Bridget,

I wanted to let you know that I carried my son with anencephaly for 8
months. It is a long story but we never knew of his condition. I
would have continued to carry him if I would have found out his
condition...as you are doing. I found out about Tobies's anen. the
day I delivered Tobie. I delivered without a c-section. He lived 5
days. He did very well. I hope this gives you some extra information.
I am so sorry.
If you have any questions please feel free to let me know,
Jennifer
Jennifer--- In anencephaly@yahoogroups.com, "dbabishop"
<dbabishop@...> wrote:
>
> My name is Bridget. I've been married for 9 years, and we have 4
> beautiful daughters already. Now, I'm 21 weeks pregnant with our
> 5th daughter, who has anencephaly. I've tried to do research on
the
> internet about anencephaly, but it seems that there really isn't
> that much information out there. I keep coming across the same
> information in different websites, all copied from the NINDS
website
> it seems (although Wikipedia has some original, but very sketchy).
> I guess this condition is so rare, and it's even rarer for moms to
> choose to carry to term, and in the past doctors didn't care to
> categorize or evaluate the details of the preganancies or
> deliveries. Even now, it seems that many in the medical profession
> don't care much about babies who are going to die anyway. (I've
> been fortunate that my own doctor has been very compassionate.) I
> want to carry my daughter for as long as possible, and I want to do
> the best I can to bring her alive into this world. I've read that
a
> c-section improves chances of a live birth; another mom claimed
that
> breaking the amniotic sac to induce or speed up labor is stressful
> to the baby and may hasten death. But I can't confirm that
> anywhere. If anyone has concrete information, or knows where I can
> find credible research sources, I'd appreciate it.
>
> Thanks,
> Bridget
>