The Forgetting Web Site:  Amazing documentary on the disease, but the site is much more... 

         http://www.pbs.org/theforgetting/symptoms/index.html#brain

 

Alzheimer's Disease Education and Referral Center

http://www.alzheimers.org/

 

Alzheimer's Association Main Site

http://www.alz.org/

 

Find your local Alz Association phone  m umber and web site  on www.alz.org 

These people have saved my neck more than once.  They can send you materials  -even a one time respite grant 

 

Lori 

lraymond@...

 

Good Morning:

Do you know the fair market value of your families life insurance
policy's? Whether your are a spouse or relative, you may find
yourself dealing with a life insurance policy owned by a family
member or family business, and this question will arise. Can you
provide the answer? You know the fair market value of your families
largest assets like real estate and financial holdings. Asset
valuation is a key component of financial planning and vital to
making informed decisions. If you don't know the fair market value of
your families life insurance policies, you should, and it may not be
the cash surrender value dictated by the insurance carrier.


In the past, family members had only one way to measure policy value,
the surrender value dictated by the policy carrier. All this has
changed; in the recent past, a secondary insurance market has evolved
because banks, hedge funds, and institutional funding companies have
seen the value and stability of purchasing life insurance policies.
As a result, family members can access the secondary insurance market
using an established system to perform insurance valuations. In many
cases, insurance valuations result in a fair market value 3 to 4
times the (cash) surrender value of the policy. Now family members
can have more favorable options than surrendering a policy, lapsing
coverage, or continuing on with burdensome premium payments.


Please understand that, as a financial advisor, my sole purpose in
bringing this to your attention is to inform you of all options
available to help your family meet their financial objectives. As a
financial advisor, I am committed to researching all options and
providing you with objective analysis, and I feel it is my
responsibility to share this information with you. Many families are
incorporating life settlements into their financial plans to add
value to their relationships and fulfill their fiduciary duty to
explore all viable life insurance options. To review recent completed
Life Settlement cases, please a blank emailto:<a
href="cash4lifesettlements@..."</a> and receive information
promptly.


You may be asking why a policy holder would want to sell a life
insurance policy. Because circumstances change and the original need
for the insurance may no longer exist. During the economic growth in
the late 1990's, many persons saw their net worth increase
substantially. In order to provide sufficient cash to their heirs to
pay estate taxes, many individuals purchased life insurance in
amounts sufficient to cover the tax liability. However, because of
the economic downturn in 2000-2002 where many individuals saw their
net worth shrink, and because of the expansion of the estate tax
exemptions in 2001, many of these individuals no longer have large
estate tax liability. In such cases, annual premiums may present a
substantial burden. According to experts in the Life Settlement
industry, a large percentage of those individuals who choose Life
Settlements use the proceeds from the transactions to purchase more
cost effective insurance products suitable to their changing life
circumstances.


Please contact me with any questions you have or any ideas that you
would like to discuss that may work for your family. I look forward
to working with you and expect to hear from you soon.


Thanks sincerely,

Roy McCallop, Financial Advisor
The Annuity Group  mailto:<a href="theannuitygroup@..."</a>
Tel: 816 229 4900 Fax: 978 709 6422


P.S. If you believe a Life Settlement may be appropriate for your
family at this time, I would be happy to discuss with you or your
relatives your estate plans and their financial objectives. For more
information please send a blank email to:<a
href="cash4lifesettlements@..."</a> and review examples of
recent completed Life Settlement cases.


P.P.S. Please bookmark this email under Life Settlements. Thank you.

Some folks do not care about companies tracking your web activity, but for those who do, please note.....

Yahoo is now using something called "Web Beacons" to track
Yahoo Group users around the net and see what you're doing and where
you are going - similar to cookies. Yahoo is recording every website
and every group you visit.
Take a look at their updated privacy statement:

<http://privacy.yahoo.com/privacy> http://privacy.yahoo.com/privacy

About half-way down the page, in the section on cookies,
you will see a link that says web beacons. Click on the phrase
web beacons.
That will bring you to a paragraph entitled "Outside the Yahoo
Network."
In this section you'll see a little "click here to opt out"
link that will let you "opt-out" of their new method of snooping.

Once you have clicked that link, you are exempted.

Notice the "Success" message on the top of the next page.
Be careful because on that page there is a "Cancel Opt-out"
button that,
if clicked, will *undo** the opt-out.

Feel free to forward this to other groups.

see also, http://privacy.yahoo.com/privacy/us

Once you have clicked that link, you are exempted.

Feel free to forward this to other groups.
- Lori

To: All Group Members
From: Group Founder

As Founder of this group and the Global Health Network's -
International Center for Disease Support, I am proud to announce that
the GHN website has been updated with new features that I hope will
be of benefit and enjoyment for you all.

Please take a minute to visit our site at:

http://www.globalhealthnetwork.org

Please feel free to post a message on our bulletin board and our
guestbook.  Also, I would like to encourage you to begin using our
chatroom to share with other members of the GHN community.

This message is being sent to 21,000+ members of the GHN support
community.

Please share our website with others you feel could use our support.

Also, I do know that there is still a little work that needs to be
done.  The Market Center is not up and running and I am working on
it.

I would love to hear your comments, ideas and even complaints about
the new site.

David Hughes

Hello Group,
I have historically been pretty quiet on this site.  However, I now
face a situation and would like some suggestions.

First - A Nursing Home/Care Facility is out of the question - please
don't suggest it.

We are a military family.  We have been caring for my mother who has
Alzheimer's for a little over 10 years now.  We also now have orders
for a Military Transfer.  (It was supposed to have happened in Oct
2004 - but the military has been trying to prove that no one can
SNAFU things as well as the military can!)

Anyway, Mom is now at the point (Stage 6 - 7) where she is refusing
to eat any food with any disernable texture to it.  If there is
texture to it, she is spitting it out, or spitting it up (generally
with quite a bit of mucus) and is either wiping everywhere, or
spitting on the floor.  She also is tending to sometimes choke on
liquids.  She is getting quite dehydrated as well.  She and I had
discussed whether or not to gavage and IV her in the late stages,
and on the one hand, she doesn't want to starve to death - but on
the other hand, in reading the side effects of gavage and IV's we
pretty much decided to not go that route.

Of course, our military move will have us on the road for a good 3-4
days (driving) then living 'who knows where' until we find a house.
(We are trying to avoid the military housing alternatives because we
have pets, and a tight financial situation.)

Anyway - does anyone have any good, suggestions on doing a large
move/long road trip with a loved one with Late Stage AD?

Thank you,
Dawn

----- Original Message -----

From: sogerd

To: alzheimers_support@yahoogroups.com

Sent: Sunday, January 09, 2005 12:54 PM

Subject: [alzheimers_support] A Question/Situation

Hello Group,
I have historically been pretty quiet on this site.  However, I now
face a situation and would like some suggestions.

First - A Nursing Home/Care Facility is out of the question - please
don't suggest it.

We are a military family.  We have been caring for my mother who has
Alzheimer's for a little over 10 years now.  We also now have orders
for a Military Transfer.  (It was supposed to have happened in Oct
2004 - but the military has been trying to prove that no one can
SNAFU things as well as the military can!)

Anyway, Mom is now at the point (Stage 6 - 7) where she is refusing
to eat any food with any disernable texture to it.  If there is
texture to it, she is spitting it out, or spitting it up (generally
with quite a bit of mucus) and is either wiping everywhere, or
spitting on the floor.  She also is tending to sometimes choke on
liquids.  She is getting quite dehydrated as well.  She and I had
discussed whether or not to gavage and IV her in the late stages,
and on the one hand, she doesn't want to starve to death - but on
the other hand, in reading the side effects of gavage and IV's we
pretty much decided to not go that route.

Of course, our military move will have us on the road for a good 3-4
days (driving) then living 'who knows where' until we find a house. 
(We are trying to avoid the military housing alternatives because we
have pets, and a tight financial situation.)

Anyway - does anyone have any good, suggestions on doing a large
move/long road trip with a loved one with Late Stage AD?

Thank you,
Dawn

dear dawn
sweetie you are in a tough situtation and im glad a
nursing home is out of the question.how about you or a
TRUSTED family member stay where you are untill your
hubby or someone can find a place then maybe fly your
mother there.i know my mother refused to fly but maybe
if you try explaining to her how much you love her and
dont want to leave her she will go.i dont know much
about you or your situation because after my mother
passed away i quit reading articles from
alzhiemers.unfortunatly i didnt find the site to
alzhiemers until after my mother passed away and knew
nothing about the diease.but what ever you do do not
put her in a nursing home.thats what killed my mother
was abuse and neglet.i sued them but it didnt bring
mom home.i hope god finds a salution to your
problem.if i could stay with her until you could get
everything done i would.my heart goes out to you.god
bless you and good luck
--- sogerd <sogerd@...> wrote:

>
> Hello Group,
> I have historically been pretty quiet on this site.
> However, I now
> face a situation and would like some suggestions.
>
> First - A Nursing Home/Care Facility is out of the
> question - please
> don't suggest it.
>
> We are a military family.  We have been caring for
> my mother who has
> Alzheimer's for a little over 10 years now.  We also
> now have orders
> for a Military Transfer.  (It was supposed to have
> happened in Oct
> 2004 - but the military has been trying to prove
> that no one can
> SNAFU things as well as the military can!)
>
> Anyway, Mom is now at the point (Stage 6 - 7) where
> she is refusing
> to eat any food with any disernable texture to it.
> If there is
> texture to it, she is spitting it out, or spitting
> it up (generally
> with quite a bit of mucus) and is either wiping
> everywhere, or
> spitting on the floor.  She also is tending to
> sometimes choke on
> liquids.  She is getting quite dehydrated as well.
> She and I had
> discussed whether or not to gavage and IV her in the
> late stages,
> and on the one hand, she doesn't want to starve to
> death - but on
> the other hand, in reading the side effects of
> gavage and IV's we
> pretty much decided to not go that route.
>
> Of course, our military move will have us on the
> road for a good 3-4
> days (driving) then living 'who knows where' until
> we find a house.
> (We are trying to avoid the military housing
> alternatives because we
> have pets, and a tight financial situation.)
>
> Anyway - does anyone have any good, suggestions on
> doing a large
> move/long road trip with a loved one with Late Stage
> AD?
>
> Thank you,
> Dawn
>
>
>
>

I'm becoming a Personal Support Worker, and I was wondering how to
deal with a AD client. Thank You

i hope you have a big soft heart and a lot of
understanding. i hope you dont get upset easily and i
pray you are not afraid to cry. good luck and god
bless you
--- pswontario <jgrof1@...> wrote:

>
>
> I'm becoming a Personal Support Worker, and I was
> wondering how to
> deal with a AD client. Thank You
>
>
>
>
>
>
>

----- Original Message -----

From: pswontario

To: alzheimers_support@yahoogroups.com

Sent: Sunday, January 09, 2005 10:41 PM

Subject: [Alzheimer's_support] Information

I'm becoming a Personal Support Worker, and I was wondering how to
deal with a AD client. Thank You

pswontario wrote:

>
>
> I'm becoming a Personal Support Worker, and I was wondering how to
> deal with a AD client. Thank You
>

So many variables to consider, it's best to maintain a strong sense of
humor in the face of *every* situation you will encounter with your new
charge.

I would strongly suggest going to some Adult Day Care programs in your
area for Alzheimer's patients and watch how the staff there interact
with them. Also, find an Alzheimer's Resource Library (usually in the
center where the day programs are), and check out several books for
caregivers on the subject of Alzheimer's.

One of the things to remember is that family historical anecdotes can be
extremely helpful in dealing with your new client. They know what the
personality of the person was like *before* the disease and can help you
with certain quirks, which might be very difficult to separate from the
disease itself.

My own client, an early-onset case, has family members who have been
very helpful to me in learning about her life before the disease. It
helps to know, because you might discover some things your client might
still enjoy, provided he or she hasn't progressed too far into the disease.

A personal care worker like yourself, would be advised to make
*everything* you do with him or her, a game. Seriously. If you smile and
gently encourage rather than push, of course, you'll get farther.

Again, so many variables to consider, like when the patient repeats
phrases or questions over and over again. If they are questions like
"What are we doing?" then very calmly and simply explain, "We are going
to eat now," or, "We are going to shower now," or "We are going out
now," will help. If they are asking questions like, "Can I go home?",
chances are that they are confused about their current surroundings,
even if they have lived in the same surroundings for most of their
lives. What you can do is gently tell the person, perhaps with a soft
arm around their shoulders without pressure, that you are "taking care
of them."

Many Alzheimer's patients seem to calm down after having their needs
assured in this manner. I've read this and put it into practice and it
amazes me how it helps my client.

If you have any further, more specific questions, please don't hesitate
to ask; there are several other people here who have had by far more
experience than I in this arena.

God bless,

Feather

Hi!

Good suggestions so far!  Also, might I add, that if you have met 1 person
with Alzheimers -- keep in mind that you have seen 1 instance of Alzheimers.
Each person is _different_ -- though they may all go through similar
experiences.  Some may have behaviors that are simply unique to them, and
some may be 'text book examples'.

Another thing I would suggest, is that you become very knowledgeable about
the "7 Stages of Alzheimer's".  Read up on things like incontinence, and
about falls, and fall prevention.  Learn as much as you can about the
progression of Alzheimers.  In the later stages, they can suddenly become
very weak, lose their balance, suddenly drop, squat or 'pitch off to the
side'.  They can get very dependent (like a baby) then do a sudden
switcheroo, and take off with their walker very dependently --- then do a
nose dive over the top of their walker.

Learn about skin breakdowns - bedsores, skin tears and how to recognize
them - as well as how to treat them.

Be _very_ careful about filing complaints against the Primary Caregivers on
neglect/abuse charges.  Does neglect/abuse seem to 'fit' the personality (or
personalities) of the primary caregivers?  They may be totally stressed out,
if they haven't had a respite break for many months - or even years.  Keep
in mind - just because they are under a lot of stress -- it doesn't mean
they are going to hurt - or have hurt their loved one.

Find out how the Primary Caregivers feel about their roles -- if they are
determined to care for their loved one at home, don't try to push a "Care
Facility Agenda" -- especially if you aren't familiar with the Primary
Caregivers background.  (I'm a pre-med senior, and have been a Home Health
Aide, and cared for my father until his death, cared for my mother through
the better part of 2 bouts of cancer, and been trained as an EMT. Among
other things in the health care/medical field.)

Another good resource is www.theribbon.com they have some good articles,
poems written by caregivers, poems written by AD patients, etc.  It is a
wonderful resource.

I hope this helps!
Dawn

----- Original Message -----
From: <alzheimers_support@yahoogroups.com>
To: <alzheimers_support@yahoogroups.com>
Sent: Tuesday, January 11, 2005 5:19 PM
Subject: [alzheimers_support] Digest Number 344


>
>       1. Information
>            From: "pswontario" <jgrof1@...>

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Index     Msg #









hi everyone. I wonder if anyone out there may have had this same
problem as I have. I care for my 84 year old aunt who has Alzheimers.
She is doing pretty well since she's been on Namanda for the last 6
mons or so. I guess you can say she is stable, as far as her memory
goes,or at least she hasn't gotten too much worse in the last 6
months.
There are a few problems , ( ofcourse). This one, I would like to
know if anyone has any suggestions. It has to do with when she goes
to the bathroom. I try to give her as much independence,( and
privacy) as I can. So when she goes to the bathroom, I cant always be
right there, since she does want her privacy too. But, if I am
nearby, ( and I try to stay nearby without it being obvious) I know
she does NOT wash her hands when she is finished. If I am there, and
she happens to leave the door open, I will remind her to wash her
hands, and depending on her mood, she will usually go back and wash.
But, there are times when she keeps the door closed and I know she
did not wash( there are a number of ways that I can tell) I dont
want to upset her by telling her that I know she didnt wash and to go
back. If I ask her at those times she will say "Yes, ofcourse I
washed) but she did not.
Anyone have a simular situation or have any suggestions?
I guess to some people it might seem trivial, but to me, I think its
very important. I try to show example, but its not reconized or
rememberered. I know its part of the disease, but I thought i'd ask
anyway, thinking that maybe someone out there might have had the same
problem and dealt with it in a certian way and might be able to
share.
Thank you all very much for any suggestions.
Thank you
Angie

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  Message 1075 of 1078  |  Previous | Next  [ Up Thread ]  Message
Index     Msg #   









hi everyone. I wonder if anyone out there may have had this same
problem as I have. I care for my 84 year old aunt who has Alzheimers.
She is doing pretty well since she's been on Namanda for the last 6
mons or so. I guess you can say she is stable, as far as her memory
goes,or at least she hasn't gotten too much worse in the last 6
months.
There are a few problems , ( ofcourse). This one, I would like to
know if anyone has any suggestions. It has to do with when she goes
to the bathroom. I try to give her as much independence,( and
privacy) as I can. So when she goes to the bathroom, I cant always be
right there, since she does want her privacy too. But, if I am
nearby, ( and I try to stay nearby without it being obvious) I know
she does NOT wash her hands when she is finished. If I am there, and
she happens to leave the door open, I will remind her to wash her
hands, and depending on her mood, she will usually go back and wash.
But, there are times when she keeps the door closed and I know she
did not wash( there are a number of ways that I can tell) I dont
want to upset her by telling her that I know she didnt wash and to go
back. If I ask her at those times she will say "Yes, ofcourse I
washed) but she did not.
Anyone have a simular situation or have any suggestions?
I guess to some people it might seem trivial, but to me, I think its
very important. I try to show example, but its not reconized or
rememberered. I know its part of the disease, but I thought i'd ask
anyway, thinking that maybe someone out there might have had the same
problem and dealt with it in a certian way and might be able to
share.
Thank you all very much for any suggestions.
Thank you
Angie










  

Angie,  This is just an idea and what we do with my MIL who is in an
ALF.  I have a tub (Walmart brand) of hand wipes out on the sink-and
just grab one and wipe her hands.  She no longer comprehends verbal
directions and physically resists being forced to put her hands under
running water.  Usually, but not always if I start-she will finish.
At any rate-quit arguing with her about whether she did or didn't.  No
comment, just do it or at least start-answering her if she asks.  Over
and done.  What you will find is that she honestly thinks she did wash
them-and the angst your pointing out provokes is what she
remembers-not the details.  Now brushing teeth is a whole 'nuther
issue.....

If you have to move towards adult diaper use-the pull-ups are great
and you just offer them instead of the usual without comment.  I had
no problems at all-she really didn't remember anything different.  It
depends on what's working....

Beth

From: angela147g

To: alzheimers_support@yahoogroups.com

Sent: Tuesday, January 18, 2005 1:46 PM

Subject: [alzheimers_support] Important to wash hands!

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  Message 1075 of 1078  |  Previous | Next  [ Up Thread ]  Message
Index     Msg #   









hi everyone. I wonder if anyone out there may have had this same
problem as I have. I care for my 84 year old aunt who has Alzheimers.
She is doing pretty well since she's been on Namanda for the last 6
mons or so. I guess you can say she is stable, as far as her memory
goes,or at least she hasn't gotten too much worse in the last 6
months.
There are a few problems , ( ofcourse). This one, I would like to
know if anyone has any suggestions. It has to do with when she goes
to the bathroom. I try to give her as much independence,( and
privacy) as I can. So when she goes to the bathroom, I cant always be
right there, since she does want her privacy too. But, if I am
nearby, ( and I try to stay nearby without it being obvious) I know
she does NOT wash her hands when she is finished. If I am there, and
she happens to leave the door open, I will remind her to wash her
hands, and depending on her mood, she will usually go back and wash.
But, there are times when she keeps the door closed and I know she
did not wash( there are a number of ways that I can tell) I dont
want to upset her by telling her that I know she didnt wash and to go
back. If I ask her at those times she will say "Yes, ofcourse I
washed) but she did not.
Anyone have a simular situation or have any suggestions?
I guess to some people it might seem trivial, but to me, I think its
very important. I try to show example, but its not reconized or
rememberered. I know its part of the disease, but I thought i'd ask
anyway, thinking that maybe someone out there might have had the same
problem and dealt with it in a certian way and might be able to
share.
Thank you all very much for any suggestions.
Thank you
Angie










  

----- Original Message -----

From: Koolsmom

To: alzheimers_support@yahoogroups.com

Sent: Tuesday, January 18, 2005 3:09 PM

Subject: [alzheimers_support] Re: Important to wash hands!

Angie,  This is just an idea and what we do with my MIL who is in an
ALF.  I have a tub (Walmart brand) of hand wipes out on the sink-and
just grab one and wipe her hands.  She no longer comprehends verbal
directions and physically resists being forced to put her hands under
running water.  Usually, but not always if I start-she will finish.
At any rate-quit arguing with her about whether she did or didn't.  No
comment, just do it or at least start-answering her if she asks.  Over
and done.  What you will find is that she honestly thinks she did wash
them-and the angst your pointing out provokes is what she
remembers-not the details.  Now brushing teeth is a whole 'nuther
issue.....

If you have to move towards adult diaper use-the pull-ups are great
and you just offer them instead of the usual without comment.  I had
no problems at all-she really didn't remember anything different.  It
depends on what's working....

Beth

----- Original Message -----

From: MRomaniec@...

To: alzheimers_support@yahoogroups.com

Sent: Tuesday, January 18, 2005 8:01 PM

Subject: [alzheimers_support] Mementine

Anyone having side effects from Mementine with their loved one?  My father in law has become irritable and wakes up more through the night. 

 

Mary

----- Original Message -----

From: Suziek

To: alzheimers_support@yahoogroups.com

Sent: Wednesday, January 19, 2005 11:56 AM

Subject: Re: [alzheimers_support] Mementine

My mother cries alot, but she is eating better, gained weight and is more vocal.   Sue

----- Original Message -----

From: MRomaniec@...

To: alzheimers_support@yahoogroups.com

Sent: Tuesday, January 18, 2005 8:01 PM

Subject: [alzheimers_support] Mementine

Anyone having side effects from Mementine with their loved one?  My father in law has become irritable and wakes up more through the night. 

 

Mary

Hello all,

I am a lurker wose mother has AZ, (never diagnosed really though the
nuerologists say Dymentia)  my grandmother also died of AZ and also had early
onset.  She is in middle stages.  Still knows immediate family, is having
trouble dressing herself and bathing is a fight.  My father is the caretaker. 
My mother is 56 years old.  SHe has been sick for about 5 years now with the
last year or two being much worse.  I think I worry more about my father than I
do my mother .  He is 52 years old and retired after 30 years of detective work
to take care of my mother.  He is currently looking for a day time companion for
the home to help him and get a few hours break each day...

My question is about the drug you mentioned: Mementine

I know my mother takes Aricept and Namenda (sp?)  but I have not heard of
Mementine.  ANy info on the drug would be great.

Thanks,
Cheryl
----- Original Message -----
From: alzheimers_support@yahoogroups.com
Date: Friday, January 21, 2005 8:16 pm
Subject: [alzheimers_support] Digest Number 350

>
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> There are 2 messages in this issue.
>
> Topics in this digest:
>
>      1. Re: Mementine
>           From: "Suziek" <suziek@...>
>      2. Re: Mementine
>           From: "Telitha" <telitha@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
>   Date: Wed, 19 Jan 2005 12:56:07 -0500
>   From: "Suziek" <suziek@...>
> Subject: Re: Mementine
>
> My mother cries alot, but she is eating better, gained weight and
> is more vocal.   Sue
>  ----- Original Message -----
>  From: MRomaniec@...
>  To: alzheimers_support@yahoogroups.com
>  Sent: Tuesday, January 18, 2005 8:01 PM
>  Subject: [alzheimers_support] Mementine
>
>
>  Anyone having side effects from Mementine with their loved one?
> My father in law has become irritable and wakes up more through
> the night.
>
>  Mary
>
>
>
> [This message contained attachments]
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 2
>   Date: Fri, 21 Jan 2005 11:44:54 -0600
>   From: "Telitha" <telitha@...>
> Subject: Re: Mementine
>
> We put my Husband on it January 5, 2004. By March he could not
> walk and was bedridden by April. He was in a wheelchair and
> hospital bed by May and June.
>
> He has had Alzheimer's for 12 years now and it could have just
> been the advancing of the Alzheimer's but when we took him off of
> it his Alzheimer's has not advanced as fast.
>
> Earl is 70 years old and sleeps except to use the bathroom, go to
> the table in the wheelchair, and sometimes has Sundowners about 4
> PM.
>
> He can feed himself if it is mostly finger foods. He still knows
> when he needs to use the bathroom and cleans himself.
>
> He can not do anything else for himself.
> He has not dressed himself in about 2 years. Yet he still talks to
> us. He still knows us.
>
> He has a lot of Delusions and Hallucinations. He is taking
> Aricept.
>
> Forever Friends, Telitha
>  ----- Original Message -----
>  From: Suziek
>  To: alzheimers_support@yahoogroups.com
>  Sent: Wednesday, January 19, 2005 11:56 AM
>  Subject: Re: [alzheimers_support] Mementine
>
>
>  My mother cries alot, but she is eating better, gained weight
> and is more vocal.   Sue
>    ----- Original Message -----
>    From: MRomaniec@...
>    To: alzheimers_support@yahoogroups.com
>    Sent: Tuesday, January 18, 2005 8:01 PM
>    Subject: [alzheimers_support] Mementine
>
>
>    Anyone having side effects from Mementine with their loved
> one?  My father in law has become irritable and wakes up more
> through the night.
>
>    Mary
>
>
>
> -------------------------------------------------------------------
> -----------
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>
>    a.. To visit your group on the web, go to:
>    http://groups.yahoo.com/group/alzheimers_support/
>
>    b.. To unsubscribe from this group, send an email to:
>    alzheimers_support-unsubscribe@yahoogroups.com
>
>    c.. Your use of Yahoo! Groups is subject to the Yahoo! Terms
> of Service.
>
>
>
> [This message contained attachments]
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
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>
>
> -------------------------------------------------------------------
> -----
> Yahoo! Groups Links
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> -------------------------------------------------------------------
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----- Original Message -----

From: cad721@...

To: alzheimers_support@yahoogroups.com

Sent: Saturday, January 22, 2005 9:25 AM

Subject: Re: [alzheimers_support] Digest Number 350

Hello all,

I am a lurker wose mother has AZ, (never diagnosed really though the nuerologists say Dymentia)  my grandmother also died of AZ and also had early onset.  She is in middle stages.  Still knows immediate family, is having trouble dressing herself and bathing is a fight.  My father is the caretaker.  My mother is 56 years old.  SHe has been sick for about 5 years now with the last year or two being much worse.  I think I worry more about my father than I do my mother .  He is 52 years old and retired after 30 years of detective work to take care of my mother.  He is currently looking for a day time companion for the home to help him and get a few hours break each day...

My question is about the drug you mentioned: Mementine

I know my mother takes Aricept and Namenda (sp?)  but I have not heard of Mementine.  ANy info on the drug would be great.

Thanks,
Cheryl
----- Original Message -----
From: alzheimers_support@yahoogroups.com
Date: Friday, January 21, 2005 8:16 pm
Subject: [alzheimers_support] Digest Number 350

>
> ------------------------ Yahoo! Groups Sponsor --------------------
> ~-->
> Give the gift of life to a sick child.
> Support St. Jude Children's Research Hospital's 'Thanks & Giving.'
> http://us.click.yahoo.com/3iazvD/6WnJAA/xGEGAA/ozSolB/TM
> -------------------------------------------------------------------
> -~->
>
> There are 2 messages in this issue.
>
> Topics in this digest:
>
>      1. Re: Mementine
>           From: "Suziek" <suziek@...>
>      2. Re: Mementine
>           From: "Telitha" <telitha@...>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1        
>   Date: Wed, 19 Jan 2005 12:56:07 -0500
>   From: "Suziek" <suziek@...>
> Subject: Re: Mementine
>
> My mother cries alot, but she is eating better, gained weight and
> is more vocal.   Sue
>  ----- Original Message -----
>  From: MRomaniec@...
>  To: alzheimers_support@yahoogroups.com
>  Sent: Tuesday, January 18, 2005 8:01 PM
>  Subject: [alzheimers_support] Mementine
>
>
>  Anyone having side effects from Mementine with their loved one? 
> My father in law has become irritable and wakes up more through
> the night. 
>
>  Mary
>
>
>
> [This message contained attachments]
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 2        
>   Date: Fri, 21 Jan 2005 11:44:54 -0600
>   From: "Telitha" <telitha@...>
> Subject: Re: Mementine
>
> We put my Husband on it January 5, 2004. By March he could not
> walk and was bedridden by April. He was in a wheelchair and
> hospital bed by May and June.
>
> He has had Alzheimer's for 12 years now and it could have just
> been the advancing of the Alzheimer's but when we took him off of
> it his Alzheimer's has not advanced as fast.
>
> Earl is 70 years old and sleeps except to use the bathroom, go to
> the table in the wheelchair, and sometimes has Sundowners about 4
> PM.
>
> He can feed himself if it is mostly finger foods. He still knows
> when he needs to use the bathroom and cleans himself.
>
> He can not do anything else for himself.
> He has not dressed himself in about 2 years. Yet he still talks to
> us. He still knows us.
>
> He has a lot of Delusions and Hallucinations. He is taking
> Aricept.
>
> Forever Friends, Telitha
>  ----- Original Message -----
>  From: Suziek
>  To: alzheimers_support@yahoogroups.com
>  Sent: Wednesday, January 19, 2005 11:56 AM
>  Subject: Re: [alzheimers_support] Mementine
>
>
>  My mother cries alot, but she is eating better, gained weight
> and is more vocal.   Sue
>    ----- Original Message -----
>    From: MRomaniec@...
>    To: alzheimers_support@yahoogroups.com
>    Sent: Tuesday, January 18, 2005 8:01 PM
>    Subject: [alzheimers_support] Mementine
>
>
>    Anyone having side effects from Mementine with their loved
> one?  My father in law has become irritable and wakes up more
> through the night. 
>
>    Mary
>
>
>
> -------------------------------------------------------------------
> -----------
>  Yahoo! Groups Links
>
>    a.. To visit your group on the web, go to:
>    http://groups.yahoo.com/group/alzheimers_support/
>     
>    b.. To unsubscribe from this group, send an email to:
>    alzheimers_support-unsubscribe@yahoogroups.com
>     
>    c.. Your use of Yahoo! Groups is subject to the Yahoo! Terms
> of Service.
>
>
>
> [This message contained attachments]
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> -------------------------------------------------------------------
> -----
> Yahoo! Groups Links
>
>
>
>
> -------------------------------------------------------------------
> -----
>
>
>
>
>

Lyn,

Thank you for the link.  I checked out the website and I am going to call
timorrow to see if they have a caregiver in my area (Long Island, NY)

Is the service expensive??

Thanks,
Cheryl

----- Original Message -----
From: alzheimers_support@yahoogroups.com
Date: Sunday, January 23, 2005 4:54 pm
Subject: [alzheimers_support] Digest Number 352

>
> ------------------------ Yahoo! Groups Sponsor --------------------
> ~-->
> Give the gift of life to a sick child.
> Support St. Jude Children's Research Hospital's 'Thanks & Giving.'
> http://us.click.yahoo.com/3iazvD/6WnJAA/xGEGAA/ozSolB/TM
> -------------------------------------------------------------------
> -~->
>
> There is 1 message in this issue.
>
> Topics in this digest:
>
>      1. Re: Cheryl
>           From: LynP42@...
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
>   Date: Sun, 23 Jan 2005 09:19:39 EST
>   From: LynP42@...
> Subject: Re: Cheryl
>
> My dad is also caretaker for my mom.  He has a woman come in
> Monday,
> Wednesday and Friday from ten in the morning until two in the
> afternoon..  It really
> makes a difference, they need that.  He got this woman from
> Visiting Angels.  I
> don't know if they have an office near you but here's the link if
> you want to
> check it out:
>
> Click here: Visiting Angels - Senior Homecare | Assisted Living |
> Caregivers
> | Home Care | Non-Medical | Elder care | Respite
>
> Hope this helps and good luck!
>
> Lyn
>
>
> [This message contained attachments]
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> -------------------------------------------------------------------
> -----
> Yahoo! Groups Links
>
>
>
>
> -------------------------------------------------------------------
> -----
>
>
>
>
>

BR:  Ask your doctor if your dad is getting a large enough dose of the
Seroquel, or if Risperdal might give you a better result.  I know that when
my Mom was taking something to slow her down a bit, we tried both. Good luck
to you.

Lori

-----Original Message-----
From: alzheimers_support@yahoogroups.com
[mailto:alzheimers_support@yahoogroups.com]
Sent: Monday, January 24, 2005 8:40 PM
To: alzheimers_support@yahoogroups.com
Subject: [alzheimers_support] Digest Number 353




There are 2 messages in this issue.

Topics in this digest:

       1. Re: Digest Number 352
            From: cad721@...
       2. Restlessness
            From: Barbara Ruby <wowe2037@...>


________________________________________________________________________
________________________________________________________________________

Message: 1
    Date: Sun, 23 Jan 2005 19:30:42 -0500
    From: cad721@...
Subject: Re: Digest Number 352

Lyn,

Thank you for the link.  I checked out the website and I am going to call
timorrow to see if they have a caregiver in my area (Long Island, NY)

Is the service expensive??

Thanks,
Cheryl

----- Original Message -----
From: alzheimers_support@yahoogroups.com
Date: Sunday, January 23, 2005 4:54 pm
Subject: [alzheimers_support] Digest Number 352

>
> ------------------------ Yahoo! Groups Sponsor --------------------
> ~-->
> Give the gift of life to a sick child.
> Support St. Jude Children's Research Hospital's 'Thanks & Giving.'
> http://us.click.yahoo.com/3iazvD/6WnJAA/xGEGAA/ozSolB/TM
> -------------------------------------------------------------------
> -~->
>
> There is 1 message in this issue.
>
> Topics in this digest:
>
>      1. Re: Cheryl
>           From: LynP42@...
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
> Message: 1
>   Date: Sun, 23 Jan 2005 09:19:39 EST
>   From: LynP42@...
> Subject: Re: Cheryl
>
> My dad is also caretaker for my mom.  He has a woman come in
> Monday,
> Wednesday and Friday from ten in the morning until two in the
> afternoon..  It really
> makes a difference, they need that.  He got this woman from
> Visiting Angels.  I
> don't know if they have an office near you but here's the link if
> you want to
> check it out:
>
> Click here: Visiting Angels - Senior Homecare | Assisted Living |
> Caregivers
> | Home Care | Non-Medical | Elder care | Respite
>
> Hope this helps and good luck!
>
> Lyn
>
>
> [This message contained attachments]
>
>
>
> ________________________________________________________________________
> ________________________________________________________________________
>
>
>
> -------------------------------------------------------------------
> -----
> Yahoo! Groups Links
>
>
>
>
> -------------------------------------------------------------------
> -----
>
>
>
>
>



________________________________________________________________________
________________________________________________________________________

Message: 2
    Date: Sun, 23 Jan 2005 16:25:29 -0800 (PST)
    From: Barbara Ruby <wowe2037@...>
Subject: Restlessness

We are having a real problem with my dad's restlessness.  He is 77 years
old; was diagnosed 8 years ago; has been on Aricept for 8 years and is
currently on Exelon, Nemenda, Seraquell, and even Xanax when he's really
bad.  Dad lives in a rural area in Arkansas.  The closest services (Area
Agency on Aging) are about 40 miles away.  Even though he and my mom
divorced about 15 years ago, mom has moved into his home to be his
caretaker.  I live 1-1/2 hours away and work full time; but I go to his home
on the weekends to relieve my mom.

Dad has always been an extremely active person - a workaholic.  He hasn't
slowed down any at all, but is now unable to find things to do on his own,
and even when you point out things for him to do, he is not able to figure
out how to do them.  He requires constant supervision.

When he awakens in the morning, he will dress himself, then go to my mom's
room and wake her up and say, "Let's get going."  This may be at 2 a.m., or
any time after that.  She tells him that there is no place they need to go,
but he won't stop insisting that he wants to go somewhere.  He cannot tell
you any place he wants to go, but says he doesn't want to sit around all
day.  We have tried to find things to keep him busy at home, but he will
say, no, he doesn't want to do that, he wants to go somewhere.  He doesn't
sit down at all during the day, but is pacing, and getting right in front of
you saying Let's go.

We have tried to find outside help, but no one wants the job (he's too
aggravating to be around).  Even the caretakers from the Area on Aging won't
stay.  We put him in the hospital last week and the doctor said his is the
worst case of restlessness she has ever seen.  She tweaked his medicines,
but said the only way to get him to sit down would be to give him so much
medication that he would just be asleep all the time.  We don't want to do
that, but he is wearing all of us out.

does anyone else have this problem?  If so, how have you dealt with it?


BR




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We are having a real problem with my dad's restlessness.  He is 77 years old; was diagnosed 8 years ago; has been on Aricept for 8 years and is currently on Exelon, Nemenda, Seraquell, and even Xanax when he's really bad.  Dad lives in a rural area in Arkansas.  The closest services (Area Agency on Aging) are about 40 miles away.  Even though he and my mom divorced about 15 years ago, mom has moved into his home to be his caretaker.  I live 1-1/2 hours away and work full time; but I go to his home on the weekends to relieve my mom.

 

Dad has always been an extremely active person - a workaholic.  He hasn't slowed down any at all, but is now unable to find things to do on his own, and even when you point out things for him to do, he is not able to figure out how to do them.  He requires constant supervision. 

 

When he awakens in the morning, he will dress himself, then go to my mom's room and wake her up and say, "Let's get going."  This may be at 2 a.m., or any time after that.  She tells him that there is no place they need to go, but he won't stop insisting that he wants to go somewhere.  He cannot tell you any place he wants to go, but says he doesn't want to sit around all day.  We have tried to find things to keep him busy at home, but he will say, no, he doesn't want to do that, he wants to go somewhere.  He doesn't sit down at all during the day, but is pacing, and getting right in front of you saying Let's go. 

 

We have tried to find outside help, but no one wants the job (he's too aggravating to be around).  Even the caretakers from the Area on Aging won't stay.  We put him in the hospital last week and the doctor said his is the worst case of restlessness she has ever seen.  She tweaked his medicines, but said the only way to get him to sit down would be to give him so much medication that he would just be asleep all the time.  We don't want to do that, but he is wearing all of us out. 

 

does anyone else have this problem?  If so, how have you dealt with it?

 

BR

 

 

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Barbara,

 

Hi, I'm in Springfield, MO.  (I thought you might be in the same area.)  Grandma is 78 yrs old, also a pre-Alzheimers workaholic/socialite/busy-body.  She was diagnosed about 5 years ago and we have since discovered she obviously had it at least 2-3 years before she was diagnosed.  She also is very restless, but I don't think she is as restless as your Dad is.  She is up & down all night long.  Sometimes she says it's time to go to St Louis to get the dogs' prices cut, other times we need to go to Lebanon, Missouri to get bologna.  I recently got the idea to play this sounds of nature cd for her in her room...and it actually worked!  I played the rolling stream track over and over all night long.  Other times we have tried lying down with her in the bed.  We have also tried putting cartoon network on the tv, but that just distracts her while we get some rest.  She also relaxes quite a bit when we put in the Alzheimers video tape of a roaring fireplace and another of a fish tank.  We have also told her that we just got back from wherever she says we need to go at 2am and sometimes that works. 

 

I think you should try a relaxing cd.  The cd I have has many different tracks, from jungle noises to the ocean to birds chirping to rolling stream.  I just hit the repeat button so it plays over and over automatically.  Good luck!

 

Tina

Barbara Ruby <wowe2037@...> wrote:

We are having a real problem with my dad's restlessness.  He is 77 years old; was diagnosed 8 years ago; has been on Aricept for 8 years and is currently on Exelon, Nemenda, Seraquell, and even Xanax when he's really bad.  Dad lives in a rural area in Arkansas.  The closest services (Area Agency on Aging) are about 40 miles away.  Even though he and my mom divorced about 15 years ago, mom has moved into his home to be his caretaker.  I live 1-1/2 hours away and work full time; but I go to his home on the weekends to relieve my mom.

 

Dad has always been an extremely active person - a workaholic.  He hasn't slowed down any at all, but is now unable to find things to do on his own, and even when you point out things for him to do, he is not able to figure out how to do them.  He requires constant supervision. 

 

When he awakens in the morning, he will dress himself, then go to my mom's room and wake her up and say, "Let's get going."  This may be at 2 a.m., or any time after that.  She tells him that there is no place they need to go, but he won't stop insisting that he wants to go somewhere.  He cannot tell you any place he wants to go, but says he doesn't want to sit around all day.  We have tried to find things to keep him busy at home, but he will say, no, he doesn't want to do that, he wants to go somewhere.  He doesn't sit down at all during the day, but is pacing, and getting right in front of you saying Let's go. 

 

We have tried to find outside help, but no one wants the job (he's too aggravating to be around).  Even the caretakers from the Area on Aging won't stay.  We put him in the hospital last week and the doctor said his is the worst case of restlessness she has ever seen.  She tweaked his medicines, but said the only way to get him to sit down would be to give him so much medication that he would just be asleep all the time.  We don't want to do that, but he is wearing all of us out. 

 

does anyone else have this problem?  If so, how have you dealt with it?

 

BR

 

 

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