-my name is tonya and my baby was diagnosed with anencephaly and is
due dec. 19th. your story amazed me because i've done alot of research
since finding out and never heard a story like yours. i'm really
interested in hearing more details of your story if you wouldn't mind
sharing with me. like when was he able to come home from the hospital,
was hes remaining brain covered and if so how? what kind of life did
he have? sorry if these questions are too personal but all the stories
i've read never go into detail. most stories just say my baby died of
anencephaly on this date. so if you wouldn't mind educating me on
these matters or sharing your experinces i would greatly appreciate it
enormously. truely horrified tonya
P.S. thank you for any information that you can send or tell me about



-- In anencephaly@yahoogroups.com, "donna_40351" <donna_40351@...>
wrote:
>
> My nehpew died of anencephaly in 1999.The strange and wonderful part
> was he was 18years old when he died.I always new he was a great gift
to
> us all his life. The doctors said he would only live 3 days. It has
> know been almost 9 years since his death. I am doing a research
paper
> for school as a tribute to him and to raise awareness of importance
of
> folic acid before and after pregnancy. I didn,t realize just how
lucky
> we were to have him until I started this research.
>
> Elizabeth
>