gosh I hate that word) even if the
> child
>   > has
>   > anencephaly.  After much termoil and going all
> the
>   > up the chain of
>   > command via our insurance we got an offer form
> the
>   > Northwest womens
>   > law center-they offered to take our case pro
> bono.
>   > We won.  But
>   > that was just the beggining the declaration was
> only
>   > for me.  So
>   > ever since they won on my behalf in august they
> have
>   > been fighting
>   > to get the law declared unconstitional-and that
>   > would benefit
>   > everyone.  Since the case involved the military
> it
>   > was the united
>   > states government that my lawyers were going up
>   > against.  Well I
>   > just got the word tonight and they won-the law
> is
>   > declared
>   > unconstitional.  So women like me won't have to
>   > fight to make a
>   > personal decsion.  This dose not mean that I am
> pro
>   > choice.  I am
>   > pro life.  But I also realized that carring the
> baby
>   > inside me could
>   > cause great risk to me and my body and she would
>   > never live.  I
>   > would die for my baby if I could of but the
>   > situation was totaly
>   > hopelss.  -aleah
>   >
>   >
>   >
>
>
>   =====
>   love,Suzette mom to ^0^Gabriel ~~~~No heartache
> compares with the death of one small child ,God
> knows how much we need them,and so He takes but few
> to make His land of Heaven more beautiful to view,
> so when a little child departs, we who are left
> behind Must realize GOD LOVES CHILDREN, ^0^ANGELS
> ARE HARD TO FIND!!!^*^sending angel kisses and hugs
> to all who have gone.^*^
>
>   __________________________________________________
>   Do you Yahoo!?
>   Yahoo! Tax Center - forms, calculators, tips, more
>   http://taxes.yahoo.com/
>
>         Yahoo! Groups Sponsor
>               ADVERTISEMENT
>
>
>
>
>   Your use of Yahoo! Groups is subject to the Yahoo!
> Terms of Service.
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>


=====
love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of one
small child ,God knows how much we need them,and so He takes but few to make His
land of Heaven more beautiful to view, so when a little child departs, we who
are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS ARE HARD TO
FIND!!!^*^sending angel kisses and hugs to all who have gone.^*^

__________________________________________________
Do you Yahoo!?
Yahoo! Tax Center - forms, calculators, tips, more
http://taxes.yahoo.com/

Thanx for getting back to me.  I am very sorry to hear that one of your
children was lost to anencephaly and spina bifida.  Yes, it is ok to give my
email address (bizou4041@...) to your friend who lost both her
daughters to anencephaly.  My heart goes out to her.  Does she now have
other children? (did she go on to give birth to healthy children?)
I am so glad that there is a board like this out there for us.  I must admit
that I haven't been comfortable discussing this with those whos education
level just can't  "grasp" the concept of the defect and those who've never
had issues with their pregnancies.  All we hear from many who've lost babies
to defects, are discreet explanations of "miscarriages".  We shouldn't have
to be silent, just because our society has placed a "stigma" on these issues
.  It is a large weight to for us to carry.  The first time (pregnancy) I
was extremely quiet about the whole thing, and insisted only my immediate
family know due to the "shock" of it all.  The second time (pregnancy), I
was so "outraged"  I no longer cared who knew.  I am glad there is this
board with people who actually understand and know what I've been thru.


truly,

Jousephine



>From: iris shearer <iris_suzette@...>
>Reply-To: anencephaly@yahoogroups.com
>To: anencephaly@yahoogroups.com
>Subject: Re: [anencephaly] 2 neural tube defects
>Date: Mon, 10 Mar 2003 07:10:28 -0800 (PST)
>
>yes i have 5 living children and one in heaven.you can
>visit his tribute by going to
>www.geocitie.com/iris_suzette/ if you do not mind i
>would like to give your email to a friend   of mind
>who both her daughter died from anencephaly.yes my
>angel in heaven had anencephaly also spina bifida.i
>wish you the best of lucky with surgery and getting a
>healthy pregnancy.
>--- Jousephine El-Halabi <bizou4041@...>
>wrote:
> > Hi thanx for your email, I  am going infor a
> > hysteroscopy not a hysterectomy
> > which is just removing the scar tissue, not taking
> > out my uterus, this is
> > supposed to enable a smoother lining in order for
> > the egg to implant to I
> > can get pregnant.  the way it is now the scar tissue
> > has made my lining
> > bumpy and these are not ideal conditions for egg
> > implantation.  You have
> > heard of this ahppening twice?  wow! but not 3
> > times.  well hopefully the
> > 3rd's the charm for me.  Doctor hasn't said to
> > "throw in the towel" yet.
> > haven't quite considered adoption yet.  I know it's
> > an option.  they said
> > they are gonna do a level 2 ultrasound onmy next
> > time like at 9-10 weeks,a
> > nd that they are going to keep a closer eye on me.
> > also  doc says if/when i
> > get pregnant to  'take it easy" this time cause i am
> > probably at a higher
> > risk for a miscarriage cause of the terms.  I do not
> > regret terminating my
> > pregnancies, I am not pro-choice , just particularly
> > the 2nd pregnancy I
> > would have "bled" to death and risked my own life if
> > I carried to full term.
> > It would pained me more to  have witnessed both my
> > babies die after birth,
> > am not strong enough. I  dislike the word
> > "abortion".  I do get upset when I
> > hear people "aborting" perfectly healthy babies, and
> > when I hear of those
> > abusing or neglecting or killing their own babies.
> > It's sad.  Having a baby
> > is a "gift"  a "gift I took for granted.  did you
> > also have a pregnancy
> > diagnosed with a neural tube defect?  Do you have
> > children? my heart goes
> > out to all women who've experienced a similar fate.
> >  Thanx for your support
> > I'll keep you up to date.  pray for me.
> >
> >
> >
> >
> >
> >
> > >From: iris shearer <iris_suzette@...>
> > >Reply-To: anencephaly@yahoogroups.com
> > >To: anencephaly@yahoogroups.com
> > >Subject: Re: [anencephaly] 2 neural tube defects
> > >Date: Tue, 4 Mar 2003 17:03:27 -0800 (PST)
> > >
> > >yes i have heard of it happening twice but not
> > three
> > >time.just trust in God and he will give you the
> > >strength.at 10 weeks request a level II ultrasound
> > to
> > >see if anything shows up.they say the earliest
> > >detection has been at 10 weeks.i am sorry you are
> > >having such a horrible time.i am alittle confused
> > are
> > >you going to have to get a hystorictomy(sp)or are
> > you
> > >going to be able to try again to have a baby
> > >first?also i know it is not the same but there is
> > >alway adoption.also if you go threw the treatments
> > of
> > >fertility you will be closer monitored and possibly
> > >find out sooner.i hope you the best and you are in
> > my
> > >prayers,take care sweetie sending sweet angel
> > kisses
> > >^*^
> > >--- "jousephinee <bizou4041@...>"
> > ><bizou4041@...> wrote:
> > > > I've been thru a terrible ordeal.  Newly
> > married, I
> > > > was pregnant with
> > > > my 1st baby  early June of 1999, found out when
> > I
> > > > was 5 1/2 months my
> > > > baby boy has servere Spinabifida.  I didn't
> > start
> > > > folic acid till I
> > > > was pregnant, didn't know you have to start
> > before.
> > > > Baby had "water
> > > > on the brain" along with many many other
> > problems.
> > > > Doctor insisted I
> > > > have a termination.  I had to wait another month
> > for
> > > > a specialist,
> > > > who was on vacation, to come back to prefrom the
> > > > termination cause I
> > > > was too far along.  so I underwent a horrific
> > > > termination at 6 1/2
> > > > months.  then after motnhs of reassurance by my
> > > > doctor this is a
> > > > fluke and won't happen again.  I got pregnant in
> > > > April of 2001, was
> > > > always sick as well, finally went to crucial
> > > > ultrasound in Aug I was
> > > > little over 4 months,  I was in complete shock
> > when
> > > > the technician
> > > > left the ultrasound room and the next thing I
> > know
> > > > my Doctor, who was
> > > > secretly called on another phone, came running
> > into
> > > > tell me this baby
> > > > (boy) was NOT compatible with life and had
> > > > anencephaly.  this time I
> > > > had been experiencing some pain in my uterus,
> > and it
> > > > turned out the
> > > > back of my baby's incomplete skull was "cutting"
> > > > into my uterus.  I
> > > > underwent an emergency termination (next Day),
> > with
> > > > a few stitches in
> > > > uterus lining Doctor said my uetris will be ok.
> > > > well girls where do
> > > > I go from here?  I went to 3 specialists they
> > all
> > > > told me that they
> > > > were both "fluke" occurances, chromosomes
> > testing on
> > > > both fetuses
> > > > were surprisingly normal, even though the babys
> > > > weren't normal.  not
> > > > genetic defects.  I don't have anything like
> > this
> > > > inmy family ,
> > > > except for 1 cousin with autism.  and neither
> > does
> > > > my husband.  I am
> > > > now 32 and he is 37.  They say this doesn't
> > happen
> > > > twice, but I've
> > > > been thru a "Nightmare", I got the courage to
> > try
> > > > again , since the
> > > > doc said I am still very young, I have been
> > trying
> > > > to get preggy
> > > > since last sept.  I was on a higher dosage of
> > folic
> > > > acid my 2nd
> > > > pregnancy by the way and took this folic acid
> > for a
> > > > whole year before
> > > > even getting pregnant the 2nd time.  I just had
> > a
> > > > "dye" test HSG
> > > > where they xray your uterus, 10days ago to see
> > what
> > > > the delay is in
> > > > getting pregnant (last times got pregnant within
> > 2
> > > > months). and the
> > > > tubes are fine but they found excessive scar
> > tissue
> > > > due to the 2
> > > > second trimster terminations.  I also have a
> > > > fibroid, which the
> > > > doctor is not going to bother with now.  and a
> > "nip
> > > > here and tuck
> > > > there" (hysteroscopy) and doc says I should be
> > as
> > > > good as new.  I
> > > > went to several specialists on my own, and my
> > doctor
> > > > sent me to a few
> > > > as well.  all opinions are the same:  I am
> > normal,
> > > > chromos are
> > > > normal, these are "flukes" and at worse case
> > senario
> > > > I have only a
> > > > 25% chance of this happening again.  I keep
> > having
> > > > the same nightmare
> > > > over and over again about the ultra sound being
> > bad
> > > > again.  I wake up
> > > > scared.  by morning things don't seem too bad, I
> > > > feel I can try
> > > > again.  what happened to me doesn't mean this
> > will
> > > > happen to you, my
> > > > own doctor has been good, and "on top" of
> > things,
> > > > she is shocked
> > > > herself.  all factors indicate I should try
> > again.
> >
>=== message truncated ===
>
>
>=====
>love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of
>one small child ,God knows how much we need them,and so He takes but few to
>make His land of Heaven more beautiful to view, so when a little child
>departs, we who are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS
>ARE HARD TO FIND!!!^*^sending angel kisses and hugs to all who have
>gone.^*^
>
>__________________________________________________
>Do you Yahoo!?
>Yahoo! Tax Center - forms, calculators, tips, more
>http://taxes.yahoo.

_________________________________________________________________
Tired of spam? Get advanced junk mail protection with MSN 8.
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----- Original Message -----

From: iris shearer

To: anencephaly@yahoogroups.com

Sent: Monday, March 10, 2003 10:13 AM

Subject: Re: [anencephaly] Good news for women in the NORTHWEST-re anenecephaly

i did not do this,i would NEVER ABORT M<Y CHILD,this
was another woman not me.make noooo mistake i do not
agree with abortion.

--- Marie Blair <iamapeach@...> wrote:
> Iris,
>
> I was glad to get a response from you and would be
> glad to hear from anyone else.  As you know, it
> helps tremendously to have all the support you can
> get.  Especially when it is from someone whom knows
> exactly what you are going through.  I am so glad to
> know that you have won your case.  I am sure it is
> things like that that your child would appreciate as
> well as me and other parents that have to go through
> this.  I had another ultrasound done today because I
> was praying for a miracle and also I wanted to get
> copies of the ultrasound pictures of my little girl.
>  One thing about your email, however- I am not the
> spouse of a military person.  However, I understand
> the fight for your rights that you went through.  I
> have military persons in my family.  Please feel
> free to email me and anyone else is welcome to as
> well.  Thank you so much for your support.  I will
> be inducing my labor within the next couple of
> weeks.  I am taking things better than I thought I
> might up to this point.  However the hardest part is
> still yet to come.  I will be giving birth to my
> little girl and burring her soon after. I am sure
> that is when it will really hit me.  I hope to keep
> in touch with you.
>
> Marie Blair
>   ----- Original Message -----
>   From: iris shearer
>   To: anencephaly@yahoogroups.com
>   Sent: Tuesday, March 04, 2003 8:16 PM
>   Subject: Re: [anencephaly] Good news for women in
> the NORTHWEST-re anenecephaly
>
>
>   i am also a military wife,my husband is a marine
>   stationed at camp lejuene.there are was tri-care
> would
>   have let you terminate.but it would have been a
> long
>   process and you proberly would have had your angel
> by
>   then.i had my angel still born at 36 weeks on
>   jan28,2003.i have gotten the naval hospital here
> along
>   with the march of dimes  to get a folicacid
> aweness
>   campaign started.they named it project Gabriel
> ,after
>   our wonderful angel.i would not have changed the
>   desicion we make to keep our baby for the world.i
> do
>   have 5 healthy children.i did here about you when
> i
>   first got my diagnoses though.i have a question
> ,the
>   local paper is doing a story to bring the
> folicacid
>   awreness out to more people plus to get everyone
> to
>   know more about anencephaly.would you mind if i
> sent
>   your email to  her.or could i give you her email
> and
>   have you email her your story.i carried to term
> but i
>   amsure she would like to know your story as
> well.plus
>   you are a military spiuse and so i am living in a
>   large military area.please let me know . my
> personal
>   email is bradandsuzetterichart@...
>   --- "aleah_5442 <aleah_5442@...>"
>   <aleah_5442@...> wrote:
>   > Hi
>   > I have been a member of this group for almost
> sixth
>   > months now. 
>   > Last July I found out that my baby had
> anencephaly.
>   > As you all know
>   > most doctors recomend terminating the pregnancy.
>  I
>   > honor everyones
>   > decision on this matter and woll not condem
> anyone
>   > for anything they
>   > choose to do.  But after careful consideration
> my
>   > husband and I
>   > decided it would be in everyones best iterest if
> we
>   > terminated the
>   > pregnancy.  This would be a lot harder than we
>   > thought however.  My
>   > husband is in the navy and we use the medical
>   > insurance provided by
>   > the government called Tri-care and they
> specificaly
>   > do not cover
>   > abortions (gosh I hate that word) even if the
> child
>   > has
>   > anencephaly.  After much termoil and going all
> the
>   > up the chain of
>   > command via our insurance we got an offer form
> the
>   > Northwest womens
>   > law center-they offered to take our case pro
> bono.
>   > We won.  But
>   > that was just the beggining the declaration was
> only
>   > for me.  So
>   > ever since they won on my behalf in august they
> have
>   > been fighting
>   > to get the law declared unconstitional-and that
>   > would benefit
>   > everyone.  Since the case involved the military
> it
>   > was the united
>   > states government that my lawyers were going up
>   > against.  Well I
>   > just got the word tonight and they won-the law
> is
>   > declared
>   > unconstitional.  So women like me won't have to
>   > fight to make a
>   > personal decsion.  This dose not mean that I am
> pro
>   > choice.  I am
>   > pro life.  But I also realized that carring the
> baby
>   > inside me could
>   > cause great risk to me and my body and she would
>   > never live.  I
>   > would die for my baby if I could of but the
>   > situation was totaly
>   > hopelss.  -aleah
>   >
>   >
>   >
>
>
>   =====
>   love,Suzette mom to ^0^Gabriel ~~~~No heartache
> compares with the death of one small child ,God
> knows how much we need them,and so He takes but few
> to make His land of Heaven more beautiful to view,
> so when a little child departs, we who are left
> behind Must realize GOD LOVES CHILDREN, ^0^ANGELS
> ARE HARD TO FIND!!!^*^sending angel kisses and hugs
> to all who have gone.^*^
>
>   __________________________________________________
>   Do you Yahoo!?
>   Yahoo! Tax Center - forms, calculators, tips, more
>   http://taxes.yahoo.com/
>
>         Yahoo! Groups Sponsor
>               ADVERTISEMENT
>             
>       
>       
>
>   Your use of Yahoo! Groups is subject to the Yahoo!
> Terms of Service.
>
>


=====
love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of one small child ,God knows how much we need them,and so He takes but few to make His land of Heaven more beautiful to view, so when a little child departs, we who are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS ARE HARD TO FIND!!!^*^sending angel kisses and hugs to all who have gone.^*^

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Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

first off i never said abortion i said early induction
.but if you fd o not carry to term or as far as you
body will allow(that means premature labor not
induction) then it is either a patial or full
abortion.which guess what the just pass a ban on
partial abortion.our support group is a support group
for mother whoo either regret aboting or carry as far
as their bodies allow or to term ,which is 37
weeks.why do you think your insurance is fighting
you.because their is achance your child will live for
a short time but when you induce early you are talking
more than likely stillborn,while when you carry to
term only a chance 50/50 of having a stillborn.i am
leaving this group because i cannot deal with people
that do not try to give there unborn child life or at
least a chance at it.you BABY has aheartbeat,he or she
is moving,he or she could donated tissues and give
hope  or life to someone in need.and yes anencephaly
babies can give tissues for donation.i hope you can
rest well with the desision you have made and that you
will be ok with it when you son asked what happen to
my little sibling,why did you not carry him all the
way.folic acid awareness is about preventing this
defect and others like it .i am walking on our walk
here even thought i just had a baby.but what ever
desisiov you make just make sure you can live you life
and be able to deal with what ever desision it is.i do
honestly wish you the best of luck.
--- Marie Blair <iamapeach@...> wrote:
> I just wanted to make it VERY clear that I am not
> having an abortion.  Why are people making it out to
> be that way.  I too do not agree with abortion.  I
> am having a tough enough time dealing with the
> diagnosis of my unborn child and fighting with my
> insurance company about inducing early.  I am not
> feeling very supported with this so-called support
> group.  Why is everyone making me out to be a
> murderer?  I am very hurt that you put this email
> out to EVERYONE in the group and called my decision
> an abortion!
>
> Marie
> iamapeach@...
>   ----- Original Message -----
>   From: iris shearer
>   To: anencephaly@yahoogroups.com
>   Sent: Monday, March 10, 2003 10:13 AM
>   Subject: Re: [anencephaly] Good news for women in
> the NORTHWEST-re anenecephaly
>
>
>   i did not do this,i would NEVER ABORT M<Y
> CHILD,this
>   was another woman not me.make noooo mistake i do
> not
>   agree with abortion.
>
>   --- Marie Blair <iamapeach@...> wrote:
>   > Iris,
>   >
>   > I was glad to get a response from you and would
> be
>   > glad to hear from anyone else.  As you know, it
>   > helps tremendously to have all the support you
> can
>   > get.  Especially when it is from someone whom
> knows
>   > exactly what you are going through.  I am so
> glad to
>   > know that you have won your case.  I am sure it
> is
>   > things like that that your child would
> appreciate as
>   > well as me and other parents that have to go
> through
>   > this.  I had another ultrasound done today
> because I
>   > was praying for a miracle and also I wanted to
> get
>   > copies of the ultrasound pictures of my little
> girl.
>   >  One thing about your email, however- I am not
> the
>   > spouse of a military person.  However, I
> understand
>   > the fight for your rights that you went through.
>  I
>   > have military persons in my family.  Please feel
>   > free to email me and anyone else is welcome to
> as
>   > well.  Thank you so much for your support.  I
> will
>   > be inducing my labor within the next couple of
>   > weeks.  I am taking things better than I thought
> I
>   > might up to this point.  However the hardest
> part is
>   > still yet to come.  I will be giving birth to my
>   > little girl and burring her soon after. I am
> sure
>   > that is when it will really hit me.  I hope to
> keep
>   > in touch with you.
>   >
>   > Marie Blair
>   >   ----- Original Message -----
>   >   From: iris shearer
>   >   To: anencephaly@yahoogroups.com
>   >   Sent: Tuesday, March 04, 2003 8:16 PM
>   >   Subject: Re: [anencephaly] Good news for women
> in
>   > the NORTHWEST-re anenecephaly
>   >
>   >
>   >   i am also a military wife,my husband is a
> marine
>   >   stationed at camp lejuene.there are was
> tri-care
>   > would
>   >   have let you terminate.but it would have been
> a
>   > long
>   >   process and you proberly would have had your
> angel
>   > by
>   >   then.i had my angel still born at 36 weeks on
>   >   jan28,2003.i have gotten the naval hospital
> here
>   > along
>   >   with the march of dimes  to get a folicacid
>   > aweness
>   >   campaign started.they named it project Gabriel
>   > ,after
>   >   our wonderful angel.i would not have changed
> the
>   >   desicion we make to keep our baby for the
> world.i
>   > do
>   >   have 5 healthy children.i did here about you
> when
>   > i
>   >   first got my diagnoses though.i have a
> question
>   > ,the
>   >   local paper is doing a story to bring the
>   > folicacid
>   >   awreness out to more people plus to get
> everyone
>   > to
>   >   know more about anencephaly.would you mind if
> i
>   > sent
>   >   your email to  her.or could i give you her
> email
>   > and
>   >   have you email her your story.i carried to
> term
>   > but i
>   >   amsure she would like to know your story as
>   > well.plus
>   >   you are a military spiuse and so i am living
> in a
>   >   large military area.please let me know . my
>   > personal
>   >   email is bradandsuzetterichart@...
>   >   --- "aleah_5442 <aleah_5442@...>"
>   >   <aleah_5442@...> wrote:
>   >   > Hi
>   >   > I have been a member of this group for
> almost
>   > sixth
>   >   > months now.
>   >   > Last July I found out that my baby had
>   > anencephaly.
>   >   > As you all know
>   >   > most doctors recomend terminating the
> pregnancy.
>   >  I
>   >   > honor everyones
>   >   > decision on this matter and woll not condem
>   > anyone
>   >   > for anything they
>   >   > choose to do.  But after careful
> consideration
>   > my
>   >   > husband and I
>   >   > decided it would be in everyones best
> iterest if
>   > we
>   >   > terminated the
>   >   > pregnancy.  This would be a lot harder than
> we
>   >   > thought however.  My
>   >   > husband is in the navy and we use the
> medical
>   >   > insurance provided by
>   >   > the government called Tri-care and they
>   > specificaly
>   >   > do not cover
>   >   > abortions (gosh I hate that word) even if
> the
>   > child
>   >   > has
>   >   > anencephaly.  After much termoil and going
> all
>   > the
>   >   > up the chain of
>   >   > command via our insurance we got an offer
> form
>   > the
>   >   > Northwest womens
>   >   > law center-they offered to take our case pro
>   > bono.
>   >   > We won.  But
>   >   > that was just the beggining the declaration
> was
>   > only
>   >   > for me.  So
>   >   > ever since they won on my behalf in august
> they
>   > have
>   >   > been fighting
>   >   > to get the law declared unconstitional-and
> that
>   >   > would benefit
>   >   > everyone.  Since the case involved the
> military
>   > it
>   >   > was the united
>   >   > states government that my lawyers were going
> up
>
=== message truncated ===


=====
love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of one
small child ,God knows how much we need them,and so He takes but few to make His
land of Heaven more beautiful to view, so when a little child departs, we who
are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS ARE HARD TO
FIND!!!^*^sending angel kisses and hugs to all who have gone.^*^

__________________________________________________
Do you Yahoo!?
Yahoo! Web Hosting - establish your business online
http://webhosting.yahoo.com

----- Original Message -----

From: iris shearer

To: anencephaly@yahoogroups.com

Sent: Friday, March 14, 2003 1:06 AM

Subject: Re: [anencephaly] Good news for women in the NORTHWEST-re anenecephaly

first off i never said abortion i said early induction
.but if you fd o not carry to term or as far as you
body will allow(that means premature labor not
induction) then it is either a patial or full
abortion.which guess what the just pass a ban on
partial abortion.our support group is a support group
for mother whoo either regret aboting or carry as far
as their bodies allow or to term ,which is 37
weeks.why do you think your insurance is fighting
you.because their is achance your child will live for
a short time but when you induce early you are talking
more than likely stillborn,while when you carry to
term only a chance 50/50 of having a stillborn.i am
leaving this group because i cannot deal with people
that do not try to give there unborn child life or at
least a chance at it.you BABY has aheartbeat,he or she
is moving,he or she could donated tissues and give
hope  or life to someone in need.and yes anencephaly
babies can give tissues for donation.i hope you can
rest well with the desision you have made and that you
will be ok with it when you son asked what happen to
my little sibling,why did you not carry him all the
way.folic acid awareness is about preventing this
defect and others like it .i am walking on our walk
here even thought i just had a baby.but what ever
desisiov you make just make sure you can live you life
and be able to deal with what ever desision it is.i do
honestly wish you the best of luck.
--- Marie Blair <iamapeach@...> wrote:
> I just wanted to make it VERY clear that I am not
> having an abortion.  Why are people making it out to
> be that way.  I too do not agree with abortion.  I
> am having a tough enough time dealing with the
> diagnosis of my unborn child and fighting with my
> insurance company about inducing early.  I am not
> feeling very supported with this so-called support
> group.  Why is everyone making me out to be a
> murderer?  I am very hurt that you put this email
> out to EVERYONE in the group and called my decision
> an abortion!
>
> Marie
> iamapeach@...
>   ----- Original Message -----
>   From: iris shearer
>   To: anencephaly@yahoogroups.com
>   Sent: Monday, March 10, 2003 10:13 AM
>   Subject: Re: [anencephaly] Good news for women in
> the NORTHWEST-re anenecephaly
>
>
>   i did not do this,i would NEVER ABORT M<Y
> CHILD,this
>   was another woman not me.make noooo mistake i do
> not
>   agree with abortion.
>
>   --- Marie Blair <iamapeach@...> wrote:
>   > Iris,
>   >
>   > I was glad to get a response from you and would
> be
>   > glad to hear from anyone else.  As you know, it
>   > helps tremendously to have all the support you
> can
>   > get.  Especially when it is from someone whom
> knows
>   > exactly what you are going through.  I am so
> glad to
>   > know that you have won your case.  I am sure it
> is
>   > things like that that your child would
> appreciate as
>   > well as me and other parents that have to go
> through
>   > this.  I had another ultrasound done today
> because I
>   > was praying for a miracle and also I wanted to
> get
>   > copies of the ultrasound pictures of my little
> girl.
>   >  One thing about your email, however- I am not
> the
>   > spouse of a military person.  However, I
> understand
>   > the fight for your rights that you went through.
>  I
>   > have military persons in my family.  Please feel
>   > free to email me and anyone else is welcome to
> as
>   > well.  Thank you so much for your support.  I
> will
>   > be inducing my labor within the next couple of
>   > weeks.  I am taking things better than I thought
> I
>   > might up to this point.  However the hardest
> part is
>   > still yet to come.  I will be giving birth to my
>   > little girl and burring her soon after. I am
> sure
>   > that is when it will really hit me.  I hope to
> keep
>   > in touch with you.
>   >
>   > Marie Blair
>   >   ----- Original Message -----
>   >   From: iris shearer
>   >   To: anencephaly@yahoogroups.com
>   >   Sent: Tuesday, March 04, 2003 8:16 PM
>   >   Subject: Re: [anencephaly] Good news for women
> in
>   > the NORTHWEST-re anenecephaly
>   >
>   >
>   >   i am also a military wife,my husband is a
> marine
>   >   stationed at camp lejuene.there are was
> tri-care
>   > would
>   >   have let you terminate.but it would have been
> a
>   > long
>   >   process and you proberly would have had your
> angel
>   > by
>   >   then.i had my angel still born at 36 weeks on
>   >   jan28,2003.i have gotten the naval hospital
> here
>   > along
>   >   with the march of dimes  to get a folicacid
>   > aweness
>   >   campaign started.they named it project Gabriel
>   > ,after
>   >   our wonderful angel.i would not have changed
> the
>   >   desicion we make to keep our baby for the
> world.i
>   > do
>   >   have 5 healthy children.i did here about you
> when
>   > i
>   >   first got my diagnoses though.i have a
> question
>   > ,the
>   >   local paper is doing a story to bring the
>   > folicacid
>   >   awreness out to more people plus to get
> everyone
>   > to
>   >   know more about anencephaly.would you mind if
> i
>   > sent
>   >   your email to  her.or could i give you her
> email
>   > and
>   >   have you email her your story.i carried to
> term
>   > but i
>   >   amsure she would like to know your story as
>   > well.plus
>   >   you are a military spiuse and so i am living
> in a
>   >   large military area.please let me know . my
>   > personal
>   >   email is bradandsuzetterichart@...
>   >   --- "aleah_5442 <aleah_5442@...>"
>   >   <aleah_5442@...> wrote:
>   >   > Hi
>   >   > I have been a member of this group for
> almost
>   > sixth
>   >   > months now. 
>   >   > Last July I found out that my baby had
>   > anencephaly.
>   >   > As you all know
>   >   > most doctors recomend terminating the
> pregnancy.
>   >  I
>   >   > honor everyones
>   >   > decision on this matter and woll not condem
>   > anyone
>   >   > for anything they
>   >   > choose to do.  But after careful
> consideration
>   > my
>   >   > husband and I
>   >   > decided it would be in everyones best
> iterest if
>   > we
>   >   > terminated the
>   >   > pregnancy.  This would be a lot harder than
> we
>   >   > thought however.  My
>   >   > husband is in the navy and we use the
> medical
>   >   > insurance provided by
>   >   > the government called Tri-care and they
>   > specificaly
>   >   > do not cover
>   >   > abortions (gosh I hate that word) even if
> the
>   > child
>   >   > has
>   >   > anencephaly.  After much termoil and going
> all
>   > the
>   >   > up the chain of
>   >   > command via our insurance we got an offer
> form
>   > the
>   >   > Northwest womens
>   >   > law center-they offered to take our case pro
>   > bono.
>   >   > We won.  But
>   >   > that was just the beggining the declaration
> was
>   > only
>   >   > for me.  So
>   >   > ever since they won on my behalf in august
> they
>   > have
>   >   > been fighting
>   >   > to get the law declared unconstitional-and
> that
>   >   > would benefit
>   >   > everyone.  Since the case involved the
> military
>   > it
>   >   > was the united
>   >   > states government that my lawyers were going
> up
>
=== message truncated ===


=====
love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of one small child ,God knows how much we need them,and so He takes but few to make His land of Heaven more beautiful to view, so when a little child departs, we who are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS ARE HARD TO FIND!!!^*^sending angel kisses and hugs to all who have gone.^*^

__________________________________________________
Do you Yahoo!?
Yahoo! Web Hosting - establish your business online
http://webhosting.yahoo.com


Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

Oh and by the way-

It is true my baby had a heartbeat she also had half of her fucking head missing and no fucking brain-you fucking bitch.  I think it is so fucking cruel-you probably get some kind of fuck thrill out of watching your baby die very slowly and painfully.  Those babies don't have a chance you fucking dumb ass-hospitals even refuse to put them on respirators.  You are the biggest fucking bitch

 iris shearer <iris_suzette@...> wrote:

first off i never said abortion i said early induction
.but if you fd o not carry to term or as far as you
body will allow(that means premature labor not
induction) then it is either a patial or full
abortion.which guess what the just pass a ban on
partial abortion.our support group is a support group
for mother whoo either regret aboting or carry as far
as their bodies allow or to term ,which is 37
weeks.why do you think your insurance is fighting
you.because their is achance your child will live for
a short time but when you induce early you are talking
more than likely stillborn,while when you carry to
term only a chance 50/50 of having a stillborn.i am
leaving this group because i cannot deal with people
that do not try to give there unborn child life or at
least a chance at it.you BABY has aheartbeat,he or she
is moving,he or she could donated tissues and give
hope  or life to someone in need.and yes anencephaly
babies can give tissues for donation.i hope you can
rest well with the desision you have made and that you
will be ok with it when you son asked what happen to
my little sibling,why did you not carry him all the
way.folic acid awareness is about preventing this
defect and others like it .i am walking on our walk
here even thought i just had a baby.but what ever
desisiov you make just make sure you can live you life
and be able to deal with what ever desision it is.i do
honestly wish you the best of luck.
--- Marie Blair <iamapeach@...> wrote:
> I just wanted to make it VERY clear that I am not
> having an abortion.  Why are people making it out to
> be that way.  I too do not agree with abortion.  I
> am having a tough enough time dealing with the
> diagnosis of my unborn child and fighting with my
> insurance company about inducing early.  I am not
> feeling very supported with this so-called support
> group.  Why is everyone making me out to be a
> murderer?  I am very hurt that you put this email
> out to EVERYONE in the group and called my decision
> an abortion!
>
> Marie
> iamapeach@...
>   ----- Original Message -----
>   From: iris shearer
>   To: anencephaly@yahoogroups.com
>   Sent: Monday, March 10, 2003 10:13 AM
>   Subject: Re: [anencephaly] Good news for women in
> the NORTHWEST-re anenecephaly
>
>
>   i did not do this,i would NEVER ABORT M<Y
> CHILD,this
>   was another woman not me.make noooo mistake i do
> not
>   agree with abortion.
>
>   --- Marie Blair <iamapeach@...> wrote:
>   > Iris,
>   >
>   > I was glad to get a response from you and would
> be
>   > glad to hear from anyone else.  As you know, it
>   > helps tremendously to have all the support you
> can
>   > get.  Especially when it is from someone whom
> knows
>   > exactly what you are going through.  I am so
> glad to
>   > know that you have won your case.  I am sure it
> is
>   > things like that that your child would
> appreciate as
>   > well as me and other parents that have to go
> through
>   > this.  I had another ultrasound done today
> because I
>   > was praying for a miracle and also I wanted to
> get
>   > copies of the ultrasound pictures of my little
> girl.
>   >  One thing about your email, however- I am not
> the
>   > spouse of a military person.  However, I
> understand
>   > the fight for your rights that you went through.
>  I
>   > have military persons in my family.  Please feel
>   > free to email me and anyone else is welcome to
> as
>   > well.  Thank you so much for your support.  I
> will
>   > be inducing my labor within the next couple of
>   > weeks.  I am taking things better than I thought
> I
>   > might up to this point.  However the hardest
> part is
>   > still yet to come.  I will be giving birth to my
>   > little girl and burring her soon after. I am
> sure
>   > that is when it will really hit me.  I hope to
> keep
>   > in touch with you.
>   >
>   > Marie Blair
>   >   ----- Original Message -----
>   >   From: iris shearer
>   >   To: anencephaly@yahoogroups.com
>   >   Sent: Tuesday, March 04, 2003 8:16 PM
>   >   Subject: Re: [anencephaly] Good news for women
> in
>   > the NORTHWEST-re anenecephaly
>   >
>   >
>   >   i am also a military wife,my husband is a
> marine
>   >   stationed at camp lejuene.there are was
> tri-care
>   > would
>   >   have let you terminate.but it would have been
> a
>   > long
>   >   process and you proberly would have had your
> angel
>   > by
>   >   then.i had my angel still born at 36 weeks on
>   >   jan28,2003.i have gotten the naval hospital
> here
>   > along
>   >   with the march of dimes  to get a folicacid
>   > aweness
>   >   campaign started.they named it project Gabriel
>   > ,after
>   >   our wonderful angel.i would not have changed
> the
>   >   desicion we make to keep our baby for the
> world.i
>   > do
>   >   have 5 healthy children.i did here about you
> when
>   > i
>   >   first got my diagnoses though.i have a
> question
>   > ,the
>   >   local paper is doing a story to bring the
>   > folicacid
>   >   awreness out to more people plus to get
> everyone
>   > to
>   >   know more about anencephaly.would you mind if
> i
>   > sent
>   >   your email to  her.or could i give you her
> email
>   > and
>   >   have you email her your story.i carried to
> term
>   > but i
>   >   amsure she would like to know your story as
>   > well.plus
>   >   you are a military spiuse and so i am living
> in a
>   >   large military area.please let me know . my
>   > personal
>   >   email is bradandsuzetterichart@...
>   >   --- "aleah_5442 <aleah_5442@...>"
>   >   <aleah_5442@...> wrote:
>   >   > Hi
>   >   > I have been a member of this group for
> almost
>   > sixth
>   >   > months now. 
>   >   > Last July I found out that my baby had
>   > anencephaly.
>   >   > As you all know
>   >   > most doctors recomend terminating the
> pregnancy.
>   >  I
>   >   > honor everyones
>   >   > decision on this matter and woll not condem
>   > anyone
>   >   > for anything they
>   >   > choose to do.  But after careful
> consideration
>   > my
>   >   > husband and I
>   >   > decided it would be in everyones best
> iterest if
>   > we
>   >   > terminated the
>   >   > pregnancy.  This would be a lot harder than
> we
>   >   > thought however.  My
>   >   > husband is in the navy and we use the
> medical
>   >   > insurance provided by
>   >   > the government called Tri-care and they
>   > specificaly
>   >   > do not cover
>   >   > abortions (gosh I hate that word) even if
> the
>   > child
>   >   > has
>   >   > anencephaly.  After much termoil and going
> all
>   > the
>   >   > up the chain of
>   >   > command via our insurance we got an offer
> form
>   > the
>   >   > Northwest womens
>   >   > law center-they offered to take our case pro
>   > bono.
>   >   > We won.  But
>   >   > that was just the beggining the declaration
> was
>   > only
>   >   > for me.  So
>   >   > ever since they won on my behalf in august
> they
>   > have
>   >   > been fighting
>   >   > to get the law declared unconstitional-and
> that
>   >   > would benefit
>   >   > everyone.  Since the case involved the
> military
>   > it
>   >   > was the united
>   >   > states government that my lawyers were going
> up
>
=== message truncated ===


=====
love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of one small child ,God knows how much we need them,and so He takes but few to make His land of Heaven more beautiful to view, so when a little child departs, we who are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS ARE HARD TO FIND!!!^*^sending angel kisses and hugs to all who have gone.^*^

__________________________________________________
Do you Yahoo!?
Yahoo! Web Hosting - establish your business online
http://webhosting.yahoo.com


Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

I found out my baby was suffering from Anencephaly in January 2003,
when I was only 12 weeks pregnant.  If I hadn't have had two kids
already, I would have continued with the pregnancy.  Instead, I
opted for an ERPC as my kids hadn't been told about the baby and I
didn't want them to go through the grieve of loosing their sibling
at such a young age (my son is 4 and my daughter 2).

I now face the rest of my life wondering if I was carrying a boy or
girl.  I felt I was carrying a girl, also, I gather from research
that girls are more affected than boys.  The hardest thing of all is
not having anyone to say goodbye to. I went into hospital 24 hours
after finding out the baby had anencephaly, and was home again less
than 24 hours later.  I'd had a home birth with my last child and
had planned one this time round too.  Instead everything turned out
so clinical and impersonal.

After I left the hospital I spent the next week needing to find out
as much as I could about why this had happened to me and what I
could do next time to prevent it.  My doctor has advised that I only
need to take a double folic acid dose (2 x 0.4mg), but I've noticed
from reading some sites that between 4 and 5 mg is recommended.
I've also not been told if I should wait to start trying for another
baby, or if it's safe to go ahead straight away.

I would appreciate any advise any one could share with me.

Hello Iris,

The first thing I would like to say is thank you.  Thank you for excluding me and treating me as if my pain dosen't exsits.  You obviously haven't done that much research on babies with anencephaly and until you do I highly suggest that you withfrain from throwing out acusations as if they were facts.  I was told by several doctors one being a perinatologist whom specailizes in cases like mine that my babies organs could not be donated.  God I have never been so upset with someone before I have never even met nor have I ever been so hurt by someone I have never met.  And for your info I had an autopsy done on my baby and they automaticaly take tissue sample and the hospital at which I had her at happened to be a medical school-Universtiy of Washington Hospital in seattle.  You are the biggest bitch thats one thing for sure.  I hope that all of your babies die.  You don't deserve them-how dose that fucking feel to have someone lash back at you with mean and hateful things that you do not deserve.  You better watch yourself.  You fucking bitch

 iris shearer <iris_suzette@...> wrote:

first off i never said abortion i said early induction
.but if you fd o not carry to term or as far as you
body will allow(that means premature labor not
induction) then it is either a patial or full
abortion.which guess what the just pass a ban on
partial abortion.our support group is a support group
for mother whoo either regret aboting or carry as far
as their bodies allow or to term ,which is 37
weeks.why do you think your insurance is fighting
you.because their is achance your child will live for
a short time but when you induce early you are talking
more than likely stillborn,while when you carry to
term only a chance 50/50 of having a stillborn.i am
leaving this group because i cannot deal with people
that do not try to give there unborn child life or at
least a chance at it.you BABY has aheartbeat,he or she
is moving,he or she could donated tissues and give
hope  or life to someone in need.and yes anencephaly
babies can give tissues for donation.i hope you can
rest well with the desision you have made and that you
will be ok with it when you son asked what happen to
my little sibling,why did you not carry him all the
way.folic acid awareness is about preventing this
defect and others like it .i am walking on our walk
here even thought i just had a baby.but what ever
desisiov you make just make sure you can live you life
and be able to deal with what ever desision it is.i do
honestly wish you the best of luck.
--- Marie Blair <iamapeach@...> wrote:
> I just wanted to make it VERY clear that I am not
> having an abortion.  Why are people making it out to
> be that way.  I too do not agree with abortion.  I
> am having a tough enough time dealing with the
> diagnosis of my unborn child and fighting with my
> insurance company about inducing early.  I am not
> feeling very supported with this so-called support
> group.  Why is everyone making me out to be a
> murderer?  I am very hurt that you put this email
> out to EVERYONE in the group and called my decision
> an abortion!
>
> Marie
> iamapeach@...
>   ----- Original Message -----
>   From: iris shearer
>   To: anencephaly@yahoogroups.com
>   Sent: Monday, March 10, 2003 10:13 AM
>   Subject: Re: [anencephaly] Good news for women in
> the NORTHWEST-re anenecephaly
>
>
>   i did not do this,i would NEVER ABORT M<Y
> CHILD,this
>   was another woman not me.make noooo mistake i do
> not
>   agree with abortion.
>
>   --- Marie Blair <iamapeach@...> wrote:
>   > Iris,
>   >
>   > I was glad to get a response from you and would
> be
>   > glad to hear from anyone else.  As you know, it
>   > helps tremendously to have all the support you
> can
>   > get.  Especially when it is from someone whom
> knows
>   > exactly what you are going through.  I am so
> glad to
>   > know that you have won your case.  I am sure it
> is
>   > things like that that your child would
> appreciate as
>   > well as me and other parents that have to go
> through
>   > this.  I had another ultrasound done today
> because I
>   > was praying for a miracle and also I wanted to
> get
>   > copies of the ultrasound pictures of my little
> girl.
>   >  One thing about your email, however- I am not
> the
>   > spouse of a military person.  However, I
> understand
>   > the fight for your rights that you went through.
>  I
>   > have military persons in my family.  Please feel
>   > free to email me and anyone else is welcome to
> as
>   > well.  Thank you so much for your support.  I
> will
>   > be inducing my labor within the next couple of
>   > weeks.  I am taking things better than I thought
> I
>   > might up to this point.  However the hardest
> part is
>   > still yet to come.  I will be giving birth to my
>   > little girl and burring her soon after. I am
> sure
>   > that is when it will really hit me.  I hope to
> keep
>   > in touch with you.
>   >
>   > Marie Blair
>   >   ----- Original Message -----
>   >   From: iris shearer
>   >   To: anencephaly@yahoogroups.com
>   >   Sent: Tuesday, March 04, 2003 8:16 PM
>   >   Subject: Re: [anencephaly] Good news for women
> in
>   > the NORTHWEST-re anenecephaly
>   >
>   >
>   >   i am also a military wife,my husband is a
> marine
>   >   stationed at camp lejuene.there are was
> tri-care
>   > would
>   >   have let you terminate.but it would have been
> a
>   > long
>   >   process and you proberly would have had your
> angel
>   > by
>   >   then.i had my angel still born at 36 weeks on
>   >   jan28,2003.i have gotten the naval hospital
> here
>   > along
>   >   with the march of dimes  to get a folicacid
>   > aweness
>   >   campaign started.they named it project Gabriel
>   > ,after
>   >   our wonderful angel.i would not have changed
> the
>   >   desicion we make to keep our baby for the
> world.i
>   > do
>   >   have 5 healthy children.i did here about you
> when
>   > i
>   >   first got my diagnoses though.i have a
> question
>   > ,the
>   >   local paper is doing a story to bring the
>   > folicacid
>   >   awreness out to more people plus to get
> everyone
>   > to
>   >   know more about anencephaly.would you mind if
> i
>   > sent
>   >   your email to  her.or could i give you her
> email
>   > and
>   >   have you email her your story.i carried to
> term
>   > but i
>   >   amsure she would like to know your story as
>   > well.plus
>   >   you are a military spiuse and so i am living
> in a
>   >   large military area.please let me know . my
>   > personal
>   >   email is bradandsuzetterichart@...
>   >   --- "aleah_5442 <aleah_5442@...>"
>   >   <aleah_5442@...> wrote:
>   >   > Hi
>   >   > I have been a member of this group for
> almost
>   > sixth
>   >   > months now. 
>   >   > Last July I found out that my baby had
>   > anencephaly.
>   >   > As you all know
>   >   > most doctors recomend terminating the
> pregnancy.
>   >  I
>   >   > honor everyones
>   >   > decision on this matter and woll not condem
>   > anyone
>   >   > for anything they
>   >   > choose to do.  But after careful
> consideration
>   > my
>   >   > husband and I
>   >   > decided it would be in everyones best
> iterest if
>   > we
>   >   > terminated the
>   >   > pregnancy.  This would be a lot harder than
> we
>   >   > thought however.  My
>   >   > husband is in the navy and we use the
> medical
>   >   > insurance provided by
>   >   > the government called Tri-care and they
>   > specificaly
>   >   > do not cover
>   >   > abortions (gosh I hate that word) even if
> the
>   > child
>   >   > has
>   >   > anencephaly.  After much termoil and going
> all
>   > the
>   >   > up the chain of
>   >   > command via our insurance we got an offer
> form
>   > the
>   >   > Northwest womens
>   >   > law center-they offered to take our case pro
>   > bono.
>   >   > We won.  But
>   >   > that was just the beggining the declaration
> was
>   > only
>   >   > for me.  So
>   >   > ever since they won on my behalf in august
> they
>   > have
>   >   > been fighting
>   >   > to get the law declared unconstitional-and
> that
>   >   > would benefit
>   >   > everyone.  Since the case involved the
> military
>   > it
>   >   > was the united
>   >   > states government that my lawyers were going
> up
>
=== message truncated ===


=====
love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of one small child ,God knows how much we need them,and so He takes but few to make His land of Heaven more beautiful to view, so when a little child departs, we who are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS ARE HARD TO FIND!!!^*^sending angel kisses and hugs to all who have gone.^*^

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Hello everyone.  I had a baby girl March 2, 2003. Addison Olivia was
born at 33 weeks gestation after an ultrasound confirmed she had
anencephaly at around 16 weeks.  After receiving such devistating
news, we were given our options but felt it would be against our
convictions to terminate- regardless of the outcome or even risks to
me.  With polyhydramnios becoming a real problem for me, we were
thankful that I went into labor.  However, going into labor was
bittersweet since it meant that Addison would be that much closer to
being taken from me.  She was born at 5:01 pm and lived for 47
precious minutes.  She was a tiny 3 pounds 14 inches but beautiful. I
would not trade our experience with Addison for
anything except maybe that I wish we could watch her grow up.  I will
always cherish the time I had with her in the womb and the short time
I had with her alive. Addison has an older brother, Dalton, who is 5
and an older sister, Reagan Faith, who is 2 1/2.  I've been married
to a wonderful husband for almost 9 years.  I couldn't imagine going
through this experience without him.  We have been drawn closer by
Addison's life.  If that was her purpose, she served it well.  I have
learned so much from her.  How to cherish my children and my husband
and not to sweat the small stuff.  We live in southern Georgia and
Addison was laid to rest beside my mother, her Mimi, in southeast
Alabama.  She was also the first infant in Georgia to donate her
kidneys for an anticlotting medicine that has the potential to help
over 2000 people.  I am so proud to be her mother and I miss her
dearly.

Lots of Love,
Amber, missing Addison Olivia

i'm so sorry you had to go through this.  I would give myself time to grieve
this loss.  We were 18 weeks and told to wait 3 cycles after our loss.  My
doc put me on 4 mg of folic acid.  I got pg again after 3 cycles and had a
healthy baby boy who is now almost 7 months.  I am back on folic acid at 4 mg
b/c they do recommend it be in your system for 3 months.  Good luck.
Dawn

----- Original Message -----

From: sarah0102030405

To: anencephaly@yahoogroups.com

Sent: Thursday, March 20, 2003 9:57 AM

Subject: [anencephaly] Advice

I found out my baby was suffering from Anencephaly in January 2003,
when I was only 12 weeks pregnant.  If I hadn't have had two kids
already, I would have continued with the pregnancy.  Instead, I
opted for an ERPC as my kids hadn't been told about the baby and I
didn't want them to go through the grieve of loosing their sibling
at such a young age (my son is 4 and my daughter 2). 

I now face the rest of my life wondering if I was carrying a boy or
girl.  I felt I was carrying a girl, also, I gather from research
that girls are more affected than boys.  The hardest thing of all is
not having anyone to say goodbye to. I went into hospital 24 hours
after finding out the baby had anencephaly, and was home again less
than 24 hours later.  I'd had a home birth with my last child and
had planned one this time round too.  Instead everything turned out
so clinical and impersonal.

After I left the hospital I spent the next week needing to find out
as much as I could about why this had happened to me and what I
could do next time to prevent it.  My doctor has advised that I only
need to take a double folic acid dose (2 x 0.4mg), but I've noticed
from reading some sites that between 4 and 5 mg is recommended. 
I've also not been told if I should wait to start trying for another
baby, or if it's safe to go ahead straight away. 

I would appreciate any advise any one could share with me.




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----- Original Message -----

From: kimm101429@...

To: anencephaly@yahoogroups.com

Sent: Saturday, March 29, 2003 4:10 AM

Subject: [anencephaly] I hope this doesn't start trouble!!

Hi everyone,

I'll probably regret this but, I'm going to do it anyway.  For anyone who doesn't agree, please just delete and move on.  I'm not looking for an argument.

As I've read my mail from this support group over the last week or so I have been shocked and saddened by the lack of compassion and "support" expressed by some and directed to others.  All of us are here because we have lived through the hardest thing anyone can ever imagine!!  None of us expected it and none of us were "prepared."  Some of us carried to term, some of us did not.  We come from different places, different backgrounds, different family situations, different religions, different medical histories, and different financial situations.  We all made the decisions we made because at the time we knew, or thought we knew, it was the best thing for us and everyone involved....including our babies.  Some of us still believe we made the right choice and some of us aren't so sure.  Some of us were lucky enough to have well informed doctors who offered all of the options available to us and some of us didn't. 

Personally....and I'm probably opening myself up to a lot of criticism here....I very much regret the decision I made.  I'll be brief because this is not the reason I am writing.  I was 35 weeks into my pregnancy when we found out our daughter had anencephaly.  We had a 3 year old daughter at the time.  It was at a routine US that our lives were forever changed!  My doctor told us that I MUST be induced that day because my health was declining and I would have to be induced.  I was completely numb.  It never occurred to me, that I had any other choice.  The words "incompatible with life" will forever break my heart.  We were completely devastated as I know you all understand.  We drove home in shock, disbelief and despair.  Although, I do have to say that I had "known" something was wrong for a long time but, did not want to face it.  We told our families, and went to the hospital.  My beautiful daughter was born the next day and lived her entire little 45minute life in my arms. 

I can only wonder why I listened to my doctor without questioning more!!  I may have been able to carry her longer!!  I will never know and I will forever feel guilty about that. 

The fact is.....I loved her, I still love her!!  Kimmie would be turning 6 years old on May 2nd.  I have finally accepted what I cannot change.  Kimmie knows that I love her just as I love her sisters and that I would have done anything to have all my girls with me.  When she died, I had no where to go for support.  My husband refused to go to support group meetings with me and I didn't have the courage to go alone!!  I found groups like this one (and some others) where I could go and say what ever I NEEDED to say.  I didn't have to worry that anyone would be offended by any decision I had made, or any questions I had.  It was a safe place and I needed it very much. 

I'm sorry to say that like many marriages, mine did not survive the death of our daughter.  So it is times like these...when it is 4am and I am preparing for a birthday party for the child I had 11 months after Kimmie died, that I am comforted to know I can come and "share" with women who understand what I deal with every day.

I can only imagine what someone might think if they read some of the latest emails that have been exchanged.  If it were me, I'm not sure I would feel "safe" here to share my experience or voice any regrets I might have.  That's really a shame and makes me wonder how many women will suffer through this heartbreaking time in their life....alone.

I think we should all try and remember that even though we may disagree with the decision of another, we don't know their situation..none of us thought it would ever happen to us.  If it was a decision we made and then just "got over" then we wouldn't be in this group.

I personally don't agree with abortion although to some of your standards, that is what I had.  A lot of people have asked me what I would have done if I had known at 16 or 18 weeks instead of 35.  I would like to think I know the answer to that question but, if there is one thing I have learned .....It is that until it happens to you....you never really know.  Knowing that, I hope I can be there to listen to someone who is just starting this journey even if they choose to take a different path.

Hugs to everyone,
Kimberly
mommy to earth angels Cheyenne and Chaelynne
and angel in Heaven, Kimmie (May 2, 1997)
(\o/)  (\o/)  (\o/)
/_\    /_\    /_\

Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

Hello,

My name is Marsha Knight, and I have a wonderful grandson (Aaron) in heaven.
   I also have a wonderful granddaughter who is now three years old.  I, too,
am shocked by the emails I have read.   Our daughter also when to a
specialist after the initial sonogram showed anencephaly.  No one prayed
harder, fasted more, and hoped in God more than we did.  We had a wonderful
Christian doctor in Texas who spent a long time explaining things to us.  We
did a lot of research.  When Aaron began experiencing trouble, we induced
labor.  Aaron lived 2 hours after he was born.  Luckily, he was born feet
first.  Our daughter experienced trouble at giving birth to him.  He was her
first.  I do not believe we aborted Aaron.  We love him so much, and visit
his grave often.  I believe that my daughter gave birth to a healthy child
because of the decision we made.  She is still alive and our Brooklynn is a
wonderful child. I can tell you that my heart broke into a million pieces as
I watched Aaron try to breathe.  He was perfect in every way except for his
little head.  He is complete today.  I believe that you have not experienced
anything until you watch your grandbaby die in the arms of your daughter
who, at the time, had no hope for another perfect child.  His death changed
my views on a lot of topics.  I will tell you that the parent is not the
only one who suffers in the death of the child.  However, my daughter ran
the risk of losing her life also.    My daughter's marriage did not survive
Aaron's death either, even though they went on to have a beautiful girl
later.  Perhaps, we should all wait until we have walked the path before
judging the shoes another wore on the journey. I am sure we have all done
the stats on how many babies live for how long with anencephaly, and we
realize that the only hope they have is the life they encounter after death.
   I want to encourage those of you who want to have a healthy baby that it
is possible.  We are still very overprotective with Brooklynn, and we lived
in anxiety through the second pregnancy, but with lots of folic acid, a
change in housing and location, as well as leaving any oil field clothing
and tools far from the house, we have a wonderful three-year-old.  We have
pictures of Aaron in his hat, and  his name is spoken by us often.  Life is
so short, and the life we have here so precious, and God is so merciful,
that we should rejoice in  our blessings while we have them.  May God
protect our troops.






>From: "Marie Blair" <iamapeach@...>
>Reply-To: anencephaly@yahoogroups.com
>To: <anencephaly@yahoogroups.com>
>Subject: Re: [anencephaly] I hope this doesn't start trouble!!
>Date: Sat, 29 Mar 2003 10:40:41 -0500
>
>Kimberly,
>I completely agree with what you said.  I am shocked by he childish
>arguments as well.  I am willing to support anyone no matter what the
>situation.  I do not think anyone who has lost a child deserves such harsh
>treatment.  My prayers go out to you.   I just had my little girl (of
>anencephaly) at 22 weeks on March 17, 2003.  I was just wondering how you
>felt about trying again after you lost your little one??  I want to try to
>again but am nervous.  I know it will probably not happen with any future
>pregnancies but am still a little scared.  I think having my son makes
>things a lot easier and I am sure you think the same about your child you
>have now.  Anyway, I just wanted to thank you for your insight you shared
>with the group.
>
>Marie
>iamapeach@...         http://tools.walkamerica.org/W-6VQ
>   ----- Original Message -----
>   From: kimm101429@...
>   To: anencephaly@yahoogroups.com
>   Sent: Saturday, March 29, 2003 4:10 AM
>   Subject: [anencephaly] I hope this doesn't start trouble!!
>
>
>   Hi everyone,
>
>   I'll probably regret this but, I'm going to do it anyway.  For anyone
>who doesn't agree, please just delete and move on.  I'm not looking for an
>argument.
>
>   As I've read my mail from this support group over the last week or so I
>have been shocked and saddened by the lack of compassion and "support"
>expressed by some and directed to others.  All of us are here because we
>have lived through the hardest thing anyone can ever imagine!!  None of us
>expected it and none of us were "prepared."  Some of us carried to term,
>some of us did not.  We come from different places, different backgrounds,
>different family situations, different religions, different medical
>histories, and different financial situations.  We all made the decisions
>we made because at the time we knew, or thought we knew, it was the best
>thing for us and everyone involved....including our babies.  Some of us
>still believe we made the right choice and some of us aren't so sure.  Some
>of us were lucky enough to have well informed doctors who offered all of
>the options available to us and some of us didn't.
>
>   Personally....and I'm probably opening myself up to a lot of criticism
>here....I very much regret the decision I made.  I'll be brief because this
>is not the reason I am writing.  I was 35 weeks into my pregnancy when we
>found out our daughter had anencephaly.  We had a 3 year old daughter at
>the time.  It was at a routine US that our lives were forever changed!  My
>doctor told us that I MUST be induced that day because my health was
>declining and I would have to be induced.  I was completely numb.  It never
>occurred to me, that I had any other choice.  The words "incompatible with
>life" will forever break my heart.  We were completely devastated as I know
>you all understand.  We drove home in shock, disbelief and despair.
>Although, I do have to say that I had "known" something was wrong for a
>long time but, did not want to face it.  We told our families, and went to
>the hospital.  My beautiful daughter was born the next day and lived her
>entire little 45minute life in my arms.
>
>   I can only wonder why I listened to my doctor without questioning more!!
>  I may have been able to carry her longer!!  I will never know and I will
>forever feel guilty about that.
>
>   The fact is.....I loved her, I still love her!!  Kimmie would be turning
>6 years old on May 2nd.  I have finally accepted what I cannot change.
>Kimmie knows that I love her just as I love her sisters and that I would
>have done anything to have all my girls with me.  When she died, I had no
>where to go for support.  My husband refused to go to support group
>meetings with me and I didn't have the courage to go alone!!  I found
>groups like this one (and some others) where I could go and say what ever I
>NEEDED to say.  I didn't have to worry that anyone would be offended by any
>decision I had made, or any questions I had.  It was a safe place and I
>needed it very much.
>
>   I'm sorry to say that like many marriages, mine did not survive the
>death of our daughter.  So it is times like these...when it is 4am and I am
>preparing for a birthday party for the child I had 11 months after Kimmie
>died, that I am comforted to know I can come and "share" with women who
>understand what I deal with every day.
>
>   I can only imagine what someone might think if they read some of the
>latest emails that have been exchanged.  If it were me, I'm not sure I
>would feel "safe" here to share my experience or voice any regrets I might
>have.  That's really a shame and makes me wonder how many women will suffer
>through this heartbreaking time in their life....alone.
>
>   I think we should all try and remember that even though we may disagree
>with the decision of another, we don't know their situation..none of us
>thought it would ever happen to us.  If it was a decision we made and then
>just "got over" then we wouldn't be in this group.
>
>   I personally don't agree with abortion although to some of your
>standards, that is what I had.  A lot of people have asked me what I would
>have done if I had known at 16 or 18 weeks instead of 35.  I would like to
>think I know the answer to that question but, if there is one thing I have
>learned .....It is that until it happens to you....you never really know.
>Knowing that, I hope I can be there to listen to someone who is just
>starting this journey even if they choose to take a different path.
>
>   Hugs to everyone,
>   Kimberly
>   mommy to earth angels Cheyenne and Chaelynne
>   and angel in Heaven, Kimmie (May 2, 1997)
>   (\o/)  (\o/)  (\o/)
>   /_\    /_\    /_\
>         Yahoo! Groups Sponsor
>               ADVERTISEMENT
>
>
>
>
>   Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.
>


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