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Please help me understand Anencephaly   Message List  
Reply | Forward Message #2141 of 2283 |
Re: [anencephaly] Please help me understand Anencephaly

I am so sorry to hear that your niece's baby has been diagnosed with anencephaly. My name's Yvonne and I live in the UK. My first daughter was diagnosed with anencephaly at 17 weeks. I carried her to term, but sadly she was born still at 42 weeks.

Please don't look at those clinical pictures of anencephalic babies, they are for medical students, not for loving families of anencephalic children. Please look at the photo albums here to see our precious little ones who are loved.

If your neice wants to carry her little one to term, don't let doctors force her into a termination. Many women carry their babies to term, and many babies are born alive and can live for a few hours, or even weeks.

I see Nicole has replied with some links, please use these links instead of just googling anencephaly. On the anencephalie-info site, you will find a list of support groups that you and your niece can join to hepl you both through this difficult journey.

Take care

 

Love Yvonne xxx


 
                                     
 
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----- Original Message ----
From: flower_child_50250 <flower_child_50250@...>
To: anencephaly@yahoogroups.com
Sent: Sunday, 15 April, 2007 2:53:32 AM
Subject: [anencephaly] Please help me understand Anencephaly

I don't know where to start. My niece is About 6 months along with her
little girl (Lilly Sue). Her and her husband was told last week that
Lilly has Anencephaly? Please help us understand. The doctors told us
they have untill Monday to tell them if they want to adbort Lilly???????
It's like the doctors doesn't have a heart at ALL.She's kicking &
moving. She's so much alive.They tell us she doesn't have a complete
brain....I've looked it up and it scares us to death.
If anyone can give us any help to learn about Anencephaly Please
help us.
flower_child_ 50250





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Tue Apr 17, 2007 12:01 pm

ceilidhs_mum
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Message #2141 of 2283 |
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I don't know where to start. My niece is About 6 months along with her little girl (Lilly Sue). Her and her husband was told last week that Lilly has...
flower_child_50250
flower_child...
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Apr 16, 2007
10:31 pm

Here are some helpful links. http://www.anencephalie-info.org/ http://www.geocities.com/tabris02/index.html http://www.anencephalie-info.org/e/family.htm ...
Nicole Courtney
valleyhillni...
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Apr 16, 2007
11:00 pm

Nicole, I have had two babies with Anencephaly. I know how sad and difficult it is to receive this diagnosis. Please do not allow the doctors to convince you...
Patricia Brower
trixmaree
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Apr 17, 2007
3:06 am

I am so sorry to hear that your niece's baby has been diagnosed with anencephaly. My name's Yvonne and I live in the UK. My first daughter was diagnosed with...
Yvonne Holland
ceilidhs_mum
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Apr 17, 2007
12:04 pm
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