Elizabeth, thank you for sharing your miracle story. That's amazing.
What an honor and gift to have your nephew in your life for such a
lengthy period of time. Your sister sounds like such a beautiful
person. God knew that when he gave your sister Wendall, He was
leaving Wendall in very loving and capable hands.
I only wish I had another day, another moment, another hug to give,
or another kiss to give to my baby Samuel. It brings me joy to my
heart to hear that another family did get to have those moments with
their angel. Thank you for sharing your story. It means a lot to me.
Take care, Kelly

--- In anencephaly@yahoogroups.com, Elizabeth Wagoner
<donna_40351@...> wrote:
>
> hi Tonya My nephew was not diagnosed before his birth. There was
no reason to expect anything was wrong with him.He was just overdue,
When he was born they told his parents he would not live,there fore
they were planning to give him comfort measures only .His parent had
him moved to another hospital where the surgery was performed to
cover the opening in his head.He was able to bottle feed,so his momma
feed him.The doctors told his parents he would live only 3 days. They
went home and one day lead to another and another
> he was able to sit up in the corner of the couch for support.He
was never able to walk,He did make noises like a small baby makes
when they are fussy.You could tell when he needed something he would
become fussy.He often would pull at his hair where the scar was.. He
had to take lots of seizure meds. We were never sure how much he
could see .You could talk to him and see those long eyelashes batting
back and forth you could tell he was listening. Whether he understate
what you were saying I don,t know He did go to school . His momma was
the most dedicated person I have ever seen.He did have to have a
feeding tube when he was about 15years old i think that was the
age.He had to have surgery to release the tendons in his legs as he
grew because they were tight because he could not walk , He had
surgery on his spine and a rod was fused to it due to curving of is
spine.I did not realize till i started this paper for school how
lucky we were to have him,we always went to
> church and always prayed fro him to be healed It is not till now
that a realize That god had answered our pray just because he was a
live and fairly healthy He had to have a trach when he was about 16
years old also. His name was Wendall He died in Feb 1999 he was not
18 he was 17yrs old He just stopped breathing. His mother and dad
rushed him to the hospital his mom did CPR all the way there. His
mother was wonder full I can,t even tell you how devoted to this
child she was. She went to the funeral home and bathed and dressed
him for the funeral she said she always bathed and dressed him and
she did,t want anyone else to do this.Also the few times he was in
the hospital she would give him the meds she would never allow the
nurse to do this she was totally devoted to him.I hope this helps you
I don,t want to give you a since of false hope cause i do realize now
that he was a miracle . My first child died at birth so I do
understand what that is like.
>
> sassy_shyone <sassy_shyone@...> wrote:
> -my name is tonya and my baby was diagnosed with
anencephaly and is
> due dec. 19th. your story amazed me because i've done alot of
research
> since finding out and never heard a story like yours. i'm really
> interested in hearing more details of your story if you wouldn't
mind
> sharing with me. like when was he able to come home from the
hospital,
> was hes remaining brain covered and if so how? what kind of life
did
> he have? sorry if these questions are too personal but all the
stories
> i've read never go into detail. most stories just say my baby died
of
> anencephaly on this date. so if you wouldn't mind educating me on
> these matters or sharing your experinces i would greatly appreciate
it
> enormously. truely horrified tonya
> P.S. thank you for any information that you can send or tell me
about
>
> -- In anencephaly@yahoogroups.com, "donna_40351" <donna_40351@>
> wrote:
> >
> > My nehpew died of anencephaly in 1999.The strange and wonderful
part
> > was he was 18years old when he died.I always new he was a great
gift
> to
> > us all his life. The doctors said he would only live 3 days. It
has
> > know been almost 9 years since his death. I am doing a research
> paper
> > for school as a tribute to him and to raise awareness of
importance
> of
> > folic acid before and after pregnancy. I didn,t realize just how
> lucky
> > we were to have him until I started this research.
> >
> > Elizabeth
> >
>
>
>
>
>
>
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