hello, ana shannon is right don't let alopecia rule your life, as far as going
to the beach wear a turban thats what i do and i have had alopecia for 20 years
and far as children go ahead if they get u will still love them, i have a 12
year son who somewhat has and its starting to grow back, i would have never
thought about having no children becuase of alopecia no way. so don't let this
beat u, go out and do u want and quit worrying about how to please everyone else
if u want to go to the beach u go and children u you want children go for it.
love is with u, take care. sherri--- In
alopeciaareatasupportgroup@yahoogroups.com, "Shannon Cox" <shannon@...> wrote:
>
> Hello Ana,
>
>
>
> I am sorry to hear of the difficulties you have had with your AA. I will
> tell you that it was at age 31 that I really began to accept myself for who
> I am and not let AA decide what I can or can't do. I no longer let it rule
> any part of my life. I am 34. So, who knows, maybe the next 3 years will
> be as happy and full of growth for you as they have been for me. I hope so.
>
>
>
>
> Regarding children, my father has AA. I am one of his eleven children (all
> of us from the same 2 parents) and I am the only one with any signs of AA.
> And I will tell you honestly, with all of my heart, that I have no remorse.
> I would not trade my father for anything in the world. What if he had
> decided not to have children for fear of passing on the AA? Where would I
> be? My 10 siblings are my best friends in the world, next to my husband.
> What would I do with out them? I am and will be forever grateful that my
> father did not let his AA be a factor in deciding whether or not to have
> children.
>
>
>
> For my own part, having children has been the most rewarding part of my
> existence. I am now the mother of 4 beautiful children. One is adopted and
> the other 3 (ages 7, 5, and 4months) have no signs of AA. I hope and pray
> that they never have to go through what I have with AA but no matter what,
> your children are going to have trials in this life. If it is not AA, it
> will be something else. I hope and believe that I am a stronger person
> because of what I have learned from my AA and I also think that I am a
> better mother and that my children will be able to benefit from what I have
> learned and how it has shaped my identity and my definition of beauty. In
> my opinion, my daughters are gorgeous. They are both tall and thin with
> long blonde hair, blue eyes, and lovely features. People often ask me if my
> oldest daughter is going to model. My girls know that they are beautiful
> but I do not focus on outer beauty with them. We constantly talk about how
> each person is different and I do not focus on the world's definition of
> "beauty". I want my girls to know (and my boys too) that they are beautiful
> because of who they are on the inside and I am working hard to help them
> develop those traits and talents that they have within themselves to become
> truly beautiful individuals.
>
>
>
> On another note, you might be interested to know that my father now has 60
> grandchildren and 6 great grandchildren. Two of the grandchildren have AA,
> but only tiny patches that nobody notices. But here is the CRAZY THING.
> One of the grandchildren is adopted and has absolutely NO BLOOD RELATION to
> my father. How strange is that? So, you never know. My sister didn't give
> birth and pass on the AA but her son has it anyway.
>
>
>
> This is all just my opinion. To me, motherhood is the most important thing
> I could be involved with and I love it. My life would feel so empty with
> out my children. Others feel very differently and maybe some could even
> think that I am wrong or selfish for having children when I have alopecia.
> But hey, my husband has flat feet and poor eyesight (he's had lasik surgery
> for that). And nobody told him not to have children! Haha. :-)
>
>
>
> Perhaps I have inherited AA from my father but if I have also inherited
> anything of his wisdom, spirituality, knowledge, talents, kindness, or love
> then it is all worth having the AA.
>
>
>
> I hope that as you reach out and start to feel less alone with this disease
> (I also suggest you join Alopecia World) then you will feel less ruled by
> it. You will be able to feel free. Whether or not you have children is a
> huge decision. I cannot tell you whether trying to become a mother is the
> right thing for you, but I do firmly believe that your AA should not play a
> role in your decision.
>
>
>
> Sincerely,
>
>
>
> Shannon
>
>
>
> P.S. There is a picture of me and my father on this site if you'd like to
> see it.
>
>
>
> _____
>
> From: alopeciaareatasupportgroup@yahoogroups.com
> [mailto:alopeciaareatasupportgroup@yahoogroups.com] On Behalf Of sofia_bio
> Sent: Friday, July 17, 2009 6:16 AM
> To: alopeciaareatasupportgroup@yahoogroups.com
> Subject: [Alopecia Areata Support Group] Possibility of having children with
> AA
>
>
>
>
>
> Hi,
>
> I am from Portugal and I have AA since I was 11. I am now 31 and I wear a
> wig since I was 13. I now deal well with the disease, although it prevents
> me from doing some things like going to the beach with my friends. I live
> with my boyfriend and I want to have children soon, but I am very afraid
> that they will have AA. I think that I just could not deal with it. By one
> side my boyfriend has had a depression last year, it was really very bad,
> and I am always afraid that it will happen again on a stressfull situation
> like that would be. By another way, I would blame myself for my children to
> have the disease, for not looking as cute as the other kids and for going
> through all the difficulties that I went, particularly in school where I was
> made fun by people who would notice that first I had some bald spots and
> then that I was wearing a wig. Also I think about myself, about how nowdays
> people don't notice anymore that I wear a wig, and that they would start
> noticing it when they looked at my children and that they would blame me and
> not want their kids to play with mine because they were afraid that they
> would "catch" the disease and feel sorry for my children and all that, you
> know?
>
> So, I don't know what to do and Iam very sad because I really want to have
> children. Can you tell me if you have AA and children, if they also have it?
> I think that the genetics of the disease is not well know, and so it is a
> matter of chance, but that we have a much higher probability to have
> children with the disease than "healthy" people, no?
>
> Thanks for your support,
>
> Ana
>
> U
>