Hello, My name is Cynthia and I am new to this group. I have been reading posts and they have been very useful in helping me understand this disease. I was...
Hello and welcome to the group Angell. Lots of us have been dealing with aa/at/au for a long time, others are newbies to the whole unpredictable situation....
I just did the mold for my 8yr old daughter. I rocked that cast so much I thought I was going to hurt her. But she was a trooper... So I know what you went...
Hello, I just wanted to say hello to all. I am new to this group. I am a 50 year old woman with a 17 year old son and have been AU for about 6 years now. I was...
I'm so glad you didn't have to go that route! Can you imagine fronting up at the ER with a little girl in a cast on her head? I'm sure they've seen some weird...
We did it at my friend's salon and I am so glad we did. It took us over an hour to get it off. Poor Lilly was in tears as we pulled, rocked and tugged. She...
Juli.omg!! I remember when I had my cast done - it was at a salon and even they had trouble getting it off, I hate to think how I would have coped doing it at...
They said it has a vacuum seal. I hope to never have to make another one of those casts. We were 5 minutes away from taking her to the ER and having it cut...
I think we all deal with this differently. For me I did the low ponytail thing for as long as I could, then went on to wearing a hat, then bought a wig. In...
What wigs do you currently wear and how do you attach? I'm asking as really long hair like you describe would put a lot of strain on the attachment. I'm ...
Hey Juli, let us know how the wig turns out for Lily. It's great that her sister as well as you donated your hair! How do Locks of love wigs attach? Is it with...
Hello everyone! An excellent article came out in yesterday's paper about Komfy Kids and I'm a Kid Foundation that I wanted to share with you! I have placed the...
Hi Deb, I've had AU for 13 years, and I'm now 58. I've worn a wig all this time and have gone through many different styles, models, brands. I currently wear...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the alopeciaareatasupportgroup group. File...
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Aug 27, 2006 12:11 am
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My Lilly (7) started asking about getting a wig so we applied for one through Locks of Love. The kit came this week and today we made the cast of her head....
... you ... Hi Karen, As you can see by now I am totally not computer savvy...I was looking up my name on the directory and need to correct the following: I am...
... you ... Hi Karen, I have tried to post a couple of times, but am not sure if I am doing this correctly. Is this right, the way I am supposed to post or...
Thanks for the advice guys. Not sure I have got the face for a demi moore cut!!!!! but it's a thought. My hair is quite long and is trying to grow back in the...
Hi it's different for everyone going through this. In some it itches and some it's sore, so it all depends. It's all apart of the disease and how it reacts...
... Without ... hair ... them ... awareness ... your ... I will definitely look into this and try to help out. However, I must confess that I don't have a car...
Another woman in the 30's! I'm 32... 33 in two months... I started wearing wigs at first... then got discouraged with the fit... and shaved! Boy the tears...
Thank you Karen! This group has been great for me already and i have only been diagnosed with AA for less than a month (its been 3 really, just took me a long...
Hey James: I am Jeff Woytovich, founder of the Children's Alopecia Project. Without going into all the gory details, my daughter Maddie has total body hair ...
Hi to all, I been a member for awhile but keep to my self. I have had Alopecia since I was 5 years old now I am 39. Now with all the new wigs out there I would...
I would like to welcome all the new members to this group and hope you find this site to be helpful and informative. Please post your concerns and someone...
... can ... that ... What ... Hi, I'm 43 and have just gone completely AU 4 months ago. I know, it was so hard for me, too...when my hair just kept falling,...
Hey.. I too am 38 and have had AA for about 7-8 months. Very frustrating..... My spot(s).. one was the size of my fist.. and it grewto about the size of my...
When I was 12 years old I wore a custom made wig which made me "easier on the eyes" as my Dad told me. But the wig of human hair and pre shrunken Swiss silk...
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