My nehpew died of anencephaly in 1999.The strange and wonderful part
was he was 18years old when he died.I always new he was a great gift to
us all his life. The doctors said he would only live 3 days. It has
know been almost 9 years since his death. I am doing a research paper
for school as a tribute to him and to raise awareness of importance of
folic acid before and after pregnancy. I didn,t realize just how lucky
we were to have him until I started this research.
Elizabeth