On a cold November night, at 9:40, my beautiful nephew was born.
He was perfect in every way. I held him and felt the warmth of his
body.  He had long finger.  I pictured him playing the piano with
those fingers.  His long toes playing in the mud after a long summers
rain.  But that wasn't ment to be.  God wanted him with him.
Before he was born, his heart beat was good and strong.  But he was
unable to live anywhere but the womb and in our hearts.  I greive for
my brother and sister-in-law for their loss.  He was their first son.
But not their last. They want another child, and I hope they receive
that blessing. Please pray for this family.  The funeral is tomorrow
at 3.  It will be a long and sad day....

Some people only dream of angels, but I held one in my arms.

Cameron Gage Newman      ^I^
Nov. 17, 2000  9:40 PM
4 lbs, 7 oz.
16 1/2 inches long

My heart goes out to you and your brother and sister-in-law.  I will keep
all of you in my prayers tomarrow and the days and weeks to come.

Georgianna, mom to Sarah bornstill 2/17/00


----- Original Message -----
From: Jeff Bowles <jbowlesm@...>
To: <anencephaly@egroups.com>
Sent: Sunday, November 19, 2000 12:00 PM
Subject: [anencephaly] Cameron Gage Newman


> On a cold November night, at 9:40, my beautiful nephew was born.
> He was perfect in every way. I held him and felt the warmth of his
> body.  He had long finger.  I pictured him playing the piano with
> those fingers.  His long toes playing in the mud after a long summers
> rain.  But that wasn't ment to be.  God wanted him with him.
> Before he was born, his heart beat was good and strong.  But he was
> unable to live anywhere but the womb and in our hearts.  I greive for
> my brother and sister-in-law for their loss.  He was their first son.
> But not their last. They want another child, and I hope they receive
> that blessing. Please pray for this family.  The funeral is tomorrow
> at 3.  It will be a long and sad day....
>
> Some people only dream of angels, but I held one in my arms.
>
> Cameron Gage Newman      ^I^
> Nov. 17, 2000  9:40 PM
> 4 lbs, 7 oz.
> 16 1/2 inches long
>
>
>
>
>
>

I am so sorry to hear about your nephew. I lost my baby in 1996. I have 3
daughters. I play the
piano and play "Tears in Heaven" for my angel. I know she can hear me. My
prayers are with your
brother and his family.
Hugs,
Debby and angel Shane



--- Jeff Bowles <jbowlesm@...> wrote:
> On a cold November night, at 9:40, my beautiful nephew was born.
> He was perfect in every way. I held him and felt the warmth of his
> body.  He had long finger.  I pictured him playing the piano with
> those fingers.  His long toes playing in the mud after a long summers
> rain.  But that wasn't ment to be.  God wanted him with him.
> Before he was born, his heart beat was good and strong.  But he was
> unable to live anywhere but the womb and in our hearts.  I greive for
> my brother and sister-in-law for their loss.  He was their first son.
> But not their last. They want another child, and I hope they receive
> that blessing. Please pray for this family.  The funeral is tomorrow
> at 3.  It will be a long and sad day....
>
> Some people only dream of angels, but I held one in my arms.
>
> Cameron Gage Newman      ^I^
> Nov. 17, 2000  9:40 PM
> 4 lbs, 7 oz.
> 16 1/2 inches long
>
>


__________________________________________________
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Hello-
My prayers are with your brother and sis-in-law...
I am about to encounter the same experience this coming Feb. 2001 when I
deliver my son, Cody Elijah who has anencephaly...Why did this have to
happen?  I will never know but all I can do is pray that God sheds his mercy
on these precious babies and has them in a very SPECIAL place in heaven!
God give you strength and courage today as well as your family!
Angela Iverson/ anyone interested in contact, email me at angbri77@...

Hi There,
        I'm not sure how to start this, but to say that,
I would like to hear or read about other mothers,
who have dealt will anencephalic pregnancies and
birth.
       I attended a bereaved group that were
suppose to help one another, but in the end, I
was even more devastated.
      Christine would have been 10 years old now,
and there isn't a day that goes by, that she isn't
on my mind.
      I have never had the opportunity to speak
or write to anyone who has been in the same
situation, as myself.
      Hugs,
Nancy

Angela,
There is a group of women at Yahoo that have either gone thru the birth of an
anencephalic baby or
are going thru it and it is quite an active board. Here is the link if you'd
like to go to it.
http://clubs.yahoo.com/clubs/mourningmommies

Hugs,
Debby



--- angbri77 <angbri77@...> wrote:
> Hello-
> My prayers are with your brother and sis-in-law...
> I am about to encounter the same experience this coming Feb. 2001 when I
> deliver my son, Cody Elijah who has anencephaly...Why did this have to
> happen?  I will never know but all I can do is pray that God sheds his mercy
> on these precious babies and has them in a very SPECIAL place in heaven!
> God give you strength and courage today as well as your family!
> Angela Iverson/ anyone interested in contact, email me at angbri77@...
>
>


__________________________________________________
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Please go to the link I posted...here I will post it again.
http://clubs.yahoo.com/clubs/mourningmommies
Like I said, they are quite active on that board. Hope this helps. You can also
email me at
prncessdeb@... if you'd like.

Debby


--- ncgenova@... wrote:
>
> Hi There,
>        I'm not sure how to start this, but to say that,
> I would like to hear or read about other mothers,
> who have dealt will anencephalic pregnancies and
> birth.
>       I attended a bereaved group that were
> suppose to help one another, but in the end, I
> was even more devastated.
>      Christine would have been 10 years old now,
> and there isn't a day that goes by, that she isn't
> on my mind.
>      I have never had the opportunity to speak
> or write to anyone who has been in the same
> situation, as myself.
>      Hugs,
> Nancy
>
>
>


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Dear Angela,

I am so sorry to hear about your little boy Cody. My daughter Annalise was
bornstill on 14th August, 1998 at 27 weeks 5 days. We got the diagnosis at
18 weeks 2 days. I would love to make contact with you. My name on yahoo
messanger is suemanz and on MSN it is annalisesmum, as I am an Australian. I
would like to be of support to you as you continue this journey with your
little boy.

Looking forward to hearing from you,
Sue Mansfield.
suemanz@...

----- Original Message -----
From: "angbri77" <angbri77@...>
To: <anencephaly@egroups.com>
Sent: Tuesday, November 21, 2000 1:23 AM
Subject: Re: [anencephaly] Cameron Gage Newman


> Hello-
> My prayers are with your brother and sis-in-law...
> I am about to encounter the same experience this coming Feb. 2001 when I
> deliver my son, Cody Elijah who has anencephaly...Why did this have to
> happen?  I will never know but all I can do is pray that God sheds his
mercy
> on these precious babies and has them in a very SPECIAL place in heaven!
> God give you strength and courage today as well as your family!
> Angela Iverson/ anyone interested in contact, email me at angbri77@...
>
>
>
>
>

Dear Nancy, I just posted to Angela about some of the things you have
mentioned, so I will cut and paste excerpts from my email to her:

Our son Loren died w/ anencephaly in 9/99, 18 hours after we received
the diagnosis.
  I wanted to tell you about a group for families who have chosen to
carry to term.  The URL is below.  I founded the group and it has been
a great source of strength for me and many others.  Right now there
are 2 ladies currently carrying babies with anen., and several
recently bereaved folks, along with those of us whose loss occured
some time ago.
Come join us!  We would be glad to have you, though sad for what bonds
us.
This may be a place of great support and comfort for you, Nancy.  Any
others are welcome too, of course.
Thanks,
Ann Marie and Ray
Parents to Ean, Erin, Kate, Loren (s/b 9/20/99), and Claire
Loren's Memorial Site: http://www.geocities.com/simonmanz/friend.html
Anencephaly Support:
http://clubs.yahoo.com/clubs/anencephalyblessingsfromabove
Ann Marie and Ray
Parents to Ean, Erin, Kate, Loren (s/b 9/20/99), and Claire
Loren's Memorial Site: http://www.geocities.com/simonmanz/friend.html
Anencephaly Support:
http://clubs.yahoo.com/clubs/anencephalyblessingsfromabove

My anencephalic baby was born on March 18, 1993.  It was a very difficult 8
months for us, but we are so glad that we chose not to go with an early
delivery.   I miss my little girl the most between Nov and March.  I was
diagnosed in Nov, and gave birth in March.  I would be interested in knowing
if there are some really awesome resources out there on anencephaly.  There
seems to be an astonishing lack of information out there.   Most concerning
to me is the lack of information the doctors have, and the misinformation
that seems to be being passed on to the mothers by them because the doctors
don't have the information.   Could some of you answer some questions for me?


Did your doctor tell you that you would jepoardize further possible
pregnancies if you did not have an early delivery/interrupted pregnancy or
did your doctor tell you that delivery no later than 36 weeks would be OK?

Did your doctor tell you that if you got pregnant again that your chances of
having another anencephalic baby were increased or almost none?

Did your doctor tell you that there were environmental causes to some cases
of anencephaly?

I just know that some of the research I did answered these questions for me,
but I was just curious what other doctors were telling their patients.


Thanks,
Joanna

Hello,
My name is michelle my son christopher gabriel died
may 19,2000. I have done alot of reasearch due to me
not being able to sleep for awhile the internet is
agood source of info type in anencephalic search you
will find alot even some pictures. My Dr told us that
there is more risk to future preg if you interruppted
preg. Our Dr said if we take 4 mg of folic acid our
chances of haveing it happen again would be 1% if we
did not take the folic acid 3-4 months prior to next
preg our chances would be 5%. Our Dr said that most
cases are do to enviormental factors that is how a
family who has no past history of neural tube birth
defect can all the sudden be struck by it. Texas has
the highest docomented cases of anencephaly in the
1980's it was considered an epidemic. 3 and 4 babies
born a night in the same hospital.I think Dr don't
know what causes it and the only thing they do know
for sure is that folic acid seals the neural tube in
the first 28 days of preg. I work in the medical field
and have asked alot of questions most answers are the
same , but some are very different. My specilist
seemed to know more than my OB, I love my OB and would
go back to him if I ever have another baby. My best
advice is to seek out a specialist in Maternal Fetal
Medicine if you live near Fort Worth Texas I could
give you a few names and #. I wish you good luck in
your search for info , but from my own experences the
info does not help the pain go away just gives you
idea of what not to do with next preg.
With deep saddness to your loss and my prayers love
michelle
--- shekinah318@... wrote:
> My anencephalic baby was born on March 18, 1993.  It
> was a very difficult 8
> months for us, but we are so glad that we chose not
> to go with an early
> delivery.   I miss my little girl the most between
> Nov and March.  I was
> diagnosed in Nov, and gave birth in March.  I would
> be interested in knowing
> if there are some really awesome resources out there
> on anencephaly.  There
> seems to be an astonishing lack of information out
> there.   Most concerning
> to me is the lack of information the doctors have,
> and the misinformation
> that seems to be being passed on to the mothers by
> them because the doctors
> don't have the information.   Could some of you
> answer some questions for me?
>
>
> Did your doctor tell you that you would jepoardize
> further possible
> pregnancies if you did not have an early
> delivery/interrupted pregnancy or
> did your doctor tell you that delivery no later than
> 36 weeks would be OK?
>
> Did your doctor tell you that if you got pregnant
> again that your chances of
> having another anencephalic baby were increased or
> almost none?
>
> Did your doctor tell you that there were
> environmental causes to some cases
> of anencephaly?
>
> I just know that some of the research I did answered
> these questions for me,
> but I was just curious what other doctors were
> telling their patients.
>
>
> Thanks,
> Joanna
>
>
> -------------------------- eGroups Sponsor
>
>
>


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Yahoo! Shopping - Thousands of Stores. Millions of Products.
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----- Original Message -----

From: Michelle Davis

To: anencephaly@egroups.com

Sent: Friday, December 15, 2000 11:41 PM

Subject: Re: [anencephaly] Intro

Hello,
My name is michelle my son christopher gabriel died
may 19,2000. I have done alot of reasearch due to me
not being able to sleep for awhile the internet is
agood source of info type in anencephalic search you
will find alot even some pictures. My Dr told us that
there is more risk to future preg if you interruppted
preg. Our Dr said if we take 4 mg of folic acid our
chances of haveing it happen again would be 1% if we
did not take the folic acid 3-4 months prior to next
preg our chances would be 5%. Our Dr said that most
cases are do to enviormental factors that is how a
family who has no past history of neural tube birth
defect can all the sudden be struck by it. Texas has
the highest docomented cases of anencephaly in the
1980's it was considered an epidemic. 3 and 4 babies
born a night in the same hospital.I think Dr don't
know what causes it and the only thing they do know
for sure is that folic acid seals the neural tube in
the first 28 days of preg. I work in the medical field
and have asked alot of questions most answers are the
same , but some are very different. My specilist
seemed to know more than my OB, I love my OB and would
go back to him if I ever have another baby. My best
advice is to seek out a specialist in Maternal Fetal
Medicine if you live near Fort Worth Texas I could
give you a few names and #. I wish you good luck in
your search for info , but from my own experences the
info does not help the pain go away just gives you
idea of what not to do with next preg.
With deep saddness to your loss and my prayers love
michelle
--- shekinah318@... wrote:
> My anencephalic baby was born on March 18, 1993.  It
> was a very difficult 8
> months for us, but we are so glad that we chose not
> to go with an early
> delivery.   I miss my little girl the most between
> Nov and March.  I was
> diagnosed in Nov, and gave birth in March.  I would
> be interested in knowing
> if there are some really awesome resources out there
> on anencephaly.  There
> seems to be an astonishing lack of information out
> there.   Most concerning
> to me is the lack of information the doctors have,
> and the misinformation
> that seems to be being passed on to the mothers by
> them because the doctors
> don't have the information.   Could some of you
> answer some questions for me?
> 
>
> Did your doctor tell you that you would jepoardize
> further possible
> pregnancies if you did not have an early
> delivery/interrupted pregnancy or
> did your doctor tell you that delivery no later than
> 36 weeks would be OK?
>
> Did your doctor tell you that if you got pregnant
> again that your chances of
> having another anencephalic baby were increased or
> almost none?
>
> Did your doctor tell you that there were
> environmental causes to some cases
> of anencephaly?
>
> I just know that some of the research I did answered
> these questions for me,
> but I was just curious what other doctors were
> telling their patients.
>
>
> Thanks,
> Joanna
>
>
> -------------------------- eGroups Sponsor
>
>
>


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I had a D&C/D&E on May 5/00, the day after the anencephaly was
confirmed.  I was 20 weeks.  They had detected the anen in the u/s at
18.5 weeks, but the u/s technician never let on anything was wrong
and just gave us a picture and sent us on our merry way.  Almost a
week later, my dr called and wanted my husband and I to come in to
see her.  She told us what the scan had found and what it may
indicate and sent us to a specialist in the city 3 days later.  They
did another u/s and told us the same diagnosis.  After talking to 2
drs in there, we decided to terminate the pregnancy.  The dr said
that they don't know what causes it (I had been taking at least .6 mg
of folic acid for months before I got pregnant)  He said that it
would not be good to carry the baby to term because the amniotic
fluid was already starting to build up(somthing about the baby not
swallowing it enough)I offered to carry the baby as long as I could
if I could donate the organs to some baby who had a chance to live,
but he said that they don't accept organs from the anen babies.  all
the drs tell us that the chances of this happening again are the same
as it was the first time.  Thru all the sites on anen, I learned
about it and put myself on 5 mg of folic acid immediately.  3 months
later I was pregnant again and according to the u/s and the triple
screen test, everything appears normal.  I don't know if the last
time was just a numbers thing, or if the extra folic acid was all I
needed.  I just know that I kick myself for not taking the 1 mg folic
acid at the time and wonder if it would have made any difference.

They said to wait 3 months until we started to try again.  I got
pregnant the 4th month.  I am due in May.  I started the 5 mg folic
acid the week after we lost the baby and kept on it until the 12th
week.

Hi there!  Its Victoria Burleson. :)   Glad to hear your pregnancy is going
well.
Hope you had nice holidays.  My husband and i are still trying, and hoping
2001 will bring nicer things for us.    We are looking forward to a ski trip
in Colorado in Feb.  I miss getting to see snow ( orig from N.J. now residing
at the gulf coast of Alabama )
so i am excited to ski, ice skate, etc.   How has your winter been?  Well
just thought i would say hello, saw your email helping someone with
questions.  Take care.  Victoria

Hi Debra

I saw your message and just wanted to respond.  I had to terminate my
pregnancy in March 2000.  I am only now beginning to feel a little bit
better.  I was in such a deep depression.  Like you, going out and seeing
people with babies , i felt robbed.
I also had a sister, best friend and secretary whom were all pregnant.  I had
to have baby showers for all of them.  Host them!!!!!!!!!!  I don't know how
i did that.  It was not fun, and i had to pretend to be happy for everyone.
( you know what i mean, i was happy for everyone and their babies, but it was
difficult to understand why they all had their babies and i didn't. )  Then
like you said, the holidays.  Everyone is out buying cute little baby clothes
for my step sisters baby ( now 3.5 months ) and they also should have been
buying stuff for my what should have been  my 4.5 month baby boy.  What an
aweful feeling. I wish i would get up the gumption to go to a therapist, but
i just keep wondering how it will help me.  NOBODY understands unless they
have been thru it themselves.  TIME will help to heal, i guess that is what i
am betting on.  My husband and I are both chiropractors owning our own
business.  So immediatly following losing the baby we took two weeks off.  We
then got right back into our normal routine.  Even though we didn't feel
normal.  Here 9 months later, i told my husband i wasn't going back to work
that i needed to do things for myself.  So.................pottery classes,
horse back riding lessons, and tennis lessons here i come!!!!!!!!!!!!!!!!
Need to clear my mind.
So....... I know how you feel and I think you are on the right track.  You
seem very proactive and that will speed the healing.  Take care of yourself.
I was too depressed to do that and it took me 9 months but I am back to the
gym and taking care of ME.  Maybe it won't take you as long as me to attempt
to get back on track.
Good Luck, HUGS, and best wishes .  I am betting the year 2001 will bring us
better things.   Victoria

Katie,
I would love to share our story if you decided to do a
book. We lost christopher gabriel may 19, 2000 i would
like it if every one would visit his website.
www.angelfire.com/ma3/chgdavis
my email is mdavis76119@...
Michelle
--- kdday1@... wrote:
> Victoria-
> Hi. I just wanted to say thank you. Your story just
> touched my heart. You
> worded things so well. It sure does make it easier
> when we hear other
> stories. Knowing that we aren't the only ones going
> through this awful pain.
> Are you planning on trying to conceive again? Have
> you gone back to work?
> You sound so much like me...I did the pottery
> classes last year, thought
> about the horseback riding. Started bike riding
> some. I wrote in my journals,
> poetry. I tried to think of how I could use my
> experience to help others. I
> began posting in different groups. I still feel
> there is some way to share
> with others who are going through this. I have
> thought of doing a book. If
> anyone is interested in sharing their story with me.
> Please let me know! I
> was taking long walks with my dogs twice a day. I
> read and studied all of the
> books on loss, birth defects, you name it. I even
> went to a "Miracle Store"
> to pray. This woman told me that I would conceive
> soon. I even talked to a
> psychic!! The psychic told me she thought I would be
> pregnant before March.
> This was last summer...so, that felt like so far
> away. Well....here it is
> January and quickly approaching!  I focused on
> myself as much as I could, and
> staying busy. I think that is so important. It is
> amazing...you are almost a
> different person after going through it. I felt like
> I had to learn about
> myself more. Did I ever! It has been almost 14
> months since we lost our baby
> boy. Sometimes it feels like yesterday and other
> times it feels it was
> another lifetime..another person altogether that
> went through it all. It is
> amazing what we can make it through! We are SO
> strong. A month after we lost
> our baby boy, both of my sister in laws got pregnant
> unexpectedly. Also, both
> of my cousins were pregnant and every single one of
> my best girlfriends. That
> was hard. Hard on them too, I'm sure. Now, they have
> had babies and four of
> them are pregnant again!! I am so jealous, so sad
> that it isn't me. But, I
> just keep thinking that perfect little Angel is
> waiting for the perfect
> moment to enter our lives!
> Good Luck to you...and God Bless us all! Please
> check out a poem (The
> Memories Of You) I wrote after the loss of our baby:
>
>
http://www.tcfatlanta.org/POEMS_InTheTwinklingOfAnEye.html#The
> Memories of You
>
> Love, Katie
> kdday1@...
>


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I am not sure if this will be read but I am 23+ weeks and my baby has
anencephaly.
I am to be induced on 15th February. There are lots of questions which need
answers, mostly WHY!
Please reply.
Thanks
Jill

JILLY.KEV. FOX.co.uk

Hi Jill. I am Debby and I had an anencephalic baby in 1996. I don't think that
anyone has figured
why. I do think they advise if you try to have another child to start folic
acid. Anyway, if you
have any questions you can email me directly at prncessdeb@.... I am sorry
that you have to
be here.
Hugs,
Debby


--- FOXY.co.uk@... wrote:
> I am not sure if this will be read but I am 23+ weeks and my baby has
anencephaly.
> I am to be induced on 15th February. There are lots of questions which need
answers, mostly WHY!
> Please reply.
> Thanks
> Jill
>
> JILLY.KEV. FOX.co.uk
>
>


__________________________________________________
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a year!  http://personal.mail.yahoo.com/

Jill,

Hello.  I just gave birth to my beautiful baby boy Cody on Feb. 29th 2001.
He was 6 lbs 4 oz and 19 1/2 inches long.  He was born still but was alive
right to the last minute.
I would love to help you with any questions you have.  I can't answer your
"whys" because I have them too and more than ever now but I can be a support
for you and help you through this difficult time.
God bless and hope to hear back from you.

Angela

HI Jill,

I too have an anencephaly baby, we found out at our routine 19 week
scan, it was a real shock, we have 2 other children strong and healthy. We
were very little information, the specialist didn't even name the condition,
and lead us to believe that they might be able to help after she was born.
We found out the truth at 33 + weeks where we saw the other specialist in
the practise, were he was advising us to be be induced. So with a lot of
support and prayers from friends and family, I delivered 'Natalia Asta' on
the 20th November 1999. I don't have any answers to why, all I do know she
is whole now, and one day I will be with her in heaven. I am just starting
to research her condition now, it has been a tough and pain year at times. I
know would do the same again if I was in the same situation.
God bless you through this difficult time ahead.

Love Helen.