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16 wks pg and just found out that our baby has Anencephaly   Message List  
Reply | Forward Message #1423 of 2283 |
Re: [anencephaly] 16 wks pg and just found out that our baby has Anencephaly

Hello...I am sorry to hear about your little one...
I too had to decide between carrying my baby to term or terminating the pregnancy.  I have been afraid to tell this board that, because I think they all choose to carry.  We did not. 
 
At the time (1986), we had a 5yo daughter and a 3yo son who were very excited about the new baby.  We found out at 26 weeks.   I was showing, and we had all felt her moving around.  My husband and I decided that our older children were too young to go through the rest of the pregnancy not understanding why their little sister would never come home.  Instead, we told them that she was very sick and was going to be with Jesus. 
 
During the week it took to make my decision, I scoured the library for any information I could get on this defect. Any hope at all.  I even offered to carry her to term if they would let me donate her organs, but at that time they did not accept organs from anencephalic infants, because they didn't know if it was contagious??   My doctor finally gave me his pass to the hospital library where I got "real" information.  None of it good.
 
Also, at that time, there was a little girl with anencephaly who was 6yo.  She had no brain function at all...she was basically in a non-responsive coma.  After she was born, the parents wanted to let her go, but the state took custody of her.  They had spent over 6 years fighting to let thier little one go home.  It ruined thier financial state after their insurance ran out, and finally thier marriage fell apart.  This was all in the news during that week.  After my research, and that story, we made our decision and never looked back.  My husband missed the birth when he left to get lunch, but my mother was there.  I held my tiny little Angellynne for about 7 hours, wrapped in a blanket.  She was so tiny with a band of white curls, and perfect in every way until you turned her over.  I would have given my own life to spare hers, but Jesus needed her more than I did.  I know I will see her again. 
 
I believe she is my youngest daughter's guardian angel.  My youngest was born almost exactly a year to the day after Angellynne.
 
If I can be of any help, please let me...I have been exactly where you are right now and can give you a different view of things, I think, than the rest of these lovely families in this group.
God Bless...You are in my prayers...
Lorie

lme0067 <Elvis_shoes2@...> wrote:

Good Morning,
My husband and I are looking for advice from anyone who has
terminated thier pregnancy because of the birth defect.  We are in
complete shock and need to know what to expect emotionaly.  Thanks
for the concern.  With Love






Sat Jan 1, 2005 11:37 pm

angellynnesm...
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Message #1423 of 2283 |
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Good Morning, My husband and I are looking for advice from anyone who has terminated thier pregnancy because of the birth defect. We are in complete shock and...
lme0067
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Jan 1, 2005
6:45 pm

Hello...I am sorry to hear about your little one... I too had to decide between carrying my baby to term or terminating the pregnancy. I have been afraid to...
Lee Torbeck
angellynnesm...
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Jan 1, 2005
11:37 pm

Thank you so much for being so brave. I really needed to talk to someone about this. Sharing your story really helps me feel like I am not a bad person for...
Lisa
lme0067
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Jan 2, 2005
3:59 am

Oh...I wish I could give you a hug! I remember losing Angellynne as being the worst time in my life! I was 24 when she was born also, but she was my third...
Lee Torbeck
angellynnesm...
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Jan 2, 2005
2:32 pm

Lisa - I'm so sorry to hear about your baby. You and your family will certainly be in my thoughts and prayers. My situation was different (it was my second...
David and Sabrina Tyn...
oursarahbear
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Jan 3, 2005
3:50 am

I'm so sorry to hear about you lose i'm 24yrs old also and just had and anencephay baby and didn't carry to full term..i tryed to deliver at 23 weeks and...
babyfaithkendall
babyfaithken...
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Jan 9, 2005
10:51 pm

So sorry to hear about your baby's anencephaly. We found out our baby had anencephaly Sept 2001 after an abnormal afp followed by us showed anencephaly. ...
DMAnzaldi@...
nmbr1pt
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Jan 3, 2005
5:02 am

In a message dated 1/1/2005 11:00:35 PM Eastern Standard Time, ... We went to a genetic counselor (who basically told us we were not carriers). I did go for a...
DMAnzaldi@...
nmbr1pt
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Jan 3, 2005
5:05 am

I am so sorry that you have to go through this. I lost my little girl Angel, Oct. 14th 1998. Finding out and losing her was the hardest time in my life. I had...
angelmomlovesangel
angelmomlove...
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Jan 6, 2005
7:03 am

... Hi my name is crystal and i just had an anencephaly baby on jan4th 2005 and if you need to talk i'm more then willing to give you any support you need...
babyfaithkendall
babyfaithken...
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Jan 10, 2005
1:03 pm

Hi,i dont normally message on this site. but i terminated my preg in aug and it was the most hardest decision of my life.....We are all stuck between a rock...
Jan Holt
janine_holt
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Jan 11, 2005
1:35 pm

Hello I didnt terminate my Baby cause i was state health (good old medicaid) any way medicaid wouldnt let us teminate to much money they said my sister told me...
jo falor
poohqabear
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Jan 12, 2005
12:26 am

i'm sorry about you lose also..yes we're having a service for her on saturday jan 15th and she was creamated (sp?) she was the most beautiful little thing i've...
BabyFaith kendall
babyfaithken...
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Jan 12, 2005
12:15 pm

aww crystal it does get easier hunni, i promise, i knw it doesnt feel like that at the moment but honestly it will. my partner kept everything in aswell, didnt...
Evonne
angel_eyes_uk0
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Jan 12, 2005
12:25 pm

hi im heather, my daughter had anencephaly and i termaited the prenancy, cus i thought there was no chance of her living. and it is the hardest thing i ever...
Heather
heaver_2002
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Jan 25, 2005
1:22 pm
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