I have universalis as well ,officially it has not been diagnosed but its happening They call in non cicatricial non inflammatory Alopecia. I have been...
I was reading through the welcome packet that I just got through my new insurance and it says I can get up to $400 dollars a year with a physician's ...
Thanks for your response Carrie. I also have alopecia universalis but have only been dealing with it for a few months. Started seeing signs in Feb. but didn't...
I've researched them and they are kind of expensive. You should try to get them to make a claim for you and see if you can have insurance cover it. I went...
Jessica, I'd never heard of the Peggy Knight Brand of wigs but looked them up when I ready your reply. Have you researched them enough to find out about what...
Me too. I've always had thicker hair than my sis, but with the hair loss, her hair is thicker than mine. when I was little and the alopecia wasn't as bad I...
Jessica, that's funny, because that is exactly what my mother did to my sister back in Italy when she was born. They thought shaving it would make it thicker....
My sister had thinning hair when she was a baby... not alopecia. My parents just left it alone because babies sometimes had that. While my grandma was ...
Carm - Â Even with biopsies there is some guess work. Another doctor analyzes the biopsy and many times its not black/white. I had six of them until the derm...
Oh, did they not take a skin biopsy? He took a piece of my scalp and then stitched it up. They did say to me that I might have typical androgenic female hair...
Thanks again. Mine is regrowing within months. I do remember your thoughts about gluten, and I do feel like their is some weird connection to immune...
hi Carm -  I think that there is guess work involved with much of this within the medical community. Much they don't know. Yes this is a tough one. MPB is...
Hey Carm. The spots were probably about 3 years, but always progressive with no re-growth. I think I stopped having to shave entirely (anywhere!) in 3 1/2...
Interesting. What does MPB stand for? Mine showed just telogen effluvium, but I think he took them from bad spots. He should have taken them from the top of my...
Hi Carm - Â One said AA, another said slight inflamation with Telogen Efflivium and the third said MPB. all of them said that the hair follicals were...
DG that sounds so much like what I did J For me, once I lost it all [well I shaved the last few bits off] I could really face up to it - I bought my first...
Does anyone know what Non-cicatricial Non inflammatory Alopecia is? My skin biopsies came up with this? actually three out of the six biopsies did. One biopsy...
Thanks DG. How long did this cycle go on for you? I just feel like the long I have AA, the worse the prognosis for AT. The specialist never said this to me,...
hey Carm, Everything you've posted here indicates to me that you can cope with anything - small loss or big loss! I actually think losing hair in spots can be...
Thanks to all that responded to my question, and I'm still interested in hearing from others who got AA as an adult. Some of you have been dealing with this...
Have been using the shots for 14 years as well? Is yours hideable? I am not surprised that it stopped when you got pregnant. Your body works to protect the...
I didn’t really have diffuse thinning until my AA was very progressed. It was just patches until over ½ of it was gone. Then i started to notice that some...
my hair patched so many places it was easier to shave off,that regenereted full growth. now my eye brows are 80% off and spots on chest and arms. hair looks to...
Selina, you're not alone with feeling guilty about stressing and then getting told to stop stressing because it's making your hair fall out...the same thing...
What interesting responses. I hope I'm not intruding but can I ask, how many of you had diffuse thinning and did it turn into totalis or universalis? My son is...
A small patch fell out once every 10 years and always regrew. Then 13-20 years ago diffuse thinning with the biggest shift 13 years ago to totalis and now...
Pat, Thank you for normalizing my situation. I was really having issues with my situation. I felt almost guilty for having AA, especially when the doctor said...
Hey Carm, 3 years!! I stopped the shots as I'm too scared of the long term side effects plus although I was getting shots I still had loss. For example, I get...
I have been dealing with it for 26 years now. I was AU by age three, hair grew back by age 8. Spots ever since. Did shots at age 4 and hair started to grow...
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