... This is way off the mark. You are minimalizing or just not believing my account of our experience with dr. shapiro. He did not consider the patient at all....
Hi Sally, it sounds like this dr has the sort of attitude I experienced with my first [and last] derm. It may be their area of expertise but it sure doesn't...
The BEST dermatologist I ever went to said, "If there were a cure for alopecia, rest assured I would know about it" as he showed me a photo of his family...
Sally, I guess the lesson is to ask how much a doctor charges first. This might be a cheaper way to fight the disease.... It's called Prednisone Pulse. Using...
Apparently we all must endure the self rightous idiot doctors that are out there, I personally had alopecia for well over 20+ years before I even heard the...
thanks Donna. my daughter has taken so much prednisone throughout her life that my first thought when she started developing AA was that it was the prednisone...
... dorothy, your passion really comes through in this post. I wish that you've not felt this way for 35 years. I think to people with cancer it's easy to say...
I found you all after becoming quite terrified about my AA. I had AA in my 20s and my hair came back. It was very bad - big quarter size patches gone. Now...
Hi Dianne, welcome to the group. I know it's terrifying when our hair starts to disappear and we can become quite desperate. As you already know, there are no...
Hi Diane, My husband has AU, and I've used him as a guinea pig, trying everything, hoping that he would find the cure, and all the great people here would...
Donna, My 18 y o son has been treated very successfully with prednisone pulse therapy…at NYU. He is being treated by the Chair of the Department, an...
Sally, I want to confirm that Dr Shapiro charged $825 for his initial consult with you....the only treatment given was eyebrow injections for an additional...
Maribeth, Thank you for your private email to me. Sorry I didn't respond, but know that I very much appreciate the information and advice you gave me. When I...
... Maribeth, Dr. shapiro also informed us that if we chose the dpcp treatments, we would need to make an appointment with his associate, Dr. Jo-Anne Latkowski...
Yes, diane, I think most everyone has other autoimmune diseases, my husband has two others. What is LS? I've never heard of protopic, but I googled it and...
my daughter is highly opposed to onions in any form (she can smell them when the neighbor 4 houses away is cooking them. or so she claims). I told her about...
LS is Lichen schlerosis. Protopic that is used for skin things is real safe but they use it orally to stop the organs from rejecting. I have read the...
Found protopic in the article sent - it is under 11. other drugs. Protopic is Tacrolimus and is a topical immune suppression. They say in the article it may...
Heck yeah Sally, a trial using anything is a trial ~ and well worth it! Buy them green, they are more irritating. They were used as an anti-inflammatory agent...
No, can't find any studies on onion effect. And I guess it's important to remember that pineapple growers touch pineapple all day long, and cut themselves. If...
Maribeth, It's SO great of you to share this info again...I'm saving it, you'll see it pop up again and again... XOXO, ... AA, ... newly ... for ... ...
Hi. My name is ruth and i new to this group...i wish i could really attend a support group because my AA just took a turn for the worst. I am almost...
Hi Ruth, Welcome to the group. I would definitely encourage you to look for a support group in your area. It can only help. Some of us have had some growth...
has anyone here explored the candida/alopecia connection? Skin manifestations of biotin deficiency. Mock DM Department of Pediatrics, University of Iowa...
Yes, hubby took lots of biotin for months, and same with zinc, he doesn't take them now, no change. and there's no way he has candida. ... vitamin ... ...