----- Original Message -----

From: MRomaniec@...

To: alzheimers_support@yahoogroups.com

Sent: Monday, June 20, 2005 11:09 PM

Subject: [alzheimers_support] Two experimental therapies for Alzheimers

Many of you may have seen this news article about the two types of medicines currently showing promise in the fight against Alzheimers.  One of them is IVIG, an expensive treatment that uses human immune globulin to boost the fragile immune system.  This allows the body to heal, the central nervous system to heal and the brain.  Why I know a bit about IVIG is that it is the treatment that saved my son after he was diagnosed with autism.  The research scientist who pioneered this method to treat autism is a world reknowed immunologist in California.  Many researchers have begun to realize Alzheimers and autism may be related in varying degrees.  The belief by some researchers is both are caused by oxidative stress.  And what causes oxidative stress is mercury exposure (think flu vaccines and amalgams).  Passing this along in case you find this of interest.  Just a footnote on IVIG, it is VERY expensive!!  And most insurance companies will not pay for it unless a true immune dysfunction is diagnosed. Mary Two experimental therapies show promise at preventing a sticky gunk from clogging up the brains of Alzheimer's (search) patients, a buildup called amyloid that is the newest focus in the fight against the disease. One, an experimental drug called Flurizan (search), has begun late-stage testing to see if it at least helps slow Alzheimer's inevitable worsening. Government-funded researchers are planning a large study of the second approach, a therapy called intravenous immune globulin (search), or IVIG. "Most scientists think if you get rid of amyloid (search), it'll moderate the disease," explained William Thies, scientific director of the Alzheimer's Association. About 4.5 million Americans have Alzheimer's, a creeping brain degeneration that slowly robs its victims of memory and the ability to reason, communicate and care for themselves. With the aging population, a staggering 14 million may have it by 2050. No one knows what causes Alzheimer's. But the leading theory is that something spurs abnormal production of a protein called beta-amyloid, which forms clumps that coat and then kill brain cells — plaque that is the disease's trademark. Healthy people's immune systems produce antibodies that can get rid of at least some of the beta-amyloid that floats in everyone's bodies. But older people produce one-third fewer antibodies against the protein than younger people do, said Dr. Marc Weksler of the Weill Medical College of Cornell University. Immune globulin is a cocktail of antibodies culled from blood donors and given intravenously to treat a variety of immune-related diseases. The question is whether giving IVIG to Alzheimer's patients might act as a sponge to soak up extra beta-amyloid. Weksler gave eight people with mild to moderate Alzheimer's six months of IVIG therapy. The amount of beta-amyloid in their cerebral spinal fluid — a measure of how much reaches the brain — dropped about 45 percent. Cognitive tests suggest the patients may have stabilized during treatment, although Weksler stressed that it's impossible to tell from such a small study that had no comparison group. "I'm encouraged but not convinced," Weksler cautioned at an Alzheimer's Association conference on preventing the disease. "We don't want people to go out and buy this and treat themselves." But Weksler's is the second small study to suggest IVIG may help Alzheimer's. Now other researchers are working with the National Institutes of Health and manufacturer Baxter Pharmaceuticals, which helped fund Weksler's work, to plan a larger study. Myriad Genetics Inc. already has begun a large study of Flurizan, a revamped version of an old painkiller called flurbiprofen. In Phase 2 testing of 128 people with mild Alzheimer's, treated patients didn't worsen as quickly as those given a placebo, with few side effects, said Dr. Gordon Wilcock of Britain's University of Bristol. It didn't work as well in patients with moderate-stage disease. "If it really does work, what this drug does is reduce the rate at which beta-amyloid is made," Wilcock said. That suggests the sooner in illness it's used, the better.

----- Original Message -----

From: MRomaniec@...

To: alzheimers_support@yahoogroups.com

Sent: Tuesday, June 21, 2005 11:56 AM

Subject: Re: [alzheimers_support] Two experimental therapies for Alzheimers

Sally,

 

My son is considered "recovered" from autism.  He was written about in Mothering Magazine last year. I speak at conferences, seminars and radio programs about our experiences with my son.  What helped us was dietary intervention, IVIG and behavior therapies.  He went from being totally non verbal to full sentences within four months of IVIG.  By his 12th infusion his immunologist declared him to be a recovery kid.  By the 18th infusion his pediatrician declared he could no longer see any traces of autism in him and considered it remarkable. 

 

Our experiences with my son's recovery (and the recovery of other children I know) tells me Alzheimers answers are out there.  We were told "NO HOPE, NO CURE" for my son when he was diagnosed.  We proved them wrong.  I have already told my husband that if he showed the slightest symptoms I would do for him much of what we did for my son. 

 

That is why I wonder why there is not more emphasis placed on this awareness.

 

Mary

Hello. I hope this post finds everyone safe on this 4th of July. My
name is Dee. My Mother-in-law has the late stages of Alzheimer's and
my hubby will not join any support group. He jsut keeps it locked up
inside. I met my hubby in 1999(my second marriage) and also first met
his Mom then. In these past yrs she has declined terribly to the point
of being placed in a "home" just about 6 months ago. We live about 600
miles from her, so hubby visits about 4-5 times a yr. The last visit
was the one he dreaded most. He met her wandering the halls that day
he arrived and walked and talked with her for 30 minutes and she never
even knew it was her son! He just kept walking and talking and never
said anything ti her about being her son. He asked her what her name
was and he said his name to her, and she replied, "ohhhh, I have a
brother by that name". (she doesn't) I feel so bad for him and don't
know how to help him. He's one of those very big hearted "tough"
guys..tattoos and all, but never lets his true feelings show. He
believes she is fading quickly and even pre paid the funeral and
arrangements are made by him and his sister."Mom" doesn't know that,
of course.
I just needed to come here and "vent" and maybe find advice from you
experiences.
Thanks for listening..and bless you all.
Dee

---and maybe find advice from you
experiences.

try
Spiritual Healing /Reiki healing

Spiritual healing/ reiki to many people conjures up so many images
and meanings, for those who do not know what it is all about, all
that I would ask is that you approach the subject with an open
unprejudiced mind and with a wish to explore and evaluate the
evidence carefully and properly. It is hoped with such an attitude
truth will prevail and misconceptions from misguided people will be
put in their rightful place.

From the outset it must be clearly understood that we live on a
planet of causes and effects, every thing seen on this planet has a
cause and an effect. We live in and are surrounded by all sorts of
effects like wind blowing from the north or a light shining from a
star or a leaf growing on a tree or wealth,
health,suffering,Happiness,Love,Sound,lightning,Music in fact
everything we see, feel, touch, smell, all have causes. Magic is the
name simply applied to happenings where no obvious cause can be
seen, at least to some of those witnessing it.As you can easily
appreciate no effect is without a cause.


We are know witnessing one of the great turnings in our century
where old healing practises are re-emerging such as Reiki healing,
Colour healing, Seichim, Spiritual healing, Osteopathy, Massage and
many others. Some of these are thousands of years old, Spiritual
healing/reiki  is one of those. It is exactly the same kind of
energy used by Jesus in so many of his healings.


Put simply Spiritual Healing/Reiki is the transference of certain
energies through a channel which could be a person or an animal or
even the planet, the wavelengths of this healing energy are well
outside the limits of most scientific equipment but a lot of people
can feel this energy .

The energy in my experience has been very uplifting and beautiful
which can touch and vastly influence parts of us such as the spirit
or soul or our mental selves and our physical selves. It can bring a
steadiness and balance and sense of well-being second to none .Its
limits as to its use are in the realms of the infinite.

A very simplistic analogy would be to liken it to a massive energy
reservoir which can be tapped into by people and animals which act
as the conduits of this energy and like wires of electricity some of
which are bigger than others and so therefore big wires can transmit
more energy than smaller wires. Bearing this point in mind the
reader can soon appreciate that going to one spiritual healer ,
Reiki healer can be vastly different than going to another as it is
with so many things whether it be dentists, doctors, policeman or
what have you.

Spiritual Healing, Reiki is natural healing energy, which is present
in this universe. Spiritual healers and Reiki work in many different
ways to some it is the laying on of hands onto a person or animal,
to others it can be sent through the power of thought. To be even in
the presence of some healers can have a profound and beneficial
effect on people and one wishes that there were more people giving
off just as beautiful vibrations as these people were this world
would truly transform it.


Everyone needs healing, because there is not a single person which
on some part of their being does not require healing. I will clarify
that point further because some people are so physically orientated
they perceive people and their suffering on a basis of you look OK
you must be OK.

  This perception can be likened to looking at a puddle of water and
because it looks all right and then assuming that because the rest
of the ocean is made of the same kind of stuff it must be the same,
being absolutely oblivious to the rest of the entire ocean.

  We are a very complicated beings comprising of many different parts
some of which are the mental self, the subconscious, the Physical
self and the spiritual self. I will leave it up to the reader to
discover the parts of themselves and their true importance to their
well beings.
During the healing process as a general rule people should simply
relax, all sorts of sensations may be felt typically heat, cold,
energy, sometimes even noises from your body.

Who is suitable for healing? All people at all stages of their life
especially the terminally ill;Animals even plants seem to respond.
Will one session be enough? Sometimes but probably a series may be
the answer.
Will healing cure me? All healing from all sources be it Doctor,
drugs, etc comes under the law of Karma.

There are no guarantees that healing from any source may give the
effect which the Desiree wishes.

  However it has been my experience that even if you do not get the
effect you desire, on some part of your being you most very probably
will receive some healing, even it is just upliftment. Which can be
extremely valuable


Harry Edwards was one such channel who was told to concentrate on
the next person he hears about who is sick. A case arrived one who
had TB who was dying .He concentrated on that person with his mind
and within 24 hrs the bleeding had stopped the pain had stopped and
the temperature had come down to almost normal. The Doctors
attending were amazed, the man returned to work in a short time.
More cases followed, people came with Cancer, Consumption and other
blights. Of notable healing was a boy with Spinal Meningitis and who
was dying. Harry sought healing for the boy and within a short
period of time the boy's parents were astonished to find their boy
sitting up in bed, the doctors looking on in amazement. A growing
queue was starting to form at his house and mail started to arrive.
But what truly amazed harry was the use of Absent healing where the
healing was sent by thought, the patient was not even present but it
seemed even more effective.

  To cope with the growing demands of his work he set up a healing
sanctuary at Burrows lea in surrey and his secretaries started
answering the hundreds of letters which came each day. He was in
constant demand to give talks all over England. Then on one day he
had the great urge to demonstrate what he could do before an
audience ``is there anyone suffering from Arthritis''? he asked.
Hands shot up from all over the auditorium, which started off the
public healing. The demonstrations grew, a thousand people attended
a demonstration at Croydon and typically Harry would treat
Arthritis, Spinal curvature, Deafness and poor sight. One lady who
had not been able to walk for three years was given healing, after a
few minutes of healing she walked down the aisle much to the
audience's delight. A child of six had her spinal curvature
straightened much to people's amazement.

Gradually over the years of healing he drew together the letters and
testimonials and presented them in an incredible book called The
evidence for Spiritual Healing which contained ten thousand cures,
yes that's right ten thousand .

Newspapers captured the signs with headlines like `'Sight restored
after seventeen years'' `'the Deaf hear'' `'After healing the
cripple danced'' `'Paralysed children walk off the stage
unaided''and so on.

  He would make the point quite clear that Spiritual Healing was not
faith healing and if it were so young babies and mental cases with
no comprehension about faith would not even respond.

  On another occasion Harry was called before a panel of Doctors who
presented him with their very own patients. The first patient had
Disseminated Sclerosis and came in with two helpers. On the first
treatment mobility was restored to the spastic spine then co-
ordination of the leg movements followed, she responded well and
started to walk, the session ended with the Doctors asking for
healing for their own personal troubles. Then royalty sought him out
Princess Marie Louise granddaughter of Queen Victoria sought healing
for Arthritis and she was instrumental in the royals attending the
sanctuary.

In less than five years Harry had received no less than one million
letters and in less than seven years over forty thousand people
attended the sanctuary.

In the thirty years from the time he moved to Burrows lea up to his
passing in 1976 he received an average of 9000 letters a week .In
over thirty years he received over 14 million letters from patients.

Harry passed to the other side of life in 1976 but not before
teaching Ray and Joan branch how to continue with the good work at
Burrows lea where they still are today.

Happily now Spiritual healers are used quite extensively in the
N.H.S, in fact they are in over 1500 hospitals and at long last a
lot of churches have finally complied with what the master told them
to do two thousand years ago and that is to go forth and heal the
sick. In the year 2000 even our prince Charles published a report
stating that spiritual healers should be extensively available
throughout the entire NHS. Over 7000 healers are now registered to
treat patients in the health system. I know of no cases where
spiritual healing when given by a trained healer has been
detrimental in any way, I know of no side effects except better
health.


Just a few reports –"When I had finished treating him, it was a real
delight to see how wonderfully glad he was to be able to use his
legs, feet, arms and hands again... and then he told me: "When I
came here, I was convinced no one could help me, and I came only to
please my Aunt, who brought me."

You worked a miracle with his father when he was very ill 1983-84
when I wrote to you, but you will be pleased to know he is now
working for the Council and lives a fairly normal life.
"You and the late Harry Edwards helped me so often and indeed I am
still pressing on 18 years after I was expected to die from my last
bout of cancer."

"On behalf of my mother, daughter and myself may I thank you for the
lovely day at your Sanctuary last Tuesday. My mother is so much
better it is truly amazing. She can stretch out her arms and even
raise them to her head and her walking is much stronger. My daughter
was very impressed, too."
My condition improved in as much as I now have much more self-
confidence and ability to deal with my everyday life.

Reiki,
Millions of people are aware of this fantastic healing energy and
there are literally thousands of healers [channels for this energy].

The word Reiki is made of two Japanese words - Rei which
means "God's Wisdom or the Higher Power" and Ki which is "life force
energy". So Reiki is actually "spiritually guided life force
energy."

A treatment feels like a wonderful glowing radiance that flows
through and around you. Reiki treats the person including body,
emotions, mind and spirit and creates many beneficial effects
including relaxation and feelings of peace, security and well being.
Many have reported miraculous results.

Reiki is a simple, natural and safe method of spiritual healing and
self-improvement that a lot of people can use. It has been effective
in helping virtually every known illness and malady and can create a
very beneficial effect. It also works in conjunction with all other
medical or therapeutic techniques sometimes to relieve side effects
and promote recovery.

An amazingly simple technique to learn, the ability to use Reiki is
not taught in the usual sense, but is transferred to the student
during a Reiki class. This ability is passed on during
an "attunement" given by a Reiki master and allows the student to
tap into an unlimited supply of "life force energy" to improve one's
health and enhance the quality of life.

It has been successfully taught to thousands of people of all ages
and backgrounds.
The Reiki system of healing is a technique for transmitting this
subtle energy to yourself and others. Reiki can restore energy
balance and vitality by relieving the physical and emotional effects
of unreleased stress. It can gently and effectively open blocked
meridians, nadas and chakras, and clears the energy bodies, leaving
one feeling relaxed and at peace.

Reiki can accelerate healing. Assist the body in cleansing toxins.
Balance the flow of subtle energy by releasing blockages. Help the
client contact the 'healer within.'
A treatment feels like warm, gentle sunshine, which flows through
you, surrounds you and comforts you. Reiki treats the person's body,
emotions, mind and spirit as a whole. Reiki is a simple, natural and
safe method of spiritual healing and self-improvement that most
people can use. Reiki is powerful, yet wonderfully gentle and
nurturing.

  During a treatment, the clients usually remain fully clothed. Reiki
is an effective alternative, or complement to massage therapy. Reiki
can support any medical or supplemental healing methods a client may
be using and is of growing interest to chiropractors, medical
doctors, physiotherapists, psychotherapists, psychologists and
hypnotherapists. In fact it is in use by quite a few doctors.


A Brief History of Reiki.
The history of Reiki, like all other histories, is tainted with
different views of the one event.
Reiki is seemingly an ancient form of healing that was lost and then
rediscovered, during a mystical experience, by Dr. Mikao Usui who
was a Japanese psychic. In 1922 Dr. Usui started a healing society
in Japan. He created three degrees (or levels) for Reiki healing and
initiated a small number of followers. One of his followers, Dr.
Hayashi, a retired naval officer, was charged with preserving Reiki.
He did this and further developed the Usui system.

  He gave the knowledge to his wife and to Mrs. Hawayo Takata. Mrs.
Takata practiced Reiki healing and initiated twenty-two people into
Reiki mastership Today, Reiki is known and practiced in many parts
of the world and is increasing in popularity and acceptance.

  One problem a student might have in learning Reiki is the existence
of different Reiki schools, giving different attitudes and different
symbols by different teachers.
  All that is required is a genuine desire for spiritual growth and
an open mind.


Reiki Research
There are now quite a few experiments that validate the usefulness
of Reiki and other vibrational healing techniques. The following are
few of the more interesting experiments.
A registered nurse describes a Reiki experiment she conducted in her
paper, "Reiki Healing: A Physiologic Perspective." In her study,
forty-eight people made up the experimental group while 10 made up a
control group. Both groups had blood samples taken at the beginning
and at the end of the experiment. The experimental group received
First Degree Reiki training. The control group was not involved in
the Reiki training.


The blood samples were measured for hemoglobin and hematocrit
values. Hemoglobin is the part of red blood cells that carry oxygen.
Hematocrit is the ratio of red blood cells to total blood volume.
The people in the experimental group who received Reiki training
experienced a significant change in these values with 28 percent
experiencing an increase and the remainder experiencing a decrease.
The people in the control group who did not receive Reiki training
experienced no significant change.

  It is thought that changes, whether an increase or decrease are
consistent with the purpose of Reiki which is to bring balance on an
individual basis.
One individual experienced a 20% increase in these values. She
continued to treat herself with Reiki daily and after three months,
her increase had been maintained and in fact had continued to
improve. This improvement was appropriate for her as she had been
experiencing iron deficiency anemia.

Another experiment using a Reiki like technique has also
demonstrated its ability to increase hemoglobin values. A medical
doctor conducted an experiment with a group of 79 sick patients.
Together the patients had a wide range of diagnosed illnesses
including pancreatitis, brain tumor, emphysema, multiple endocrine
disorders, rheumatoid arthritis, and congestive heart failure.
Laying-on hands treatments were given to 46 patients with 33 as
controls. The treated patients showed significant increases in
hemoglobin values.

  The effect was so pronounced that even cancer patients who were
being treated with bone marrow-suppressive agents which predictably
induce decreases in hemoglobin values showed an increase. The
majority of patients also reported improvement or complete
disappearance of symptoms. Both this experiment and the one above,
demonstrate that healers are able to induce actual biological
improvements in the patients they treat rather than simply create a
feeling of well being.

Laying-on hands healing has been validated by experiments carried
out at St. Vincent's medical Center in New York. The experiment was
carried out by Janet Quinn, assistant director of nursing at the
University of South Carolina. The design of this experiment tends to
rule out the placebo effect. Thirty heart patients were given a 20
question psychological test to determine their level of anxiety.
Then they were treated by a group trained in laying-on hands
healing. A control group of patients were also treated by sham
healers who imitated the same positions as those who had training.
Anxiety levels dropped 17 percent after only five minutes treatment
by trained practitioners, but those who were only imitating a
treatment created no effect.

Daniel Wirth of Healing Sciences International in Orinda, California
conducted a tightly controlled experiment involving a Reiki-like
healing technique.

Forty-four male college students received identical minor wounds
deliberately inflicted by a doctor in the right or left shoulder.
Twenty-three then received a Reiki like healing and the other twenty-
one did not. The treatments were given in such a way that the
possibility of a placebo effect was ruled out. All forty-four
students extend their arms though a hole in the wall. In the other
room, a trained healer was present for those who received healing
and administered healing from a distance without touching.

For those who did not receive healing, no one was present in the
room. Both the students and the doctor who administered the wounds
and later also evaluated their healing rate had been told that the
experiment was about the electrical conductivity of the body.
Neither knew that the experiment was about healing. Eight and
sixteen day follow-up measurements of the rate of wound healing were
done.

After eight days, the treated groups wounds had shrunk 93.5 percent
compared with 67.3 percent for those not treated. After sixteen
days, the figures were 99.3 and 90.9. After debriefing, the students
stated they did not know the true nature of the experiment and had
felt no contact with the healer. The possibility that expectations
of the students caused the healing was ruled out.
Dr. John Zimmerman of the University of Colorado using a SQUID
(Superconducting Quantum Interference Device) has discovered that
magnetic fields several hundred times stronger than background noise
are created around the hands of trained healers when doing healing
work on patients.

No such fields are created by sham' healers making the same
movements indicating something special is happening with the trained
healers. The frequencies of the magnetic fields surrounding the
hands of the trained healers were of the alpha and theta wave range
similar to those seen in the brain of meditators.


Dr. Barnard Grad of McGill University in Montreal, used barley seeds
to test the effect of psychic healing energies on plants. The seeds
were planted in pots and watered with a saline solution, which is
known to retard their sprouting and growth. With elaborate double-
blind conditions set-up, one group of seeds were watered with saline
solution that had been treated by a psychic healer.




Dr. Grad carried out similar experiments involving tap water and
plants. Sealed containers of water were given to a psychic healer to
hold and others were given to a severely depressed patient to hold.
The plants watered with the healer-held water had an increased
growth rate and those watered with the water held by the severely
depressed patient had a decrease in growth rate compared to
controls.
These experiments involving plants, in addition to confirming the
non-placebo nature of psychic healing, scientifically confirm the
ancient metaphysical understanding that healing energies can be
stored in water for future use.


In another experiment involving psychic healer Olga Worrall, Dr.
Robert Miller used an electromechanical transducer to measure the
microscopic growth rate of rye grass. The device used has an
accuracy of one thousandth of an inch per hour. Dr. Miller set-up
the experiment in his laboratory and then left, locking the door
behind him to eliminate any unnecessary disturbance. Olga, located
over 600 miles away was asked to pray for the test plant at exactly
9 PM that evening.

When Dr. Miller returned to the laboratory the next day, the test
equipment had recorded normal continuous growth of 6.25 thousandths
of an inch per hour up to 9 PM. At that time, the record began to
deviate upward and had risen to 52.5 thousands of an inch per hour
which was an increase of 840 percent! This increased growth rate
remained till morning when it decreased but never to its original
level.

The Spindrift group has done extensive research involving prayer and
plants. Their results indicate that prayed for plants always grow
faster and are healthier than non-prayed for plants even though the
conditions are equal for both groups of plants and those doing the
praying are miles away. These results were consistent regardless of
the distance involved and occurred over and over. They are described
by Robert Owen in his book, "Qualitative Research: The early years":

One of the interesting results of their research work is that they
were best when the prayer was non-directional, that is when the
prayer was simply for the plants general well-being, rather than for
a specific result, such as a certain growth rate or overall height.
More experiments are being done and scientific theories are being
developed to describe Reiki and Reiki like healing techniques. As we
continue into the millennium, increasing interest along with more
sensitive equipment will allow science to more completely
understand, validate, and accept the reality of Reiki. As this
happens, we will see increasing use of Reiki and other laying-on
hands healing coming into common use by individuals for themselves
and family along with its use in hospitals and doctors offices.

The deeper understanding about the nature of health and the unity of
all life this re-discovered age old wisdom will provide will reduce
suffering and make earth a more worthwhile place to live. With this
in mind, let us be encouraged to continue in the spirit of Reiki to
help others and to heal the planet.

Practitioners have some real interesting stories. Reiki can also
enhances natural abilities. If you are an artist, it can help
develop your artistic expression. If you have an intuitive sense,
Reiki can heighten that. If you have a business head, Reiki can
enhance that as well. In the practice of Reiki, working with energy
helps you to connect with your path, your skills, and develop your
senses. But it takes practice and trusting what you feel.

Reiki is also present in some hospitals.
Reiki has been applied to these conditions and more with very
beneficial results. There are a lot more applications of Reiki – see
there web site for more information.
http://www.reikimedresearch.com/

ADDICTIONS (drugs and alcohol)
Addictions and suicidal behavior
Appendicitis
Arthritis (osteo-, rheumatoid)
Add/adhd
Aids /HIV
Burns
Cancer all types
Cervical dysphasia
Childbirth
Chronic fatigue syndrome & fibromyalgia
Coma –phenomenal result
Croons
Depression
Diabetes
Dyslexia
Eye sight
Endometriosis
Heart conditions -saved surgery
Hypothyroidism
Insomnia –results good
Leukemia -recovered
Lupus-improvements
Mole – fell off
Migraine- pain free
Multiple sclerosis – beneficial results
Neuropathy
Pagets - beneficial results
Pain relief – very beneficial
Paralysis- beneficial results recovered
Polyps –surgery cancelled
Prenatal condition- child born healthy
Psoriasis 70% cleared
Seizure beneficial
Shingles- patient in remission


Karuna Reiki
Laura gifford gives some interesting differences between reiki and
Karuna Reiki and says that Reiki increases the awareness of the way
God works in life. Usui Reiki, is the connection to the highest and
most holy spiritual energies. Usui Reiki is unconditional Love. Usui
Reiki is gentle and peaceful, but very powerful. Usui Reiki is a
conduit for Karuna Reiki® to flow through.
When receiving Karuna:

Karuna Reiki® is very serious, let's get down to business energy.
Karuna Reiki® energy goes very deep, gently, but quickly. She
describes vibrating at a rapidly increasing rate, feeling like more
light than I am flesh. The first few times she received a Karuna
treatment she describes rising out of her body, and was taken into
the symbols used. One repeated occurrence has been that she has seen
flashes of traumatic experiences in this life, and from other times.
They appeared as if I am looking through a picture window.

The image briefly comes into focus so she was clear on what she was
seeing, and then a beam of white and gold light pierces the images
and shatters them into zillions of pieces, which immediately become
pure light. When she had these experiences she also felt and at
times saw physical releases within my body. She experienced deep
physical and emotional healing.

She describes Karuna being profoundly transformational for her as
Usui Reiki and she felt that it had come into her life to assist her
in her growth. She says how multi-dimensional Karuna feels to her.
She felt it working simultaneously on the emotional, mental and
physical bodies, and it has her me layers in her energy field and
within her consciousness that go beyond anything she can
intellectually comprehend. Karuna Reiki® takes her to that space
beyond form, color, time and sound that just cannot be described
within the constraints of words except perhaps, the purest sense of
peace, and total love she have ever felt.

Those words don't even do it justice.
She also had sensations of Karuna Reiki® reaching into other times,
connecting with karmic issues, and flashing through incarnations
linking them and bringing the related lessons to her conscious
awareness, and offering her the opportunity to transmute it in the
moment. So in this sense, she felt it very gracefully transcends
time and space on many levels simultaneously. She also used Karuna
Reiki® to do spirit release work with others.

phil







  In alzheimers_support@yahoogroups.com, "Diane(Dee)"
<runspencer4@c...> wrote:
> Hello. I hope this post finds everyone safe on this 4th of July.
My
> name is Dee. My Mother-in-law has the late stages of Alzheimer's
and
> my hubby will not join any support group. He jsut keeps it locked
up
> inside. I met my hubby in 1999(my second marriage) and also first
met
> his Mom then. In these past yrs she has declined terribly to the
point
> of being placed in a "home" just about 6 months ago. We live about
600
> miles from her, so hubby visits about 4-5 times a yr. The last
visit
> was the one he dreaded most. He met her wandering the halls that
day
> he arrived and walked and talked with her for 30 minutes and she
never
> even knew it was her son! He just kept walking and talking and
never
> said anything ti her about being her son. He asked her what her
name
> was and he said his name to her, and she replied, "ohhhh, I have a
> brother by that name". (she doesn't) I feel so bad for him and
don't
> know how to help him. He's one of those very big hearted "tough"
> guys..tattoos and all, but never lets his true feelings show. He
> believes she is fading quickly and even pre paid the funeral and
> arrangements are made by him and his sister."Mom" doesn't know
that,
> of course.
> I just needed to come here and "vent" and maybe find advice from
you
> experiences.
> Thanks for listening..and bless you all.
> Dee

Thank you so much for the valuable, yet, overwhelming amount of
information you shared with me in the previous post.Thanks you for
allowing me to post. I have a lot of researching to do, don't I?

I will contue to read the posts here and try me best to support my
husband.
Thanks again
Dee

Thanks for the post and the info. I will look the group up.
I must say I was confused, but not put off by Phil'd post. I know many
folks believe in theories ans methods that he mentioned and I am
willing able to read and try to apply anything that a person suggests.
I usually takw out what applies to me and "file away" the rest. I
don't ever want  to be rude to anyone who has taken their time to post.
Thanks again, Cheryl
I look forward to hearing from you again.
Dee

<http://www.cbsnews.com/stories/2005/07/15/health/main709348.shtml?cmp=EM8707>

I had to change my user name and now am getting no posts.How can i
receive messages again?

a story about stem cells is a story about hope. which my dictionary
tells me is to cherish a desire. for paul gallagher a 26 year old
from edinburgh he found out 5 years ago he had huntington's disease.
huntington's is a genetic condition that attacks nerve cells in the
brain. usually sufferers find out between the ages of 30 and 50 that
they have been given a death sentence. but dispite being so young
paul is already showing some of the classic signs of huntington's.
uncontrollable twitches and forgetfulness. huntington's has plagued
pauls family for generations. he was 8 when his mum hellen first
found out she had inherited huntington's from her father.for more
than 10 years paul helped nurse his mother through the condition. his
mum was only 42 when she died just a couple of months later pauls
uncle who also had huntington's died too.the symptoms can vary but
usually sufferers only have around 15 to 20 years to live after
diagnosis. pauls sister has just had the test to see if she has the
hd gene and it was very sad news for her and her  family. she had it
too.but dispite lots of research into the condition there still no
sign of a cure.however a private american foundation (the high q
foundation) dicided to sponsor the huntington's project with over
$57.000.000. the euro-hd network aims to provide a platform for
professionals and people affected by h.d to assist working together
throughout europe. it aims to facilitate natural history studies and
interventional trials meeting high standards thus helping on the road
towards a cure for h.d. paul is among the first in scotland to
registar for euro hd this month.but i think stem cells will bring
hope and not only to people with hd. if debilitating illness can be
conquered with stem cell therapy why is it so controversial. isn't it
a medical miracle to be celebrated ? yes and no. though we stand on
the threshold of the realm of possibility we are not yet inside it.
the door opened by science include one marked moral dilemma. many
scientists believe that stem cells from human embryos offer even more
hope for cures than the ones found in bonemarrow. yet to destroy
embryos to create stem cell therapies is an unforgivable obstacle for
many people.hope must break through the rhetoric. my own hope the
disire i cherish is that we can freely discuss the complex sometimes
uncomfortable,friction between science and ethics. that is what this
stem cell story is about. http://groups.msn.com/scottishhuntingtons

Hello Feather,
How is your client doing?

Has she started the Seroquel yet?

Let me know how she is doing --- I need to know if she can make the trip to her home state in August; the tentative dates are 8/8 to 8/13.  I asked Dr. * about the Alzemed study, and he said we should try to get her in.  The problem we might anticipate is that the study will probably want someone early in the course of the disease.  The way they identify these prospective patients is with a MMSE --- a mini-mental status exam.  The study will probably want a score of 15 or better, and, sadly, your client scores around an 8.

She refused to take the exam with the doctor at the memory clinic.  I do not notice any specific change in your client's condition since last I saw her, but I would like to try for the study.

I did notice your client's myxedema in her legs, particularly the right side; can you mention that to the Physician's Assistant at your client's next appointment?

I believe it is worse at the end of the day after her legs have been dependent for a while.

Also, the doctor at the memory clinic stated that the oral Lamisil for your client's fungus infection would interact with her Alzheimer's meds.

That nail is dead, so can you also ask the PA to remove it, and we will try to keep the fungus away by conscientious cleaning.

Thanks again, Feather, for all of your patience and hard work.

I will leave a check for your week in your client's apartment if it turns out we are going to her home state.

--- In alzheimers_support@yahoogroups.com, Feather Forestwalker
<feather@e...> wrote:
> Hi Feather, "I want to go HOME"...I truly believe "Home is where
the heart is"...a place of comfort that doesn't exist anymore for
her. Takes alot of work to try and recreate that special place we all
desire.

You Wrote: It very well could be that she needs to adjust to the
Seroquel - but for
now, it seems to be making her seem more confused and agitated.

Reply:BRAND NAME(S):
Seroquel
View images

WARNING:
Learn more

USAGE:
This medication is used for the treatment of certain mental
conditions (e.g., schizophrenia, the manic stage of bipolar disorder).


Warning on Drugs for Elderly Behavioral Issues

FDA Orders Warning Labels After More Deaths Seen in Elderly Patients
With Dementia

By Miranda Hitti
WebMD Medical News Reviewed By Michael  Smith, MD
on Monday, April 11, 2005

April 11, 2005 -- The FDA has issued a public health advisory about
certain drugs used to treat behavioral problems in elderly patients
with dementia.

That's an unapproved use of the drugs, called antipsychotic drugs,
which include:

Abilify
Zyprexa
Seroquel
Risperdal
Clozaril
Geodon
Symbyax, which is approved for treating depressive episodes
associated with bipolar disorder.
The FDA's warning does not extend to people who are taking the drugs
for the approved uses - treating schizophrenia and mania.

These drugs are sometimes used to treat agitation and other behavior
disturbances in elderly patients with dementia, such as Alzheimer's
disease. Doctors should review treatment for elderly patients with
dementia who are taking the drugs for behavioral problems, says the
FDA's advisory.

More Deaths

The FDA's decision was based on 17 studies of four of the drugs
(Zyprexa, Abilify, Risperdal, and Seroquel) in elderly patients with
dementia and behavioral disorders.

In those studies, the death rate was about 1.6 to 1.7 times higher
for elderly patients with dementia than for those taking a placebo.

The causes of death varied. Most seemed to be either heart-related
(such as heart failure or sudden death) or from infections (mostly
pneumonia), says the FDA.

Atypical antipsychotic drugs fall into three categories based on
their chemical structure. Because the increased death rate was seen
with drugs from all three classes, the FDA concluded that the effect
is probably related to common effects of all such drugs, including
those drugs that haven't been studied in people with dementia.

New Warning Labels

The FDA has asked the drugs' makers to add a boxed warning to the
drugs' labels describing the risk. The label will also note that the
drugs are not approved for the treatment of behavioral symptoms in
elderly patients with dementia.

The FDA says it's considering adding a similar warning to the
labeling of older antipsychotic medications, such as Haldol, because
limited data also suggest a similar increase in deaths for these
drugs. However, the FDA's review of data on those older drugs isn't
done yet, says an FDA news release.


----------------------------------------------------------------------
----------

SOURCE: FDA Public Health Advisory, "Deaths with Antipsychotics in
Elderly Patients with Behavioral Disturbances." News release, FDA.

Feather, your observations I beleive are correct. The info above came
from WebMDHealth.com (Drugs & Herbs) it's a good site for checking
out meds.

It takes alot of tender loving care Feather. I've been caring for my
wife now, by myself, for 10 years. It's sad what happens to people
with Alzheimer's. They need special care 24/7 that most will never
receive because there is no one willing to go the distance. Sometimes
I don't know if I can. I'm 54 years old. I whole life is now
dedicated to taking care of my wife 24/7. Neither of us has any
family willing to help. You are a very caring person I can tell. God
Bless you Feather....he knows you are doing the best you can for this
lady and then some.....I don't feel or believe that more drugs are
the answer....... Jd

You have to watch the side effects of these drugs. My Mom really had
trouble swallowing after taking Zyprexa and Risperdal, but she did
very well on Seroquel.Almost all of the drugs lost effectiveness
after about 6 months of use. Don't know if this is typical for
Alzheimers sufferers but it seemed like we needed to switch at the 6
month mark. Now that she is beyond the point of needing these drugs
she is only on Ativan to control muscle twitches.

KZ

--- In alzheimers_support@yahoogroups.com, "jd_1951_54"
<jd_1951_54@y...> wrote:
> --- In alzheimers_support@yahoogroups.com, Feather Forestwalker
> <feather@e...> wrote:
> > Hi Feather, "I want to go HOME"...I truly believe "Home is where
> the heart is"...a place of comfort that doesn't exist anymore for
> her. Takes alot of work to try and recreate that special place we
all
> desire.
>
> You Wrote: It very well could be that she needs to adjust to the
> Seroquel - but for
> now, it seems to be making her seem more confused and agitated.
>
> Reply:BRAND NAME(S):
> Seroquel
> View images
>
> WARNING:
> Learn more
>
> USAGE:
> This medication is used for the treatment of certain mental
> conditions (e.g., schizophrenia, the manic stage of bipolar
disorder).
>
>
> Warning on Drugs for Elderly Behavioral Issues
>
> FDA Orders Warning Labels After More Deaths Seen in Elderly
Patients
> With Dementia
>
> By Miranda Hitti
> WebMD Medical News Reviewed By Michael  Smith, MD
> on Monday, April 11, 2005
>
> April 11, 2005 -- The FDA has issued a public health advisory about
> certain drugs used to treat behavioral problems in elderly patients
> with dementia.
>
> That's an unapproved use of the drugs, called antipsychotic drugs,
> which include:
>
> Abilify
> Zyprexa
> Seroquel
> Risperdal
> Clozaril
> Geodon
> Symbyax, which is approved for treating depressive episodes
> associated with bipolar disorder.
> The FDA's warning does not extend to people who are taking the
drugs
> for the approved uses - treating schizophrenia and mania.
>
> These drugs are sometimes used to treat agitation and other
behavior
> disturbances in elderly patients with dementia, such as Alzheimer's
> disease. Doctors should review treatment for elderly patients with
> dementia who are taking the drugs for behavioral problems, says the
> FDA's advisory.
>
> More Deaths
>
> The FDA's decision was based on 17 studies of four of the drugs
> (Zyprexa, Abilify, Risperdal, and Seroquel) in elderly patients
with
> dementia and behavioral disorders.
>
> In those studies, the death rate was about 1.6 to 1.7 times higher
> for elderly patients with dementia than for those taking a placebo.
>
> The causes of death varied. Most seemed to be either heart-related
> (such as heart failure or sudden death) or from infections (mostly
> pneumonia), says the FDA.
>
> Atypical antipsychotic drugs fall into three categories based on
> their chemical structure. Because the increased death rate was seen
> with drugs from all three classes, the FDA concluded that the
effect
> is probably related to common effects of all such drugs, including
> those drugs that haven't been studied in people with dementia.
>
> New Warning Labels
>
> The FDA has asked the drugs' makers to add a boxed warning to the
> drugs' labels describing the risk. The label will also note that
the
> drugs are not approved for the treatment of behavioral symptoms in
> elderly patients with dementia.
>
> The FDA says it's considering adding a similar warning to the
> labeling of older antipsychotic medications, such as Haldol,
because
> limited data also suggest a similar increase in deaths for these
> drugs. However, the FDA's review of data on those older drugs isn't
> done yet, says an FDA news release.
>
>
> --------------------------------------------------------------------
--
> ----------
>
> SOURCE: FDA Public Health Advisory, "Deaths with Antipsychotics in
> Elderly Patients with Behavioral Disturbances." News release, FDA.
>
> Feather, your observations I beleive are correct. The info above
came
> from WebMDHealth.com (Drugs & Herbs) it's a good site for checking
> out meds.
>
> It takes alot of tender loving care Feather. I've been caring for
my
> wife now, by myself, for 10 years. It's sad what happens to people
> with Alzheimer's. They need special care 24/7 that most will never
> receive because there is no one willing to go the distance.
Sometimes
> I don't know if I can. I'm 54 years old. I whole life is now
> dedicated to taking care of my wife 24/7. Neither of us has any
> family willing to help. You are a very caring person I can tell.
God
> Bless you Feather....he knows you are doing the best you can for
this
> lady and then some.....I don't feel or believe that more drugs are
> the answer....... Jd

I am not only child whose mother has alzheimer's.  I did not realize
how much it had progressed with her until she recently had knee
surgery and I had to stay with her.  I am currently looking to move
her closer to me. Does anyone have any suggestions to make this an
easier process?

I am very stressed out which is not good for me either.  I have a
seizure disorder which is often triggered by stress..HELP!!!

--- In alzheimers_support@yahoogroups.com, "rouxlily1968"
<rouxlily1968@y...> wrote:
> I am not only child whose mother has alzheimer's.  I did not realize
> how much it had progressed with her until she recently had knee
> surgery and I had to stay with her.  I am currently looking to move
> her closer to me. Does anyone have any suggestions to make this an
> easier process?
>
> I am very stressed out which is not good for me either.  I have a
> seizure disorder which is often triggered by stress..HELP!!!

Reply: It may be the extra medication shes taking for pain, etc.,
making thing harder for her and you. You say move her closer to you?
Are you going to move her in with you? Now might be the time to look
for a long term placement unless you want to take care of her yourself
which is a life long commitment. Lots to consider. Be careful about
Assisted Living Facilities unless they have a very good Alzheimer's
Unit....Please feel free to email me....Jd

Thanks for posting this very interesting and important information. We
need all the "HOPE" we can get. I saved the link and will follow up on
the research.....Ibthere....Jd


--- In alzheimers_support@yahoogroups.com, Judie <jhensel@c...> wrote:
>
> <http://www.cbsnews.com/stories/2005/07/15/health/main709348.shtml?
cmp=EM8707>

----- Original Message -----

From: rouxlily1968

To: alzheimers_support@yahoogroups.com

Sent: Tuesday, August 02, 2005 9:25 AM

Subject: [alzheimers_support] I feel like I am losing my mind too

I am not only child whose mother has alzheimer's.  I did not realize
how much it had progressed with her until she recently had knee
surgery and I had to stay with her.  I am currently looking to move
her closer to me. Does anyone have any suggestions to make this an
easier process?

I am very stressed out which is not good for me either.  I have a
seizure disorder which is often triggered by stress..HELP!!!

Hi everyone. If anyone has any suggestions please tell me because I
feel like i'm going crazy.
  I take care of my 84 y old aunt who has ad. She lives with me and
my husband and has for the last two years. She is in late middle
stage.
  We just returned from a three week trip visiting my mom (who is her
sister) who she is and has always been very close to, so she was
very happy to be going to see her.
  Well, as it turned out, I think the trip might have been a hugh
mistake.
  Needless to say, the traveling part was a trip in itself. She was
completely disoriented and confussed the entire time. She had no
idea where she was, couldnt understand that this was at my mothers
house and it was not ours. Could not remember or understand that we
did not live there etc.
   Now that we left and are home, she is constantly looking for my
mom, thinking that my mom lives here, forgot that we went there and
were there for the all that time and is constantly asking if and
when can we go to see her. This is constantly, when  I tell her that
we just came back and that we cant go again for a while, (if ever,
<I dont tell her that ofcourse) but when I tell her that she cant
understand and gets very depressed. I dont know how to handle
this , I need help, advice or suggestions of what to tell her when
she looks for my mom or asks when can we go see her etc. I call mom
on the phone so she can talk to her but then in 5 mins she forgets
that she spoke to her and starts the whole thing all over again .
What should I do ?  Should I try to explain that we were just there
and that she lives very far away and that we can not go there for a
while etc, or should I tell her something else? Anyone have any
simular sitation or any suggestions please ? I feel like I dont know
how to handle this problem and need help.
I hope someone can lend some advice, any , I will truely appreciate
Thanks for listeing and I will be looking for your suggestions and
help. I dont know where to turn for help other then here. Thanks
again

---the power of prayer can help and despite what some other rude and
ignorant people on the group think
spiritual and or reiki healing can help too
see my other posts for more info
p

  In alzheimers_support@yahoogroups.com, "angela147g"
<angela147g@y...> wrote:
> Hi everyone. If anyone has any suggestions please tell me because
I
> feel like i'm going crazy.
>  I take care of my 84 y old aunt who has ad. She lives with me and
> my husband and has for the last two years. She is in late middle
> stage.
>  We just returned from a three week trip visiting my mom (who is
her
> sister) who she is and has always been very close to, so she was
> very happy to be going to see her.
>  Well, as it turned out, I think the trip might have been a hugh
> mistake.
>  Needless to say, the traveling part was a trip in itself. She was
> completely disoriented and confussed the entire time. She had no
> idea where she was, couldnt understand that this was at my mothers
> house and it was not ours. Could not remember or understand that
we
> did not live there etc.
>   Now that we left and are home, she is constantly looking for my
> mom, thinking that my mom lives here, forgot that we went there
and
> were there for the all that time and is constantly asking if and
> when can we go to see her. This is constantly, when  I tell her
that
> we just came back and that we cant go again for a while, (if ever,
> <I dont tell her that ofcourse) but when I tell her that she cant
> understand and gets very depressed. I dont know how to handle
> this , I need help, advice or suggestions of what to tell her when
> she looks for my mom or asks when can we go see her etc. I call
mom
> on the phone so she can talk to her but then in 5 mins she forgets
> that she spoke to her and starts the whole thing all over again .
> What should I do ?  Should I try to explain that we were just
there
> and that she lives very far away and that we can not go there for
a
> while etc, or should I tell her something else? Anyone have any
> simular sitation or any suggestions please ? I feel like I dont
know
> how to handle this problem and need help.
> I hope someone can lend some advice, any , I will truely
appreciate
> Thanks for listeing and I will be looking for your suggestions and
> help. I dont know where to turn for help other then here. Thanks
> again

angela147g wrote:

>Hi everyone. If anyone has any suggestions please tell me because I
>feel like i'm going crazy.
> I take care of my 84 y old aunt who has ad. She lives with me and
>my husband and has for the last two years. She is in late middle
>stage.
> We just returned from a three week trip visiting my mom (who is her
>sister) who she is and has always been very close to, so she was
>very happy to be going to see her.
> Well, as it turned out, I think the trip might have been a hugh
>mistake.
> Needless to say, the traveling part was a trip in itself. She was
>completely disoriented and confussed the entire time. She had no
>idea where she was, couldnt understand that this was at my mothers
>house and it was not ours. Could not remember or understand that we
>did not live there etc.
>  Now that we left and are home, she is constantly looking for my
>mom, thinking that my mom lives here, forgot that we went there and
>were there for the all that time and is constantly asking if and
>when can we go to see her. This is constantly, when  I tell her that
>we just came back and that we cant go again for a while, (if ever,
><I dont tell her that ofcourse) but when I tell her that she cant
>understand and gets very depressed. I dont know how to handle
>this , I need help, advice or suggestions of what to tell her when
>she looks for my mom or asks when can we go see her etc. I call mom
>on the phone so she can talk to her but then in 5 mins she forgets
>that she spoke to her and starts the whole thing all over again .
>What should I do ?  Should I try to explain that we were just there
>and that she lives very far away and that we can not go there for a
>while etc, or should I tell her something else? Anyone have any
>simular sitation or any suggestions please ? I feel like I dont know
>how to handle this problem and need help.
>I hope someone can lend some advice, any , I will truely appreciate
>Thanks for listeing and I will be looking for your suggestions and
>help. I dont know where to turn for help other then here. Thanks
>again
>
>

I have similar troubles with my early-onset client.

What I have done is simply, lie to her.

Since she forgets stuff in five minutes anyway, the lie that her
friend/relative/ will be coming to see *her* (especially after she's
been gone on a long visit to see *them*), seems to calm her down. After
several repetitions of this in the most reassuring tone I can muster,
she eventually calms down.

My client is also on Lexapro for depression, now at 10 mg per night. In
addition, she's on Namenda, one 10 mg tab in the morning, one at night,
and Aricept, one ten mg tab in the morning. She also takes flax seed
capsules three times a day, vitamin E, a multi-vitamin, some fiber,
folic acid, and Calms Forte, two tabs, three times a day (breakfast,
lunch and dinner). It works to keep her calm.

What I suggest to people who've seen me working with her and are amazed,
is to find what works for them. What works for me may not work with
others, see, even those who are working with her on a regular basis as I
do.While *my* lie might work, other people may not be able to use the
same lie. So they have to find whatever works.

I would recommend that you find a calm place to go to regroup - you may
need a small vacation. And you may need to call someone to come sit with
her while you take a mini-vacation which can be anything from a walk, to
a trip to the library alone - whatever *you* need to do to take this
respite for yourself will be important for your abilities to care for
your aunt on a day-to-day basis. It's NOT easy - and please forgive me
if I seem presumptuous here. . .

I hope you feel comfortable venting in this format; I wrote a
several-page long "venting" post to some other Alzheimer's groups a few
weeks ago; that helped me a lot, just to get stuff off my chest.

Meantime, find your lie. I know that sounds weird, but find it and just
go along with her delusions and the like; it will be a lot easier than
fighting and correcting, and easier than trying to explain that she's
already been there. IF you have photos of the trip, you might try
showing them to her and explain *then* that she has already been there.
IF, however, this does nothing but confuse her more, put the photos away
and go back to lying that your mom is coming to see her very soon.

Wishing you the very best,

Feather

angela147g wrote:

>Hi everyone. If anyone has any suggestions please tell me because I
>feel like i'm going crazy.
> I take care of my 84 y old aunt who has ad. She lives with me and
>my husband and has for the last two years. She is in late middle
>stage.
> We just returned from a three week trip visiting my mom (who is her
>sister) who she is and has always been very close to, so she was
>very happy to be going to see her.
> Well, as it turned out, I think the trip might have been a hugh
>mistake.
> Needless to say, the traveling part was a trip in itself. She was
>completely disoriented and confussed the entire time. She had no
>idea where she was, couldnt understand that this was at my mothers
>house and it was not ours. Could not remember or understand that we
>did not live there etc.
>  Now that we left and are home, she is constantly looking for my
>mom, thinking that my mom lives here, forgot that we went there and
>were there for the all that time and is constantly asking if and
>when can we go to see her. This is constantly, when  I tell her that
>we just came back and that we cant go again for a while, (if ever,
><I dont tell her that ofcourse) but when I tell her that she cant
>understand and gets very depressed. I dont know how to handle 
>this , I need help, advice or suggestions of what to tell her when
>she looks for my mom or asks when can we go see her etc. I call mom
>on the phone so she can talk to her but then in 5 mins she forgets
>that she spoke to her and starts the whole thing all over again .
>What should I do ?  Should I try to explain that we were just there
>and that she lives very far away and that we can not go there for a
>while etc, or should I tell her something else? Anyone have any
>simular sitation or any suggestions please ? I feel like I dont know
>how to handle this problem and need help.
>I hope someone can lend some advice, any , I will truely appreciate
>Thanks for listeing and I will be looking for your suggestions and
>help. I dont know where to turn for help other then here. Thanks
>again
> 
>

I have similar troubles with my early-onset client.

What I have done is simply, lie to her.

Since she forgets stuff in five minutes anyway, the lie that her
friend/relative/ will be coming to see *her* (especially after she's
been gone on a long visit to see *them*), seems to calm her down. After
several repetitions of this in the most reassuring tone I can muster,
she eventually calms down.

My client is also on Lexapro for depression, now at 10 mg per night. In
addition, she's on Namenda, one 10 mg tab in the morning, one at night,
and Aricept, one ten mg tab in the morning. She also takes flax seed
capsules three times a day, vitamin E, a multi-vitamin, some fiber,
folic acid, and Calms Forte, two tabs, three times a day (breakfast,
lunch and dinner). It works to keep her calm.

What I suggest to people who've seen me working with her and are amazed,
is to find what works for them. What works for me may not work with
others, see, even those who are working with her on a regular basis as I
do.While *my* lie might work, other people may not be able to use the
same lie. So they have to find whatever works.

I would recommend that you find a calm place to go to regroup - you may
need a small vacation. And you may need to call someone to come sit with
her while you take a mini-vacation which can be anything from a walk, to
a trip to the library alone - whatever *you* need to do to take this
respite for yourself will be important for your abilities to care for
your aunt on a day-to-day basis. It's NOT easy - and please forgive me
if I seem presumptuous here. . .

I hope you feel comfortable venting in this format; I wrote a
several-page long "venting" post to some other Alzheimer's groups a few
weeks ago; that helped me a lot, just to get stuff off my chest.

Meantime, find your lie. I know that sounds weird, but find it and just
go along with her delusions and the like; it will be a lot easier than
fighting and correcting, and easier than trying to explain that she's
already been there. IF you have photos of the trip, you might try
showing them to her and explain *then* that she has already been there.
IF, however, this does nothing but confuse her more, put the photos away
and go back to lying that your mom is coming to see her very soon.

Wishing you the very best,

Feather

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I want to say thank you to Don and to Feather for the advice. I am
going to try this new approach, and try to keep a positive attitude,
and keep my fingers crossed. Thank you so much .
Also, I want to thank "pjb12345uk also. I too believe in the power of
prayer. Thank's to all.
Angela

angela147g wrote:

>I want to say thank you to Don and to Feather for the advice. I am
>going to try this new approach, and try to keep a positive attitude,
>and keep my fingers crossed. Thank you so much .
>Also, I want to thank "pjb12345uk also. I too believe in the power of
>prayer. Thank's to all.
>Angela
>
>
>

Angela,

It's hard to gain perspective, especially when the person is close to
you. *sigh*

I appreciate your dilemma so much. . .and have often wondered how it is
that I am so deeply entrenched in the care of my neighbor. . .she came
to me last year and that's when I was hired. It's taken a lot of reading
(The 36-Hour Day comes to mind, along with Lenore Rowland's book called
Alzheimer's). There's a lot of good material out there that has helped
me tremendously in dealing with my client.

When she says over and over again that she wants to go home, I've told
her everything from "Your friends are working on it," to "You ARE home."
Some days one works, some days, the other. What she is really looking
for, however, is a sense of familiarity; a time when everything made
sense and she was feeling more useful.

It's a tough row to hoe. . .and yes prayer is very important.

God bless,

Feather

This is not a prayer group.  We are here to help each other deal with the devastating disease of Alzheimers.  I am the one who found your long and unrelated post a few weeks ago to be inappropriate for this website.  To call me rude and ignorant is so uncalled for.  I am a very educated and well rounded individual who visits this group to find some answers on how to deal with my 56 year old mom's disease.  If I were looking for a prayer group I would have found one.  I do not know if I am the only one that feels this way, but to push your religous feelings here is not appropriate.  Prayer is not going to make my mother better, I do believe in God and am Catholic, I am just not happy with him lately.

Cheryl

----- Original Message -----

From: cad721@...

To: alzheimers_support@yahoogroups.com

Sent: Sunday, August 07, 2005 9:19 PM

Subject: [alzheimers_support] To P

This is not a prayer group.  We are here to help each other deal with the devastating disease of Alzheimers.  I am the one who found your long and unrelated post a few weeks ago to be inappropriate for this website.  To call me rude and ignorant is so uncalled for.  I am a very educated and well rounded individual who visits this group to find some answers on how to deal with my 56 year old mom's disease.  If I were looking for a prayer group I would have found one.  I do not know if I am the only one that feels this way, but to push your religous feelings here is not appropriate.  Prayer is not going to make my mother better, I do believe in God and am Catholic, I am just not happy with him lately.

Cheryl

 

Prayer should be one of the most important things in your life. God created us and he will take us away. He does answer prayer, maybe not the way you want it answered but it does get answered. We should all be on our knees asking for peace for our dear ones.

That is the biggest downfall of the USA right now. This country was founded under GOD. Know one seems to remember that or they don't want to.

I praise the Lord everyday for getting me this far in life and I praise him for my Mother's long life. I ask him to comfort her in times of despair and I know that he does.

 

Sally in PA

----- Original Message -----

From: cad721@...

To: alzheimers_support@yahoogroups.com

Sent: Sunday, August 07, 2005 9:19 PM

Subject: [alzheimers_support] To P

This is not a prayer group.  We are here to help each other deal with the devastating disease of Alzheimers.  I am the one who found your long and unrelated post a few weeks ago to be inappropriate for this website.  To call me rude and ignorant is so uncalled for.  I am a very educated and well rounded individual who visits this group to find some answers on how to deal with my 56 year old mom's disease.  If I were looking for a prayer group I would have found one.  I do not know if I am the only one that feels this way, but to push your religous feelings here is not appropriate.  Prayer is not going to make my mother better, I do believe in God and am Catholic, I am just not happy with him lately.

Cheryl