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2 neural tube defects   Message List  
Reply | Forward Message #490 of 2283 |
Re: [anencephaly] 2 neural tube defects

yes i have heard of it happening twice but not three
time.just trust in God and he will give you the
strength.at 10 weeks request a level II ultrasound to
see if anything shows up.they say the earliest
detection has been at 10 weeks.i am sorry you are
having such a horrible time.i am alittle confused are
you going to have to get a hystorictomy(sp)or are you
going to be able to try again to have a baby
first?also i know it is not the same but there is
alway adoption.also if you go threw the treatments of
fertility you will be closer monitored and possibly
find out sooner.i hope you the best and you are in my
prayers,take care sweetie sending sweet angel kisses
^*^
--- "jousephinee <bizou4041@...>"
<bizou4041@...> wrote:
> I've been thru a terrible ordeal. Newly married, I
> was pregnant with
> my 1st baby early June of 1999, found out when I
> was 5 1/2 months my
> baby boy has servere Spinabifida. I didn't start
> folic acid till I
> was pregnant, didn't know you have to start before.
> Baby had "water
> on the brain" along with many many other problems.
> Doctor insisted I
> have a termination. I had to wait another month for
> a specialist,
> who was on vacation, to come back to prefrom the
> termination cause I
> was too far along. so I underwent a horrific
> termination at 6 1/2
> months. then after motnhs of reassurance by my
> doctor this is a
> fluke and won't happen again. I got pregnant in
> April of 2001, was
> always sick as well, finally went to crucial
> ultrasound in Aug I was
> little over 4 months, I was in complete shock when
> the technician
> left the ultrasound room and the next thing I know
> my Doctor, who was
> secretly called on another phone, came running into
> tell me this baby
> (boy) was NOT compatible with life and had
> anencephaly. this time I
> had been experiencing some pain in my uterus, and it
> turned out the
> back of my baby's incomplete skull was "cutting"
> into my uterus. I
> underwent an emergency termination (next Day), with
> a few stitches in
> uterus lining Doctor said my uetris will be ok.
> well girls where do
> I go from here? I went to 3 specialists they all
> told me that they
> were both "fluke" occurances, chromosomes testing on
> both fetuses
> were surprisingly normal, even though the babys
> weren't normal. not
> genetic defects. I don't have anything like this
> inmy family ,
> except for 1 cousin with autism. and neither does
> my husband. I am
> now 32 and he is 37. They say this doesn't happen
> twice, but I've
> been thru a "Nightmare", I got the courage to try
> again , since the
> doc said I am still very young, I have been trying
> to get preggy
> since last sept. I was on a higher dosage of folic
> acid my 2nd
> pregnancy by the way and took this folic acid for a
> whole year before
> even getting pregnant the 2nd time. I just had a
> "dye" test HSG
> where they xray your uterus, 10days ago to see what
> the delay is in
> getting pregnant (last times got pregnant within 2
> months). and the
> tubes are fine but they found excessive scar tissue
> due to the 2
> second trimster terminations. I also have a
> fibroid, which the
> doctor is not going to bother with now. and a "nip
> here and tuck
> there" (hysteroscopy) and doc says I should be as
> good as new. I
> went to several specialists on my own, and my doctor
> sent me to a few
> as well. all opinions are the same: I am normal,
> chromos are
> normal, these are "flukes" and at worse case senario
> I have only a
> 25% chance of this happening again. I keep having
> the same nightmare
> over and over again about the ultra sound being bad
> again. I wake up
> scared. by morning things don't seem too bad, I
> feel I can try
> again. what happened to me doesn't mean this will
> happen to you, my
> own doctor has been good, and "on top" of things,
> she is shocked
> herself. all factors indicate I should try again.
> Just answer two
> questions "why me"? and "if anyone knows of this
> happening 3 times"?
> my email is bizou4041@... would love to
> chat with you gals,
> I am new and yes "experienced" (dry humor)
>
> Jousephine
>
>
>


=====
love,Suzette mom to ^0^Gabriel ~~~~No heartache compares with the death of one
small child ,God knows how much we need them,and so He takes but few to make His
land of Heaven more beautiful to view, so when a little child departs, we who
are left behind Must realize GOD LOVES CHILDREN, ^0^ANGELS ARE HARD TO
FIND!!!^*^sending angel kisses and hugs to all who have gone.^*^

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Wed Mar 5, 2003 1:03 am

iris_suzette
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Forward
Message #490 of 2283 |
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I've been thru a terrible ordeal. Newly married, I was pregnant with my 1st baby early June of 1999, found out when I was 5 1/2 months my baby boy has...
jousephinee <bizou404...
jousephinee
Offline Send Email
Mar 4, 2003
9:11 pm

yes i have heard of it happening twice but not three time.just trust in God and he will give you the strength.at 10 weeks request a level II ultrasound to see...
iris shearer
iris_suzette
Offline Send Email
Mar 5, 2003
1:03 am

Iris, This is Marie Blair at iamapeach@... I am just making sure that you are getting the right email to the right person because in your email it did not...
Marie Blair
peaches03292000
Offline Send Email
Mar 10, 2003
2:21 pm

Hi thanx for your email, I am going infor a hysteroscopy not a hysterectomy which is just removing the scar tissue, not taking out my uterus, this is supposed...
Jousephine El-Halabi
jousephinee
Offline Send Email
Mar 10, 2003
2:21 pm

yes i have 5 living children and one in heaven.you can visit his tribute by going to www.geocitie.com/iris_suzette/ if you do not mind i would like to give...
iris shearer
iris_suzette
Offline Send Email
Mar 10, 2003
3:10 pm

Thanx for getting back to me. I am very sorry to hear that one of your children was lost to anencephaly and spina bifida. Yes, it is ok to give my email...
Jousephine El-Halabi
jousephinee
Offline Send Email
Mar 13, 2003
7:16 pm
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