This is a support eGroup for families and medical professionals interested in sharing information and/or support. Group Manager: anencephaly-owner@egroups.com ...
David Hughes
egroups_moderator@...
Jun 2, 1999 8:54 am
2
I don't want to take you away from Egroups, but I started a bunch of lists (and some already existed at www.onelist.com), so I was wondering if you wouldn't...
savage@...
Aug 29, 1999 7:08 pm
3
Harry Brown
wd8oep@...
Nov 10, 1999 3:46 am
4
There are approximately 24 members on an Anencephaly List at onelist, but since egroups and onelist are uniting, the members from onelist will be moving to...
Brenda Savage
savage@...
Feb 24, 2000 5:03 am
5
Hi, Brenda Savage. I just sent you a voice-email from my phone, using a free service from Shoutmail.com. If you have the RealPlayer G2 click on the following...
8109843259@...
Feb 24, 2000 2:40 pm
6
Can the owner of this list...add: makbaby@... ....please! Marsha is on the Anencephaly onelist and is trying to move to egroups. Brenda Savage ... ...
Savage, Brenda (Abacus)
brenda.savage-eds@...
Feb 24, 2000 11:26 pm
7
David, Can you add makbaby@... Please ! The 24 people (all anencephaly) that are coming to your list are very very nice people. Brenda ... From:...
Savage, Brenda (Abacus)
brenda.savage-eds@...
Feb 24, 2000 11:34 pm
8
Brenda, I have added Marsha to our list. I will be happy to add any others but they can easily add themselves by going to the following address and then click...
David Hughes
davidhu@...
Feb 25, 2000 12:05 am
9
David, Thanks so much for adding Marsha. I think the rest can sign up themselves...she just had problems due to hotmail blocking egroups. If any others have...
Savage, Brenda (Abacus)
brenda.savage-eds@...
Feb 25, 2000 12:30 am
10
David, I checked out your web site at http://www.raredisorders.com You have lots of diseases listed...that's great. I'll start referring others to your web...
Brenda Savage
savage@...
Feb 25, 2000 2:28 am
11
Linda, Welcome to the list. I hate to inform you that we are moving to the Anencephaly list at http://www.egroups.com . This list here at onelist will be...
Savage, Brenda (Abacus)
brenda.savage-eds@...
Feb 25, 2000 2:58 pm
12
http://www.egroups.com/group/anencephally/fullinfo.html or http://www.egroups.com , then search on anencephaly...
Savage, Brenda (Abacus)
brenda.savage-eds@...
Feb 25, 2000 2:59 pm
13
Whoops....I'm sending this to the wrong site...need to send to old list (at onelist). Sorry about that. Brenda ... From: Savage, Brenda (Abacus) Sent: Friday,...
Savage, Brenda (Abacus)
brenda.savage-eds@...
Feb 25, 2000 3:10 pm
14
Just wanted to let you know, that I am unsubscribing you from the anencephaly list at onelist, as you sign up on this list, here at egroups. I will be deleting...
Savage, Brenda (Abacus)
brenda.savage-eds@...
Feb 27, 2000 3:51 pm
15
I have a really stupid question, and hope I don't upset anyone....but if they know a baby is anencephalic inutero, why do they let you carry the baby to term?...
Savage, Brenda (Abacus)
brenda.savage-eds@...
Feb 27, 2000 4:53 pm
16
I'm sorry that this move to egroups cut into the drinking water discussion. Brenda Savage...
Savage, Brenda (Abacus)
brenda.savage-eds@...
Feb 27, 2000 4:57 pm
17
Well for me it wasn't a matter of anyone "letting" me carry to term. My Jessica had a condition incompatible with life ,but that did not make her any less my...
jhajdo
jhajdo@...
Feb 27, 2000 6:18 pm
18
... Actually, the choice is the mother's on whether she wants to end the pregnancy or continue. My baby was diagnosed at 19 weeks, and we had the option of ...
Michelle Rogers
micci_rog@...
Feb 27, 2000 7:28 pm
19
Very well put! My thoughts exactly! ... From: jhajdo <jhajdo@...> To: anencephaly@egroups.com <anencephaly@egroups.com> Date: Sunday, February 27,...
Blanchard
blanchard@...
Feb 27, 2000 7:51 pm
20
Michelle, I agree with your respone that the last word is always the parents, but don't you think that drs often scare their patients into inducing early or...
jhajdo
jhajdo@...
Feb 27, 2000 8:03 pm
21
oops I forgot to sign my last post. Tammy Hajdo ^i^(12-28-98) Jessica's Mom also mom to Jackie, Alyssa, James, Nick and Tony born 12-20-99 ... From: Michelle...
jhajdo
jhajdo@...
Feb 27, 2000 8:04 pm
22
Hello, My name is Anne Andis and my husband, myself, and our friends the Coates' run the Anencephaly Support Foundation. You can visit our site at: ...
ASF
asf@...
Feb 27, 2000 8:42 pm
23
... Yes, I think so. My doctors did not do this, though they leaned toward termination, they gave me the facts. I just wanted the facts- could I carry this ...
Michelle Rogers
micci_rog@...
Feb 27, 2000 9:34 pm
24
Okay, my question was really stupid. I didn't realize the baby was still alive and moving, when you carried it to term. I would never be able to abort a...
Savage, Brenda (Abacus)
brenda.savage-eds@...
Feb 27, 2000 10:38 pm
25
Anne, I'm glad your on this list. I was referring new members on the ex-anencephaly list at onelist...to your ASF Support Foundation. How many members do you...
Savage, Brenda (Abacus)
brenda.savage-eds@...
Feb 27, 2000 10:40 pm
26
Mostly doctors just don't want to deal with it. Actually a few, very few, can live up to several months. A nurse that was helpingme knew of a baby that lived...
Mjm9999@...
Feb 28, 2000 2:05 am
27
Ann Marie Wife to Ray Mom to Ean, Erin, Kate, ^i^ Loren (9/20/99 - anencephaly) Sequim, WA rayann@......
Ray and Ann Henninger
rayann@...
Feb 28, 2000 3:18 am
28
I am Ann Marie (32) married to dh Ray (37). We are the homebirthing, homeschooling parents of Ean (8), Erin (5), and Kate (2+). Our son Loren was stillborn...
Ray and Ann Henninger
rayann@...
Feb 28, 2000 3:25 am
29
Hi. I just sent you a voice-email from my phone, using a free service from Shoutmail.com. If you have the RealPlayer G2 click on the following link to hear a...
8109843259@...
Feb 28, 2000 6:13 am
30
Hi, Michelle Rogers. I just sent you a voice-email from my phone, using a free service from Shoutmail.com. If you have the RealPlayer G2 click on the following...
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