Hi Robin. My name is Debby. I am sorry to hear about the loss of your baby. I went through the same that you went through. We lost our baby about 6 years ago....
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DMAnzaldi@...
nmbr1pt
Feb 10, 2002 1:03 pm
Hi Robin, I'm Dawn. We found out at 17 weeks after a high afp as well. That was Sept 11. We had a D & E 4 days later. I work as a physical therapist with ...
401
kdday1@...
Feb 10, 2002 4:19 pm
Dear Robin- I am so sorry to hear of the loss of your little baby. It must be very difficult for you. I can only tell you that it takes a lot of time and ...
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Clare Foster
cfph1
Feb 11, 2002 12:35 pm
Robin, I am so so sorry for your loss. I lost my angel in July of last year. I hope you find comfort here as I have. Please feel free to vent, scream etc. ...
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marsha knight
makbaby@...
Feb 11, 2002 2:52 pm
Dear Robin, I am terribly sorry about your loss. I am a grandmother of a 2 year old little girl named Brooklynn. Brooklynn has a little brother who died from...
404
PANDABITNERS@...
Feb 11, 2002 4:41 pm
Robin, I am so sorry that you have had to go through the most awful of losses. Time does heal, but there are times when the pain sneaks up and hits you....
405
kdday1@...
Feb 11, 2002 6:04 pm
Hi Paulene... I do remember you. I am so glad you are doing so well! I can't believe you have a little boy and another baby on the way! What a miracle!! I had...
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anencephaly@yahoogrou...
Feb 13, 2002 12:02 am
We would like to remind you of this upcoming event. Mia's EDD (Daughter of Julia) Date: Saturday, February 16, 2002 Time: All Day 'Some people only dream of...
407
Stormie Shane
stormiedawn76
Feb 13, 2002 4:35 pm
Robin, I am sorry about your loss. I can understand how it could both help and hurt to work with newborns. I lost my baby at the end of November 2001. I too...
408
DMAnzaldi@...
nmbr1pt
Feb 13, 2002 4:41 pm
I will be thinking of you as my sweet Mariah's edd was 2/19. Dawn...
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jul_dido
Feb 17, 2002 2:55 pm
Thank you Dawn xxx I hope you are doing okay. I will be thinking of you on Tuesday. Do you have anything special planned? We are going out for the day on...
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Clare Foster
cfph1
Feb 17, 2002 2:55 pm
My thoughts are with you at this time Regards Clare ... From: anencephaly@yahoogroups.com [mailto:anencephaly@yahoogroups.com] Sent: 13 February 2002 00:02 To:...
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robbins611
Feb 17, 2002 2:55 pm
I just found out today that my 16.5wk son has anencephaly. I don't know what to do....I don't have any support from anyone who has been through this....I am...
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kdday1@...
Feb 17, 2002 6:55 pm
Oh Gini, You hang in there. This is such a hard decision. Talk about it and pray about it. I can only tell you that we lost our little boy 2 years ago. He was ...
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debby mccormick
prncessdeb
Feb 17, 2002 8:10 pm
Hi Gini, My name is Debby. I am sorry to hear about your son. My baby was diagnosed with anencephaly in 1995. I chose to induce. I was getting severe headaches...
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jcril94994
Feb 18, 2002 6:46 pm
Dear Gini: I am so sorry to hear about your diagnosis. Heartbreaking doesn't even begin to describe it. My Kathleen was diagnosed with anencephaly in Jan....
415
angbri77
angbri77@...
Feb 19, 2002 2:43 pm
Gini- First of all...You are NOT alone!!! I remember when we were told that our son (Cody Elijah) had anencephaly at 16.5 weeks.....I felt SO alone...like I ...
416
DMAnzaldi@...
nmbr1pt
Feb 19, 2002 2:43 pm
thanks Julia, On Tuesday, we are going to get balloons and go to the park and set them free. then on Wed we are going to atlantic city. It is supposed to be...
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DMAnzaldi@...
nmbr1pt
Feb 19, 2002 2:43 pm
Gini, I'm so sorry you are facing this. What you do is really a personal decision and yours to make. In my case, We found out on Sept 11 during an us after a...
418
maryelizabeths_mom
maryelizabet...
Feb 19, 2002 2:44 pm
Hi Gini, I know that this time is a difficult one. I have been there myself and can share in your pain. My little girl, Mary Elizabeth was diagnosed with...
419
Stormie Shane
stormiedawn76
Feb 19, 2002 2:44 pm
Dear Gini, I am sorry to hear of news. It was one of the hardest things in the world to be faced with the decision that you have been confronted with. I think...
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Stormie Shane
stormiedawn76
Mar 19, 2002 2:16 pm
Hey Robbin, I was just thinking about you today and was wondering how you were doing. If you need a shoulder to lean on we are here for you. I just wanted you...
421
jeans1221
Mar 26, 2002 2:37 pm
Hello everyone, I am new to this list. I just found out that one of the identical twins I am carrying has Anencephaly. It is still very hard since we just...
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prncessdeb
Mar 29, 2002 5:19 am
Hi Jean, Well, probably no one has responded because no one with twins has read your post yet. I was only pregnany with one angel. I am sorry to hear about...
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KaCiO@...
Mar 29, 2002 8:25 pm
please take me off this list....
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Madeleine Boström
maddebostrom
Apr 1, 2002 3:50 pm
Hi My name is Madeleine and I'm from Sweden. I've been in this mailinglist for more than one year but I haven't written before (my english is not very good but...
425
maddebostrom
Apr 1, 2002 3:50 pm
Hi My name is Madeleine and I'm from Sweden. I've been in this mailinglist for more than one year but I haven't written before (my english is not very good but...
426
Jeans1971@...
jeans1221
Apr 5, 2002 1:11 pm
Madeleine- Thanks so much for sharing your story. I really appreciate it!! Thank you! -Jean (still taking one day at a time) (pg w/twins edd 9/30/02)...
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threeboys2many
Apr 10, 2002 12:56 pm
e mail me at threeboys2many@......
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David Hughes
irdsn
Jul 20, 2002 1:22 pm
International Rare Disease Support Network (IRDSN) T-Shirts Now Available The International Rare Disease Support Network has, in an effort to promote our...
