This week-end we are going to have to shave off the little hair that Lilly has grown out on her crown. Locks of Love sent us a plastic form we need to fit on...
Hi Juli, I know how you feel but kids seem to deal with this disease sometimes alot better than the adults so if lilly is ok with it then just let it be until...
Juli--good luck tonight. I know how it hurts your heart to see your daughter go through this. My thoughts and prayers are with you and Lilly. Steph ... From:...
Hi, My son is 6 and is all bald, no body hair as well (about 2 years now). it gets hard at times. Remember to tell your child what she needs to live--her...
Juli- Oh how my heart breaks for you! My daughter told me one day, while trying to get her "gymnastics hair" just right- "I wish I was bald like you so I...
Juli - I can understand how your heart breaks to see your child go through this. I have posted this before - this poem helps me when my son Jared, is faced...
Hello, My name is Andrea and I am new here. I have had aa since 14. I had it moderately and then around 21 it got real bad to were I should have just got a wig...
It might help if on the day you have to shave her head to try and take her some where that would be fun or entertaining. When I was a kid and me and my...
Andrea, Yes, the Vitilgo, Hashimotos' and some digestive problems are all auto-immune diseases and in a round about way are related. On hte NAAF site, a lot...
Being strong is what you need to be but also remember it's okay to be sad some days. I didn' t get AA until I was an adult and the biggest thing that my mom...
You are very right! I will quit feeling down. When I told Lilly I would have to shave the little hair she has her response was, good, I like getting free...
Hi Andrea, My name is Sheila and I am a 43 year old busy mother of two young girls ages 6 and 9, and I have AU just since March. This is so hard for me. I...
Hello, I have used the anthralin for aa for many years before this breakout in patches and also the injections of cortisone, it is not a miracle fix but it...
Sheila, Locks of Love can give you a free wig after you complete an application--simple process. Real hair. Don't give up---You need to be strong for your...
Hi Andrea, Welcome to the site, I'm sure you get the support you're looking for here with us, where you'll meet new people and make friends too! Karen...
Chat Room You will then recieve a confirmation email and you need to open the email and confirm on the link provided Then the chatroom is located at ...
It's pretty obvious that not too many of you want to start a chat, to reach out and hear of others experiences. If you really wanted to too you would come...
I think it would be a good idea to talk to a professional about your daughter. I would not inhibit her ability to receive "special treatment". She must be a...
I think you are right and maybe some professional input would be good. Lilly loves the school psychologist and she has a private practice. I will look into...
Hi all. I haven't posted in a while, but I've been reading your posts whenever I get a chance. Work is crazy right now. I've been working 6 days a week and on...
Karen, I don't think the issue is that people don't want to but they don't have the time. A group is so much easier since you can read and input on your own...
I wish Yahoo provided the group with a chat room like we had a couple years ago. That was great! I loved it! I tried for a couple hours to get to the new...
Great to hear from you again, not so great about your hair starting to shed again. I had quite a lot of regrowth on top of my head but it's all going again...
We had our appointment with the dermatologist yesterday and since Lilly had spontaneous growth this summer we are going to try ultraviolet light. I signed her...
I did that also during the winter months and here they call it phototherapy where you stand in a booth for a minute and they bring it up every time you go,...
To all the new members of the site, I would like to welcome you all to this site and hope you find this site informative and helpfull. Please post your...
I was wandering if anyone has bought a wig off of ebay, I have been looking at them and I really need a new one, I wear the human hair with mesh cap. Just...
I am new here. I don't know what I have, but I have aggressive hair loss. When I get out of the shower the hair that continually comes out in globs is ...
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