We would like to remind you of this upcoming event.

danielle left for heaven

Date: Sunday, April 3, 2005
Time: 2:00PM EDT (GMT-04:00)

danielle's 2nd year up in heaven

We would like to remind you of this upcoming event.

danielle left for heaven

Date: Sunday, April 3, 2005
Time: 2:00PM EDT (GMT-04:00)

danielle's 2nd year up in heaven

Hello everyone my name is Michelle. About a month ago i had an
ultrasound done at about 12 weeks into my pregnancy. The next day
me, my mother, and the baby's father got called into my doctor's
office and she told us that she was more than sure that my child had
exencephaly which as you know comes to be anencephaly. I had to make
a decision on what i wanted to do about this. We went to get a
second opinion and the doctor told us the same thing. The decision I
made after doing nothing but thinking about everything was to
terminate the pregnancy. I really didnt know what to do because me
and the baby's father are not together any more and i was alone
basically in making this decision because i barely got to talk to
him about anything. I went to the hospital on Thursday and they
induced by labor in order for me to just have the baby now. (I am 16
weeks.) By Friday I had not dialated at all so they sent me home and
said to come back Sunday and they would try again. Well after hours
of crying and considering every other option I realized i wanted to
wait my until full term and just have the baby so if i could spend
any time with my child at all i would. I finally talked to the
baby's father and he wants to do the same thing. The only problem is
that i never get a chance to talk to him any more and i have noone
else that is there for me to talk to because a lot of people do not
understand why i want to do this. If there is anyone out there who
would like to just help me get through this i would really
appreciate someone to talk to about this. My screen name on yahoo is
mimib17 and my screen name on aol istant messenger is justalil2crazy
or lovemimi1717. Or you can email me at mimib17@...
Thanks,
     **~Michelle~**

Michelle i emailed you on your yahoo acc....if you
click on pictures on the anencephaly site baby faith
is there and i'm telling ya don't listin to alot of
people they make it out worse then it really is hun
just watch what pic you look at there is a folder with
a baby that was 16weeks i think please don't look at
it...they shouldn't have even posted it..faith looks
normal being she was 32 weeks she has a hat on and her
face was purple but other then that she was fine.

crystal baby faith's mommy
--- Michelle <mimib17@...> wrote:
---------------------------------


Hello everyone my name is Michelle. About a month ago
i had an
ultrasound done at about 12 weeks into my pregnancy.
The next day
me, my mother, and the baby's father got called into
my doctor's
office and she told us that she was more than sure
that my child had
exencephaly which as you know comes to be anencephaly.
I had to make
a decision on what i wanted to do about this. We went
to get a
second opinion and the doctor told us the same thing.
The decision I
made after doing nothing but thinking about everything
was to
terminate the pregnancy. I really didnt know what to
do because me
and the baby's father are not together any more and i
was alone
basically in making this decision because i barely got
to talk to
him about anything. I went to the hospital on Thursday
and they
induced by labor in order for me to just have the baby
now. (I am 16
weeks.) By Friday I had not dialated at all so they
sent me home and
said to come back Sunday and they would try again.
Well after hours
of crying and considering every other option I
realized i wanted to
wait my until full term and just have the baby so if i
could spend
any time with my child at all i would. I finally
talked to the
baby's father and he wants to do the same thing. The
only problem is
that i never get a chance to talk to him any more and
i have noone
else that is there for me to talk to because a lot of
people do not
understand why i want to do this. If there is anyone
out there who
would like to just help me get through this i would
really
appreciate someone to talk to about this. My screen
name on yahoo is
mimib17 and my screen name on aol istant messenger is
justalil2crazy
or lovemimi1717. Or you can email me at
mimib17@...
Thanks,
     **~Michelle~**








---------------------------------
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anencephaly-unsubscribe@yahoogroups.com

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______________________________________________________________________
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My name is Melissa.  On March 21, 2005 my water broke and I
delivered a child with anencephaly.  I have had the hardest time
dealing with this because I have a son with a cephalic disorder.  I
am only 23 years old and I didn't want to give up having children,
but after researching neural tube disorders I am terrified.  I was
told at the hospital that I had a little boy and for almost two
weeks I mourned what a little boy would have brought to my life.
Just recently I was told that they did a path report stating that
internal organs were female.  I have had to mourn twice because of
that mistake.  Maybe that's why I'm having such trouble dealing with
this.  I had to reprocess all of the paperwork with the funeral
home, cemetary, city coroner, and personal records.  I am interested
in knowing if this has ever happened to anyone else.  I lost a twin
with my daughter, my son has physical disorders (plural) I lost a
pregnancy after that, and then a child with anencephaly.  I almost
feel that it would be selfish to ever try again.  Why put another
human life through that in order to serve my need to have another
child?  I don't know what to think.
Anyone can write me at myltlelily@....

thanks for listening
melissa

--- In anencephaly@yahoogroups.com, "Marian" <lambsie2003@y...> wrote:
> From what I know, I have a son with a mild cephalic disorder and for
two years I have educated my self in college and in hospitals to learn
more.  I trust the NINDS website.  It is the national institute for
neurological disorders.  They say that 70% of NTD can be prevented
with folic acid taken six weeks before pregnancy and during
pregnancy.  That is a huge margin.  From what I know alot of it has to
do with folic acid and malabsorbtion.  I have sought the help of a
genetic doctor a couple of hours from where I live.  They are going to
run DNA and metabolic testing on my living son and see what they can
find out.  I am very interested in knowing.
Melissa
>
> Hi, I had a daughter stillborn in 1972 due to anencephaly. I did not
> know the cause of her death until recently. At the time I was told
> that the baby didn't develope properly and that I had carried too
> much fluid. I was huge. Melanie weighed 2lb 2oz. at 36 weeks. At a
> recent visit to my G.P. I asked the exact cause and was told it was
> anencephaly. Now my concern is, my son, (I have two sons), and his
> wife is expecting their first child, our first grandchild, and I am
> worried in case there is a chance of NTD (neural tube defect) being
> hereditary. My husband's brother when he was born had what they
> called a tail at the base of his spine, what is  in fact is colosed
> spina bifida. He is a healthy man, had no problems during his life
> because of this, and is the father of four healthy daughters.
> Are there older mothers who had a anencephaly baby and have gone on
> to have healthy children and are now proud grandparents? I would
> love to hear from anyone who could put my mind at ease.

Michelle i emailed you on your yahoo acc....if you
click on pictures on the anencephaly site baby faith
is there and i'm telling ya don't listin to alot of
people they make it out worse then it really is hun
just watch what pic you look at there is a folder with
a baby that was 16weeks i think please don't look at
it...they shouldn't have even posted it..faith looks
normal being she was 32 weeks she has a hat on and her
face was purple but other then that she was fine.

crystal baby faith's mommy
--- Michelle <mimib17@...> wrote:
---------------------------------


Hello everyone my name is Michelle. About a month ago
i had an
ultrasound done at about 12 weeks into my pregnancy.
The next day
me, my mother, and the baby's father got called into
my doctor's
office and she told us that she was more than sure
that my child had
exencephaly which as you know comes to be anencephaly.
I had to make
a decision on what i wanted to do about this. We went
to get a
second opinion and the doctor told us the same thing.
The decision I
made after doing nothing but thinking about everything
was to
terminate the pregnancy. I really didnt know what to
do because me
and the baby's father are not together any more and i
was alone
basically in making this decision because i barely got
to talk to
him about anything. I went to the hospital on Thursday
and they
induced by labor in order for me to just have the baby
now. (I am 16
weeks.) By Friday I had not dialated at all so they
sent me home and
said to come back Sunday and they would try again.
Well after hours
of crying and considering every other option I
realized i wanted to
wait my until full term and just have the baby so if i
could spend
any time with my child at all i would. I finally
talked to the
baby's father and he wants to do the same thing. The
only problem is
that i never get a chance to talk to him any more and
i have noone
else that is there for me to talk to because a lot of
people do not
understand why i want to do this. If there is anyone
out there who
would like to just help me get through this i would
really
appreciate someone to talk to about this. My screen
name on yahoo is
mimib17 and my screen name on aol istant messenger is
justalil2crazy
or lovemimi1717. Or you can email me at
mimib17@...
Thanks,
    **~Michelle~**








---------------------------------
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   To visit your group on the web, go to:
http://groups.yahoo.com/group/anencephaly/

   To unsubscribe from this group, send an email to:
anencephaly-unsubscribe@yahoogroups.com

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Terms of Service.

______________________________________________________________________
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Hi -

Given the discussions and questioned posed recently, I thought I would
pass along these web pages, which seem to have accurate and helpful
information.

http://www.chw.org/display/PPF/DocID/5833/router.asp

http://www.chg.duke.edu/patients/neural.html

I think it's important to note that there is still no absolute certainty
as to what causes anencephaly in the medical community, even though
there appears to be some possible evidence of genetic links in a few
studies (e.g., why they state a combination of genes and environmental
factors).  The Duke University web site has a section titled "The
Genetics of NTDs" which addresses the increased risk for children whose
mothers had a baby with a neural tube defect (the risk increases from
0.1% to 2-5% - still a small risk, relatively speaking).

Sabrina
Mommy to Matthew, Sarah in heaven, and Emma

Hello my name is joann and i am sorry to say yes it can run in the family my mom had a baby in 1981 he was stillbirth cause of water on the brain and she too was huge but my husbands cousin had a baby with NTD so that doubled my chance i didnt know that but i did have a normal baby with my first preg.. with my first husband my first child with my hubby now was anencephaly baby but i didnt take any folic acid the specialist told me to take folic acid at least 6 months before trying the longer you take folic acid will be better. so it really depends on the families... love always joann falor  My mom is a pround grandma of 5 grandchildren... I am the only one who had a anencephaly baby but my mom is still pround of her Danielle ..

myltlelily <myltlelily@...> wrote:

--- In anencephaly@yahoogroups.com, "Marian" <lambsie2003@y...> wrote:
> From what I know, I have a son with a mild cephalic disorder and for
two years I have educated my self in college and in hospitals to learn
more.  I trust the NINDS website.  It is the national institute for
neurological disorders.  They say that 70% of NTD can be prevented
with folic acid taken six weeks before pregnancy and during
pregnancy.  That is a huge margin.  From what I know alot of it has to
do with folic acid and malabsorbtion.  I have sought the help of a
genetic doctor a couple of hours from where I live.  They are going to
run DNA and metabolic testing on my living son and see what they can
find out.  I am very interested in knowing.
Melissa
>
> Hi, I had a daughter stillborn in 1972 due to anencephaly. I did not
> know the cause of her death until recently. At the time I was told
> that the baby didn't develope properly and that I had carried too
> much fluid. I was huge. Melanie weighed 2lb 2oz. at 36 weeks. At a
> recent visit to my G.P. I asked the exact cause and was told it was
> anencephaly. Now my concern is, my son, (I have two sons), and his
> wife is expecting their first child, our first grandchild, and I am
> worried in case there is a chance of NTD (neural tube defect) being
> hereditary. My husband's brother when he was born had what they
> called a tail at the base of his spine, what is  in fact is colosed
> spina bifida. He is a healthy man, had no problems during his life
> because of this, and is the father of four healthy daughters.
> Are there older mothers who had a anencephaly baby and have gone on
> to have healthy children and are now proud grandparents? I would
> love to hear from anyone who could put my mind at ease.

---

Do you Yahoo!?
Yahoo! Small Business - Try our new resources site!

Joann,

 

 Marie and I were wondering who told you that the fact that your husband's cousin's baby had an NTD that it doubled your chances?? We were curious was it a doctor or a genetics person??

 

 

Thanks,

 

Kimberly and Marie

 

jo falor <poohqabear@...> wrote:

Hello my name is joann and i am sorry to say yes it can run in the family my mom had a baby in 1981 he was stillbirth cause of water on the brain and she too was huge but my husbands cousin had a baby with NTD so that doubled my chance i didnt know that but i did have a normal baby with my first preg.. with my first husband my first child with my hubby now was anencephaly baby but i didnt take any folic acid the specialist told me to take folic acid at least 6 months before trying the longer you take folic acid will be better. so it really depends on the families... love always joann falor  My mom is a pround grandma of 5 grandchildren... I am the only one who had a anencephaly baby but my mom is still pround of her Danielle ..

myltlelily <myltlelily@...> wrote:

--- In anencephaly@yahoogroups.com, "Marian" <lambsie2003@y...> wrote:
> From what I know, I have a son with a mild cephalic disorder and for
two years I have educated my self in college and in hospitals to learn
more.  I trust the NINDS website.  It is the national institute for
neurological disorders.  They say that 70% of NTD can be prevented
with folic acid taken six weeks before pregnancy and during
pregnancy.  That is a huge margin.  From what I know alot of it has to
do with folic acid and malabsorbtion.  I have sought the help of a
genetic doctor a couple of hours from where I live.  They are going to
run DNA and metabolic testing on my living son and see what they can
find out.  I am very interested in knowing.
Melissa
>
> Hi, I had a daughter stillborn in 1972 due to anencephaly. I did not
> know the cause of her death until recently. At the time I was told
> that the baby didn't develope properly and that I had carried too
> much fluid. I was huge. Melanie weighed 2lb 2oz. at 36 weeks. At a
> recent visit to my G.P. I asked the exact cause and was told it was
> anencephaly. Now my concern is, my son, (I have two sons), and his
> wife is expecting their first child, our first grandchild, and I am
> worried in case there is a chance of NTD (neural tube defect) being
> hereditary. My husband's brother when he was born had what they
> called a tail at the base of his spine, what is  in fact is colosed
> spina bifida. He is a healthy man, had no problems during his life
> because of this, and is the father of four healthy daughters.
> Are there older mothers who had a anencephaly baby and have gone on
> to have healthy children and are now proud grandparents? I would
> love to hear from anyone who could put my mind at ease.

---

Do you Yahoo!?
Yahoo! Small Business - Try our new resources site!

---

Do you Yahoo!?
Yahoo! Small Business - Try our new resources site!

First of all, let me introduce my self. I'm Harry
Samputra Agus. An Indonesian Lawyer and a lecturer in
University of Indonesia is my occupation. This is my
first letter to you all. Before, My wife Amalia
actives in this group. My first doughter, Cahaya
(Enlightment) die because of this dillematic illness
and sickness.
Dillematic because it seperated to 2 situation. What
we can do or controlled and what we cannot do or even
imagined. My second son Hakim Cendekia (Knowledgable
Judge) is under our controlled. He is 100% healthy.
Heredity is not our controlled background. But folic
acid is. What in our control is "the paradigm of
causes"
--- jo falor <poohqabear@...> wrote:
> The Specialist who I go to told me that it doubbled
> cause it was on mu side and my husbands side..
>
> Joann,
>
>  Marie and I were wondering who told you that the
> fact that your husband's cousin's baby had an NTD
> that it doubled your chances?? We were curious was
> it a doctor or a genetics person??
>
>
> Thanks,
>
> Kimberly and Marie
>
>
> --- In anencephaly@yahoogroups.com, "Marian"
> <lambsie2003@y...> wrote:
> > From what I know, I have a son with a mild
> cephalic disorder and for
> two years I have educated my self in college and in
> hospitals to learn
> more.  I trust the NINDS website.  It is the
> national institute for
> neurological disorders.  They say that 70% of NTD
> can be prevented
> with folic acid taken six weeks before pregnancy and
> during
> pregnancy.  That is a huge margin.  From what I know
> alot of it has to
> do with folic acid and malabsorbtion.  I have sought
> the help of a
> genetic doctor a couple of hours from where I live.
> They are going to
> run DNA and metabolic testing on my living son and
> see what they can
> find out.  I am very interested in knowing.
> Melissa
> >
> > Hi, I had a daughter stillborn in 1972 due to
> anencephaly. I did not
> > know the cause of her death until recently. At the
> time I was told
> > that the baby didn't develope properly and that I
> had carried too
> > much fluid. I was huge. Melanie weighed 2lb 2oz.
> at 36 weeks. At a
> > recent visit to my G.P. I asked the exact cause
> and was told it was
> > anencephaly. Now my concern is, my son, (I have
> two sons), and his
> > wife is expecting their first child, our first
> grandchild, and I am
> > worried in case there is a chance of NTD (neural
> tube defect) being
> > hereditary. My husband's brother when he was born
> had what they
> > called a tail at the base of his spine, what is
> in fact is colosed
> > spina bifida. He is a healthy man, had no problems
> during his life
> > because of this, and is the father of four healthy
> daughters.
> > Are there older mothers who had a anencephaly baby
> and have gone on
> > to have healthy children and are now proud
> grandparents? I would
> > love to hear from anyone who could put my mind at
> ease.
>
>
>
>
>
>
>
>
>
> ---------------------------------
> Do you Yahoo!?
> Yahoo! Small Business - Try our new resources site!
>
> ---------------------------------
> Do you Yahoo!?
> Yahoo! Small Business - Try our new resources site!
>
> ---------------------------------
> Yahoo! Groups Links
>
>    To visit your group on the web, go to:
> http://groups.yahoo.com/group/anencephaly/
>
>    To unsubscribe from this group, send an email to:
> anencephaly-unsubscribe@yahoogroups.com
>
>    Your use of Yahoo! Groups is subject to the
> Yahoo! Terms of Service.
>
>
>
>
> ---------------------------------
> Do you Yahoo!?
>  Yahoo! Small Business - Try our new resources site!



__________________________________
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The Specialist who I go to told me that it doubbled cause it was on mu side and my husbands side..

Joann,

 

 Marie and I were wondering who told you that the fact that your husband's cousin's baby had an NTD that it doubled your chances?? We were curious was it a doctor or a genetics person??

 

 

Thanks,

 

Kimberly and Marie

 

--- In anencephaly@yahoogroups.com, "Marian" <lambsie2003@y...> wrote:
> From what I know, I have a son with a mild cephalic disorder and for
two years I have educated my self in college and in hospitals to learn
more.  I trust the NINDS website.  It is the national institute for
neurological disorders.  They say that 70% of NTD can be prevented
with folic acid taken six weeks before pregnancy and during
pregnancy.  That is a huge margin.  From what I know alot of it has to
do with folic acid and malabsorbtion.  I have sought the help of a
genetic doctor a couple of hours from where I live.  They are going to
run DNA and metabolic testing on my living son and see what they can
find out.  I am very interested in knowing.
Melissa
>
> Hi, I had a daughter stillborn in 1972 due to anencephaly. I did not
> know the cause of her death until recently. At the time I was told
> that the baby didn't develope properly and that I had carried too
> much fluid. I was huge. Melanie weighed 2lb 2oz. at 36 weeks. At a
> recent visit to my G.P. I asked the exact cause and was told it was
> anencephaly. Now my concern is, my son, (I have two sons), and his
> wife is expecting their first child, our first grandchild, and I am
> worried in case there is a chance of NTD (neural tube defect) being
> hereditary. My husband's brother when he was born had what they
> called a tail at the base of his spine, what is  in fact is colosed
> spina bifida. He is a healthy man, had no problems during his life
> because of this, and is the father of four healthy daughters.
> Are there older mothers who had a anencephaly baby and have gone on
> to have healthy children and are now proud grandparents? I would
> love to hear from anyone who could put my mind at ease.

---

Do you Yahoo!?
Yahoo! Small Business - Try our new resources site!

---

Do you Yahoo!?
Yahoo! Small Business - Try our new resources site!

---

Do you Yahoo!?
Yahoo! Small Business - Try our new resources site!

First of all, let me introduce my self. I'm Harry
Samputra Agus. An Indonesian Lawyer and a lecturer in
University of Indonesia is my occupation. This is my
first letter to you all. Before, My wife Amalia
actives in this group. My first doughter, Cahaya
(Enlightment) die because of this dillematic illness
and sickness.
Dillematic because it seperated to 2 situation. What
we can do or controlled and what we cannot do or even
imagined. My second son Hakim Cendekia (Knowledgable
Judge) is under our controlled. He is 100% healthy.
Heredity is not our controlled background. But folic
acid is. What in our control is "the paradigm of
causes"
--- jo falor <poohqabear@...> wrote:
> The Specialist who I go to told me that it doubbled
> cause it was on mu side and my husbands side..
>
> Joann,
> 
>  Marie and I were wondering who told you that the
> fact that your husband's cousin's baby had an NTD
> that it doubled your chances?? We were curious was
> it a doctor or a genetics person??
> 
> 
> Thanks,
> 
> Kimberly and Marie
> 
>
> --- In anencephaly@yahoogroups.com, "Marian"
> <lambsie2003@y...> wrote:
> > From what I know, I have a son with a mild
> cephalic disorder and for
> two years I have educated my self in college and in
> hospitals to learn
> more.  I trust the NINDS website.  It is the
> national institute for
> neurological disorders.  They say that 70% of NTD
> can be prevented
> with folic acid taken six weeks before pregnancy and
> during
> pregnancy.  That is a huge margin.  From what I know
> alot of it has to
> do with folic acid and malabsorbtion.  I have sought
> the help of a
> genetic doctor a couple of hours from where I live.
> They are going to
> run DNA and metabolic testing on my living son and
> see what they can
> find out.  I am very interested in knowing.
> Melissa
> >
> > Hi, I had a daughter stillborn in 1972 due to
> anencephaly. I did not
> > know the cause of her death until recently. At the
> time I was told
> > that the baby didn't develope properly and that I
> had carried too
> > much fluid. I was huge. Melanie weighed 2lb 2oz.
> at 36 weeks. At a
> > recent visit to my G.P. I asked the exact cause
> and was told it was
> > anencephaly. Now my concern is, my son, (I have
> two sons), and his
> > wife is expecting their first child, our first
> grandchild, and I am
> > worried in case there is a chance of NTD (neural
> tube defect) being
> > hereditary. My husband's brother when he was born
> had what they
> > called a tail at the base of his spine, what is
> in fact is colosed
> > spina bifida. He is a healthy man, had no problems
> during his life
> > because of this, and is the father of four healthy
> daughters.
> > Are there older mothers who had a anencephaly baby
> and have gone on
> > to have healthy children and are now proud
> grandparents? I would
> > love to hear from anyone who could put my mind at
> ease.
>
>
>
>
>
>
>
>
>
> ---------------------------------
> Do you Yahoo!?
> Yahoo! Small Business - Try our new resources site!
>
> ---------------------------------
> Do you Yahoo!?
> Yahoo! Small Business - Try our new resources site!
>
> ---------------------------------
> Yahoo! Groups Links
>
>    To visit your group on the web, go to:
> http://groups.yahoo.com/group/anencephaly/
>  
>    To unsubscribe from this group, send an email to:
> anencephaly-unsubscribe@yahoogroups.com
>  
>    Your use of Yahoo! Groups is subject to the
> Yahoo! Terms of Service.
>
>
>
>            
> ---------------------------------
> Do you Yahoo!?
>  Yahoo! Small Business - Try our new resources site!


           
__________________________________
Yahoo! Mail Mobile
Take Yahoo! Mail with you! Check email on your mobile phone.
http://mobile.yahoo.com/learn/mail

Joann,

 

 Marie and I were wondering who told you that the fact that your husband's cousin's baby had an NTD that it doubled your chances?? We were curious was it a doctor or a genetics person??

 

 

Thanks,

 

Kimberly and Marie

 

jo falor <poohqabear@...> wrote:

Hello my name is joann and i am sorry to say yes it can run in the family my mom had a baby in 1981 he was stillbirth cause of water on the brain and she too was huge but my husbands cousin had a baby with NTD so that doubled my chance i didnt know that but i did have a normal baby with my first preg.. with my first husband my first child with my hubby now was anencephaly baby but i didnt take any folic acid the specialist told me to take folic acid at least 6 months before trying the longer you take folic acid will be better. so it really depends on the families... love always joann falor  My mom is a pround grandma of 5 grandchildren... I am the only one who had a anencephaly baby but my mom is still pround of her Danielle ..

myltlelily <myltlelily@...> wrote:

--- In anencephaly@yahoogroups.com, "Marian" <lambsie2003@y...> wrote:
> From what I know, I have a son with a mild cephalic disorder and for
two years I have educated my self in college and in hospitals to learn
more.  I trust the NINDS website.  It is the national institute for
neurological disorders.  They say that 70% of NTD can be prevented
with folic acid taken six weeks before pregnancy and during
pregnancy.  That is a huge margin.  From what I know alot of it has to
do with folic acid and malabsorbtion.  I have sought the help of a
genetic doctor a couple of hours from where I live.  They are going to
run DNA and metabolic testing on my living son and see what they can
find out.  I am very interested in knowing.
Melissa
>
> Hi, I had a daughter stillborn in 1972 due to anencephaly. I did not
> know the cause of her death until recently. At the time I was told
> that the baby didn't develope properly and that I had carried too
> much fluid. I was huge. Melanie weighed 2lb 2oz. at 36 weeks. At a
> recent visit to my G.P. I asked the exact cause and was told it was
> anencephaly. Now my concern is, my son, (I have two sons), and his
> wife is expecting their first child, our first grandchild, and I am
> worried in case there is a chance of NTD (neural tube defect) being
> hereditary. My husband's brother when he was born had what they
> called a tail at the base of his spine, what is  in fact is colosed
> spina bifida. He is a healthy man, had no problems during his life
> because of this, and is the father of four healthy daughters.
> Are there older mothers who had a anencephaly baby and have gone on
> to have healthy children and are now proud grandparents? I would
> love to hear from anyone who could put my mind at ease.

---

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Hello everyone my name is Michelle. About a month ago i had an
ultrasound done at about 12 weeks into my pregnancy. The next day
me, my mother, and the baby's father got called into my doctor's
office and she told us that she was more than sure that my child had
exencephaly which as you know comes to be anencephaly. I had to make
a decision on what i wanted to do about this. We went to get a
second opinion and the doctor told us the same thing. The decision I
made after doing nothing but thinking about everything was to
terminate the pregnancy. I really didnt know what to do because me
and the baby's father are not together any more and i was alone
basically in making this decision because i barely got to talk to
him about anything. I went to the hospital on Thursday and they
induced by labor in order for me to just have the baby now. (I am 16
weeks.) By Friday I had not dialated at all so they sent me home and
said to come back Sunday and they would try again. Well after hours
of crying and considering every other option I realized i wanted to
wait my until full term and just have the baby so if i could spend
any time with my child at all i would. I finally talked to the
baby's father and he wants to do the same thing. The only problem is
that i never get a chance to talk to him any more and i have noone
else that is there for me to talk to because a lot of people do not
understand why i want to do this. If there is anyone out there who
would like to just help me get through this i would really
appreciate someone to talk to about this. My screen name on yahoo is
mimib17 and my screen name on aol istant messenger is justalil2crazy
or lovemimi1717. Or you can email me at mimib17@...
Thanks,
    **~Michelle~**

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Dear Pak Harry ..

Thak you for your information, so far as we know there
are some reason why a baby got anencephaly, please let
me know if we are wrong. One of them is caused by
deficiency of folic acid,  second could be caused by
toxoplasm, third caused by disparity of chromosom. The
two first could be controlled by ourselves, however
the third one must involved genetic experts to
overcome.

We do not know , it is dangerous or not if we give the
mother more & more folic acid. Our doctor say it is
okay, but we in doubting indeed.

Regards.

--- Harry Agus <harry_agus@...> wrote:

---------------------------------
First of all, let me introduce my self. I'm Harry
Samputra Agus. An Indonesian Lawyer and a lecturer in
University of Indonesia is my occupation. This is my
first letter to you all. Before, My wife Amalia
actives in this group. My first doughter, Cahaya
(Enlightment) die because of this dillematic illness
and sickness.
Dillematic because it seperated to 2 situation. What
we can do or controlled and what we cannot do or even
imagined. My second son Hakim Cendekia (Knowledgable
Judge) is under our controlled. He is 100% healthy.
Heredity is not our controlled background. But folic
acid is. What in our control is "the paradigm of
causes"
--- jo falor <poohqabear@...> wrote:
> The Specialist who I go to told me that it doubbled
> cause it was on mu side and my husbands side..
>
> Joann,
>
>  Marie and I were wondering who told you that the
> fact that your husband's cousin's baby had an NTD
> that it doubled your chances?? We were curious was
> it a doctor or a genetics person??
>
>
> Thanks,
>
> Kimberly and Marie
>
>
> --- In anencephaly@yahoogroups.com, "Marian"
> <lambsie2003@y...> wrote:
> > From what I know, I have a son with a mild
> cephalic disorder and for
> two years I have educated my self in college and in
> hospitals to learn
> more.  I trust the NINDS website.  It is the
> national institute for
> neurological disorders.  They say that 70% of NTD
> can be prevented
> with folic acid taken six weeks before pregnancy and
> during
> pregnancy.  That is a huge margin.  From what I know
> alot of it has to
> do with folic acid and malabsorbtion.  I have sought
> the help of a
> genetic doctor a couple of hours from where I live.
> They are going to
> run DNA and metabolic testing on my living son and
> see what they can
> find out.  I am very interested in knowing.
> Melissa
> >
> > Hi, I had a daughter stillborn in 1972 due to
> anencephaly. I did not
> > know the cause of her death until recently. At the
> time I was told
> > that the baby didn't develope properly and that I
> had carried too
> > much fluid. I was huge. Melanie weighed 2lb 2oz.
> at 36 weeks. At a
> > recent visit to my G.P. I asked the exact cause
> and was told it was
> > anencephaly. Now my concern is, my son, (I have
> two sons), and his
> > wife is expecting their first child, our first
> grandchild, and I am
> > worried in case there is a chance of NTD (neural
> tube defect) being
> > hereditary. My husband's brother when he was born
> had what they
> > called a tail at the base of his spine, what is
> in fact is colosed
> > spina bifida. He is a healthy man, had no problems
> during his life
> > because of this, and is the father of four healthy
> daughters.
> > Are there older mothers who had a anencephaly baby
> and have gone on
> > to have healthy children and are now proud
> grandparents? I would
> > love to hear from anyone who could put my mind at
> ease.
>
>
>
>
>
>
>
>
>
> ---------------------------------
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>
> ---------------------------------
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>
> ---------------------------------
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>
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>
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Dear Pak Harry ..
Thak you for your information, so far as we know there
are some reason why a baby got anencephaly, please let
me know if we are wrong. One of them is caused by
deficiency of folic acid, second could be caused by
toxoplasm, third caused by disparity of chromosom. The
two first could be controlled by ourselves, however
the third one must involved genetic experts to
overcome.
We do not know , it is dangerous or not if we give the
mother more & more folic acid. Our doctor say it is
okay, but we in doubting indeed.
Regards. --- Harry Agus <harry_agus@...> wrote:
---------------------------------
First of all, let me introduce my self. I'm Harry
Samputra Agus. An Indonesian Lawyer and a lecturer in
University of Indonesia is my occupation. This is my
first letter to you all. Before, My wife Amalia
actives in this group. My first doughter, Cahaya
(Enlightment) die because of this dillematic illness
and sickness.
Dillematic because it seperated to 2 situation. What
we can do or controlled and what we cannot do or even
imagined. My second son Hakim Cendekia (Knowledgable
Judge) is under our controlled. He is 100% healthy.
Heredity is not our controlled background. But folic
acid is. What in our control is "the paradigm of
causes"
--- jo falor <poohqabear@...> wrote:

The Specialist who I go to told me that it doubbled
cause it was on mu side and my husbands side..
Joann,
Marie and I were wondering who told you that the
fact that your husband's cousin's baby had an NTD
that it doubled your chances?? We were curious was
it a doctor or a genetics person??
Thanks,
Kimberly and Marie
--- In anencephaly@yahoogroups.com, "Marian"
<lambsie2003@y...> wrote:

From what I know, I have a son with a mild

cephalic disorder and for two years I have educated my self in college and in
hospitals to learn more. I trust the NINDS website. It is the
national institute for neurological disorders. They say that 70% of NTD
can be prevented with folic acid taken six weeks before pregnancy and
during pregnancy. That is a huge margin. From what I know
alot of it has to do with folic acid and malabsorbtion. I have sought
the help of a genetic doctor a couple of hours from where I live. They are going to run DNA and metabolic testing on my living son and
see what they can find out. I am very interested in knowing.
Melissa

Hi, I had a daughter stillborn in 1972 due to

anencephaly. I did not 

know the cause of her death until recently. At the

time I was told 

that the baby didn't develope properly and that I

had carried too 

much fluid. I was huge. Melanie weighed 2lb 2oz.

at 36 weeks. At a 

recent visit to my G.P. I asked the exact cause

and was told it was 

anencephaly. Now my concern is, my son, (I have

two sons), and his 

wife is expecting their first child, our first

grandchild, and I am 

worried in case there is a chance of NTD (neural

tube defect) being 

hereditary. My husband's brother when he was born

had what they 

called a tail at the base of his spine, what is 

in fact is colosed 

spina bifida. He is a healthy man, had no problems

during his life 

because of this, and is the father of four healthy

daughters.

Are there older mothers who had a anencephaly baby

and have gone on 

to have healthy children and are now proud

grandparents? I would 

love to hear from anyone who could put my mind at

ease.
---------------------------------
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My name is Molly. I just today found this message bord.I have been
reading through some of the messages and have found them helpfull. I
had a son on 3/27/05 that was anencephaly. This is what happened I
went in for my 20 week check up and sonogram on 3/25 to see if the
baby was a boy or girl and to make sure every thing was going right.
Keep in mind my husband had to work due to he was saving all his
vacation time for when I had the baby. When they where doing the
sonogram they noticed that the baby was anencephaly. When they told
me my heart broke in two. They called my husband to come be with me.
When he got to the hospital where my doctors app. was they gave us
the most difficult decision of our lives of what to do. They gave us
the choise to have him then, wait (Have to have a c-section due to he
would have been to big to have natraly.), or wait and see if I
misscared. We chose to have my son at that time. The hardest part
about all of this is knowig that my son still had a heart beat and
was moving around. On 3/25 they addmited me in to the hospital and
for the next two day I was in and out of labor till 7:20am on Easter
sunday may son (Leo John Edward)was born(stillborn).
  My doctor has now put me on 4mg of folic acid. Does anyone know if
there is any thing else I can do to make sure this does not happen
again? Also do you know the chances of it happening twice to someone?
I wish this had happened due to something I had done or because of
genetics, but I ate right and took the vitamins I was supose to exept
I only took 800mcg of folic acid. There is no family history of this
happening in both my family and my husbands. Does anyone know if
birth control pills have any thing to do with what causes this? I ask
this because I was just off birth control two weeks when I got
pregnet and not knowing if the pills had any thing to do with what
happened to Leo I will not go back on them till after I have a nother
baby. If anyone can answers to these questions please let me know.

Leo's mom

hello,

im so sorry to hear your story.

my gp gave me the extra folic acid to take after i had my anecephalic
daughter, Holly in 2002. i was also told that there is no particular reason
for this to happen, and that i was just unlucky.

i now have a son, who with both my daughters, i cherish with all my heart.

take care of yourself, leo will be also taking care of you too

evonne
xxx
----- Original Message -----
From: "Edward" <edmollyrex@...>
To: <anencephaly@yahoogroups.com>
Sent: Thursday, April 21, 2005 10:35 PM
Subject: [anencephaly] Anencephaly 3/27/05


>
>
>
> My name is Molly. I just today found this message bord.I have been
> reading through some of the messages and have found them helpfull. I
> had a son on 3/27/05 that was anencephaly. This is what happened I
> went in for my 20 week check up and sonogram on 3/25 to see if the
> baby was a boy or girl and to make sure every thing was going right.
> Keep in mind my husband had to work due to he was saving all his
> vacation time for when I had the baby. When they where doing the
> sonogram they noticed that the baby was anencephaly. When they told
> me my heart broke in two. They called my husband to come be with me.
> When he got to the hospital where my doctors app. was they gave us
> the most difficult decision of our lives of what to do. They gave us
> the choise to have him then, wait (Have to have a c-section due to he
> would have been to big to have natraly.), or wait and see if I
> misscared. We chose to have my son at that time. The hardest part
> about all of this is knowig that my son still had a heart beat and
> was moving around. On 3/25 they addmited me in to the hospital and
> for the next two day I was in and out of labor till 7:20am on Easter
> sunday may son (Leo John Edward)was born(stillborn).
> My doctor has now put me on 4mg of folic acid. Does anyone know if
> there is any thing else I can do to make sure this does not happen
> again? Also do you know the chances of it happening twice to someone?
> I wish this had happened due to something I had done or because of
> genetics, but I ate right and took the vitamins I was supose to exept
> I only took 800mcg of folic acid. There is no family history of this
> happening in both my family and my husbands. Does anyone know if
> birth control pills have any thing to do with what causes this? I ask
> this because I was just off birth control two weeks when I got
> pregnet and not knowing if the pills had any thing to do with what
> happened to Leo I will not go back on them till after I have a nother
> baby. If anyone can answers to these questions please let me know.
>
> Leo's mom
>
>
>
>
>
>
>
>
>
>
> Yahoo! Groups Links
>
>
>
>
>
>
>
>

My name is Molly. I just today found this message bord.I have been
reading through some of the messages and have found them helpfull. I
had a son on 3/27/05 that was anencephaly. This is what happened I
went in for my 20 week check up and sonogram on 3/25 to see if the
baby was a boy or girl and to make sure every thing was going right.
Keep in mind my husband had to work due to he was saving all his
vacation time for when I had the baby. When they where doing the
sonogram they noticed that the baby was anencephaly. When they told
me my heart broke in two. They called my husband to come be with me.
When he got to the hospital where my doctors app. was they gave us
the most difficult decision of our lives of what to do. They gave us
the choise to have him then, wait (Have to have a c-section due to he
would have been to big to have natraly.), or wait and see if I
misscared. We chose to have my son at that time. The hardest part
about all of this is knowig that my son still had a heart beat and
was moving around. On 3/25 they addmited me in to the hospital and
for the next two day I was in and out of labor till 7:20am on Easter
sunday may son (Leo John Edward)was born(stillborn).
My doctor has now put me on 4mg of folic acid. Does anyone know if
there is any thing else I can do to make sure this does not happen
again? Also do you know the chances of it happening twice to someone?
I wish this had happened due to something I had done or because of
genetics, but I ate right and took the vitamins I was supose to exept
I only took 800mcg of folic acid. There is no family history of this
happening in both my family and my husbands. Does anyone know if
birth control pills have any thing to do with what causes this? I ask
this because I was just off birth control two weeks when I got
pregnet and not knowing if the pills had any thing to do with what
happened to Leo I will not go back on them till after I have a nother
baby. If anyone can answers to these questions please let me know.

Leo's mom

__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

My name is Molly. I just today found this message bord.I have been
reading through some of the messages and have found them helpfull. I
had a son on 3/27/05 that was anencephaly. This is what happened I
went in for my 20 week check up and sonogram on 3/25 to see if the
baby was a boy or girl and to make sure every thing was going right.
Keep in mind my husband had to work due to he was saving all his
vacation time for when I had the baby. When they where doing the
sonogram they noticed that the baby was anencephaly. When they told
me my heart broke in two. They called my husband to come be with me.
When he got to the hospital where my doctors app. was they gave us
the most difficult decision of our lives of what to do. They gave us
the choise to have him then, wait (Have to have a c-section due to he
would have been to big to have natraly.), or wait and see if I
misscared. We chose to have my son at that time. The hardest part
about all of this is knowig that my son still had a heart beat and
was moving around. On 3/25 they addmited me in to the hospital and
for the next two day I was in and out of labor till 7:20am on Easter
sunday may son (Leo John Edward)was born(stillborn).
My doctor has now put me on 4mg of folic acid. Does anyone know if
there is any thing else I can do to make sure this does not happen
again? Also do you know the chances of it happening twice to someone?
I wish this had happened due to something I had done or because of
genetics, but I ate right and took the vitamins I was supose to exept
I only took 800mcg of folic acid. There is no family history of this
happening in both my family and my husbands. Does anyone know if
birth control pills have any thing to do with what causes this? I ask
this because I was just off birth control two weeks when I got
pregnet and not knowing if the pills had any thing to do with what
happened to Leo I will not go back on them till after I have a nother
baby. If anyone can answers to these questions please let me know.

Leo's mom

-----Original Message-----
From: anencephaly@yahoogroups.com [mailto:anencephaly@yahoogroups.com]On Behalf Of Edward
Sent: Friday, 22 April 2005 7:35 AM
To: anencephaly@yahoogroups.com
Subject: [anencephaly] Anencephaly 3/27/05

My name is Molly. I just today found this message bord.I have been
reading through some of the messages and have found them helpfull. I
had a son on 3/27/05 that was anencephaly. This is what happened I
went in for my 20 week check up and sonogram on 3/25 to see if the
baby was a boy or girl and to make sure every thing was going right.
Keep in mind my husband had to work due to he was saving all his
vacation time for when I had the baby. When they where doing the
sonogram they noticed that the baby was anencephaly. When they told
me my heart broke in two. They called my husband to come be with me.
When he got to the hospital where my doctors app. was they gave us
the most difficult decision of our lives of what to do. They gave us
the choise to have him then, wait (Have to have a c-section due to he
would have been to big to have natraly.), or wait and see if I
misscared. We chose to have my son at that time. The hardest part
about all of this is knowig that my son still had a heart beat and
was moving around. On 3/25 they addmited me in to the hospital and
for the next two day I was in and out of labor till 7:20am on Easter
sunday may son (Leo John Edward)was born(stillborn).
My doctor has now put me on 4mg of folic acid. Does anyone know if
there is any thing else I can do to make sure this does not happen
again? Also do you know the chances of it happening twice to someone?
I wish this had happened due to something I had done or because of
genetics, but I ate right and took the vitamins I was supose to exept
I only took 800mcg of folic acid. There is no family history of this
happening in both my family and my husbands. Does anyone know if
birth control pills have any thing to do with what causes this? I ask
this because I was just off birth control two weeks when I got
pregnet and not knowing if the pills had any thing to do with what
happened to Leo I will not go back on them till after I have a nother
baby. If anyone can answers to these questions please let me know.

Leo's mom

Molly,

How I wish that you didn't have to go through this. First of all I am very sorry for you loss. Like you I too lost a son to Anencephaly. I carried to almost turm though. I found out through the alpha fetal protien test though. It is hard to make the choice to go to turm because it wasn't what I wanted. My husband is in the military and our insurance would not pay for an induction before 38 weeks (unless it was indangering my life.) I went on to 35 weeks and 5 days. I was huge because I had to much amniotic fliud. I wish that I had all the answers to make all of this go away for you and me and all of the other women that go through this. But there are no magic answers. No one knows what causes anencephaly. The can make guesses but there are no garenties. I have had 3 children and then this. Yeah it is hard to deal with. Some nights I lie awake and cry cause I just wanted to have a baby with my husband. I just wanted my kids to know they'er brother Jacob. I know that this is not easy for you. But some times it is nice to know that you have your own personal angel to watch over you. Please take care and know that there are people that you can talk to. If you ever need to talk e mail me at jamifrakes@...

Jami missing Jacob 6-10-04

__________________________________________________
Do You Yahoo!?
Tired of spam? Yahoo! Mail has the best spam protection around
http://mail.yahoo.com

My name is Molly. I just today found this message bord.I have been
reading through some of the messages and have found them helpfull. I
had a son on 3/27/05 that was anencephaly. This is what happened I
went in for my 20 week check up and sonogram on 3/25 to see if the
baby was a boy or girl and to make sure every thing was going right.
Keep in mind my husband had to work due to he was saving all his
vacation time for when I had the baby. When they where doing the
sonogram they noticed that the baby was anencephaly. When they told
me my heart broke in two. They called my husband to come be with me.
When he got to the hospital where my doctors app. was they gave us
the most difficult decision of our lives of what to do. They gave us
the choise to have him then, wait (Have to have a c-section due to he
would have been to big to have natraly.), or wait and see if I
misscared. We chose to have my son at that time. The hardest part
about all of this is knowig that my son still had a heart beat and
was moving around. On 3/25 they addmited me in to the hospital and
for the next two day I was in and out of labor till 7:20am on Easter
sunday may son (Leo John Edward)was born(stillborn).
My doctor has now put me on 4mg of folic acid. Does anyone know if
there is any thing else I can do to make sure this does not happen
again? Also do you know the chances of it happening twice to someone?
I wish this had happened due to something I had done or because of
genetics, but I ate right and took the vitamins I was supose to exept
I only took 800mcg of folic acid. There is no family history of this
happening in both my family and my husbands. Does anyone know if
birth control pills have any thing to do with what causes this? I ask
this because I was just off birth control two weeks when I got
pregnet and not knowing if the pills had any thing to do with what
happened to Leo I will not go back on them till after I have a nother
baby. If anyone can answers to these questions please let me know.

Leo's mom

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Hello everyone!  It's me, Marie.  I will try to make this update as short as
I can.  I have not been on here since September, I think.  My cousin,
Kimberly who is a part of the anencephaly group has checked my emails and
told me a few of the posts and that there have been several new members that
have had misfortunes of their own.  I am terribly sorry for all of the
experiences but I hope to get to know you and feel that we can lean on each
other.  I will try to look through as many recent posts as I can so that I
know what is going on.

As for me...  Oh my, where do I begin?!  I have made such great friends from
my yahoo groups over the past couple of years since my loss and oh how I
have missed you all terribly over the past few months.  Since I have posted
last, my wonderful little Matthew has turned 3 (January, 28) and he became a
big brother for the second time on November 6, 2004.  The first time was
March 17, 2003 when his sister Brianna was born into Heaven due to
anencephaly.  I needed you all so much during the last couple of months of
my last pregnancy.  I felt a little guilty and still have an uneasy time
with my thoughts of Brianna and my new little guy that came after her.  By
the way his name is Drew (Andrew Bryan).  After having her I veiwed every
milestone of Matthew's as....."Ok Matthew turned 3 and he should have a
little sister that will be 2 in July (that was my due date).  Now I do the
same with Drew.  So now Brianna is a little sister AND a big sister.  I just
can't wait for the day that I can explain all this to my boys and they can
understand that they have a sister too.  It hurts so much not to have a
little girl here with me.  But I would not trade my little guys for anything
in the world either.

I suppose I should stop before I write a novel.  I will send you pictures
soon and hope that all is well with everyone of you.  Remember, I am here
for everyone and I would love to meet the new~b's.



Take care,
Marie

Mommy to my angels
Matthew 3
Brianna-In Heaven
Drew almost 6 months

Philosophy about life, live it well....

GREAT TRUTHS THAT LITTLE CHILDREN HAVE LEARNED:
1) No matter how hard you try, you can't baptize cats.
2) When your Mom is mad at your Dad, don't let her brush your hair.
3) If your sister hits you, don't hit her back. They always catch the
second person.
4) Never ask your 3-year old brother to hold a tomato.
5) You can't trust dogs to watch your food.
6) Don't sneeze when someone is cutting your hair.
7) Never hold a Dust-Buster and a cat at the same time.
8) You can't hide a piece of broccoli in a glass of milk.
9) Don't wear polka-dot underwear under white shorts.
10) The best place to be when you're sad is Grandpa's lap.

GREAT TRUTHS THAT ADULTS HAVE LEARNED:
1) Raising teenagers is like nailing Jell-O to a tree.
2) Wrinkles don't hurt.
3) Families are like fudge...mostly sweet, with a few nuts.
4) Today's mighty oak is just yesterday's nut that held its ground.
5) Laughing is good exercise. It's like jogging on the inside.
6) Middle age is when you choose your cereal for the fiber, not the
toy.

GREAT TRUTHS ABOUT GROWING OLD
1) Growing old is mandatory; growing up is optional.
2) Forget the health food. I need all the preservatives I can get.
3) When you fall down, you wonder what else you can do while you're
down
there.
4) You're getting old when you get the same sensation from a rocking>chair
that you once got from a roller coaster.
5) It's frustrating when you know all the answers but nobody bothers to
ask
you the questions.
6) Time may be a great healer, but it's a lousy beautician.
7) Wisdom comes with age, but sometimes age comes alone.

THE FOUR STAGES OF LIFE:

1) You believe in Santa Claus.
2) You don't believe in Santa Claus.
3) You are Santa Claus.
4) You look like Santa Claus.

SUCCESS:

At age 4 success is . . not peeing in your pants.
At age 12 success is . having friends.
At age 16 success is . . . having a drivers license.
At age 35 success is . having money.
At age 50 success is . . . having money.
At age 75 success is . having friends.
At age 80 success is . not peeing in your pants.

Pass this on to someone who could use a laugh.

Always remember to forget the troubles that pass your way; BUT NEVER
forget
the blessings that come each day.
Have a wonderful day with many *smiles*