--- In anencephaly@yahoogroups.com, "Marian" <lambsie2003@y...> wrote:
> From what I know, I have a son with a mild cephalic disorder and for
two years I have educated my self in college and in hospitals to learn
more. I trust the NINDS website. It is the national institute for
neurological disorders. They say that 70% of NTD can be prevented
with folic acid taken six weeks before pregnancy and during
pregnancy. That is a huge margin. From what I know alot of it has to
do with folic acid and malabsorbtion. I have sought the help of a
genetic doctor a couple of hours from where I live. They are going to
run DNA and metabolic testing on my living son and see what they can
find out. I am very interested in knowing.
Melissa
>
> Hi, I had a daughter stillborn in 1972 due to anencephaly. I did not
> know the cause of her death until recently. At the time I was told
> that the baby didn't develope properly and that I had carried too
> much fluid. I was huge. Melanie weighed 2lb 2oz. at 36 weeks. At a
> recent visit to my G.P. I asked the exact cause and was told it was
> anencephaly. Now my concern is, my son, (I have two sons), and his
> wife is expecting their first child, our first grandchild, and I am
> worried in case there is a chance of NTD (neural tube defect) being
> hereditary. My husband's brother when he was born had what they
> called a tail at the base of his spine, what is in fact is colosed
> spina bifida. He is a healthy man, had no problems during his life
> because of this, and is the father of four healthy daughters.
> Are there older mothers who had a anencephaly baby and have gone on
> to have healthy children and are now proud grandparents? I would
> love to hear from anyone who could put my mind at ease.