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Reply | Forward Message #1771 of 2283 |
Re: [anencephaly] Prevention

Jami,
I think the whole folic acid thing is the only thing doctor's can hang on to, to give us hope.  I see where you are coming from.  Everyone is different and so are our bodies.  I am sorry that you expereinced this as goes for all of us.
 
With Love
Marie

Jami Frakes <bean_and_cjs_mom@...> wrote:
I am so sorry that this has happened to you. My best guess is that the doctors don't have a clue why this happens or what can stop it from happening. I am sure that I am going to offend some people here but it you want my opinion STOP taking the folic acid.
I am a true believer now that it does nothing. I took folic acid with my son that had Anencephaly. I had 3 children that where fine and healthy before him without folic acid. I found out that I am pregnant this year and I was not on any form of folic acid and this baby is fine. My sister works in the med. profession and she talked to a neurologist and he told us that he thinks that it has something to do with internal body core temperature. AT any rate what ever it is that causes this you have definitely had your share and it isn't fair. I wish you all the best and good luck what ever you do.
 
Jami missing Jacob 6-10-04


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Sat Oct 15, 2005 7:49 pm

peaches03292000
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Message #1771 of 2283 |
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Dear All, My name is Arif, I'm from Indonesia. My wife gave birth in 2001 to Anencephaly baby girl (8 months)and in 2005 to anencephaly baby boy (4 months). ...
joasindo
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Oct 14, 2005
3:08 pm

I am so sorry for you losses. Having gone through this once, I couldn't imagin going throught it twice. I took folice acid during my last pregnacy three months...
Angel's mommy
angelmomlove...
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Oct 14, 2005
7:13 pm

I am so sorry that this has happened to you. My best guess is that the doctors don't have a clue why this happens or what can stop it from happening. I am sure...
Jami Frakes
bean_and_cjs...
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Oct 15, 2005
5:44 am

Jami, I think the whole folic acid thing is the only thing doctor's can hang on to, to give us hope. I see where you are coming from. Everyone is different...
Marie Blair
peaches03292000
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Oct 15, 2005
7:49 pm

Dear Arif, I am so sorry about the loss of your precious daughter and then your precious son. My first daughter was born still due to anencephaly in 1994. I'm...
ym.holland@...
ceilidhs_mum
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Oct 17, 2005
3:30 pm

Dear Arif First of all my condolenses on the loss of your precious baby but to answer your question Yes the doctors can test the level of folic acid in your...
baileys_girl73
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Oct 17, 2005
3:39 pm

I just wanted to say thank you for telling others about this test. I had no idea. I am not having anymore children but I wish I could have had this test done...
Marie Blair
peaches03292000
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Oct 17, 2005
5:32 pm

Arif, I know I've heard of a disorder that keeps folic acid from a woman's body. I'm not remembering what it is called at the moment, but I'm sure your wife's...
jessica cottrill
matsgirl19
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Oct 18, 2005
2:16 am

Dear All, Thank you for all supports and comforting words. I know that all happens for a reason. I believe God hears our prayer and we will have healthy baby...
Velindo Jaya
joasindo
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Oct 25, 2005
5:58 am

Arif, Most definately will I keep you in my thoughts and prayers. I bet you are a stronger person than you give yourself credit for; you and your wife. ...
Marie Blair
peaches03292000
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Oct 26, 2005
1:47 am
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